Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Mamato2boys

Advanced Members
  • Content Count

    178
  • Joined

  • Last visited

About Mamato2boys

  • Rank
    Star Contributor

Recent Profile Visitors

3,474 profile views

  1. Relax. Ryan's poop sounds perfectly normal.

    Poop is what gets left over after your body has taken everything it can out of your food. His poop should be relatively consistent based on his diet (ie, meatloaf, carrots, potatoes and applesauce should produce similar kinds of poop every time he eats them), but it probably won't ever be "normal" consistency. This is okay. Ryan's body will always work slightly differently from everyone else - and his poop will change colour, smell, and consistency depending on lots of things (his diet, stress levels, his immune system, exercise, hormones, etc). It will probably take about 6 months from the last glutening for Ryan's intestines to completely heal, but this may not result in completely identical poops - if you think about it, you'll probably realise that your poops aren't completely consistent. . .you just never look at yours. Monitoring Ryan's poop is just a rule of thumb to make sure he's relatively healthy - generally there should be less coming out than there was going in. If you're worried, talk to his pediatrician the next time you're in, but so long as Ryan continues to gain weight in his age/height bracket and stays fairly healthy, there's no need to worry about the kinds of poops you are describing.

    (If it makes you feel better, I am completely gluten-free for six years, and my poops range approximately along the lines of what you describe for Ryan, and my team of docs has given me a completely clean bill of health.)

    I'm so used to closely scrutinizing what comes out of the kid that I've nominated myself "official poop patrol" lol. :lol:

    I always thought the yellow poops were a bad sign ?


  2. Poor Aiden has his first ear infection at the tender age of 4.5 months ! :( He was prescribed amoxicillin. I mentioned his dairy/gluten issues, and the pedi said he's never heard of amoxicillin causing a problem with either issue. Does anybody know anything as far as whether it will be ok for him given his issues ? I don't see that he has much choice - and the GS/medication realm is a new one for me.


  3. Hi there - I have a four month old son that I too am breastfeeding. I had read on here (and I believe on another website) that glutens do pass through breastmilk. I know that with my son glutens turn his poop orange, mucusy, watery, and he usually explodes out of his diaper.

    Like the pp said, dairy can be a major irritant for bf babies (I know it was for my older son and is for the baby), so you may want to try cutting that out first. It takes as long as 3 weeks to work out of your system, then another 3 weeks to work out of baby's, so you have to give it as long as 6 weeks before deciding whether or not dairy is an issue. For my son the response was much quicker - just 3 days. Whichever you decide to avoid (dairy and/or glutens), make sure you do one at a time so you'll know which it is ! :)


  4. It is also strange that some doctors see gluten intolerance and celiac as part of a continuum. That makes it sound like gluten intolerance is less severe than celiac, however, based on my past symptoms and other people's stories here, I don't think that is true. You can be just as sick with gluten intolerance and just as sensitive.

    My primary care doctor told me that gluten doesn't cause any type of damage. If you eat it you will get sick for a few days but there is no other consequence, I don't think that is true either.

    Do people develop lactose intolerance? Is that something that can just happen at any age?

    My oldest son, who's 3, carries 2 gluten sensitive genes and no celiac genes. By Enterolab's definition, that makes him more sensitive to gluten than someone who only carries one gene. He had "mild" malabsorption (he was just under 3 years old when I had him tested). So obviously gluten was affecting his intestines. Yet genetically he's not celiac. His symptoms were yellow, VERY foul-smelling, large-volume BMs. My symptoms were more subtle - hypoglycemia, bloating, weight gain, and for the past year - constipation. DH had bloating, chronic diarrhea, and severe acid reflux. By comparison, because my son is obviously much younger than us, his symptoms were actually much worse because of the early onset. I agree with you that rating it as a "continuum" kind of discounts how sick someone who is "only" sensitive can be.

    And yes, people can develop lactose intolerance.


  5. How 'bout if we just call this ALL Celiac, with intestinal damage just being one of the possible symptoms. I don't see that destroying my intestine is any more, or any less, important than destroying my brain or destroying my pancreas. I would like to keep all of them intact, thank you very much.

    :lol:

    I found this from Dr. Fine's website:

    What is the difference between celiac sprue and gluten sensitivity?

    Gluten sensitivity implies that a person's immune system is intolerant of gluten in the diet and is forming antibodies or displaying some other evidence of an inflammatory reaction. When these reactions cause small intestinal damage visible on a biopsy, the syndrome has been called celiac sprue, celiac disease, or gluten sensitive enteropathy. (Nontropical sprue and idiopathic steatorrhea are other terms that have been used for this disorder in the past.) The clinical definition of celiac sprue also usually requires that there is clinical and/or pathologic improvement following a gluten-free diet.

    In the past, celiac sprue could only be diagnosed after somebody developed certain symptoms like diarrhea, weight loss, or growth failure in children. A biopsy would be performed and if abnormal and typical of celiac sprue, and if a gluten free diet brought resolution of diarrhea, weight gain, or growth, only then would a diagnosis of celiac sprue be made. However, recent advances in diagnostic screening tests and application of these tests to people at heightened risk or to general populations have allowed detection of celiac sprue, sometimes even before damage to villi has occurred. This latter scenario is often called gluten sensitivity.

    Can I have gluten sensitivity if small intestinal biopsies are normal or only minimally abnormal?

    Although by definition a normal small bowel biopsy rules out celiac sprue, it does not rule out gluten sensitivity. Although asymptomatic people with gluten sensitivity may have normal or near-normal biopsies, so too may people with symptomatic gluten sensitivity. This has been reported in the medical literature (called "Gluten Sensitivity with minimal Enteropathy" or "Gluten-Sensitive Diarrhea without Celiac Disease". Furthermore, even though such people's intestine's appear normal under the microscope, up to one half already have nutrient malabsorption, a major contributor to osteoporosis and malnutrition, attesting to the fact that microscopic analysis of intestinal biopsies is an insensitive way of assessing function and immunologic food sensitivity. However, because there is still a virtually universal reliance on small bowel biopsies to diagnose gluten intolerance, most asymptomatic or symptomatic gluten sensitive people (based on screening tests) will not be diagnosed corectly or be instructed to follow a gluten-free diet even though symptoms may resolve completely.


  6. ditto

    celiac - sensitivity - intolerant .......... probably all related with celiac/DH being the worst as far as intestinal damage and neurological issues. But intolerance can sure wreck havoc on the rest of the body.

    Certainly one should NOT conclude that if one is not officially diagnosed celiac and is only sensitive/intolerant that one need only eat gluten "light". There are plenty of folks on this forum who get just as sick being intolerant (intolerant genes) as those with the celiac genes. But, there are also those who do not.

    As has been said, there needs to be more research and case studies. Although, I must say, this forum is a wealth of case studies, although not "scientific".

    Yup, that's how I was looking at it - that they're all related, but celiac being the "worst" because it implies intestinal damage, etc.

    I definitely agree that "only" being sensitive does NOT mean you can go gluten light. I know that all four of us most definitely react to glutens even though we're "only" GS.

    I was just curious because Enterolab kind of made it sound like (at least to me), that's how it worked - that it was a spectrum of sorts. But then I was confused about not having the celiac gene, because if it's a spectrum what does it matter if you carry the gene or not ? If you're GS and continue eating glutens on any level, then you're doing damage somewhere. Maybe that's the key - that celiac disease is specific to intestinal damage (right ?), and that being GS means damage elsewhere without villous atrophy. ???


  7. With Enterolab you cannot tell whether it's celiac or gluten sensitivity. Gluten intolerance can also be autoimmune. Gluten intolerance may be a stage before celiac or it may not. I don't know that any studies have been done on this, but common sense tells us that someone doesn't wake up one morning with full-blown celiac. Though I do think some people might not ever become celiac, yet do other damage to their body with the autoimmune reaction.

    Well, according to EnteroLab my son has genes for sensitivity, but no genes for celiac disease. I guess that's where I'm confused ? I took that to mean that while he shows a gene for gluten sensitivity and does have some malabsorption, he *probably* doesn't have celiac disease and we could avoid him getting it if we change his diet (which we have).

    I guess maybe it's not clear to anybody how it works - including doctors. That seems to be the case, anyway.


  8. Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

    Im dairy/soy/gluten free officially as of today

    That's a tall order, but not impossible. I myself am avoiding dairy, soy, glutens, and eggs. The simplest thing to do at first is to eat just basic, whole foods. Meats, veggies, fruits. Getting into the habit of reading labels (and decoding them) can be a little overwhelming at first.


  9. I'm still trying to wrap my little brain around this concept, lol. I understand that celiac disease is an autoimmune disorder. Does "only" having gluten sensitivity (as per Enterolab testing) fall under the autoimmune disorder list ? I'm under the impression that someone who is GS that continues to eat gluten could do enough damage that they could then get celiac disease (defined as villous atrophy, etc.), is that correct ? So in other words, being gluten sensitive is kind of a spectrum of celiac disease.

    Ultimately it doesn't really matter I suppose. One way or the other DH, the boys and I will have to avoid gluten for the rest of our lives, and I'm ok with that. We all feel so much better without it that I can't imagine going back, but I'm just curious how this works.


  10. The list of improvements that DH and I have been noticing seems to be growing longer and longer ! :D I'm just curious to find out what kind of things you've noticed since going gluten-free. Here's mine:

    ~ no more bloating - even my hands & feet are slimmer !

    ~ no more gas (well, very rarely anyway)

    ~ brain fog has lifted

    ~ energy has increased, despite getting up several times a night to breastfeed

    ~ weight loss without trying (and I need to lose weight)

    ~ hypoglycemia has just about disappeared

    ~ I don't feel an insatiable drive to eat, even if I've just eaten

    ~ acne is clearing up

    ~ I don't feel SICK after eating

    here's the one we just most recently noticed, and it's surprised us both: SEX is better !! :blink: I'm sure it's all part of having a little more energy and being less bloated, but I've noticed that I even think about sex more often...I thought having kids more or less destroyed my sex drive - but it hasn't ! ^_^

    here's DH's

    ~ foot pain has disappeared :blink:

    ~ less gas/bloating

    ~ weight loss

    ~ more energy

    ~ reflux has disappeared - this was the most significant one for him - he was on Zantac 180 every day, would sometimes take a third Zantac AND some Tums, and would STILL have severe reflux

    ~ chronic diarrhea has improved (this would probably go away totally if he would give up dairy, but he's stubborn, lol)

    ~ his face was always real red, and the color has returned to normal

    ~ he doesn't feel sick after eating


  11. You know, I've laughed out loud several times at some of the responses I've gotten here. I think my coworkers officially think I'm nuts now. :lol: It's great !!

    I honestly can say that I've never been to a website where I felt so understood and so welcomed - you guys are the BEST ! I also found it funny (and surprising) that so many of you are also into AP, breastfeeding and babywearing. :D It's great to have so much in common. Aiden (my youngest) will be four months old on the 29th and just LOVES to be swaddled. In fact if he wants to go to sleep and isn't swaddled he'll cry until I do it. :)

    Anyway, I digress....thanks so much (as always) for all the support ! I knew you guys would "get it."

    My thoughts exactly!

    So many great retorts already. I'd try them all, see which one sticks... okay, not the best idea... B)

    The SILs sound like they probably act like this about anything outside of what they consider normal. So don't take it personally. They'll move on to something/someone else when they get bored.

    What about the other family member with celiac? Do they have any tips on how to deal with the family? Maybe they can give everyone a piece of their mind.

    I think Ryan will turn out just fine. Remember being a kid? We all got teased for something. Nobody was exempt. It probably won't even be for food. He'll be the only kid eating good tasting, unprocessed food. He'll also be healthy, so he should be able to deal with it just fine.

    Hang in there, Mamato2boys!

    You know, I haven't thought to ask him (the other family member). I'll have to do that. He's a pretty blunt guy (which I just love), so I'm sure he'll have great input. You're right about my SIL's too. I think that overall they're wonderful, but a tad immature - and who isn't in their 20's ? Not that that excuses them being hurtful, but I think they just don't realize they're being hurtful because I haven't said anything.

    As far as Ryan goes, if nothing else, he's definitely going to have size on his side, lol. My husband is 6'4", I'm 5'8", and at Ryan's 3 year checkup he was 38" and 42 lbs. (off the chart in height, and 95th percentile for weight). :D Not that I condone bullying AT ALL, but maybe kids will think twice before teasing him. :lol: You are right though - EVERYONE gets teased for something while in school.


  12. "Well....we can't ALL be twinkie-eating lemmings!" :D

    "Don't worry, when you're older and incapacitated from eating junk, I'll pick you out a good nursing home and visit at least one a decade!"

    :lol:

    I like both of those. I know that you of all people know exactly what I'm talking about. The funny thing is, the one that told us yesterday that we were weird, fessed up in the next breath to "trying" the diet and said she "didn't feel any different" so she figures she isn't "allergic" to glutens. :huh:


  13. On top of that, I home schooled, too!!! Until I didn't have the energy for it anymore.

    If you didn't bathe for a week, the hippie thing might not be too subtle.

    That's wonderful about the homeschooling. I don't think I have the patience for that one - I definitely admire people that do, though.

    LOL ewwwww !!! I think my coworkers would probably protest to that one. :lol:


  14. Dress like a hippie next time you see them!

    LOL :lol:

    Probably too subtle for them. :D I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! :lol:

    Dress like a hippie next time you see them!

    No, laughing about it hasn't worked. As I mentioned, there was already an incredible amount of disrespect to me years before this ... I eventually had to have an extended, possibly permanent "cooling off period". I just don't think it's good for the kids to witness the ridicule

    Yeesh. That's awful. :(

    My SILs think they're being funny and I really don't get the sense that they're TRYING to be hurtful, but they are. :unsure: My husband thought I was being extreme too - until he tried the diet and almost IMMEDIATELY saw a huge difference in how he felt. Now he's on the bandwagon right with me. :)


  15. Me too, Our family always shunned us. They were really wild, us not so much and for some reason that offended them even though we never said a word about it. I was the first one with asthma in the extended family and because they couldnt smoke in my mom and dad's house they stopped coming to mine and my sister's birthday party. It made me feel horrible as a kid but as I grew up I realized I wasnt missing anything ;)

    Im sorry your going through it, I know how it feels.

    See, I just don't get that kind of attitude. I would think that people would be more like "hey - if you feel better, then more power to ya !" Maybe it's fear ? Maybe people are afraid of being "converted" - we're a bunch of brainwashers, ya know. <_<;)

    Any suggestions on a response to the "hippie" or "weird" comments ? I like being sarcastic and want to get the point across without being a b*tch about it.


  16. I thought this would be the perfect oppurtunity to tell all of you - with the Celiac gene, it has been renamed as "my" gene. (According to my mother-in-law) It is not the "Celiac gene" it is Laura's side of the family gene. :P

    Thank you for letting me get that off my chest! ;)

    Family can be the best or worst part of Celiac.

    L.

    Well, THAT'S friendly ! :blink::huh:

    So, are we all to blame you for our troubles, then ?? :lol:


  17. A while back I had posted about being frustrated because I wasn't losing weight, but was a tad nervous because I'm breastfeeding my three month old.

    Well, I'm happy to say the weight loss has begun ! I haven't restricted calorie intake or anything - the only things I'm restricting are soy, dairy, eggs, and glutens (all are known allergens in my older son). I eat whenever I'm hungry, stop when I'm full. I've been eating things like gluten-free brownies from Bob's Red Mill. I also eat lots of fruit, and am sure to eat good meals, too. This afternoon I had last night's leftovers - grilled chicken breast, risotto, and asparagus. I love that on so many levels I feel SO much better. I have more energy than I did with my first son, despite getting up as often as every 1 1/2 hours to nurse him. I'm tired of course, but not falling asleep at the wheel like before. I'm eating pretty much what I want and have lost 11 lbs - I'm just 4 pounds shy of where I was when we got married.

    Feeling better is all the reason I need to maintain the changes I've made. Losing weight is a bonus. Another thing I noticed is I had acne before changing how I ate. It was kind of subtle, but still there. That's cleared up a lot and seems to be continuing to get better - in fact it's almost totally gone. My hypoglycemia seems to pretty much be gone. My rings are too big now, for the first time in a few years.

    The only complaint I have is I recently bought a bunch of clothes that I really like - and pretty soon they're going to be too big ! :lol:


  18. :angry:

    I know a couple of you have mentioned before about family not being supportive in one way or another. I have two sisters in law, both in their twenties. They're both VERY aware of the GI issues our son Ryan has had for the majority of his three years on this earth. So when I finally sorted out (on my own, thanks to EnteroLab and no thanks to our GI) what was going on I was ecstatic. I thought our family would be too. We have another family member (related by marriage) who has celiac disease, so the concept isn't new. Anyway, my SIL's have called us "hippies", and yesterday one of them said "I think this no-gluten thing you guys are doing is weird."

    :angry:

    Well who the hell asked you ?! Pardon my french, but that really irked me. I have to admit, too - it kind of hurt my feelings. I don't want to be perceived as weird. I know that ultimately it really doesn't matter what other people think, and that the fact that going gluten-free is working so well for ALL of us is all that matters. But it still kinda stings. Mostly it hurts me for Ryan. I feel pretty sure the daycare thinks I'm whacko and I dread him getting made fun of when he gets older. I've talked about this before (sorry). He's a sensitive kiddo and kids can be just so darn mean. Right now his classmates think his food looks better than theirs and try to swipe his (which is an issue in and of itself), but it probably won't be a whole lot longer before someone notices he's "different" and teases him.

    Family is supposed to be your soft place to fall. :(