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Corkdarrr

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  1. Hey all -

    I'm hoping someone on here can give me some more information on all this.

    My daughter is two and a half weeks old and up until about two days ago, it was all smooth sailing. I am breastfeeding her and she's been eating fine and gaining weight normally.

    Two days ago she started getting extremely fussy, crying until she's hoarse, she vomited up something with bloody mucus and then this morning I found a little blood in her diaper as well. Last nite after an excessively fussy episode, we took her for a car ride which put her to sleep. But then she slept for SIX hours - and would've kept on sleeping if no one had woken her up! This also meant she went almost eight hours between feedings - and she definately didn't nurse like she hadn't eaten in eight hours when she finally did eat.

    Anyways, we took her to the pediatrician this morning and she told us that its most likely an allergy to milk and/or soy and that I should eliminate it from my diet for a few weeks and see if it helps.

    My biggest question is this - if it is a food allergy, why isn't she screaming after *every* feeding? I have been eating dairy all along, but never an excessive amount (i.e. cheese and butter in foods and an ocassional bowl of ice cream, but no glasses of milk). So far today things have been okay (cross your fingers!!) and she's eaten several times.

    Any info/advice would be greatly appreciated.

    Thanks!

    Courtney


  2. I've never seen or read about a correlation between the two.

    A good friend of mine who is Celiac had her appendix out several months ago. Really, the Celiacs just made it harder to diagnose because she spent hours convinced that she'd just eaten something wrong and her stomach was acting up again.

    It wasn't until the pain became intensely localized and she was unable to stand that her boyfriend dragged her to the emergency room.

    I would still take her to the doctor if it gets any worse - especially if it becomes worse than a typical glutening.

    Good luck!

    Courtney


  3. Oh Sweetfudge, I cried, too!! The Progresso's Cream of Mushroom was just way too thin and watery to make casserole with!! I know there's ways to thicken it up, but nothing is the same as Campbell's gelatinous mass of can-shaped soup...

    Anyways, I had a can of the Chicken and Corn Chowder last nite and it didn't appear to affect me adversely, so that's good news! It was delicious because I did not have to physically prepare it.

    Granted, my entire system is all sorts of messed up and so I pretty much felt like crap to begin with. Basically nothing got *worse* after my soup. The real test will be once I get back on track.

    Thanks for the input, y'all!

    Courtney


  4. I was just at the grocery store staring longingly at the ease of the canned soup aisle when I decided to pick one up -

    Progresso's Chicken Corn Chowder and Progresso's Southwestern Style Chicken both have no gluten ingredients listed. While checking other varieties I realized that they are good about listing the main allergens at the bottom of the ingredient listings, so that gave me confidence.

    Also I know that their cream of mushroom is gluten-free and I've used it before with no reactions.

    Anyone tried or had any reactions to either of these soups?

    Thanks

    Courtney


  5. I know I've read on several occassions that Johnsonville brats are all gluten-free - except, of course, for the beer brats. We just got a new, fancy, shiny grill :D and I had a brat today for lunch. The kind that has cheddar infused into the deliciousness of the bratwurst :wub: ...ooooooooh, but it did NOT sit well.

    I don't know if I feel like I was glutened, but it definately sits in the right time frame and symptoms. First I got unbearable pains/cramps and then the D started.

    All has calmed down now, which is excellent and speedy, but I'm just wondering if anyone has had a reaction to these. I even went to the fridge between trips to the bathroom (I totally washed my hands, though!!) and double checked the ingredients. Didn't see anything suspect - thoughts? Anyone else been glutened by Johnsonville?

    Thanks

    Courtney


  6. Hey Jen

    I can SO sympathize. I've been gluten-free for 7 months now, but I still feel like I need to find a doctor who will prescribe me valium specifically to be taken before going to the grocery store. It's so frustrating! Especially because before all this happened, I used to LOVE to cook. Now it's a huge daily struggle just to figure out what I'm going to eat with the minimum amount of effort.

    I'm sure it gets easier...I'm just not sure when it gets easier!

    Hang in there

    Courtney


  7. I have been hypothyroid for over 13 years. And just in the last few months I have finally found a competent doctor.

    I would highly recommend that you find a doctor who prescribes and understands Armour thyroid. For a lot of people it makes a HUGE difference.

    You can find doctors that prescribe this type of med several ways:

    1. ask your local pharmacist for the names of the doctors who prescribe armour

    2. visit armour.com and do a search

    3. http://www.thyroid-info.com/

    visit the above website. on the right hand side choose the link for 'Top Drs' and search for your state

    Even though I felt blatantly hypo and my gut feeling told me I was hypo, My tests kept coming back 'normal,' but as Georgie was saying, the thyroid tests are inaccurate and their ranges are HUGE. So if I'd ever thought enough to actually ask to see a copy of my test, I probably would've caught this sooner. So much for trusting your doctor...

    If your doctor is on the wait-and-see with borderline low thyroid numbers it might not hurt to get a second opinion.

    Keep us posted!

    Courtney


  8. I always thought my thyroid was the problem. And it IS a problem. It's just that it all links back to my adrenal glands failing. From what I understand, anything you do for your thyroid without helping your adrenals is like a band aid and it will never really address the real problem.

    I have just started on AdreCort and several other supplements to help my adrenal glands get going again. This is being monitored by both my doctor and her nutritionalist/herbalist guy.

    The more reading I do about the thyroid and the adrenals, the more I am convinced of their complexity and links to eachother. I'm also glad I never tried to treat it myself - it doesn't need any more help going haywire!

    I'd suggest you read the books, 'Adrenal Fatigue: The 21st Century Stress Syndrome' by James L Wilson and 'Living Well With Hypothyroidism' by Mary Shomon.

    I've never been a big 'health' book reader, but these two were basically about me and I tore right through them.

    Per the thyroid, the important thing is to raise the dosage slowly and to listen to your body. You'll KNOW when you've passed the happy point and gone hyper.

    Also, I see you're from Wisconsin. I grew up there heavy in a background of nontraditional medicine. That's the link to my doctor from back home who still does email consultations with me. They are in the Milwaukee area which isn't *too* far of a drive from Eau Claire...

    http://health-energy.com/index.htm

    Hope this helps!

    Courtney


  9. I just started seeing a specialized nutritionist and he put me on, among other things, digestive enzymes.

    He gave me a chart of when to take what, but he told me that you can't take enough digestive enzymes. And that if everyone would eat them like candy, we'd all feel a lot better.

    It's been about two weeks and my stomach has definately felt a lot better overall...

    Courtney


  10. Hi Lynne -

    I did the same thing you did. I went gluten-free and had a negative blood test but decided to stick with the diet. Several months later I decided that I did, after all, want some sort of proof. For myself. So I had the Enterolab test done. I did big test they offer - so I was also gene tested and casein tested.

    It was worth it for me to have a definitive answer, and I'm glad I did it.

    Courtney


  11. I have the most awful story about birth control....

    I went on the pill around 15 to help with heavy cramping.

    That was fine and good. Switched brands a few times. No big deal.

    Until about 3-4 years ago I started trying differnet TYPES. I went on the patch for a while, and that was a disaster. Damn thing kept coming off! So I went on Depo. That's the shot you only have to get four times a year. Well it took my body about two or three months to adjust to that. That's two or three months of weird spotting and irregular periods, etc...Granted, after I adjusted it was kinda neat.

    So one day I go in to get the shot I'm due for. They tell me they can't give me the shot because I'm overdue for my annual. I can't get my annual because I'm bleeding. But I cant' stop bleeding until I get my shot, I say. Round and round we go.

    Nothing they can do. I bleed for a month or two. I went to three or four different OBGYNs trying to get SOMEone to just give me the friggin' shot so I could stop bleeding. Six MONTHS it took my body on its own to "get over" the depo. SIX months I bled. I was crying in OBGYN offices. When they said they couldn't help me I'd just start to cry and tell them to buy stock in Tampax.

    Anyways. So, after I finally stopped bleeding and I get my annual they asked if I wanted to go back on the depo. At which point I not only started crying again, but almost got into a boxing match. Seriously? Yes please. Hook me up with that miracle drug that my body clearly loved so very much.

    So I went back on the pill.

    At this point though my lady system just couldn't handle anything else. I was still having very irregular periods. Usually half my cycle I was bleeding and the other half was fine. It was almost like the pill wasn't strong enough to hold my cycle in check? Either way, my *new* OBGYN told me to go off the pill for a few months until my body re-regulated itself. Which I did. That was in July. My *new* miracle-working GP has advised me to stay off it for the time being. I agree with her. I'm dealing with so much other stuff right now, that I coulnd't handle my period going haywire again.

    So. In answer to your question- for me, going off hte pill was wonderful. It coincided with some weight loss (which may or may not be due to the absence of the pill); allowed my body to re-regulate itself, giving me my first regular period in YEARS; my periods also seem shorter and more 'normal.'

    Other than that, I'm not sure what other side effects I can attribute to going off the pill. I did that at the same time as all my dietary stuff so it's all shlumped together. Just be aware that your body may take a month or two to adjust.

    Courtney


  12. I grew up in Milwaukee/Wauwatosa and moved down here to SC about four and a half years ago.

    I know what you mean about ice cream - I am DYING for some chocolate custard right now. Ahh, frozen custard.

    I really need to start up again with the journaling. It started way back when with just trying to control how much I ate. I LOVE food, but didn't realize just how much I ate until I started writing it down. It's a lot harder to rationalize the ink staring back at you from the page.

    But food journaling became really useful once the whole food allergy thing hit. It started with tracking normal things, but then I just became so hyper-obsessed with figuring out what was wrong with me. I'm suprised I didn't write down which days I flossed! :lol:

    I was trying so desperately to be proactive with my health, but had little to no guidance and direction. Now that I've found a doctor and nutritional specialist to work with, I have some more clear cut guidelines.

    Good luck with your gluten challenge...eat some good stuff in honor of the rest of us! :rolleyes:

    Courtney


  13. Hi Sarah,

    Wow - your symptoms are almost identical to mine.

    For me, it's my big toes that go numb. Does that really happen to other people? I thought it was one of my special quirks!! :P

    Anyways, I had been gluten-free for two weeks when I had my blood work done and it came back negative. My doctor also said it would be okay that I'd already gone gluten-free. I should've fired him right then...

    I suppose it depends on how much gluten you were eating before. I know I didn't eat a whole lot of bread and pasta and blatantly gluteny things, but as you are no doubt discovering, it's still EVERYwhere. It does take months to completely purge itself from your system. But that doesn't mean that there's enough 'left over' to diagnose through bloodwork, either.

    If you want an accurate medical diagnosis, you should probably start eating gluten again. Someone will jump in, but it's several pieces of bread every day for several months, I believe.

    If you're like me and a medical diagnosis isn't terribly important, then stick with the diet. If you feel better without gluten in your life, then it's pretty self-evident. I mean, if the tests came back positive they were just going to tell me to do exactly what I'm already doing!

    Several months into things, I decided I wanted SOME sort of diagnosis so I went through Enterolab. It was expensive, but well worth it in my mind. Especially after researching the alternatives and how inaccurate they can be!

    It really all comes down to two things in my opinion:

    1. Do you need an official diagnosis for your own peace of mind?

    2. Will your insurance cover it? (mine wouldn't... <_< )

    Courtney

    -- Have you looked into adrenal fatigue?


  14. I have been an on/off food journaler for years. Even before I found out about my intolerances it helped just to physically write down what I was eating every day.

    Anyways, after I found out about the whole gluten thing I became REALLY anal about it. I wrote down EVERYthing. What I ate. Alcohol. Caffeine. What time my headaches started. How much OTC meds I took every day. Stomach issues. Joint pain. Really, ANYthing that I felt that hurt, I wrote down. Plus exercise, walks with the dogs, even how much water I drank at one point!

    I did an elimination/detox diet and followed the same thing to try and figure out what was bothering me when I started adding stuff back in.

    It's tough to keep up with, but can be extremely helpful. I took a break because I was starting to get OCD about it :blink: and I needed to let my mind relax for a bit. I need to start again. It's especially helpful when you go to the doctor and you can look back and tell them exactly WHEN your stomach hurt and where and how, etc...

    Courtney


  15. http://armourthyroid.com/about.html

    You can also go straight to their website! They have a physician locator.

    This is the website that Mary Shomon started.

    http://www.thyroid-info.com/

    I found my doctor off this website (click on top doctors on the upper lefthand side). She has a list of patient recommendations a mile long, and now I know why! It also gives you the dates of recommendations. I initially tried calling someone who lived closer to me, but she had been out of practice for several years.


  16. well, I sure wouldn't be opposed to finding a new dr! I like my endo, but the staff drives me crazy. Do you know if Armour is safe while pregnant/breastfeeding? I will definitely ask my dr. about it when I go back in a few weeks, and I'll read up on these sites, and if she's not open to the "natural" meds then I'll start searching for a dr. that is. I never realized how serious this is - just figured it was another annoying thing I would have to live with my whole life. Thanks so much for the information - this board is priceless! :)

    So did I...doctors test irrelevant thyroid hormones and base their diagnosis on an inaccurate and outdated range...then when you tell them you're still feeling classic hypo they tell you that it's either all in your head, or that something else is causing it.

    Finding a doctor that didn't think I was crazy has been the best thing I've ever done.

    Also, make sure you always ask for a copy of the results. I am so angry with myself that it never occurred to me to see what 'normal' was. I just assumed they knew what they were talking about! Looking over my medical history from my recently fired doctor, the lab he was sending it to was using the incorrect range. And I was definately still hypo.

    Georgie, I know what you mean. I see people out all the time and listen to people talk...I didn't see the change in me because it happened so gradually. But looking back I'm so much more....tired and worn out and almost hopeless than I was 10 years ago. Haha...I'm only 25. :P But seriously. I used to be a very happy and positive person. Being in a poor state of health just grates on you. And when it grates on you for so many years and coming from so many different directions.....it leads to what dionnek said - which echoes how I've felt for SO long. I, "just figured it was another annoying thing I would have to live with my whole life."

    High five to being proactive enough in my own health that I've finally found my path to recovery! :D

    Courtney


  17. I was on Levoxyl but am now on Synthroid (not sure why my endo switched me). I started with 50 mcg but now am alternating between 150 synthroid and 175 each day. I go back in a few weeks - what should I ask my endo about? I'm kind of confused about all of this stuff. My hypo started when I got pregnant 2 plus years ago and I've been on meds (synthroid or levoxyl) ever since. Then I went hyper 2 months after going gluten-free and stopped taking the meds but 3 weeks later was hypo again (then a few months later got pregnant).

    I am just now figuring out my thyroid after being dx hypo over 13 years ago.

    Georgie pointed me to STTM, and it is a great site for information - with the obvious undertones of frustrated thyroid sufferers! I also tore through Mary Shomon's book, 'Living Well With Hypothyroidism.' By the end of it I was *literally* hopping mad that I'd spent the last 8+ years of my life taking Synthroid. I wanted to call up the doctor that took me off the combo with Cytomel and tear him a new one... :angry: Not to mention all the doctors for the last 8+ years who looked at my completely useless test results and kept telling me I was 'normal.'

    I finally found a doctor that treats symptoms, not bloodwork results. I'm on a combo of armour and levothyroid, and we are adjusting the dosage as needed. I want to hug her every time I see her. It's only been a month or two, but I am already noticing differences.

    Based on all that I've read, your endo probably switched you because the company that manufacturers Synthroid has an absolutely disgusting amount of power over the hypothyroid market. :unsure:

    Cate, in response to your initial topic, there is a HUGE connection between these three things. In my case in particular, my adrenals burnt out a long time ago - Probably due to heavy metal toxicity. This caused my thyroid gland to try and pick up the slack and burn out - Which caused the hypothyroidism. I am not celiac, but gluten intolerant. Based on the puzzle that is slowly being pieced together, my adrenal fatigue and hypothyroidism most likely agitated and strained everything else in my body until I finally realized my stomach shouldn't hurt all the time! Plus the link between autoimmune disorders is pretty strong (hypo, celiac, diabetes, etc...)