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Found 19 results

  1. Celiac.com 04/22/2010 - Restless leg syndrome (RLS) is a common neurological condition, with generally unknown causes, that is sometimes associated with specific disorders such as iron deficiency. Even though celiac disease is an autoimmune condition, people with celiac disease often suffer from associated malabsorption-related iron deficiency anemia and peripheral neuropathy. A team of researchers recently set out to assess rates of restless leg syndrome in adults with celiac disease. The team included Marcello Moccia, MS, Maria Teresa Pellecchia, MD, PhD, Roberto Erro, MD, Fabiana Zingone, MD, Sara Marelli, MD, Damiano Giuseppe Barone, MD, Carolina Ciacci, MD, Luigi Ferini Strambi, MD, and Paolo Barone, MD, PhD. They are variously associated with the Department of Systematic Pathology, the Department of Neurological Sciences at University Federico II and IDC Hermitage Capodimonte, Naples, Italy, and the Sleep Disorders Center, University Vita-Salute San Raffaele, Milan, Italy. For their study, the team enrolled 100 adult patients for features of celiac disease, iron metabolism, clinical and neurological conditions, and enrolled another 100 people from the general population as control subjects. These subjects were matched for age and sex. To determine the presence of restless leg syndrome in celiac disease patients and controls, the team applied the four essential diagnostic criteria of the International restless leg syndrome Study Group, in addition to conducting a neurological examination. They gauged restless leg syndrome severity using the International restless leg syndrome Study Group rating scale. The results showed a 31% prevalence of restless leg syndrome among subjects with celiac disease, which was much higher than the 4% prevalence in the control population (P < 0.001). The average restless leg syndrome severity among celiac disease patients was moderate (17 ± 6.5). In the subjects with celiac disease, the team saw no significant correlation between restless leg syndrome and either gluten-free diet or iron metabolism; even though the celiac patients with restless leg syndrome showed significantly lower hemoglobin levels than celiac patients without restless leg syndrome (P = 0.003). They also found no connection between restless leg syndrome and other possible causes of secondary restless leg syndrome, including signs of peripheral neuropathy, pregnancy, end-stage renal disease, and pharmacological treatments. Their study increases the number of neurological disorders associated with celiac disease, and supports screening all celiac disease patients for restless leg syndrome. SOURCE: Movement Disorders; 13 Apr 2010 DOI 10.1002/mds.22903
  2. Celiac.com 09/03/2009 - Every night thousands of people lose sleep because of a gnawing, tingling urge to move their legs, disturbing their sleep and are often causing chronic pain. These people wake feeling unrested, with aching muscles. In addition to lost sleep and discomfort, these people often suffer chronic pain. Often, these symptoms baffle both patients and primary care doctors. Little do these people and their doctors know that the pain and restlessness is due to Restless Legs Syndrome (RLS) and is likely caused by a problem with the digestive tract. RLS affects 7% to 15% of the population, especially older adults and pregnant women. RLS symptoms can have a major impact on quality of life, and the syndrome often stymies the medical community. In recent years a number of drugs have been introduced to help the symptoms of RLS, but until now the cause has remained unknown. Small intestinal bacterial overgrowth (SIBO) is a condition where abnormally large numbers of bacteria exist in the small intestine. Symptoms often include diarrhea, bloating, excess gas and abdominal pain. SIBO has strong ties to IBS, diabetes, celiac disease and Crohn’s disease. St. Louis-based Gastroenterologist Dr. Leonard Weinstock has led research that has recently established a link between RLS and SIBO. Dr. Weinstock's clinical trials have shown that treating SIBO often sends the RLS into remission. “When a patient was diagnosed with SIBO, given a course of treatment that included rifaximin, an antibiotic that is not absorbed by the bloodstream, we found that the patient showed quick, dramatic and continuing relief of RLS symptoms,” explains Weinstock. This discovery promises a new lease on life for many RLS sufferers. Weinstock discovered the association while treating a patient for Irritable Bowel Syndrome (IBS) who also suffered from RLS. Treatment of the IBS, also seemed to send the patient’s RLS into remission. This discovery led to a number of trials, all of which produced the same overall result. “While many new drugs help treat the symptoms of RLS. This research shows us the cause of the disease and in turn allows us to treat the RLS rather than just helping the symptoms,” says Weinstock. Based on a standard RLS severity scale, all Weinstock’s patients have shown substantial improvement. In the most recent trial, severity scores for 9 of 14 patients dropped an average of 65% after one course of antibiotics. After an initial lack of response, two patients received a second round of antibiotics and no longer had any symptoms. A third patient was cured after discovering that she had celiac disease and beginning on a gluten-free diet. The link between non-responsive celiac disease and SIBO has also been documented. The fact that such a link exists between SIBO and RLS, and other conditions such as celiac disease, IBS and Crohn’s disease clearly warrants further study, and should give anyone suffering from RLS some information to share with their clinician in approaching the issue. Source: http://www.pitchengine.com/specialistsingastroenterologyadvancedendoscopycenter/sending-restless-legs-syndrome-rls-into-remission/21146/
  3. Celiac.com 02/09/2009 - Doctors are recommending simple, low-cost blood tests to screen for celiac disease in patients who have Restless Leg Syndrome (RLS) with low serum ferritin, but who otherwise show no clear cause for iron deficiency. Low iron reserves are a known risk factor Restless Leg Syndrome, as blood iron levels below 45-50ng/mL have been tied to more severe expressions of RLS. In fact, iron levels are so important to assessing RLS, that it is now common for doctors to test blood ferritin levels when first assessing Restless Leg Syndrome. Celiac disease is a common genetic disorder of the immune system that can cause iron deficiency. Doctors S. Manchanda, C.R. Davies, and D. Picchietti of the College of Medicine at the University of Illinois at Urbana-Champaign recently set out to determine if celiac disease might play a role in iron deficiency in patients with Restless Leg Syndrome. The doctors evaluated a series of four patients with Restless Leg Syndrome and blood ferritin below 25ng/mL, who had shown positive blood tests for celiac disease. Doctors confirmed celiac disease for all four patients via duodenal biopsy and positive reaction to a gluten-free diet. In each case, Restless Leg Syndrome symptoms improved, with two patients discontinuing Restless Leg Syndrome medication and two responding positively without medication. The doctors are recommending simple, low-cost blood tests to screen for celiac disease in patients who have Restless Leg Syndrome with low serum ferritin, but who otherwise show no clear cause for iron deficiency. They also note that diagnosis and treatment of celiac disease is likely to improve the outcome for those patients with Restless Leg Syndrome, as well as to better identify people at risk for the significant long-term complications associated with celiac disease. Restless Leg Syndrome is just the latest neurological disorder to show a connection to celiac disease. Stay tuned as more information becomes available. Source: Sleep Med. 2009 Jan 10. PMID: 19138881
  4. The only symptom that I had was tingling in my legs especially at night after I retired to bed. The tingling became more severe where I could not get them to stop. I thought I had restless leg syndrome. My doctor tested me for diabetes and found that I had type II diabetes and the sugar was attacking my legs because it had no place to go. He put me on a sugar free diet and Actos and within one to two days my symptom were gone.. One day I got extremely sick, could not keep anything down, had blurry vision, a rapid heartbeat.I Started taking metformin 1000 mg twice daily. I am writing this to inform others that nothing was really working to help my condition.I went off the metformin (with the doctor's knowledge) and started on Diabetes herbal formula, my symptoms totally declined over a 7 weeks use of the Diabetes natural herbal formula. i am now doing very well.
  5. What a SURPRISE to learn that my restless leg syndrome has a connection to gluten intolerance. I've been on a gluten free diet now for almost a year but never connected restless leg syndrome to diet. Oddly enough I did not connect the absence or at least near absence of restless leg syndrome which I found extremely painful. I would walk the floor for hours in an effect to straighten my toes and ease the cramps up my legs. Thank you for this 'ray of sunshine' and the near absence of restless leg syndrome.
  6. Lipton Onion Soup now contains soy sauce made with wheat. I had diarrhea and restless leg syndrome for several days before I figured out why. My fault for not reading the ingredients every single time I buy food ingredients for myself! The package was clearly labeled - I just failed to look!
  7. My daughter has low ferritin and has restless leg syndrome.
  8. Actually, I found a terrific product for restless legs Syndrome. It is an herbal lotion in a roll-on type bottle. It has herbs to quell over-active nerves and also ones to relax muscles. My Mom uses it for leg cramps and I tried it on my restless legs. It worked great. I was really surprised because it worked in like, 5 minutes. I've tried lots of supplements and stuff and nothing has worked before. The stuff is called Leg Relaxer. You should probably try it for your restless legs. No sense dancing when you should be sleeping.
  9. Actually, I found a terrific product for restless legs Syndrome. It is an herbal lotion in a roll-on type bottle. It has herbs to quell over-active nerves and also ones to relax muscles. My Mom uses it for leg cramps and I tried it on my restless legs. It worked great. I was really surprised because it worked in like, 5 minutes. I've tried lots of supplements and stuff and nothing has worked before. The stuff is called Leg Relaxer and I bought it from a company called Nature's Rite. You should probably try it for your restless legs. … No sense dancing when you should be sleeping.
  10. Having had the problem for as long as I can remember, I am always interested in looking at information on this subject. I was first informed that this was a 'circulatory problem' and was advised to drink red wine. This seemed to alleviate what was 'happening' to my legs, however, as age grew, so did the strength of the discomfort. Several years ago, my doctor informed me that what I had was restless leg syndrome. I find particular interest in reading these articles, the search for what causes restless leg syndrome and the cure.
  11. Restless leg syndrome symptoms are how I found out I had celiac. My symptoms were not restless leg syndrome but were due to iron deficiency anemia. Severely low hemoglobin tests triggered endoscopy to search for Gastric intestinal bleed causes. Results showed celiac not the scarier things they thought they would find. I seldom have gastric intestinal symptoms when exposed to gluten. Primarily my reactions are related to absorption deficiencies which make it tougher to tell when I've been exposed to something accidentally. Combination of short term iron supplements and long term gluten free diet have resolved my jumpy legs. I wonder how many other people are taking neurological drugs to treat celiac symptoms.
  12. Interesting connection with iron. I was taught that restless leg syndrome was resulting from magnesium deficiency. Which would make sense why people with celiac would have it, considering the malabsorption issues we have before giving up gluten and healing. In myself, I noticed it when I would consume excess caffeine, then restless leg syndrome would pop up. Simply taking excess magnesium supplements for a couple of days does the trick--and backing off the caffeine.
  13. Celiac.com 04/26/2010 - Welcome To Celiac.com Podcast Edition! Click the icon to listen to this Podcast: Be sure to subscribe to our Podcasts. Here are the articles mentioned in this podcast:In The News: Mucosal Recovery from “Mucosal Recovery and Mortality in Adults With Celiac Disease After Treatment With a Gluten-Free Diet" by Jefferson Adams Breastfeeding from “Celiac Disease and Breastfeeding - The Missing Link" by Destiny Stone HLA DQ2 Gliadin from “HLA-DQ2-gliadin Tetramer for Diagnosis of Celiac Disease" by Jefferson Adams Mass Screening Could Solve A Lot of Problems from “Celiac Disease Mass Screening May be Cost Effective" by Destiny Stone Restless Leg Syndrome from “Restless Leg Syndrome Common in Adults with Celiac Disease" by Jefferson Adams Popular Topics on Celiac.com: Kitchen and Bathroom 101 from “The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free" by Destiny Stone Springtime is Green Time from “Going Green” By Connie Sarros; Journal of Gluten Sensitivity, Spring 2010 Snickerdoodles from “ Snickerdoodles (Gluten-Free)" by Jules Shepard
  14. When the drug makers find a way to make money on the gluten intolerant, you will see a miraculous turnaround in how the medical community is then given a reason to accept gluten intolerance as a real diagnosis. I was told, and I quote, "I cannot accept your condition as celiac if you have not been diagnosed by a colleague." Back then the testing was grossly inadequate. The drop in blood pressure, the disappearance of arthritis, the ability to keep food down, the elimination of rashes and hives, the lack of muscle cramping and restless leg syndrome, the bloating, gas and cramps, etc. None of it had any bearing or consideration with this doctor. I eliminated him as my physician and have only been sick enough to require a doctor twice in 7 years. I do not exaggerate. Thank you.
  15. Sounds familiar--Could this be a family member writing this comment on her birthday? Even though I didn't think I was one of the family members to suffer from gluten intolerance--I'm beginning to wonder. I have recently experienced toe joint pain and leg cramps, as well restless leg syndrome in the evening. Could these symptoms come from my exposure to gluten? Hmm...I will try a gluten free diet for a few weeks and see if there is a connection. Thank you for sharing this site.
  16. It is was so wonderful to read this article. I have been tested many times over the last 30 years for coeliac disease but always come up negative. However, on top of gastric symptoms and constant fatigue I developed nerve twitches, restless leg syndrome, tingling on limbs and a head tremor. Going gluten-free has alleviated most of my symptoms. What I have been searching the net to find out is if a gluten sensitive person can eat gluten occasionally (eg. when traveling overseas when it is difficult to exclude gluten) or will there be bad gut damage all over again.
  17. I have painful restless leg syndrome and have had it for over 30 years. I do take medication for it and they are still not quite under control. I also found out last July that I have celiac too. I follow the celiac plan faithfully as I have had a few instances that made me very sick.
  18. I am a 69 year old female who have had restless leg syndrome for many years, and was just diagnosed by saliva tests that I am gluten sensitive. I also have osteoporosis and had 6 painful spinal fractures in the past 2 years from malabsorption of nutrition over the years. I go to a nutritionist and am taking many bone building vitamins.
  19. I have restless leg syndrome, and celiac. This article is very interesting, and I hope much more research is done on this connection.

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