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Showing results for tags 'dh'.
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To Forum Members, I recently was doing research in PubMed about low stomach acid and came across intriguing old research that details it's presence in/with a Celiac and DH diagnosis. see this link https://www.ncbi.nlm.nih.gov/pubmed/3992169 Here is the abstract in it's entirety. Scand J Gastroenterol. 1985 Mar;20(2):133-40. Gastric morphology and function in dermatitis herpetiformis and in coeliac disease. Gillberg R, Kastrup W, Mobacken H, Stockbrügger R, Ahren C. Abstract "Gastric acid secretory capacity was evaluated in 116 patients with dermatitis herpetiformis by means of the pentagastrin test. Endoscopic gastric mucosal biopsy specimens were obtained from both the body and the antrum in 90 of them. Forty-eight patients (41%) had a maximal acid output less than 10 mmol/h, and 30 of them (26%) were achlorhydric. The frequency of achlorhydria increased with age, and 27 out of 58 patients (47%) more than 50 years old were achlorhydric. Antrum-sparing chronic atrophic gastritis was present in 92% of the achlorhydric patients, and hypergastrinaemia and serum parietal cell antibodies were found in most of them. The prevalence of chronic gastritis of the body and of the antrum increased with age. There was no correlation between atrophic gastritis or achlorhydria and small-intestinal villous atrophy, the results of the D-xylose test, and blood folate and serum zinc determinations. The transferrin saturation index was lower in patients with achlorhydria. The frequency of achlorhydria was significantly higher in patients with dermatitis herpetiformis than in 69 patients with coeliac disease." The question is what does it mean? I see the high association between no stomach acid and DH as causal. (triggering) at 90+ percent a direct association. But the relatively high association of Low Stomach could only be casual (associated with) but not definitely triggering but possibly causing someone with Low/No stomach acid to be diagnosed as Celiac/NCGS patients instead. This research being 30+ years old it can be easily over looked. I have found treating my Low Stomach acid helped my GI problems. If it is an Esophageal pH Test could confirm your stomach acid levels. https://www.verywell.com/acid-reflux-ph-test-1742254 Is this definitive research in your mind that indeed no stomach acid is triggering this immune reaction. I was not expecting to find previous research that studied this topic. More Recent research on PPIs indicate low stomach caused by the use of PPIs can/could trigger a Celiac diagnosis. see this article about this topic. Does/Is low or even No stomach acid being confused for Celiac disease today? I would love to hear your thoughts? I share this research in the hope that it will rediscovered again and studied again to see if it can replicated in the hopes that treating one's Low/No stomach acid might help others. This does not mean you yourself will have low stomach acid . . but you won't know if you don't test for it. I think with this high association in those who have received a Celiac diagnosis further testing to rule low/no stomach acid is warranted. Share your thoughts, opinion, ideas and feedback. I start this thread to kick start your thinking? And to invite honest inquiry as the role stomach acid plays in GI health. It is (low stomach/no stomach) is known to be linked/occur in chronic gastritis so it seems only logical it would at least be casual in Celiac/NCGS patient. See this link on Chronic Gastritis and the prevalence of Low/No stomach in chronic gastritis. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4673514/ they estimate quoting "One may estimate that more than half of the world population have this disease in some degree and extent, indicating that even many hundreds of millions of people worldwide may have chronic gastritis in a form or other." What if the 1/3 of the population that might develop NCGS or celiac disease is just another clinical presentation of chronic gastritis? I think it what the research says to me . . triggered by either low or no stomach acid? Your thoughts and comments are encouraged but I found treating my low stomach acid helped my chronic gastritis. 2 Timothy 2:7 Please Consider what this research says and may the Lord lead you on your continued journey. I hope this research jogs your thinking. I know it confirmed mine . . but I am open to being wrong. A man/woman who corrects me is my friend. I hope this newly rediscovered research helps your thinking about how low/no stomach acid could be causing some of your GI problems forum members/friends. We are all trying to find something that works for us and why we participate to share on this forum to help others with the same help knowledge we have gained on our way/journey God being our help. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.” Posterboy by the grace of God,
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- achlorhydria
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Hi all, I've been reading a lot of your posts over the past year or so, and can relate to so many of you! I'm also hoping you might be able to help. What initially brought me here was a wicked rash that started really small on my back and spread to my abdomen. At first, I thought, "Eh, it's just allergies. It is spring, after all." However, as time went on, the rash spread and was so itchy it kept me up at night. After a few months, I couldn't take it anymore and wound up at the dermatologist. Of course, she tested (and treated me for) scabies... which I clearly did not have and she could find no physical evidence of. None of the topical scabies treatments helped, although some of the steroids gave me relief for a while. She took a biopsy that came back inconclusive with a hard "maybe" on the arthropod bites. Jump to a couple of months later and those suckers started coming back with vengeance. After the several hundreds of dollars I'd spent in vain at the dermatologist, I went to an allergist. He tested me via skin prick tests for both environmental allergies, to which I lit up like a freakin' Christmas tree, and food allergies, which I had fewer and less severe reactions to. He then put me on a strict elimination diet where I could not eat a total of 16-some-odd foods, which included barley. I found that barley hides in many gluten products, so I essentially had it eliminated wheat products from my diet. After the 30 days, I slowly started reintroducing foods -- eggs, carrots, celery, etc. Then I drank a beer. Slowly but surely, the rash started coming back. I thought I'd made my big discovery. It's barley! But even mindfully not eating barley (with the exception of a couple of slips because I didn't know that some gluten-free beer still contains barley), the rash has been a constant fixture in my life for a while now. To give a bit more detail, the rash usually shows up on my back/shoulder blades. It's been on my lower back before. It also shows up on my chest and has been on my abdomen before as well. Never shows up on elbows or knees like others describe. The little sons-of-bitches are itchy as hell and will wake me up occasionally, and sometimes I even wake up with blood on the sheets. They almost look like tiny scabbed-over craters after they've been there for a while. Could it be DH despite all the testing and dieting I've done? Should I bother with further testing, or just try a gluten-free diet? I appreciate any insight!!! H
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Hello, I've been recently diagnosed with celiac disease, but my affliction is DH. I started getting the rash around February, was diagnosed in May, so I'm lucky it was a quick turn-around, so I've only really been gluten-free for a few weeks. The information I can't seem to find on my own however is what DH looks like when it's heeling? I only ever find pictures of what it looks like when it's flared up, not when it's healing. I'm sure I'm also accidentally gluten-ing myself over the weekends, but I'm just really new to this obviously and adjusting has been a little tough. Thanks for any advice / info you can give me; in a weird way I'm glad that if I was going to get anything, it's something that has a very supportive community and a wide variety of options and foods that i can still eat. Thanks again.
- 15 replies
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- celiac disease
- dermatitis herpetiformis
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Hi Everyone, I was just diagnosed about two weeks ago with DH after a 5 yr battle for a diagnosis. As I am just learning, I am hoping someone can help answer a few questions and clarify a few confusions. - I have always had IBS since I was in my early 20s. But I am reading that everyone that has DH has celiac. Is this true? my Dr. Said there are cases of non celiac DH. - I keep reading about other triggers to avoid besides gluten. What other things should I avoid? - Why did my Dr tell me to stop taking Aleve? I can't find the answer to this on Google. - What are the other symptoms of DH besides the rash and itching? There has to be more and I have had a variety of issues that seem to coincide with my rash flares. Sorry this is so long and thank you in advance.
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Hello, I have been told that I do not have Celiacs by two derms who did blood panels.. which is great.. however this rash i get is most definitely DH. I have studied it on so many sites and its the only one that comes up. I can not figure it being anything else. My question to you guys is can I be sensitive to gluten and get this rash from ingesting it? Not be a true celiac but gluten sensitive?? I have had stomach issues most of my life but nothing crazy, just tons of bloating and gassy symptoms. I do not have any bathroom issues.. just the skin.. Im struggling to try and figure this out before I lose my mind... Thanks!
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I was diagnosed with celiac disease two months ago and am trying my hardest to stick to a gluten-free diet. However, last week i went on vacation to the Dominican Republic and developed an itchy red rash on the back of one knee. I'm sure I occasionally glutened myself while I was on my holiday (though I tried my hardest) as it's incredibly difficult to not ingest it with all the buffets and language barriers. I've always been asymptomatic so I'm just wondering if it is dermatitis herpetiformis (it looks exactly like it) even though I've never had it before. Is it possible to develop symptoms when you've always been symptom free?
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Hello all At first I apologized for my bad English My story is long since more than two years At first I dealt with high levels of stress I was very nervous and I knew that something bad would happen After two months after a period of immortality to sleep I woke up to feel the desire to itche in the abdomen to find a pumb think or allergies tried to know the cause without finding any contrary to the sensitivity or tablet of the pill continued pill more than 3 days to go and left a slightly darker effect of the skin But a few days later the same pumbs appeared in different areas but were few One under the right armpit and another on the left armpit the pumb is in the left elbow and the other on the right pumb was on the right and left foot too I cried out, and asked my self, What is this thing? My parents told me he was probably hives I went all the pills after almost 6 days and after a long period of more than 6 months when I wash my hands after a short period began to notice very small heights on the finger was not burned at all, unlike the first appeared I thought maybe the hand lotion was the reason, and a week later I went and was no longer there A month ago I noticed a red area I knew every time something strange happened I could not imagine the stuff there was anything The red area was on the finger and remained red for a week and left a slightly darker area A month later I noticed on the back of the pumb on hand that I thought the hair was the reason, but it lasted a week to go too I do not know very much how I can be sure this may be dh or maybe something else Three months went by without any skin or even intestinal problems I live in Syria almost impossible to get a blood test or even a biopsy of the skin Even if there was a ability to get a biopsy I did not get the rash again It looks like a dh I can say with confidence that the pills at first differ greatly from the last time
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Hi Everyone, I am looking for any relevant medical studies, and some general support, that may help me sort out contradictory test results and follow up for my daughter. First family history: My husband presented with pediatric DH and was confirmed through skin biopsy at age 11. His younger sister had GI issues forever, but no rashes. She was given the TTG blood test seven times over many years and it was always negative, with normal total IgA levels . She final convinced someone to do an endoscopy anyway, at age 35, and had full-blown biopsy confirmed celiac with severe intestinal damage and a concurrent diagnosis of hashimoto's thyroiditis. So she is in the tiny percentage where TTG test and IGA never worked. DH's father is also now diagnosed as a celiac - after developing psoriasis and diabetes, he finally took the standard blood test at a free celiac awareness event in his 60s (TTG positive-but late in life) and later endoscopic biopsy confirmed celiac disease. His brother and multiple first cousins on husbands side are also being diagnosed as celiac (biopsy) or have adopted a gluten-free diet without diagnosis because of symptoms. (In other words...the genetic link on that side seems to be...stronger? than reported risk rates). BTW, there are also autoimmune disorders on my side (my dad has churgg-strauss, both sisters hashimotos thyroiditis) though no diagnosed gluten issues. So... my eldest daughter is seven. She had the TTG test at three (negative) and six (negative) ordered by her regular pediatrician at our request. She has ??symptoms??. It is HARD to tell with kids, and I am trying to check my own anxiety - I don't want to overreact needlessly. However, I think it is fair to say she exhibits: heightened irritability, sensory issues, strange recurring rashes on legs, face, and buttocks with no identified contact allergens, (husband says they didn't look like his DH, so ?), inconsistent (but frequent) reports of stomach pain, and inconsistent toileting issues. After a spike in these symptoms, to alleviate worry, we went to a GI celiac specialist for testing at a very well respected celiac center. The Doc recommended TTG, total IGA, DGP-IgG, and the genetic test. At age 7 she came back negative for TTG, normal for total IgA levels, and a strong positive on DGP-IgG. The range for her test - 20-30 considered a weak positive, over 30 a positive. Her results were over 100. He said based on this 'remarkable' serology result and the family history, she should have an endoscopy (multiple biopsies). However, he also told us her genetic results were negative, and her genes were incompatible with celiac disease. He followed up by saying that because her tests were contradictory we should do the endoscopy. We never saw the full genetic test results, and I need to figure out how to request them, but I assumed this meant she was negative for HLA DQ2 and DQ8 (I don't know this for sure.) Her endoscopy results were completely clean. No evidence of any damage. He calls them 'grossly unremarkable' in his lab report. He then told us that celiac disease was definitely excluded. I tried to ask about whether or not we should follow up on the high DGP-IgG result (I am concerned about other immune system implications) and he said no, and added that is could have been a false positive or it could be meaningless. IMHO, he was disappointingly snippy about it. (This totally surprised me, because we were at a celiac disease research center, and it annoyed me a bit, because in a phone conversation two weeks early he used that same test result as a strong reason for doing an endoscopy on a seven year old??) He also told me, "you can put her of a gluten-free diet if you want, but I don't recommend it." So...I would like to celebrate because she is NOT a CELIAC (yay?) but from what I understand (and if you know more please correct me !) - if she had that serology, negative biopsies, and no genetic testing they wold have considered her a 'potential celiac' and urged a gluten free diet. So.....she continues to have symptoms (inconsistent pain, rashes, toilet, sensory) that I think are not normal for a kid her age. (Example: urgent and unforeseen need to use toilet / evidence left in her underpants by the time she get there). My questions to the community: *How concerned should I be with that DGP-IgG result? Should I dismiss it as this expert suggested, given the family history? (Would you retest? Follow up with an immunologist? an allergist? Can people point me to med literature that clearly speaks to the accuracy and specificity of this test? I am confused by what I've read.) *Does anyone know of any medical lit that addresses why a kid might have an elevated DGP-IgG level if it isn't celiac disease? (I saw one study that seemed to suggest that in infants this might self resolve, but the same study pointed out that half the infants with elevated DGP-IgG and no measurable TTG results did have biopsy confirmed celiacs....) *Does anyone know of any studies that tracked DGP-IgG levels in DH patients vs other celiacs? *Does anyone know of other specific links between elevated DGP-IgG and other autoimmune disorders? *Are there other genetic markers I should check for, (including for DH instead of celiac), I should look for on her genetic report if I do manage to get a copy of it? (BTW, do you think it is worth it to try to have my husband genetically tested??? No one in his immediate family has done it because they were all diagnosed other ways.) *Are you a person that had biopsy confirmed DH and a negative genetic test? Or endoscopy confirmed celiac with a negative genetic test? (If so please please tell me you exist!) And last but not least, there are two younger sisters at elevated risk because of family history. What tests would you request for them? (I kinda want to chuck the genetic test through a window but I am trying to keep my faith in science and medicine and not be that mom-on-the-internet!) Finally -- I know I can just put her on a gluten-free diet. We are familiar with it and she already eats lots of gluten-free foods because of her dads diagnosis. However, we aren't a gluten-free household (yet) though I suspect we may be moving in that direction. The thing is, I do believe there are good lifetime reasons to have a clear diagnosis if possible. I appreciate any insights and relevant (especially reliable and evidence-based!) feedback or links. Thank you for reading such a long post!
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Hi All, New to the forum - I have had eczema all my life and recently havehad the mother of all flare ups, used some aveeno prduct (contains oats) to try and moisturise but seems to have made it worse. On a researching the tinterweb I came accross this link with potential gluten alergies and DH. This flare up is the itchiest thing I have ever known, worse at night, not sleeping and has pretty much made me super miserable. I am off to see the doctor today, but just wanted to get your thoughts. Although I dont know if this is scabies or DH or just bad eczema, the symptoms seem very similar to those written in other post and its good to know I'm not the only one going through this, What do you guys think - Does this look like DH to you?
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Hello, I need some advice. I have had a positive blood test for celiac. My doctor referred me to a GI specialist but my appointment is not until May (I live in Canada, so it is covered by OHIP but the wait times are ridiculous). I started the process of getting tested because of a rash on my elbows, knees, and bum. I have attached pictures of my knees and elbows (excluded my bum). My blood test results are also included. I am very certain that I am celiac. My question is, with the blood work and rash, would you wait until May to have an endoscopy done to confirm diagnosis or go ahead and cut gluten from your diet to alleviate symptoms? My rash is so itchy, it keeps me up at night. I have an 8 month old son who also keeps me up at night. Before I realized Celiac was a possibility, I thought I had brain cancer because of the brain fog/dizziness/memory loss. Once I googled my rash and other symptoms, and had the blood work done, it all makes sense with celiac. What would you do??
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- blood test
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I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more. Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
- 47 replies
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- dermatitis herpetiformis
- dh
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New Propel Not So Safe - Severe Dh And Digestive Issues
Carri Ninja posted a blog entry in Carri Ninja's Blog
So I heard that propel had some new flavors and have added extra vitamins to help hydrate! Just what every celiac needs - extra hydration - turns out to be not so great for me! I though it could be good. Propel has always been gluten free, and helped with my dehydration issues immensely! I usually get the little flavor packets to carry in my purse just in case. Well I saw the new flavors and I grabbed the new peach one. It tasted a bit funny, so my son drank the rest of it. (I have learned if I don't like the taste don't eat/drink it because it usually means an allergy.) So we were at the store the next day and I grabbed a box of the propel packets. Cherry lime flavored this time. I read the ingredients on the box all seemed to be ok. I mix one packet with 20 oz of water and drink one a day, so it isn't real strong - thankfully. The runny nose and overnight ear/nose/throat infection, severe cramps, feeling like I got hit by a truck, and you know the rest of the usual fun stuff, was my first clue that something was wrong. I got my antibiotic later that afternoon. (continued to drink the propel - still didn't know) Late that evening I was feeling super thirsty and so I made up a bottle. I drank the whole bottle with dinner. BAD! I spiked a fever of 103. My cheeks flushed bright red and the rest of me was ghostly white. My husband asked if I was OK and I said I was having a reaction to something. He got me the usual arsenal of pills along with my antibiotic. The next morning I woke with my body covered in DH. Eczema spots the size of quarters on both elbows. I was really starting to worry. I had eaten different things that only I had prepared, so that amount of contamination was out of the question. I seemed to get a little better, until dinner time. I had prepared dinner and made a bottle of water. About half way through the bottle I realized - oh duh I know right. Anyways I did some reading. All of the ingredients were the same from the previous kind to the new kind EXCEPT for GUM ACADIA / GUM ARABIC !!!!! (same just dif name) I have a severe allergy/intolerance to it come to find out. So I decided to look and see if the not so wonderful peach flavor had it as well. Nope, but even better it has MALTODEXTRIN!! So I suggest to any of you who are propel fans - try with extreme caution. I thought I was being careful, but you just never know! I am still covered in DH and have been for almost a week now. My skin is peeling like I have had a sun burn. I have been showering in baby oil to help. If anyone has any suggestions for home remedies I would love to hear it!! My husband and I are tired of feeling my sandpaper skin. My husband is very supportive, but it hurts him when I pull away. I cannot stand to be touched right now, it is hard to explain that to my 7 yr old. I hug him and hold him anyways, but it is making the peeling worse. Thanks for reading. Suggestions greatly appreciated!!
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