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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Scott Adams replied to brittanyf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Lots of celiac symptoms but negative blood test? Need advice!
How much gluten daily were you eating before your blood panel was taken? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Scott Adams replied to Sobiha's topic in Related Issues & Disorders5
Additional allergies
It's certainly possible, but since it just turned spring it could also be something that is blooming now that you are allergic to. Perhaps new plants around the new houses? -
- cristiana replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Finding out I’m coeliac whilst pregnant
I am not a medically qualified person, but I think in your shoes I would do the same. If you are in the UK, there are some really good gluten-free aisles now. The largest range near where I live, currently, appears to be in Tesco's. -
- Katiec123 replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Finding out I’m coeliac whilst pregnant
@cristiana I’ve got an appointment with the midwife next week so will speak to her then. Waiting for gp to get back to me. I’ve made the decision today to cut gluten out regardless due to the risks I’ve read about -
- cristiana replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Finding out I’m coeliac whilst pregnant
Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana
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