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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- trents replied to djmu's topic in Related Issues & Disorders3
Peripheral Neuropathy
Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. -
- shadycharacter replied to Linedancegal's topic in Introduce Yourself / Share Stuff5
25 year biopsy confirmed/ate pizza with no ill effects?
Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. -
- Tlbaked13 replied to djmu's topic in Related Issues & Disorders3
Peripheral Neuropathy
I am COMPLETELY new to this celiac disease however I have had the same feelings and then some with my feet for years now and been diagnosed with peripheral neuropathy myself but they blamed and attempted to treat due from my type 1 diabetes and none of the treatment has helped at all so far so possible from celiac disease? Just sharing MY thoughts on this... -
- Hannah24 replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Negative Test but I have All the Symptoms!
I've not heard of the DNA test I will definitely look into that. And I did not know that the neuropathy was symptoms of vitamin deficiency. I have been trying to get on a good vitamin regimen. Thank you! -
- Hannah24 replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Negative Test but I have All the Symptoms!
My GI Doctor took blood work and said my Iron levels were actually high. But they took my blood a couple weeks after my infusion so I'm thinking that's why they were showing so high, but they knew I had the infusions. The infusions did help greatly but I am also on an Iron pill that I can instantly notice if I have not taken it for a few days. Yes...
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