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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut5
help? This forum might be the last hope I have in my life. Please I beg you
Hi, Your situation was similar to mine, but yours sounds more severe. From what I've read and experienced celiacs with IgG can have different symptoms that those with IgA. (I have only IgG like you). It's rare. Most Celiacs have IgA. (95% by some studies). I too had an ulcer and was on PPIs, H2 blockers, etc. They created a severe magnesium deficiency... -
- knitty kitty replied to Sultana's topic in Related Issues & Disorders12
Thiamine supplementation
@Celiac16, Have you tried taking Niacinamide, the non-flushing form of Niacin Vitamin B 3? Have you tried non-methylated forms of Cobalamine B12 and Folate B 9? Nausea and vertigo can be helped by Thiamine. Vitamin D helps with vertigo, too. -
- knitty kitty replied to Vicrob's topic in Related Issues & Disorders4
Gluten ataxia
@Vicrob, Have your swallowing issues, speech slurring and chronic cramps/nerve pain/muscle fluctuations improved since starting to take Benfotiamine? Those are all symptoms of Thiamine deficiency disorders. How much Benfotiamine do you take a day? -
- knitty kitty replied to susiegoldcoast's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Waves of nausea after quitting gluten
@susiegoldcoast, try starting a reply without quoting previous messages. -
- trents replied to Vicrob's topic in Related Issues & Disorders4
Gluten ataxia
There is no question that elevated liver enzymes are connected with celiac disease. That is a well established fact. I was one of those and mild but chronically elevated ALT and AST was what led to my celiac diagnosis. About 18% of celiacs have elevated liver enzymes. I would not trust a neurologist to give a valid answer to your question about that. He/she...
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