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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- trents replied to Hannah2907's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Allergy test results
Keep in mind, Hannah, that of you are on a gluten free diet and want to get tested for celiac disease, any testing would be invalid until you were back on generous amounts of gluten for weeks/months. -
- Hannah2907 replied to Hannah2907's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Allergy test results
Hi, the test I did was an online one with list of positive feedback. I initially did the test as I thought I may be lactose intolerant but with the results showing high sensitivity to gluten as well as dairy I thought I’d just ask for foods that may benefit me and my symptoms as well as follow these results up with a blood test with my doctors. It doesn’t... -
- Scott Adams replied to Hannah2907's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Allergy test results
Also, I've not heard of any legitimate allergy tests which use hair samples, certainly there is no test for celiac disease which uses a hair sample. Are you sure your tests are legitimate? -
- trents replied to Hannah2907's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Allergy test results
Welcome to the forum community, @Hannah2907! I know this is going to be all very confusing, Hannah, but the first thing to realize is that celiac disease is not an allergy and it cannot be diagnosed by allergy testing. It is an autoimmune disorder characterized by an inflammatory reaction to the ingestion of the protein "gluten" which is found in wheat... -
- Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease4
Any ideas for travelling
Hopefully you saw this article...have a great trip!
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