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  1. So my 7 month daughter is having issues with corn. I have Celiac and am nursing so she has never even been in contact with gluten. I read today during some research that corn can sometimes cause the same symptoms as gluten in a Celiac patient. If you have experienced with this please leave a comment with your symptoms. Diarrhea, upset stomach, rashes, vomiting? I want to see if there could be a possible correlation as I feel like my daughter is immunosuppressed but the allergist claims it is not an immune response to the corn. Anyone that has experience with their own children I would love to hear from you.
  2. Medical Mysteries and Shadowlands the Posterboys Story of how he unlocked help co-morbid Pellagra God being his help from his Celiac diagnosis. May you find the same faith in your life for to Educate is to truly Free! How to determine if it is a complementary or competing diagnosis? It takes faith to free yourself from a comorbidity. Health is like faith . . . you will only do what you believe. And you can have only faith in what you know to do. As some long time members of celiac.com know most/many of my blog posts’ document my trials and tribulations with Low Stomach Acid often being misdiagnosed as high stomach acid today). I have like many of you on this board had severe GI symptom’s culminating in a Celiac diagnosis after 30+ years of IBS and/or NCGS symptom’s. Only to find out that taking BetaineHCL (powdered stomach acid) helped alleviate many of my symptoms’. **** Let me say that this does not negate my positive Celiac/NCGS (really positive blood test only) diagnosis. I am in the medical world something termed a “Zebra” or “idiopathic” would be a more correct term/diagnosis. These GI conditions were happening for an “unknown reason” . . . Low stomach acid being misdiagnosed as HIGH stomach acid instead. Think the “House” TV show which I don’t get to see much anymore but commonly took several “differential diagnosis’s” to determine the correct one. While any of the previous diagnosis had a valid conclusion they ultimately were wrong. (But in TV land . . . . everybody finally gets the right diagnosis and gets better as if my magic it seems) but if you have ever read the Washington post’s “Medical Mysteries” column you know that is far, far from the real world sometimes. https://www.washingtonpost.com/national/health-science/a-bad-diagnosis/2015/08/24/b17606c2-12ac-11e5-89f3-61410da94eb1_story.html Often we/us “‘Zebras” exist in some “shadow land” as described well in this NYtime times article here discussing the difference between “The Damage of Bile Reflux not (Stomach) Acid” http://www.nytimes.com/2009/06/30/health/30brod.html quoting “The symptoms are similar to heartburn, and many sufferers are told they have gastroesophageal reflux disease, known as acid reflux. Yet treatment with popular remedies for acid reflux, like the acid-suppressing proton-pump inhibitors Prilosec, Prevacid and Nexium, fails to work or gives only partial relief. That’s because acid reflux is, at most, only part of the problem. The main culprit is bile reflux, a back-up of digestive fluid that is supposed to remain in the small intestine, where it aids the digestion of fats.” However if low stomach acid continues to be treated like HIGH stomach acid instead . . . no real progress is made and people become locked into a (bad) misdiagnosis. I have been that person. I know what it is like to receive one bad diagnosis after another. Co-morbidity is a real medical condition where more than one disease exists in a person and because of “preconceived notions” one disease is not being treated because the other “Primary” disease is considered secondary to the first. See my blog post about how this “devastating delay” can delay healing in recognizing the correct morbidity. Or can we identify the real/correct diagnosis in the first place. Maybe? Or Maybe Not? I am not saying this will help “All” your problems but it will help your co-morbidity. My co-morbidity was Pellagra occurring with/because of my Primary NCGS/Celiac diagnosis or as I said in another blog post I had Celiac disease and developed Pellagra. Or was it I had Pellagra and was diagnosed as a Celiac? How could I know for sure? I could supplement with the missing ingredient that leads to Pellagra in time. And if I got better then I had addressed a common co-morbidity in celiac disease. See my blog post where I explain how to win this two front war. I have found (digestive) peace praise be to God! Now I don’t’ expect this to work for everyone who try’s it but I didn’t anticipate the amount of resistance or faith it would take for people to consider a valid “differential diagnosis” either. It turns out without faith . . . people can’t get better. I will say it again “Health is like faith . . . you can only do what you believe”. What do I mean by that? Read most any post from Ennis_Tx and he will faithfully tell you about Magnesium. . . though few believe him (often) he faithfully tells it (because it helped him). I didn’t know what was happening at the time. I was witnessing the Pike Syndrome in action . . .until it happened to me. I naively believed . . . tell other’s and they will believe. Not so young padawan . . . you can have the knowledge to help other’s but until they know how much you care . . . they don’t care how much you know. I had come up against the greatest force in the (medical) world)) and maybe the world in general (I speak as a man) . . . inertia/apathy also called “learned helplessness”. Better known as the “Pike Syndrome” (Anybody who has received a misdiagnosis . . .. later on to find out your IBS is now NCGS or your NCGS is now Celiac disease this post is for you. Think if you had received a Celiac diagnosis in the beginning how much suffering you could of avoided over all these years.) Explained well here at a motivational coaches site https://jcrowcoaching.com/2012/02/01/that-pike-experiment-is-downright-chilling/ I will quote short pieces/clips to explain quickly what I mean but read it all for your selves for a more comprehensive understanding of this concept. “Known as the Pike Syndrome, it’s a great, albeit depressing, example of learned helplessness. There’s a pike in a tank of water along with a dozen doomed minnows. Sure enough, the pike darts and snaps and gorges. Poof, the minnows are nowhere to be found and the pike is pretty satisfied. Enter these two exceptionally perky researchers who proceed to lower a glass barrier into the tank and slip in another dozen minnows. Like any self-respecting pike, this fish is thinking “lunch,” and goes after them with gusto. Except he smacks his nose against the glass and comes up empty-handed (so to speak). Again. And again. Finally, the pike sinks to the bottom of the tank, suspends himself in the water and stops trying. That’s when these researchers (and really, they’re so happy they’re scary) remove the glass barrier, freeing the minnows to swim wherever they like. And where they like includes all around the motionless pike, right in front of his nose, even bumping into his head. And the pike? He just sits there and never again tries to eat a minnow. And he starves.” To many times in life there are “invisible barriers” in our lives’ holding us back. . . This is to those who have lost hope or are still searching (hopefully) if you are reading this blog post for yourself or a friend who has developed NCGS or Celiac disease. Gluten is your minnow (with good reason) but if you have Pellagra too (that invisible barrier) can be removed by supplementation. IF your now suffering from Celiac and Pellagra the way I was then taking Niacinamide will remove the Pellagra barrier in your GI quest to get better and find GI peace from Pellagra for yourself the way I have. How do we know if it really can be Pellagra instead? It is as simple as Occam’s Razor. From Wikipedia 1. “Occam's razor is a problem-solving principle attributed to William of Ockham (c. 1287–1347), who was an English Franciscan friar and scholastic philosopher and theologian. The principle can be interpreted as stating Among competing hypotheses, the one with the fewest assumptions should be selected.” The correct diagnosis is the simplest one to diagnose. Pellagra can be simply treated by supplementation. AND (a witness of two is true) IF you have developed a CORN allergy in addition to your gluten allergy you have met the medical definition of Pellagra 75+ years ago lost now to medical history. See Dr. Heaneys’ great blog post summarizing this fact about Pellagra and the 4 Ds. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ I will say it again “The correct diagnosis is the simplest to diagnosis”/simplest to treat in a co-morbid condition. . . where there is some doubt as to the true diagnosis. And supplementation removes that barrier if indeed you have also developed a corn allergy I beg you to consider taking Niacinamide 2 or 3/day (whichever is easier/ with each meal or morning and evening) for 6months to see if your GI problems don’t improve the way mine did after 30+ years of suffering from a Vitamin deficiency. Or if you are still suffering from a “poor prognosis” and poor dietary compliance (seemingly) though you have tried your best (you really have) and are still failing at achieving remission then consider the differential diagnosis of Pellagra is all I ask. Also see this thread about a Celiac starfish/zebra who is suffering still from Pellagra misdiagnosed as Celiac disease (I believe) and is shocked her Ttg levels are still elevated. quoting/paraphrasing from the earlier Pike Syndrome article christina this post is for you. “The thing is, unlike that starving pike, we have the power to change our perspectives, challenge the accuracy of our beliefs, and question our views. It’s not necessarily easy. Sometimes it takes an outsider to help . . . .who will push and prod and challenge. If we’re lucky something inside of us nudges at our unconscious until we move, and try, and change our views”… /belief(s) about our/your bad diagnosis. You will only know if you try! I pray you will have the faith to try! If it could help why wouldn’t you at least try? You are not a Pike! As always 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen Change is not easy . . especially if you have developed/are suffering from the Pike Syndrome I grant . . . but possible with education for with education comes understanding. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (Pike/sufferer still suffering), by the comfort wherewith we ourselves are comforted of God.” Posterboy by the grace of God, *****Note: I have said all I have intended to say. I speak as a man. Badly misquoting Romans 10:14 How then shall they change their stars/diagnosis in what they have not believed/heard? and how shall they believe in what they have not heard? and how shall they hear without a preacher? Romans 10:14 "How then shall they call on him in whom they have not believed? and how shall they believe in him of whom they have not heard? and how shall they hear without a preacher?" I have spoken/preached to other’s still suffering with/about a diagnosis I did not receive that helped me. I hope it helps you too the way it did me. Pellagra – Like Celiac Disease has existed in the Shadowlands as a Medical Mystery for way too long! Find out which is the correct diagnosis is by supplementing with Niacinamide 3/day for 6 months I beg of you until BURPING two hours after a meal is your new normal and the “Natural Order of Things” have been restored. If this has "Piked" your interest you can read best how to take Niacinamide by reading this blog post. You are not a Pike! You can decide for yourself. Knowledge is power! Now that you know what else Celiac Disease could be what will you do with this knowledge? Will you sink to the bottom of the tank or try to bust through that glass barrier (which isn’t there) but in your mind if Pellagra is now being diagnosed as Celiac disease and the doctors have badly misdiagnosed this Medical Mystery (Pellagra) and you have been found to exist in the Shadowlands of Medicine. Then there is hope! This is not as far off as it might sound on a first hearing. See Season 2 Episode 22 “Forever” listed as episode 44 see link below of the medical TV drama “House” the “Differential Diagnosis” /Final Diagnosis was Pellagra for the Episode on Celiac Disease. https://en.wikipedia.org/wiki/House_(season_2) Feel free to comment and add your success stories when you begin burping w/o bloating for the first time in years and years so others too can be helped from your experience. Like I am sharing now. Praise bee to God if you have considered what I said and are willing to try it (taking Niacinamide) for yourself or your little pike if you are a parent and still searching for answer's for your little one until . . . burping is their/your new normal. I only know it helped me. I can't be the only one. If I am let it not be because I did not share! A witness of of two is true! Both you and your tyke take it (Niacinamide) at the same rate/amount 2/day or 3/day (whichever is easiest) and you will begin burping together -- a confirming sign that the Vitamin is making a difference and Pellagra is fading away into medical history for you in approx. 3 months. 2: 7 “Consider what I say; and the Lord give thee understanding in all things”
  3. Celiac.com 12/08/2017 - A quick glance at many pet and livestock food labels will show that they contain corn gluten feed (CGF) and corn gluten meal (CGM). But don't worry. Unlike wheat, barley and rye, corn is naturally gluten-free, as are corn gluten feed and corn gluten meal, says Randy Wiedmeier, livestock specialist with University of Missouri Extension. Addressing concerns from people with celiac disease and/or gluten-intolerance over the presence of corn gluten in their livestock feed, Wiedmeier stressed that "Corn gluten meal is a byproduct of processing corn. There is no true gluten in corn, but simply corn proteins." He stated that he had no idea who came up with the terms corn gluten feed and corn gluten meal, but that they are "obviously misnomers." He added his assurances that it is "perfectly safe to consume meat, milk or eggs produced by farm animals consuming corn gluten feed or corn gluten meal." Even if corn gluten contained actual wheat gluten, it would not be a problem, as anything eaten and digested by an animal is absorbed into the animal's body, and "reassembled by the animal's metabolism into proteins specific to that animal, not back into gluten that would show up in the animal products," said Wiedmeier. So, if you have celiac disease or gluten intolerance, you don't have to worry if you see corn gluten listed as an ingredient in your favorite pet food or livestock feed. It is corn-based and gluten-free, and is unlikely to harm you or your pet. Additional information can be found online at missouri.edu. Source: Newsleader.com
  4. Celiac.com 09/23/2017 - Looking for a light refreshing salad that will help you turn corners at the next cookout? Look no further. Esquite is basically an the off-the-cob version of elote, the popular Mexican street food dish. This recipe adds grilled and chopped poblano chiles. Ingredients: 4 ears of corn, in husk 3 small poblano chiles 3 tablespoons unsalted butter 2 scallions, chopped ⅓ cup crumbled cotija cheese ¼ cup fresh cilantro, chopped, as desired 3 tablespoons fresh lime juice 2 tablespoons fresh Mexican crema with a dash of hot sauce, as desired, for serving 1teaspoon gluten-free hot sauce, to taste vegetable oil (for grill) Kosher salt Directions: Heat a grill to medium heat; oil grate. Whisk lime juice and hot sauce in a medium bowl, with a dash of salt. Set dressing aside. Grill corn in husks for about 10–12 minutes, turning occasionally, until corn husks are charred black and some of the kernels are dark brown Grill chiles alongside corn, turning as needed, for about 8-10 minutes, until blackened in spots and crisp, but tender. Transfer corn and chiles to a platter to cool a bit before shucking corn. While corn cools, peel the charred skin off of the poblano chiles. Remove seeds from chiles and chop. Butter the corn, then cut kernels from cobs, and place into bowl with the dressing. Add to corn along with scallions. Toss to combine. Top with crema, cojtija cheese, and cilantro as desired. Salt to taste and serve with lime wedges.
  5. I was extremely frustrated late last week and this week when I felt gluten. I have been very careful to eat gluten-free. A common ingredient I was eating was corn, hard shell corn tortillas and a bag of gluten-free black bean chips with corn. I checked the box of corn tortillas and it listed gluten-free and black bean chips had the gluten-free label. Now I find out corn has a high % of a Prolamine protein (Zein) like wheat (Gliaden). Has corn been linked damaging villi?
  6. Hi everyone, I'm new to this forum (and diet) & have been having a lot of trouble trying to find foods I can eat based on the results I recently received after a food intolerance blood test. Google isn't helping me answer all my questions, and my naturopath is on vacation for the next 2 weeks, so I was hoping some of you informed folk could help? My main intolerances include: Dairy (cow, sheep, goat, casein) Barley & wheat - (I am OK to eat gluten, durum, wheat bran, buckwheat, millet, rye, oats...) Pea Corn Potato Rice Cashew nut & pistachio Yeast (brewer's) - baker's is fine Bean (Red Kidney & White Haricot) Egg white - (egg yolk is OK, and baked eggs are fine) Orange Cabbage (Savoy/White) Mustard Seed The odd thing is, I am okay to eat gluten (gliadin) itself, but eliminating wheat from my diet puts me on a gluten-free diet. Does anyone know what kinds of flours are appropriate substitutions given my intolerances? (ie, sorghum, quinoa, semolina, spelt, etc.). Most places use rice, potato or corn as substitutions, all of which I think are safe to say I cannot have. My list of questions of what I CAN eat, if anyone can help answer their groupings or categories: Baking powder corn syrup, rice vinegar, sweet potatoes/squash lima, black, pinto, mung beans & chickpeas quinoa & farro It's been difficult trying to create a diet and figure out places I can safely dine out without having to worry. Thanks so much for your help. Cheers! A
  7. Hi Everyone, I would like to move somewhere in Central/South America to study Spanish for a few months but am concerned about food availability, allergy awareness and ingredients used at restaurants. I get sick when I eat Gluten, Dairy, Corn, Soy, and a few others but those are the worst ones for me. I usually eat meat, rice (as my grain source), potatoes, and fruit/vegetables. I'm concerned about being able to eat out at restaurants and shopping for food. Even in the USA, gluten free can be a challenge if one cannot eat corn, which is the most common substitute. Does anyone know which Latin American country will be easiest to manage? Right now I'm thinking that learning Spanish in Spain might be my best bet but I really want to go to Latin America. There was a similar post in 2010 (only for gluten), but now it's 6-7 years later so I'm bringing the topic back again because times change fast in the allergy world. Thanks so much for your help, Ori
  8. being new to this, I have started avoiding gluten and dairy. I seem to be sensitive to other foods like corn, tomatoes, bananas, and possibly grains and sugars. I still get puffy in the face whenever I eat certain things. other than blood testing, does any meds help with this? Also, is gas X gel tablets ultra strength gluten free?
  9. My son had blood work done Cyrex Labs. The array 3 & 4. I didn't start having him eat grain foods until around noon the day before the test. They took his blood around 11:30 am the next day. My son felt his usual gelatinized symptoms but not as extreme as usual. By that night though he was full on sick and took over a week to fully recover. I'm worried that he did not eat enough and long enough before the test for it to give accurate results. Does anyone have any experience or feed back for us. We are still waiting for the results.
  10. There was a documentary on netflix I watch I believe it was called "corn nation" something about corn. The guy showed how they have added the wheat gean to the corn as a way to make bugs not want to eat the corn.. He goes on to show an underground bunker where government has 1000's of varieties of corn stored in jars.. He asked the one in charge she said they new they (GMO companies) were modifying the gean or gen ( can't spell today) and they were protecting the original in case it made it uneatable and might pollinate other crops killing off corn.. He then went on talking about how even corn is feed to cattle because so many farmers started growing it.. That explains the dairy reactions too
  11. Hi there...I've been gluten free since my biopsy so about 10 months...still having random neckrash and hives on my eyelids and recently was tested for food allergies. The IgE results were all negative but the IgG came back positive for casein, wheat, corn, beef, apples, banana's, potatoes and tomatoes. It only tested 10 different things (ok for chicken and soy)...I've been trying to find information on this while waiting to see a nutritionist but my dr just said for now stay away from the highest offenders...the levels were supposed to be under 2.0 and corn was 11, bananas 9, beef 7.4, casein 5.5 etc..while tomatoes were 2.5 and potatoes were 2.0 which they marked as high... I was told at my endoscopy 10 months ago that I had a lot of visual inflammation of the esophagus, stomach and intestines and the results were celiac disease gerd and inflammation of stomach.... Many places I read that if you had low positives to ignore those and I'm thinking no I should notice all positives....?? and I can't find any reference to what is considered "low positive"...is the 11 a low positive that I had for the corn or is it like a WHOA off the charts....I can't even find a reference for it...Any insight anyone???
  12. Hello everybody! I am a diagnosed celiac and trying to figure out the following: To my understanding Gluten is a mixture of proteins and that most of the time it is largely composed of Prolamines and/or Glutelins. Now I am being told that I have to avoid wheat, barley and rye as gluten is present, what I do understand as there is e.g. the Prolamine Gliadin in wheat. But at the same time there is the Prolamine Zien in Corn and the Prolamine Orzenin in Rice and they are considered safe for celiacs. This does not make sense to me at all and I would hope that there is someone here who is able to explain it to me. Background of the question is that I am trying to figure out what else I can do to get better as even though I am on a strictly gluten free diet, I am not feeling significantly better. Thanks in advance for any feedback.
  13. Hi everyone! I haven't been on here in a long time. Three years of being gluten free and doing well other than this chronic, ongoing awful pelvic pain. It gets much worse at times and a little better at other times. It took me until about a year ago to realize I am sensitive to corn and when I cut out corn chips and corn tortillas and anythign made with flour I had remarkable improvement. I am still miserable off and on though and I am wondering just HOW much I need to avoid corn. For example I still drink sodas and those have HFCS and carmel coloring. I know for a hard fact that I can't have a whole list of candies and I have researched them and found that all of them have corn syrup as the first ingrediend. I react very badly to all of those (marshmallows, starburst, tootsie rolls, etc). So I have cut all of those things out of my diet but I do still have the pelvic pain and pain with BMs so I'm wondering for those who have issues with corn, do you avoid HFCS and corn starch?Baking powder? What about xanthan gum? I know all of these things are garbage anyway and as of today am starting back on an eliminatiion diet of corn products this time but its SO overwhelming as it seems that corn is in EVERYTHING. I am just hoping someone can give me some insight or personal experience. I experimented two days ago and ate a handful of corn chips and I'm paying for it so badly ever since. Excruciating pain and been on the toilet all day. I will never do that again and I"m so determined to figure this thing out once and for all! Also, I've done quite a bit of research today on GMO corn and HFCS and its health dangers, I'm just still a bit confused and I think more wanting to hear from anyone that has similar problems that can tell me I'm not crazy, it will get better and definitely avoid these certain ingredients (which are?) Thank you!
  14. Feeling a little overwhelmed and sorry for myself today. For the past 3 years I've been learning about my gluten intolerance. I am intolerant of gluten, soy, dairy, corn (and corn products such as vinegar and citric acid), gluten-free oats, quinoa and nightshades including tomato and potato. This even includes liquor like potato vodka. I know I'm SUPPOSED to be able to tolerate this....but I cant. So, basically, I've been strictly gluten free for about 1 1/2 years now. I have severe heart burn. Better with medication. Most of my gluten symptoms such as numb limbs, face, etc. and severe stomach upset and gas has gone away. Its magic as long as I stay away from gluten and the other offenders. At this point though I'm just angry. I smile and say its no big deal. I get by and there are lots of foods I can still eat. I put on a brave face most days. I am truly happy to have my health. I keep holding out hope that some of these multiple intolerances will go away as I get better but........ A part of me wants to say screw it, eat a bunch of gluten and call it a day. I get really frustrated and sick of being "ok" with it. Some days, it sucks! I hate that I can't go out to eat anywhere like every other normal person. I hate that people think I'm being picky. I hate the sympathy I get from decent people. Multiple intolerances SUCKKKKK! I also hate that sometimes I get sick from foods that AREN'T gluten. Not fair! It makes me so angry at my body. So, I just needed to b%$@# everyone. Needed to whine and throw a hissy fit! Thanks for listening!
  15. Years ago, I got this idea from Dr. David William's newsletter. At the time it really helped me. I forgot all about it until I had my thyroid tested and discovered that I had low hormone levels. To see if you need more iodine: Do after showering or washing for the day. Take some topical iodine and paint a quarter size amount on your SKIN. Check the spot in 24 hours, if it is still there, forget about it. If the spot has disappeared, you need an iodine supplement., or you washed or rubbed it away! If one does the test for a few days, or begins supplements, the spot should absorb more slowly as time passes. I had one go 2 or 3 days when I tried this years back. If you need an iodine supplement I have been using Mother Earth Minerals, INC. and it has been well. This is safe to use by mouth. The topical (first aid) kind isn't safe by mouth. That is important to note since it is poisonous! I mentioned people that avoid iodized salt because of the magnesium stearate (corn product) in it. If you don't use iodized salt, I think it is quite possible that you need iodine. My current guess is that celiac disease causes difficulty absorbing iodine just as it does with other nutrients. In my OWN (Natural Life Personhood) OPINION one would want to try adding iodine supplement before using drugs for low thyroid. If you care to, ask your doctor first. Your beliefs or circumstances may be different. My thyroid problem was only borderline low, and not yet clinical. I hope that others can avoid being deficient in iodine and that some thyroids can get back to work in a strong way. D
  16. I had a TERRIBLE reaction to the "Food Should Taste Good" sweet potato chips, and I'm not sure why. Ingredients: Stone Ground Corn, High Oleic Sunflower Oil and/or Safflower Oil, Sweet Potato, Corn Bran, Evaporated Cane Juice, Sea Salt I've eaten these chips on several different occasions, but I always had something else I blamed the reaction on. Twice I thought I had been glutened, but this past week it would have been highly unlikely so I looked back over and realized they were all times I had eaten these chips. The reaction each time started out as strong brain fog, which grew worse every day and made me really angry and severely depressed, to the point of suicidal ideation. I got extremely tired and had bad stomach pains, bloating, muscle pain/weakness and diarrhea. I took a charcoal yesterday while in agony after eating the chips, and half an hour later the depression began to lift. Today was the first day I didn't eat them and my stomach is still a little messed up but overall I'm okay. But now I'm completely terrified at how much it affected me mentally. I was so depressed I could barely speak. I haven't felt that bad in years- I wrote a suicide note! I'm really worried about how completely it had me under its spell, and I'm afraid to try new things for fear of what it will do to my mental state. I don't even know which ingredient it was that did it, but I'm assuming either sweet potato or corn. How is it possible that food can do that to a person? Has anyone else experienced this? How do I determine which ingredient it is without putting myself at risk?
  17. I am hoping some of you can help me understand what I am reacting to. I have been having mild reactions on and off after in the last two weeks. I get the usual migraine and feel very sleepy and foggy. I have been trying to identify the culprit but I no luck so far. I get these reactions after eating breakfast and figured it has to be one or several of theses: Justin's almond butter Bob's Red Mill flax seed Bob's Red Mill chia seeds Let's do Organic shredded coconut Larabar Jocalat hazelnut I stopped eating the Jocalat bars thinking it was that, but I kept having reactions. I am confused because I have been able to have the other ingredients with no problem on other occasions in the past. I react to gluten, corn and dairy. I feel like this is more of a corn reaction but I am not sure. Any ideas?
  18. I. Can't. Stand. This. After counting myself lucky that amidst all of my terrible celiac symptoms at least I didn't have DH, I now do. And I think it is because of gluten free corn chips (Glutino). I have long suspected that a corn allergy is also at play - largely because within 30 minutes of eating popcorn I pass out cold for hours. I tried several varieties of gluten free pizza all of which had corn starch if not a corn base, and felt terrible each time. And then, because I am a moron, I decided to eat the corn chips (even though I knew it was a bad idea). Three days later, I'm still exhausted and dopey and my back is covered with a lovely, itchy, want to tear my skin off rash. So, corn is obviously now out but I'm concerned about all of the places it hides. By the time my celiac was diagnosed, I had become pretty severely vitamin deficient so am on megadoses of supplements to try to correct the problem. I've emailed all of my vitamin manufacturers because corn isn't labeled as clearly as other allergens but would also love some feedback from others in the same boat. Any great brands you can recommend and/or what else do I need to be on the lookout for? Needless to say, I'm throwing myself a massive pity party at the moment. It has been two and a half months since we figured out what was killing me and while I definitely no longer feel death sitting on my shoulder, I also don't feel anywhere close to well. In addition to the corn exposure, I'm also worried that I might be having some cross contamination exposure. Having just been forced to leave my home overseas because of this disease, I'm staying with friends who seem to eat nothing but gluten. They don't cook so there are no loose flour particles floating around but maybe I'm getting poisoned all the same. I take a lot of precautions but touch things like refrigerator door handles after them all the time. Am I taking too big of a risk staying here? Sob.
  19. Hi everyone, I've been strictly gluten free for about 1 year. I do not have diagnosed celiac disease but I know I was very sick before I cut it out. When I went gluten free I noticed I felt much better but about 3 months in noticed a soy intolerance. Then came lactose then casein and most recently chicken, potato, Certified gluten-free oats, quinoa and corn. Corn has been the bane of my existence. I can not tolerate even distilled white vinegar (derived from corn). That said, I feel so much better. Normal and healthy most of the time. I am shocked and amazed by how healthy and happy I feel after having years of debilitating migraines, IBS, and neuropathy. These foods gone, I feel great! So, I am by no means complaining but seriously....did anyone ever get their foods back? Obviously gluten is NEVER reintroduced. But I do miss potato. I miss soy (tamari please!). I realllllly miss cheese! I know one year is not that long for healing but I have to ask, have you been able to reintroduce your intolerances? How long did it take for you? Also, for those of you with other grain intolerances, ever reintroduce those? I am really curious as to other grain intolerances like corn. Would be nice not to worry about salt (iodized table salt has corn as a binding agent). Thanks everyone!
  20. My food issues began several years ago. I am a self-diagnosed celiac. I have been tested for allergies and have none. I first discovered gluten was a problem a few years ago then discovered soy, casien, corn, chicken, coffee and even peanuts made me sick as well. The best part is that I feel the best I've ever felt. I know I am finding my health again and I feel normal most of the time. I've learned how to find/cook really well and am happy most of the time. Here is where I need some help: I really miss eating in restaurants but I am terrified of doing so. Corn is in EVERYTHING. I can tolerate very small amounts (talking vitamins) but I have trouble with things like iodized salt. I am very scared to eat out but I really miss it. I am 28 and live in Chicago. Best city for food ever! I am very happy but it feels fairly isolating not to be able to go out. How do those of you with similar intolerances do it? Do I just need to wait a couple years for my gut to heal? Do you bring your own food? I'm feeling hopeful enough to try new things. Help me figure it out?
  21. Hello!, I am new to this forum and I hope I am posting in the right place. LONG story short, I have had a panic disorder that doctors called PTSD so shoved pills down my throat for years, got to the point where I spent 2 years in bed. Could not even get to my mailbox. 2 years not one step out the door. I found out I have these allergies and I still struggle but I am out again...absolutely amazing! After being told time and time again that a food could not contribute to it by Doctors. I am allergic to gluten, casein, soy, and corn. I eat hummus every day for the protein, etc...but lately it has been making me very tired. I see people saying they cut out legumes from their diet, I was wondering why they cut them out? Is there evidence that Celiacs can't always stomach legumes? -Josh
  22. Please help! I was just diagnosed a few weeks ago and officially started my gluten free diet about 2 weeks ago. I noticed a difference immediately, which was very comforting. I've been extremely careful to avoid all sources of gluten and am trying my best to avoid cross contamination. Im just getting used to all of the ingredients i need to avoid to remain gluten free and its taken a lot of work and getting used to. I thought I was finally getting the hang of it, but I just discovered that I also have a reaction to corn! I started looking up ingredients that contain corn and the list is overwhelming! I am getting very discouraged as I didn't even know anything about celiac 2 months ago. I was really looking forward to my DH, bowel issues, anxiety, insomnia, irritability, brain fog, and dizziness going away for good but now I feel like I'm climbing Everest! Do I have to avoid all corn products in order for all of my symptoms to clear up? If so....what can I eat?!? It seems as though there is gluten or corn in everything! This is a lot to handle and my doctors aren't being much help. I feel like I'm alone in this!
  23. Hello guys, I haven't been on here fr a very long time now, but your always here and ready to help so i'm asking for help. I've been strictly gluten free for a year and a half since my diagnosis. I also cut out all dairy, soya, tomatoes and peppers. I'm a vegan by proxy. I havent eaten meat since i was 4. Most mornings I wake up, and within 10 mintues I have bad lower stomach cramps and urgency to go t the bathroom.... Were getting to the TMI bit and i apologise. Its usually a dark brown (I take iron) and i don't know how else to put it but it is like the consistency of soft ice cream, or a cowpat, now formed except a few pieces and so soft but not watery. Its horrible to be blunt. Some mornings i don't have to go at all, which is delightful, and usually after I've eaten white rice with peas and brocolli the night before. But if i keep eating rice i become constipated and thats not good. So here is my diet Morning: Breakfast cereal made from rice which is the only cereal i can have. Lunch: 6 rice cakes, two with avacado and four with sunflower spread and organic peanut butter. Snack: Apple, Banana or a handful of almonds if i have them. Dinner: Rice with peas and brocolli, Mashed potato with peas and brocolli, gluten-free pasta with gluten-free/df/sf pesto with brocolli and cucumber. I also do not drink any caffeine, i drink herbal teas and water. Occasionally elderflower cordial. I have cut most corn out of my diet as i was having sweetcorn and it improved things for a little while which i was super excited about but it came and smacked my smile off my face. The only remaining corn in my diet is a small section of my pasta is made with it. I was thinking maybe it was the potato as i can't tolerate any other nightshades, but tbh my gastro issues aren't much better anymore from not having them so i don't even know anymore... All my hair/make up etc are wheat free/gluten free etc. I'm so careful about CC, it basically isn't possible. I never eat out. I don't even generally go out! I go to the gym every day because i have osteopenia at the moment and they don't want me taking calcium tablets because of possible heart problems that run in my family. So I'm doing weight bearing excersises to increase my bone density instead which apparently is better for you anyway. THIS SUCKS. I'm open to all suggestions, please anything... I'm so sick of feeling this way. Of my stomach controlling my life.
  24. Hi, I am very upset and apologise in advance for the length and detail of this post. I live in Perth, Australia, and believe I have discovered more information on celiac.com relating to gluten health issues than any doctor has ever been able to provide. Bit of background, I am 21 and have always suffered from hay fever, worse than anyone in my family. I get bruised easily, my right knee is totally stuffed and both knees crack when I bend them. I love to run, although my knees (and occasionally hips) set me short. My hair has always been thin and dull, and apparenly I have "big glands/lymph nodes" in my neck. I have always been thinner than my two siblings (though my BMI is normal), however I have a pot belly. We have history of diabetes, high blood pressure, vertigo, chronic migraines and mild gluten intolerance in the family. No one in my family has been for a colonoscopy, endoscopy, or thoroughly tested for celiacs. In March 2009 I began to experience very sudden, short and uncomfortable stabbing pains in my intestines/stomach region - as if something sharp just wriggled around to 'ease through'. These pains would last for a couple of seconds, causing me to double over in pain. Occasionally they would last longer than a few seconds, like a dull cramp that eventually reached a 'stab'. Pregnancy was out of the question. I couldn't eat anything and lost 15 kg. I had diarrhea, a constant fever, cramps - the doctor put me on gastro medication and didn't give me a blood test. I woke in the middle of the night with a temperature of 42.6 C - my mother took me to a different doctor and demanded a blood test. My white blood cell count was astronomical - apparently I had been suffering appendicitis for the past month, and since the doctors were unable to locate my appendix on the scan due to accumulation of fluid/gas in my intestines, we had to assume the fever resulted after it ruptured. I had key hole surgery because the surgeons didn't know what was going on. Has anyone with celiacs experienced these symptoms??? For the majority of 2010 I didn't eat very much gluten. I was on antibiotics and painkillers. I was never hungry and after losing 15 kg I preferred to eat 'lighter' types of food, such as salads and fruit. However, I ate crumbed calamari and a variety of sauces. Life was beginning to return to normal when I experienced a very unsightly rash on the right side of my face and body. I was also experiencing depression, crying for no reason, dandruff and mild intestinal pains (doctors said it was abdominal adhesions from my operation, undetectable on ultrasounds, couple of years to form, can lead to blockages, food intolerance, stomach cancer, all that jazz). I was put on acne medication. I requested another blood test - coeliac said 'negative', however by that stage I was not consuming obvious forms of gluten (bread, pasta, pizza) because I preferred to eat light. In 2011 I started a food diary that proved eating products containing gluten caused stomach aches, dizziness, tiredness, depression, irritability and headaches. I decided to avoid gluten completely in 2012. I have been paleo since February and have been feeling absolutely fantastic. I became extremely fit and my appetite diminished. My hair looks very shiny, my complexion is better than usual and people think I'm on drugs because I'm so happy and glowing. I can go all night without sleep and bounce back the following day, no troubles, all I want to do is exercise. However, after consuming corn chips/a teaspoon of unusual dip at a gluten-free restaurant, my entire face broke out in a rash - red cheeks, forehead, swollen jowels. I looked a bit like an orange hamster. Fatigue set in, and I was in an irritable and depressed mood. Just as things were returning to normal, I consumed a large amount of gluten-free cakes during a family gathering, and probably corn/dairy products. The pain in my stomach was very dull, but it was there. I was constipated. After a couple of days of mild stomach discomfort, it skyrocketed. I could feel something snaking (almost sharp and flipping, like a cut) through my intestines - very sore and tender to touch, the pain was concentrated on the right side across from my belly button and under my ribs. It slowly travelled around to the left side, then moved under my belly button. I was sweating, couldn't breathe properly, irritable, sleepy, lost motivation, wanted to eat everything I could see and puke up my guts at the same time. 3 days stuck on the toilet. I had bladder problems, urinating constantly, it felt like a combination of a UTI and thrush. I wasn't digesting anything - it just went straight through me. That was nearly 2 weeks ago. I'm slowly returning to normal, although I feel very depressed, not chatty, irritable, mild pain is present roughly 15cm to the right of my bellybutton and my pot belly is back. I can't exercise or focus on studying for my exams. Needless to say, I'm back on paleo. Has anyone had a similar experience?? Do I have coeliac disease or a gluten allergy? Will a colonoscopy or endoscopy show results, even if I'm off gluten? Any help is greatly appreciated and thank you so much for taking the time to share in my journey.
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