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Found 1 result

  1. DS was diagnosed with celiac disease at age 12 months and is now a healthy, gluten-free 5-year-old in kindergarten at our local public school. We do not have a formal 504 in place, just verbal understandings with his teachers, the school nurse, and the district's head dietitian. He brown-bags it every day for lunch, but is allowed to get gluten-free items like milk and fresh fruit from the cafeteria. I specifically addressed the issues of Play-Doh (I prefer he never use it because I am worried it will get under his nails and find its way to his mouth) and papier-mâché (which they say they never use). I did not, however, think to address the issue of ice cream cone crafts. Apparently this week the kindergarten class made a Christmas craft by covering a sugar cone with green icing and sticking little candies all over it. On Friday they brought home their creations. I am hopping mad that (without DH and I being consulted or notified) they had DS make a delicious treat that every OTHER kid can eat, but he can't. DS says he did wash his hands afterward (apparently all the kids did, as you can imagine how messy this project was), so he wasn't put particularly at risk. (This is a kid who would NEVER risk eating wheat in a million years... one of the advantages of being diagnosed so young. So there was no real risk of him sneaking a taste.) I am mad because to me it just seems insensitive, even cruel. Especially when they make gluten-free sugar cones. On the other hand, DS does not seem bothered at all. He just enjoyed making the craft (he loves all art projects) and he is actually as excited to watch his (non-celiac) big brother eat the treat as any other kid would be to eat it themself! Am I overreacting here? I feel like this is a sign that this informal verbal understanding is not enough and we need a formal, written 504. But is it really as big a deal as I think it is? What do you all think?