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Found 11 results

  1. Hi guys. I've had three blood tests for celiac, all negative, and one biopsy that I'm still waiting for the results of. I have a lot of the symptoms, and my body has been breaking down and getting sicker over the past year. I have gut pain, constipation, piles, sometimes loose stools, gas, muscle pain, bone pain, a fuzzy/light head, noise and light sensitivity, bleeding gums and mouth ulcers. But the worst is chronic acid reflux, which has been resistant to treatment. The endoscopy I had on April 30th found a hiatal hernia, which I didn't have when I had my first endoscopy in 2015. The area was full of acid and bile, which I have always been able to feel, 24/7. For the last 6+ years I've been on the IBS and the acid reflux diet. No FODMAPS (which seems to be everything), and nothing with acid in, like citric acid. I've decided to go gluten-free now, without waiting for my results, and my father has just found out that his last blood test had raised transglutaminase and was "strongly suggestive of coeliac," which has motivated me even more. But finding gluten-free alternatives is proving difficult, especially bread. The problem isn't so much taste, as acid and IBS triggers in the ingredients. All the gluten-free breads I can find contain acids like citric acid, honey, vinegar, and apple, and others contain possible IBS triggers like bamboo fibre (?) and Quinoa, which the jury seems to be out on in regards to IBS. I suspect I have to continue avoiding these ingredients as my gut is very painful and sensitive, and I'm worried about worsening gut symptoms instead of healing. Are these ingredients actually safe when the problem is (or could be) gluten? Or do they tear through the gut if the gut is damaged? I wouldn't bother with bread, but I'm 10 pounds underweight and I get a lot of flak about it, and honestly I've been getting most of my calories through bread, and don't know how to get calories without it. There is so much food I have to avoid, if not "IBS" triggers, then acidic foods. I won't touch something acidic with a barge pole! I don't really know what my question is, I feel stumped here! But any ideas would be much appreciated. Also, I live in the UK, so some brands aren't available here. I wondered if supermarket-own gluten-free bread is OK for celiacs, as although it has the crossed grain symbol, isn't it manufactured in the same place, and therefore possibly contaminated? I thought I had this gluten-free-thing figured out months in advance (I've done a lot of reading since my doctor suggested celiac last year), but turns out, I haven't the foggiest what to do. I'm thinking of quitting food, to be honest with you. Thanks for any replies!?
  2. Hello all, So, long story short, in 2011 I started getting really really sick, with no discernible cause. Violent vomiting daily, rapid weight gain (40 pounds in one month) unbelievable exhaustion, depression, social anxiety to the point of not being able to leave the house, hives, acne, rashes, brain fog, and my LEAST favorite, the all-over bruised body feeling you get when you have the flu (that horrible bone deep aching that makes it uncomfortable to move at all, and any clothing touching you hurts.) Oh, and monstrous swelling of my face and stomach. I wound up figuring out through elimination of certain things in my diet that what was doing it was gluten and dairy. So, over the years I've cut them out (at first, after I cut them out, I was still getting horrendously sick, just less often and it took me too long to realize CROSS CONTAMINATION WAS A THING) So fast forward to now, I'm able to function like a human again by being INCREDIBLY strict with my diet and making almost all of my food myself and NEVER taking any chances with anything that was "processed in the same facility with..." etc etc I've also recently started going back to school, which means I have to be EXTRA careful, or I won't be able to attend classes or study because my brain, and my body just don't function when I've been exposed. However, I've always been a do it yourself girl, so after having endoscopies and colonoscopies years ago, and having a doctor tell me I had "acid reflux" (way to diagnose the symptom, not the cause, ya jerk) and having no doctors know why I was getting so sick, and eventually figuring it out myself, I never was tested for Celiac's Disease. So obviously, I'm scarred for life, and terrified to death of gluten and I was wondering; does anyone know of some way that I could be tested for it WITHOUT exposing myself to it? Thank you so much in advance
  3. Hi there! I am looking for insight from anyone that may have insight on what is going on in my body. I have had 6 years of fuzzy head and GI issues (bloating, constipation, nausea, pain, discomfort). I cut out gluten 3 years ago. Then did a IgG mediated food allergy test with a holistic doctor and did a food elimination diet based on those results. So I now avoid dairy and gluten and tomato. I notice i have flare ups when I consume corn so I am trying to be more strict about it lately but I get a week long of nausea/heartburn/acid reflux when i do eat it. I also started following a low fodmap diet a few months ago due to still not feeling great and when I follow all of these things (gluten free, dairy free, corn free, low fodmap) I feel the best I ever have, although it is very hard to sustain. Also, i still have random spouts of horrible heart burn and nausea occasionally and cannot pinpoint it. I also am on a PPI for this. I have had a hydrogen breath test in 2015 and it was negative. I also have had multiple EGD's and Colonoscopies that have been unrevealing besides a stomach ulcer which is now healed and some esophagus irritation most recently. I am now scared of eating so many foods because I have had so many days of not feeling right. I have considered getting more strict on the corn restriction or maybe considering nightshade free because I am not sure what to do/if Fodmap is really helping since it isnt all the time and I am stressed about what I can even eat anymore. Any suggestions or thoughts are appreciated! Thanks in advanced, Sara
  4. I am posting this on behalf of my wife who has had Celiac for several years now (or rather, more likely non-celiac gluten sensitivity). She has gotten very, very good at not getting contaminated, as she is EXTREMELY sensitive to gluten. However, when she DOES get contaminated, she suffers from terrible acid reflux and GERD for 6-7 weeks post-contamination. I have a couple questions. First, does anyone else here experience this length of symptoms post-contamination? Second, does anyone have any recommendations of anything she can try to reduce the gerd/reflux during her 6-7 week recovery period (we have tried DGL and a few other things, and nothing seems to do a whole lot of good). Any help/advice appreciated. Noel
  5. I was just diagnosed with Celiac Disease six months ago at the age of 35. Five years ago (at age 30), I fell ill for days with flu-like symptoms and abdominal pain. My doctor's office did a blood test and sent me to the hospital where I underwent emergency surgery for "perforated diverticulitis". Until this point, I had always considered myself healthy. I am a non-smoker. I was 5'7", 145 lbs. I wasn't aware I had diverticulitis. Apparently it was so bad that it had burst open. My surgeon told me if I had waited 24 hours to seek medical attention, I would have likely died. Very scary. He also told me that this kind of illness at my age was extremely rare. This is the type of thing that they see in people over 80. I had to have 1.5 feet of large colon removed. I wore a colostomy bag for 3 months while I healed and I was able to have the reversal surgery after that. Following the surgeries, I've had a lot of digestive problems. I saw many specialists who told me it was anxiety that induced my symptoms. Finally I went to a new GI who found the celiac disease. After my endoscopy, he told me it was advanced. I know celiac is supposed to attack the small intestines, but I am curious to know if there is a link to large bowel issues as well. Has anyone had a similar experience? Or able to shed any light on this? I also have: Fibromyalgia Shadow block migraines bulging discs scoliosis acid reflux Chronic nausea peripheral neuropathy memory issues Chronic ear pain swollen lump under left ear (for two years) reynauds syndrome (all of which began after my surgeries) The only thing that appeared to get better after beginning a strict gluten free diet, is the acid reflux and chronic nausea. Everything else has gotten a lot worse.
  6. Before I get into the neurological symptoms, let me give you a synopsis of my background and family history. Both my parents smoke and my dad was always a heavy drinker. My mom had GERD / Acid Reflux pretty much her whole life and it should be noted that she's basically 100% Norwegian (I've read that Northern Europeans have GERD and gastrointestinal issues more than anyone else - same with the Irish). My mom was also recently tested positive for Celiac Disease (our diets growing up was filled with wheat products, so connecting the dots here, I think she was being bombarded with gluten and her body couldn't handle it). She would have severe mood swings, especially towards my dad (who is now passed on). Her acid reflux got so bad that she went in for an endoscopy and they told her that she had Barrett's Esophagus. She's still alive to this day though and seems to be holding up reasonably well. My sister also has severe acid reflux and panic attacks. Now to get to my own history. I was born in 1983. As a baby, I had severe eczema, and would rub certain areas of my body (such as my wrists) raw on the carpet, because I was constantly itchy. I would also constantly spit up breast-milk and even the baby formula. My parents had a hard time figuring out what to feed me! We would also drink tons of cow's milk. That finally hit a brick wall around age 25 (in 2008), when I started noticing that if I drank straight cow's milk I would end up with (and still do end up with if I drink it) sulfur burps which taste and smell like rotten eggs. I even tried drinking raw cow's milk one time and the result was the same, I was burping rotten egg smelling burps and would get diarrhea! This is also around the time when I noticed my acid reflux getting worse and worse. In 2009, I started lifting weights again after taking a long break from high school. When I would do any squatting motion exercises such as dead-lifts or squats, I'd almost pass out because I couldn't catch my breath afterwards. I finally went in for an endoscopy and they told me that my esophagus was raw and red. I also should note that I've read getting anesthesia and all the drugs they give you during that time, can cause long-term psychological issues, especially anxiety, which I never really had until after that year. I realized that I couldn't do those squatting exercises or anything that put pressure on the abdomen area, since it would push acid back up into my esophagus. I decided to start lifting weights on an empty stomach and that did work for awhile but I couldn't figure out why my acid reflux was still so bad. Acid shooting back up into the esophagus, is caused by inflammation. This affects the Vagus Nerve (which is the longest cranial nerve). Some of the main functions of the Vagus Nerve include, 1. Breathing 2. Speech 3. Sweating 4. Helping in keeping the larynx open during breathing 5. Monitoring and regulating the heartbeat 6. Informing the brain of the food that is ingested and food that has been digested 7. The Vagus Nerve performs the major function of emptying the gastric region of food Any damage to the vagus nerve causes Gastroparesis which is losing the muscular function in the stomach and intestines. This results in food being emptied slowly, that leads to other problems such as fermentation of food in the stomach and food getting compressed into hard pellets which can cause severe problems if the pellets get stuck in the intestine. Especially in people with diabetes, when sugar levels get high and are not well controlled, it can result in the vagus nerve damage. This can result in anxiety / panic attacks, OCD (Obsessive Compulsive Disorder), trouble swallowing, chills, asthma-like symptoms, heart palpitations, tingling / numbness in extremities and limbs, blood in the stool, hard of breathing, anxiety attack-like symptoms, canker sores, nightmares (including hypnogogic and hypnopompic auditory / visual hallucinations, such as hearing a gun shot upon waking up, even though no gun was fired), dry mouth, heart attack-like symptoms, and more (I had all these symptoms too btw). I believe that since our bodies are intolerant to wheat and dairy products, it is causing inflammation in the body, which then causes all these other symptoms. So at that point, I began having hallucinations (including hypnopompic and hypnagogic hallucinations). They were mainly auditory hallucinations and some (but fewer) visual hallucinations. They started around 2013, when I got sick with the flu and also had an in-grown toenail (I had to get it cut out by the doctor and it was the worst pain of my life!). I was extremely religious back then (I left my faith last year at end of 2015) and felt like these were omens or signs for some of the things that were deemed ‘sinful’. I then had a breakup with a gluten-free who lived in Montana and the auditory hallucinations continued. I’ve been having them again starting in 2016 after getting sick with a chest respiratory infection (I’m seeing a trend here with getting sick and having these), which I believe were caused by the Autumn Rhinitis / Hay Fever Allergies. I was at the gym around the start of August 2016, and I felt like I couldn’t catch my breath after each set of lifting. I went home and haven’t been back to the gym since. I was having trouble breathing just walking up a flight of stairs, and it was a daily nightmare until I started looking into ways to help solve my issues (which I’ll get into in a minute). I also don’t have a great sleep schedule from working late night shifts, so I’m typically always sleep deprived. I should also mention that I think I have formed P.T.S.D. (PTSD - Post Traumatic Stress Disorder) from watching a music video where it showed a death. The image of the woman dying kept playing in my head (this also happened around August 2016). Then on top of all that, I was lifting weights 2 times a week (full body workouts), doing H.I.I.T. (High Intensity Interval Training) a couple times a week in the morning, AND working night shifts. On top of all that, my dad died last year (October 3, 2015) and within a week afterwards around October 10th, I ended up with appendicitis so I had to get the appendectomy surgery to get my appendix removed. A few weeks later, I walked away from my faith (not due to emotional reasons, but due to extensive research, which was already in the process starting at the beginning of 2015). So I lost my dad, my faith and my appendix within a month's time period. It put a lot of stress on me I think. I’m 33 years old, so still somewhat young, but I think I was pushing my body to the limit, and it’s been affecting my brain chemistry. Not only that, but recently, I put the other dots to the puzzle and found out that I also have gluten intolerance / Celiac / Coeliac, so I’ve stopped eating gluten (and dairy) products. I also have done a few sessions of AAT (Advanced Allergy Therapy), by a doctor named Dr. Jill Cohn in the San Francisco / Berkeley / Oakland Bay Area. You don’t even have to be there in person for her to treat you, she does it all online through a conference call on a site similar to Skype. You can watch testimonials on YouTube as well, and I’m here to tell you that her system did cure me of Ragweed allergies. I now understand that because I was pushing my body to the limit as well as trying to stay 500 calories below maintenance (to cut fat and get shredded), that my body wasn’t getting the proper nutrients and vitamins due to eating wheat and gluten (as well as dairy). This damages the alveoli and villi in the intestinal tract which are crucial for absorbing the nutrients from your food. I also found out that my body reacts poorly to chocolate as well. Chocolate is a 'stimulant' and has been proven to affect the brain the same way that cannabis / marijuana will. This could be some of the problems you all are facing as well. At that point, your body is so run down, that it will start attacking ‘harmless’ invaders, such as ragweed pollen, pet dander or even just simple dust particles, which this process of your body in attack mode, will cause inflammation, hence the reason I was having trouble breathing (my body developed exercise-induced / allergy-induced asthma). Not only that, but when your body is so run down and not getting the proper nutrition, it can cause psychosis and schizophrenic symptoms as well! I started taking a ton of supplements and they’ve helped tremendously. Here are a few to get you started. Try these and eat a balanced diet for a couple months. I’ll bet you start to feel better and the hallucinations diminish. 1. Vitamin D3 (Jarrow Brand 5,000IU – take two to four per day) – This is especially necessary if you live above the 37 degree parallel (latitude) in the Fall and Winter (typically from September to March). The sun only produces Vitamin D3 in our body when it is 50 degrees (altitude not temperature) above the horizon and even during the Spring and Summer, this only occurs from around 10AM in the morning to 2-3PM in the afternoon. So you have only a 4 to 5 hour window in the morning to afternoon when the sun is producing Vitamin D3, which most people aren't really out during those times, because of work schedule. This is why around 75 to 80% of the world population are D3 deficient! A good source of information on this is Dr. John Cannell. Go research how vital and important D3 is for us! You want your ng/ml (nano-grams per milliliter of blood) to be from 50 to 100 (or even slightly over 100 is fine too!). 2. Magnesium (CALM BRAND) – Magnesium is the driver for Vitamin D3. It’s very important and we don’t get enough of it in our diet on average. 3. Vitamin C (take around 2,000mg per day) – Look up Dr. Thomas Levy and Dr. Linus Pauling for good information on this. The Liposomal type of Vitamin C is the best kind! 4. Vitamin K2 (different from Vitamin K1 – Get the Jarrow Brand called Vitamin K-Right) – Millions of people take calcium supplements to maintain healthy bones. Yet few patients or physicians realize that optimizing bone integrity involves more than taking a single mineral supplement. A critical additional component for bone and cardiovascular health is vitamin K2. Recent research has revealed that, without vitamin K2, calcium regulation is disrupted. In fact, low levels of vitamin K2 are associated with an increased risk of heart disease and atherosclerosis. K2 is the gateway that allows calcium to get to your bones. When you take vitamin D3, your body creates more of these vitamin K2-dependent proteins, the proteins that will move the calcium around. They have a lot of potential health benefits. But until the K2 comes in to activate those proteins, those benefits aren't realized. So, really, if you're taking vitamin D, you're creating an increased demand for K2. And vitamin D and K2 work together to strengthen your bones and improve your heart health.For so long, we've been told to take calcium for osteoporosis... and vitamin D3, which we know is helpful. But then, more studies are coming out showing that increased calcium intake is causing more heart attacks and strokes. That created a lot of confusion around whether calcium is safe or not. But that's the wrong question to be asking, because we'll never properly understand the health benefits of calcium or vitamin D3, unless we take into consideration K2. That's what keeps the calcium in its right place. 5. Coenzyme Q10 (CoQ10) Ubiquinol – it’s a substance similar to a vitamin. It is found in every cell of the body. Your body makes CoQ10, and your cells use it to produce energy your body needs for cell growth and maintenance. It also functions as an antioxidant, which protects the body from damage caused by harmful molecules. (Get the Jarrow Brand – no I don’t work for them, but I’ve heard they are the best in all of these, and it’s what I take). 6. Vitamin B-Right (Jarrow) which has all of the B vitamins in it. Niacin (B3) has proven to be very helpful for those with Schizophrenia and Psychosis. Look up Dr. Abram Hoffer and his research on mental illness and Niacin. Careful with Niacin in huge quantities, as it will cause a 'flushing' effect, but you still want enough to get the benefits. 7. Oxylent (which is one of the best tasting and best multi-vitamins out there in my opinion). It’s got most of all you need in there when included with what I mentioned above. (Those are the main ones above, but here are a few other supplements I take. ChlorOxygen, Serrapeptase {SerraGold Brand}, mushroom supplement called 'Breathe' by New Chapter Life-shield, HealthForce Green Alchemy Protein Powder, HealthForce Vitamineral Green, Probiotics, MSM, Bragg's Apple Cider Vinegar, local honey, and avocados for potassium, along with getting at least a half gallon of water per day - which I drink at least 32 oz. to 50 oz. of water on an empty stomach every morning). Within a month of taking all this (I started on November 2nd, 2016), I’m now feeling about 95% back to my normal self. The other 5% is caused by my poor sleeping habits, as well as stress. I now realize that these psychological issues were all subconscious from the heavy religious indoctrination. If I had never been introduced to these religious ideas, I’m sure I’d not have these particular religious themed hypnopompic and hypnagogic hallucinations. When it first started, I was seeing visuals such as numbers and objects floating in the air upon waking up, which, they’d disappear within a few seconds. I also hear voices, which would say terrible things, and then the voices would continue in my head as if it were having dialogue with me in my own mind. I would feel like God hated me, due to the content of what was being said. I’m pretty sure I have some sort of religious trauma after leaving my faith and also, after my dad dying within the last year (2015). They actually have a name for this type of PTSD and it’s RTS (Religious Trauma Syndrome). You can find some good material through Dr. Marlene Winell online if you suffer from the religious form of PTSD (Post Traumatic Stress Disorder). Anyways, I hope all of this helps someone else who may be going through similar! Just know you’re not alone and it’s more than likely happening because of nutrient deficiency and/or a traumatic experience you suffered as well as your diet if you are gluten intolerant / lactose intolerant. These aren’t devils, demons, hobgoblins or ghouls harassing you, this is all natural phenomena and it can be treated with the right diet, the right supplements and proper sleep! I am still getting cross-contaminated (or there is a cross-reactor food that mimics gluten and/or dairy) somewhere in my diet, so my psychological issues persist, including waking up feeling like something is trying to talk to me in my mind. I am trying to figure that out now. But they also have supplements you can take that will break down gluten if you are accidentally 'glutened.' Here is a study I found from WW2, that correlates to mental disease and gluten / wheat below. "One of the first hints that these circumstances could have implications for the psychological sciences was the observation that, in several countries, hospitalization rates for schizophrenia during World War II dropped in direct proportion to wheat shortages. In the United States, where over that same period the consumption of wheat rose rather than diminished, such rates increased instead (Dohan, 1966a,b). In South Pacific islands with a traditionally low consumption of wheat, schizophrenia was only found in 1 person out of 30,000. When Western grain products were introduced into their society, it dramatically rose to 1 person out of 100! (Dohan et al., 1984)."
  7. Help! My 12 year old has been gluten free for 5 years. However, she gets a really bad stomach ache, "sloshing" (her description), and reflux a couple of times a month. Our blood tests keep coming back "clean", no contamination. However, I suspect she is getting glutened. It seems a lot of "gluten-free" foods (cheerios!, sunmaid raisins, certain brands of almond milk). I keep a food and symptom diary but it is really hard to pinpoint what it may be sometimes. For the past week she has had terrible stomach aches and reflux. I try to keep our kitchen clean. The only "gluten" in the house is bread for my non celiac husband. We've gone through EVERY test-- negative! Questions: who else has gone through this and what did you do to get better? Do you eliminate dairy for a while after getting glutened? Is it gluten at all? She has tested negative for other food allergies and is not lactose intolerant. Anyone try "holistic" doctors? Live in US and getting NO WHERE with our conventional docs. Help!
  8. I had GERD symptoms (heart burn, sore throat) everyday before being diagnosed with Celiac's disease. I have been gluten-free for just over a month and now only get it after sports. For example, if I play basketball I have Heart burn and a sore throat for 1-2 days after. Is this common and If so, did your GERD get better with time?
  9. Hi everyone, I have heard before that Celiac disease can make one lactose intolerant over time due to intestinal damage. I have never been lactose intolerant, at least with symptoms, when I was younger (I am now 20) but now I can't eat even a single slice of cheese without getting either lots of gas, acid reflux or even cramping and diarrhea. I feel the effects of eating dairy instantaneously. Yet if I were to just eat a product containing gluten, such as a slice of bread, I get no symptoms at all. If my lactose intolerance is caused by damage from Celiac's, shouldn't I also feel symptoms from the gluten as well? How can I feel just the lactose intolerance but nothing from the gluten? Thanks!
  10. When I was in high school, I was overweight and eating a lot of junk food. I also drank a lot of soda. I always figured this could have been why I had embarrassing loud gas noises that would come up into my chest during classes after eating. During periods of Silent reading, I worried that the whole class could hear my strange noises. As an adult, I have suffered from constipation and trapped gas frequently. I have never known how to burp. so the trapped gas "yo-yos" up and down my system making noises like burps from the inside. It causes major discomfort until I can let the gas out (usually by farting loud smelly farts). When the trapped gas is at its worst, I get a burning sensation in the middle of my chest and throat in addition to the loud noises. Last night, my husband and I had tacos for dinner and I told him he had made the meat too spicy. He had mixed the ground beef with taco sauce and basil pasta sauce. At the time, my mouth had been on fire and I surrounded the meat with lettuce, lactose free cheese, tomatoes, olives and a Gluten free tortilla. At around 1am, I woke up with the worst burning sensation in my chest and the loud gas noises. It was uncomfortable to lie down or sit. I tried taking Gas-X and later on a couple sips of sparkling mineral water, but nothing worked. I ended up staying up all night until 6am! When I woke up at 10am, I still had the burning. I ate a little piece of Gluten free raisin bread and had a cup of peppermint tea. My husband suggested drinking almond milk, so I had a little. He went to the store and bought me antacids (the gluten free generic version of Zantac) and I took one, still nothing! I had the symptoms most of the day. Around the afternoon, things had finally subsided a bit. For lunch I had scrambled eggs with turkey and lactose free cheese. Then for dinner, I had about half of a baked sweet potato with a little butter. Now it is bedtime and I am having the burning and noises again! The antacids don't seem to be working and I am so tired from not getting any sleep. My doctor had recommended seeing a GI specialist, but I don't have the money to see one. Any help would be appreciated as I am having a really hard time figuring out what is ok to eat and what is going to set my body off! I am figuring the taco combo had been too acidic, but is a potato a problem too or is my system still upset from the night before? Is this normal when you first go Gluten free?
  11. I had my large intestine removed in 2004. Have had 3 blockages since then. In Oct 11 I had over 2/3 of my small intestine removed. As a result I know have what is known as "short bowel syndrome". Since 2007 I have intermittently followed a gluten reduced diet. When I really stick to my plan I do feel much better. However, I believe I have been experiencing many related issues. I am wondering if any one else has experienced Raynaud's, acid reflux, refined sugar sensitivity, joint/bone pain, anxiety and/or cold sores before going entirely gluten free. Beginning tomorrow I am going to go gluten and refined sugar free. Given the short bowel I will have difficulty with too much roughage from fruits and vegetables. Has any one else dealt with this. Thank you.
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