Search the Community
Showing results for tags 'anaphylaxis'.
Found 1 result
T.H. wrote on October 2013 - 08:31 PM regarding a recent diagnosis of Mast Cell Activation Disorder. Interestingly, my symptoms are very similar. I was recently diagnosed with mastocytosis. All grains are my triggers. I haven't posted in a while because I found that though I have Celiac, I knew I was reacting to more than just wheat, barley, and rye. (I was initially fine when I first went gluten free, but then gradually had to let go of each grain, one-by-one.) Not to mention having odd symptoms like itching (with no visible reaction), anaphylaxis, asthma, and other problems that seemed to join the list at will. I'd like to give some encouragement and advice to fellow Celiacs who have mysterious symptoms beyond that of Celiac. First, of all, realize that you can't compare yourself to others too much if the problem is mastocytosis, everyone is different. Second, the low-histamine diet makes gluten-free look like a buffet. Third, keep insisting on being tested if anything sounds familiar: So... What are Mast Cell Diseases??? Mast cell diseases include mastocytosis, where the body produces too many mast cells, and mast cell activation syndrome (MCAS), where even the normal number of mast cells are too easily activated by a trigger to release their contents, called mediators. These mediators can cause a variety of unpredictable symptoms in both children and adults, including skin rashes, flushing, abdominal pain, bloating, nausea, vomiting, headache, bone pain and skeletal lesions, and anaphylaxis. Triggers can be heat, cold, stress (physical or emotional), perfumes or odors, medications, insect stings, and foods. These symptoms are treated with medications including antihistamines, mast cell stabilizers, and leukotriene inhibitors, while anaphylaxis is a medical emergency requiring epinephrine. Mastocytosis can affect skin and internal organs such as the bone marrow, gastrointestinal tract, liver, and spleen. Most patients with mastocytosis have cutaneous (skin) or indolent (benign) systemic forms, but aggressive disease can occur, which may require chemotherapy. A diagnosis of mastocytosis is confirmed by a bone marrow or skin biopsy. MCAS patients do not fulfill all criteria for mastocytosis but exhibit symptoms, may or may not have increased measurable mast cell mediators (commonly tryptase, histamine or its metabolites) during or shortly after an attack and do respond to the same medications that patients with mastocytosis do. - See more at: http://www.tmsforacure.org/welcome.php#sthash.G2Ue2aBq.dpuf