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maggiesimpson posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsSo, I finally got a copy of my pathology report. I'm going to include all of my tests from this year so that it is all in one place. To recap my previous posts, my Dr. isn't giving me a diagnosis. He is stopping just short of saying "you have..." They are currently treating me as though I have crohn's even though I don't entirely fit into that category. Looking up even mild cases, I don't nearly go to the bathroom that much. Anyway, as far as I know I am down to either crohn's or celiac as the culprit. One of you had mentioned the possibility of another problem, but I'll have to go back and find what that was (and which of you said that. Sorry, can't remember off the top of my head who). Please let me know your opinions. Even if you think there might be another problem to throw into the mix. August 20 Pathology report Diagnosis A: Duodenum, biopsy 1. small bowel mucosa without diagnostic abnormality 2. no histologic evidence of celiac disease or other enteropathy B: Ileum, terminal, biopsy 1. nonspecific chronic active ileitis 2. no dysplasia or malignancy C: Colon, random, biopsy 1. colonic mucosa with no diagnostic abnormalities 2. no evidence of active inflammatory bowel disease 3. no dysplasia Comments B: The biopsy shows a chronic ileitis without specific features, differential considerations include medication induced injury versus crohn's disease. The findings include a patchy distribution of inflammation, mild active inflammation, focal aphthous ulceration, mild crypt distortion, no pyloric metaplasia and no granulomatous inflammation. Specimen/Gross description Duodenum, biopsy: A) Received are 4 pink-tan soft tissues averaging 2mm. Entirely submitted in toto in a single cassette. Terminal, ileum, biopsy: Received are 4 pink-tan soft tissues ranging from 2 to 3mm. Tissue is submitted in toto in a single cassette. Colon, random, biopsy: C) Received are multiple (approximately 8) tan-pink soft tissues averaging 2mm. Entirely submitted in toto in 1 cassette. September 24 Pillcam Endoscopy Report Procedure info & findings There are multiple aphthous ulcers scattered throughout the small intestine, a few larger than other. Summary & recommendations This is a complete test. There are multiple aphthous ulcers scattered throughout the small intestine, a few larger than others. The findings are suspicious for crohn's disease, although if the patient has been taking NSAIDS, NSAID enteropathy remains a possibility. June 26 Lactose Breath test Normal July 5 Immunoglobulin A, Qn, Serum Result 235 Unit mg/dl Range 80-450 October 10 Sedimentation Rate-Westergren Result 9 Unit mm/hr Range <20 April 23 Basic Metabolic Panel sodium Result 130 Range 135-145 potassium Result 4.0 Range 3.5-5.0 chloride Result 105 Range 98-107 co2, total Result 25 Range 23-31 anion gap Result 9 Range 5-18 glucose Result 83 Range 65-100 calcium Result 9.3 Range 8.5-10.5 bun Result 9 Range 8-25 creatine Result 0.78 Range 0.57-1.11 bun/creat ration Result 12 Range 10-20 GFR if not african american Result >60 Range >60 IGA tissue transglutaminase AB Result <1.2 Standard range <4 June 1 C-reactive protein, quant Result <2.0 Range <5 TSH Result 3.87 Range 0.30-5.00 Hemoglobin Result 13.8 Range 12.0-16.0 Hematocrit Result 41.3 Range 33.0-51.0 MCV Result 96 Range 80-100 MCHC Result 33.4 Range 32.0-36.0 MCH Result 32.0 Range 26.0-34.0 RDW Result 13.9 Range 11.5-15.5 platelets Result 315 Range 140-440 neutrophils Results 46 Range 42-72 lymphs Results 45 Range 20-44 monocytes Results 4 Range 0-11 eos Results 2 Range 0-7 basos Results 1 Range <3 neutrophils (absolute) Results 2.2 Range 1.7-7.0 lymphs (absolute) Results 2.1 Range 0.9-2.9 monocytes (absolute) Results 0.2 Range <0.9 eos (absolute) Results 0.1 Range <0.5 basos (absolute) Results 0.0 Range <0.3 RBC Results 4.31 Range 4.00-5.20 WBC Results 4.8 Range 4.5-11.0 That is everything, I think. My Lymphs came back high by a little bit. I don't really use NSAIDs, so the damage to my small intestines is not from that. I do take percocet and get epidural cortisone shots (no more than three shots in a year). I don't think either of those would do anything because percocet has acetaminaphine, and I haven't found anything linking the shots to intestinal problems. I am anxious to hear input from anyone to help give me a little direction. I am gluten free now, and am in the process of buying secondary kitchen items for myself since we have a compromised kitchen. I am treating gluten as though I have celiac and am pretty sensitive. I found out after an icky stomach that the godiva hot chocolate I was drinking was cross-contaminated in its processing. I though I had a dairy issue, but after going one month without it there was no change at all. My previous, and shorter, dairy free trial period may have coincided with allergies. I do know that I can't have large servings of dairy, because I will have problems from that. No more "american size" portions for me. ha ha. Thanks to all for your thoughts. I know this is really long and I appreciate you taking the time to look.