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Found 1 result

  1. Let me start off by saying thank you to anyone who reads this whole thing...cause it's going to be long. And if no one reads it, maybe it will help me to type it. Because right now I'm angry,sad, frustrated and confused!!! In January, after months of all day diarrhea, headaches, brain fog, pain, I went to see my GP and he had the results of my bloodwork. He said you've tested positive for H. Pylori and Celiac disease. I hugged him. There was an answer to it! I was so weak and tired (the D was 10-20 times a day) I didn't ask questions. He said stop eating gluten and I did. The week before I'd found out that there were polyps all over my gallbladder and that it would need to come out and the week before that there were polyps on my uterus that needed to be removed. I really didn't know anything about celiac. I spent 2 weeks detoxing and then had surgery to have my gallbladder removed and my uterine polyps removed. I recovered from that and then really got into this board and started reading. I kept seeing things about needing a biopsy...but I didn't have one. At this point I was more than a month gluten free and was finally feeling better. I could see improvements in my life and it was such a relief. I knew I didn't want to ever eat gluten again. Yesterday I had an appointment with my doctor again and had some questions for him. Why no biopsy? A lot of people think you need one to have a diagnosis. His response...you don't need a biopsy. I asked about re-running my antibodies to see if my 5 months gluten free was paying off. He said you don't need to do that. It won't show anything. What??? I asked about testing my children. He said you don't normally need to do that until they are at least teenagers. What? I've got one teenager so...He tells me he's going to check the guidelines on testing. He leaves the room. During this time I am freaking out! WTH!!! Am I allowed to type that? So...he's gone for a while. He comes back in and says...well, I'm not sure. I need to talk to a GI. Maybe you should have had a biopsy. I left...devastated. 6 PM...my phone rings. It's my Dr. He talked to a GI. He's very sorry. He learned something today. He should have had my do a biopsy. And he learned that there is a link between celiac and thyroid (I've been hypothyroid for 14 years) and some cancers...just like I told him and he dismissed me with a "I've never heard of that." Now that I've been gluten free for 5 months. I could eat some gluten for a while and then do the biopsy. I told him if I get even a tiny bit I will be sick for a week. Ok, so that's not a good idea. We can do the gene testing. But he will need to check to see how much it is before he sends me for that. Sometimes it's stupid expensive according to him. I'm not eating gluten to do a biopsy. I'm so confused. Do I have this thing or not? Does it matter to have the biopsy or not? I'm looking for another Doctor. I'd like one who focuses on the whole human being...not just a symptom. Any thoughts on how to find one of those that takes insurance? Thanks for letting me vent!
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