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  1. Long read......Hi, I’m seeking some guidance here because I’m suspicious that I have at least a gluten intolerance because of constipation, bloating, tiredness, and hives. Here’s some background: I’m 18 years old. When I was 16, I started suffering from chronic hives that seemed to have no cause. We changed soaps, detergents, medicines, avoided allergens, etc, but I only got worse. I had extensive blood work which turned out normal in every area and eventually was sent to a counselor and put on Prozac (unrelated) for anxiety. After awhile, I just assumed the hives were caused by stress. I’ve had hives nearly every day since. 3-4 months ago, I had horrible sore throats that resembled strep. I developed horrible exhaustion to the point where I nearly fell asleep in class and took naps every day, which I never could do, and went to bed at 9:30-10. The strep tests came back negative twice, and eventually I was tested for mono which also came back negative. Soon after, I developed random bouts of canker sores all over my tongue, lips, and cheeks. Once one went away, another would develop. Now, I get them all over my tonsils as well, and I have pimple-like bumps in the back of my throat. I went gluten free for a week and the hives went away completely. I saw my doctor after this and explained the sores, hives, and exhaustion, and she shrugged all of it off, saying I needed to “eat better” because it would fix all of it. She would not test me for any conditions (celiac, hypothyroidism, Hashimoto’s, deficiencies, etc) and said I shouldn’t go into college self diagnosing myself with something I don’t have. I’ve reintroduced gluten and for two weeks I was fine, but lately I’ve been sleeping up to 12 hours at night and then taking 4-5 hour naps during the day. All I do anymore is sleep and I feel like it’s actuallyruining my life, on top of the horrible mouth sores!! How can I be tested? Do you have any ideas what the problem might be?
  2. TL;DR Mom is a celiac. Father, Brother are lactose intolerant. Sister has IBS problems as well. I believe I have gluten allergy, even though every doctor test is negative. But I do have geno-type for celiac. Marijuana has become my only solution to stop the pain and get hours of relief. No other medicine works. but pot lets me go to work, without crapping my pants and getting paid to s$#&. Anyone else in my particular situation or does everyone else feel it differently? Hello, My name is Ryan and I am a twenty-four male, 300lbs, 6ft 4in. Ive been haunted by stomach/head aches for almost my whole life. Gaining depression in middle school, which downward spiraled by the time I was 20-21. Ive been diagnosed with Chronic Lyme Disease which is, I guess, controversial among physicians on whether or not it is actually a real thing. My Dr. gave me that diagnosis at 16, after going to him with Lyme for the 8th time. My mom figured out she was a celiac when I was 20 years old, so I then started on a gluten-free diet and felt good, but didnt realize that it was actually helping me. I went back on gluten to have the testing done, but it came back negative. So I said okay, I'm not allergic to gluten it must be my imagination or something else and went on my way. Had two more doctors tell me I probably wasnt Gluten intolerant. I then started to get serious urinary issues, and started to go to urologists. They couldnt find anything wrong, so I went to a GI and they told me nothing was wrong, after doing all the testing over the years, they said I wasnt allergic to Lactose or Gluten, however my most recent GI said I have a Geno-type for it. MFer*** I know its already here. It doesnt take but an hour and I am in gut wrenching pain and cant get off the toilet for sometimes hrs, with breaks in between (4 times on) and the pain and discomfort lasts for hrs. The doctor has put me on every kind of medicine and nothing works. He said well you dont have anything we test for, so I'm just going to say you have IBS. Which still makes sense, because there is times, I know I havent touched gluten ( I dont think, I'm not a very good label checker) or cheese and I'm still in the BR. I am currently on 50MG Amytriptaline (spelling) for the depression, urinary issue and intestinal inflammation(whether its there or not, the gastro put me on it, and it keeps the other two things at bay, so I cant go off it. However, it doesnt do too much for the stomach problem. The only solution I have found is Marijuana, which I have only recently started (1yr), but man does it make a difference. Now I can have a full time job, but I have to smoke to go to work. Which isnt my most favorite thing to do , but Ive gotten used to it and it helps me tremendously. So its become my catch all illness defeater. However, it only puts my intestines on hold(how long depending on how much pot, but usually a small amount keeps my stomach at bay for about 6-8 hrs. I can suffer the last hr at work, but at least I'm not in the bathroom for my whole shift. Which is great, its an amazing feeling to be at work without something plaguing you. I still dabble in gluten, like 1 slice of pizza, here and there (bc im supposed to be not gluten intolerant) but the devil strikes every time. Im sure Ive missed some stuff, but would like some feedback on the route I should take, get some insight, my wife said I should go to a holistic doctor, which has amazing reviews near us, but its 500 dollars cash to get the evalution and its not covered by insurance. She thinks I'm allergic to soy, which I guess is in both lactose and gluten?? But ive never been tested for that. I want some light to follow. Thanks Is it typical to feel an attack so fast? It happens between 15 minutes to 2 hrs, giving the span, but usually an hour. Does everyone react the same way to gluten? - I dont get diarrhea or constipation, I get a little of both, its loosely packed and hard to pass with excruciating pain. Other times ( I think this is the IBS part), it'll just come out of no where, but its not super painful, but I cannot hold it at all. Could all of my problems be Gluten/Lactose...or just part of it/none of it? Has anyone else gotten a negative test, but still said hell with it, Gluten Free? Are there any good, well organized mega threads for stuff to not touch if you're allergic to gluten, especially lesser known things (to avoid oops moments)
  3. 6 years ago I started having anxiety. Over time it got worse. Then came depression. I was treated with 50+ medications, a year of ECT treatments. Nothing helped. 4 years ago my doctor at the time thought I might have celiac's disease. At the time I did not have health insurance, and could not afford to see a specialist. 2 years ago I was diagnosed with celiac's disease. Since going totally gluten free. My depression is gone, and my anxiety is better. Adding vitamins and suppliments to helped due to malabsorption. Adding daily exercise helped. Dispite all of this, a small amount of my symptoms still exist. When I mention these to my PCP, and ask if the symptoms are possibly from other things. Example: hypothyroid, fibromyalgia, chronic fatigue syndrome, perimenopause, PMDD, or other mental illnesses. She has no idea what to say to me. Usually it is "try this new medication for a while and come back". That medication doesn't help. I have crazy side effects. Because it is used to treat something I don't have. Does anyone else relate to this? How do you get your doctor to recognize and help what is really going on with you? What helped, and what did it treat? Any suggestions for anything I mentioned?
  4. Hello, I'm looking for a Gastro Psychiatrist or GI doctor who works with mental illness and would appreciate any recommendations. I've also thought about looking for immunologist who work with the gut microbiome. I live in Nebraska so a doctor in the Midwest would be ideal, but I would appreciate any recomendations! I struggle with anxiety, depression, and multiple food allergies. I've been gluten free about 6 months so I don't think I can be tested for celiac. I've been thinking about doing a gluten challenge to be tested, but out of all my food allergies gluten seems to make anxiety the worst. So, I'm not sure if its worth testing or just keep avoiding. While I've seen improvement in digestive and mental health symptoms since eliminating food allergies, I'm still struggling. I highly suspect I have immune related issues from dysbiosis as I was regularly put on antibiotics for sinus infections growing up. I have a lot of symptoms that point to Candida, histamine intolerance, or SIBO. It would be great to investigate some of these causes under the care of a physician. Any advice is appreciated! <3 Elizabeth
  5. Hello Celiac friends, I am new to this world and I would really just love to get some advice and possibly some questions answered. I am 20 years old and I was diagnosed about one month ago. Since then I have been struggling to stick to my gluten free diet and also struggling hard to stay positive. Here are some things I have learned thus far: 1) Gluten hides EVERYWHERE. 2) Celiac Disease gets little to no recognition and I feel very thankful that I found out what I was facing before it caused more problems. 3) People without this issue, do not understand. Before I was diagnosed I genuinely thought I was going crazy. Out of no where I suddenly had no energy and had immense trouble getting anything accomplished, which is basically the worst case scenario if you're a junior in college. This new sickly feeling then grew into severe anxiety and panic attacks. Then came the never ending diarrhea and loss of appetite. It got to the point where I didn't want to eat at all. I had never experienced any of this before and it caused me to become massively depressed. Once I was diagnosed, everything seemed to make sense. I felt so ready to begin my diet and to return to my normal self. Well here I am, a month in, and I feel slightly better but not back to wellness. I am still extremely tired, and my brain still has trouble functioning. I am bloated all of the time and I also experience almost daily abdnominal pain. I am frustrated and I need answers. Sorry for rambling but it's hard not to when speaking on this subject. But here are my main questions: 1) How long were you on a gluten free diet before you began to feel well & happy again? 2) Is there a light at the end of this tunnel? 3) Is there anything I can do to assist my body in healing? 4) I am still experiencing mild anxiety, should I treat this as a separate issue or do you think they could be connected? This summer I am supposed to visit Europe for the first time (a dream I've had since forever) and I also turn 21. I would love to feel at least close to normal by then. I am young & I don't want this disease to keep me from living my life. Any answers or advice would be greatly appreciated. I hope when you read this you are feeling well and in a good place on your journey. Sincerely, Extremely Frustrated Human Being
  6. Hi everyone. This is my first post so bear with me. Let me start by saying that as little as one month ago, I had absolutely no reason to believe that I would ever be posting here. I, like many of you, was getting ready for the holidays and had no suspicion whatsoever that anything was wrong with me. One thing I had to do in preparation for the holidays was get a refill of my Synthroid (thyroid medication). I went for what I thought was a very routine appointment that would ultimately change my life. My previous doctor left the practice, so I saw the new endocrinologist that was hired to replace her. She asked me all the usual questions and took my height and weight. Then she looked through my file to see what dosage I was on. She looked surprised and said it was a relatively high dose for someone of my size, so she wanted to test me for celiac in case I had an absorption problem. I just shrugged it off, fully confident it would come out negative. I know there is a strong association between Hashimoto's and celiac, but I have never had any symptoms or nutrient deficiencies, other than Vitamin D (which improved as soon as summer came around and I was getting more light). No one in my family has celiac either (or at least hasn't been diagnosed with it). So imagine my surprise when my TTG test came back positive. It was a weak positive, but a positive nonetheless. Despite that, I still held out hope. I read that the TTG test has an extremely high rate of false positives, especially in people with other autoimmune disorders. I followed up with a GI and he was not prepared to say I was even likely to have it based on that one test result. He needed more information before he could confirm, so he ran some more tests. In the meantime, he told me to not worry about it, eat normally, and enjoy the holidays, which I tried to do, but I was pretty scared. I scheduled my endoscopy for Jan. 5 because that was the earliest possible date available. I did not get my test results until I went in for the procedure this past Friday. He told me they all came back positive (still a weak positive, but positive). I just nodded because I was afraid if I tried to talk, I would start crying. When I was hooked up to the monitor, he noted my heart rate and asked me if I was nervous. I nodded again. He asked me if it was about the procedure or about the results. I told him it was the results and I did indeed start to cry (he held my hand and told me I could keep a poker face, but I can't hide from the heart rate monitor). Then he said to just relax. The blood tests weren't definitive and I should just wait and see what the biopsy shows. I knew he was just saying that to make me feel better, though. I did my research, and I know that if all the tests are positive, then it means I have it. At this point, all the biospy will tell me is how much damage is there. He noted that my intestines looked fine superficially, but that they do in about 80% of celiac cases. I'm not going to get into all the details of why this makes me so upset. All of you are already familiar with the challenges of this extremely onerous diet: the hypervigilance, lack of spontaneity, social isolation, etc. The reason I am so depressed is because I'm not suffering to begin with! At least not in a way that I can physically feel. I'm not going to feel better because I don't feel bad in the first place, which makes all of this seem like even more of a burden. Not to mention I have no idea how to find out if I HAVE accidentally ingested something bad if I don't notice it physically. I eat a LOT of gluten-containing foods, and even in the quantities I consume now, I feel nothing. If I ate a crumb of bread, I won't experience anything. I know I must sound incredibly whiny to most of you who actually experience suffering from ingesting gluten. I'm lucky not to be very sensitive or experience a great deal of pain. But at least you must have felt some relief to finally have an answer to and a solution for your suffering. I have no nutrient deficiencies, no pain, no GI issues, no brain fog, etc. I only have a bit of fatigue, but so does everyone I know. Having to give up all my favorite foods and cultural cuisine sucks, and I don't know where I'm going to find the time to cook the majority of my meals from scratch (not to mention I don't even enjoy cooking). I'm also a vegetarian of 15 years, which I don't think I can maintain anymore, and that utterly breaks my heart. The whole ordeal has sunk me into a serious depression. I can't stop thinking about it and obsessing over it. It feels like a nightmare I can't wake up from. I sincerely hope it won't be as bad as it seems right now, but in the meantime, I just needed a vent. I don't know if there's anyone reading this who has also gone through a similar thing (asymptomatic, surprise diagnosis, depression from the results). I just wish I could rewind a month and never see that endocrinologist. There is something blissful about ignorance.
  7. Hi there, I was just diagnosed (well sort of, the blood test was positive and the nurse said she was nearly certain based on what she saw in the biopsy but are waiting results from the samples) and Im dealing with a lot of the emotional stress with seemingly none of the support. I have received next to no info on how to actually go gluten free from any doctor and that is only part of the problem. Im wondering how long I could have possibly had this? Ive had symptoms that dont actually match celiac disease very well but closely enough? for years but none of them stem from eating foods containing gluten. Every once in a while (maybe 2-4 times a year) I have these attacks where no matter what I eat I get sick, during these attacks I avoided food but when Im finally able to eat again the foods that provide the most relief and ease as bagels and crackers. I cant even get liquids down have the time and soup always sits too heavily. I dont get reactions from gluten at all. The only reason I was tested in the first place was because I had taken some new hormone pill for an unrelated illness that set off a bad reaction at first and I just never got better. I do have to say after reading a few of these forums Im terrified about what awaits me in my 30's and 40's. Ive read so many horror stories about pain and complications I have to say Im in a little bit of a panic. I dont know if I can take anymore daily pain. I have endometriosis and pcos (poly cystic ovarian syndrome) and Im already in pain that some days is just too much to take. On top of that dealing with years of depression and anxiety (that I pray are not caused by celiac because that would mean Ive have celiac since I was 13). I have to wonder how much damage has been done and if theres a way I can avoid suffering that much more. Sorry this was long and a little hard o follow Im sure but I feel Ive received no information or support from my doctors and I dont know where else to turn.
  8. Hi there everyone! Since i'm new here i write the story of my celiac diagnose and not diagnose and my recent problems maybe someone can help me out a little or give me a warm thought, since i'm being on the downside once again... (In advance sorry if my English isn't the best..., or it's a long story) My problems started when i went to the university of information technology (around the age 19) here in Europe, Hungary, it gave me lot's of stress but i was doing actually pretty good comparing it to how i was living my life. Basically i was on my PC for the whole night every day and skipped or not skipped classes in the daytime, then sleeping after i did the classes which i couldn't skip... Then after 3 years, we had a 1 week free time, so i went home to my family then on the free week one teacher required us to go into the class on monday. I took the train and went to my apartment and drank some Sweppes (orange flavour) but it was ruined because it was probably sitting in my apartment room for like 2 weeks or so... I just drank some and run to the class. So i was attending this class in the first rows of the room, there were around 30 people at the class listening to the doc. Someone from the backs hit my head with a spring of a pen, like 10 minutes little later i started to feel that my saliva is pumping and pumping and all i wanted to do was to spit it out, but i couldn't just do that in front of the people in the room so i kept swalloving it. It turned into this weird thing that i kept counting the seconds and gulping and it just didn't want to go away, my saliva was just kept producing. When the class ended i was feeling really weird and stressful but i needed to take the 2nd part of the class soon after. So i took some fresh air drink some water and went in, but it was the same thing, i kept counting (watching my watch), count and gulp my saliva... Then after the 2nd part of the class ended i was very stressed and freaked out almost, so the first thing i did was to call my parents than i'm feeling sick, very sick. Somehow i got home with the train and my parents took me home with our car and i was laying on my bead but i was still freaked out because of what happened so i kept spitting my saliva and it still kept producing. So at late night my parents took me to the "doctor on duty" if thats the right words to call it. There were no other doctors around at the time, the doctor told me to do nothing, and check my doctor on the next day. So i went to the internist my mother knows well, and he immediately sent me to a gastroenterologist that theres maybe something in my esophagus. Immediately we took the train went to the gastroenterologist (because there aren't any near me). The gastroenterologist did an endoscopy on me with a biopsy then they took some serum tests on me, then i needed to wait 4 weeks until the tests arrive. The endoscopy diagnosed some kind of redishness in my stomach and near the duodenal. The doctor prescribed me a PPI (Controloc ~ INN-pantoprazole) that i may have a reflux. So i took the pills (at this point i didn't have my saliva problems from before, that went away in 1 day), but even tho i was eating the PPI pills my throat was this very dry feeling with some burn and pain... So after 4 weeks the serum tests arrived and it stated that my "anti-transglutaminase IGA" were positive. The gastroenterologist told me that there is a high chance that i'm a celiac, so i must do a gluten free diet and a nutritionist came and told me what i can eat and what i mustn't. So i was eating the PPI pills and going gluten free, i started to feel better, BUT and there is a big BUT after 2-3 months i started to feel really bad like i had this huge "shortness of breath" and i was kept burping and feeling like i'm drowning. So i keept going to the gastroenterologist who told me there must be a problem in my diet, so he checked my serum lvls after the 3 months and it was all negative. Then he told me i sould see a "nervous and psychiatrist" so i did that, the doctor told me that i don't have any problems like that, i should go back to my gastroenterologist... So when i went back to the gastroenterologist and he told me that he can't help me my mother was kept crying that please help so he ordered me a contrast X-ray examination. So they made me drink some kind of special liquid and then they were X-raying my stomach about reflux, it took a half day to do. Then the results were negative for reflux. Then the gastroenterologist told me i must have chron, and prescribed me "stalofalk - mesalazine", without anymore tests or anything. I never had a diarherra, none at all only constipation, undigested things in my stool and lots of mucus. The pills were so big that i couldn't even eat them. Then i went back the doctor, my mother told him that shouldn't i be tested before prescribing pills for chron? Then the doctor shouted at us and said i need to take an "intestinal mirroring". I went to my internist and asked him about this "stalofalk" pills and what does it do, or what should i do... or can i split them apart or.... Then my internist told me i shouldn't take these pills because if i don't have a chron yet, the pills would make me develop it. My mother was so scared hearing it and i couldn't really take the pills so i decided to stop my cuuring with this gastroenterologist. So i was going to my internist and he tried to prescribe me another pill for an enteritis without any real test but according to the results i had from the gastroenterology. So i took and felt so bad that the doctor told me to stop them, then he told me i should be checked for celiac by serum tests to see whats up with that. So he did a test on me 4 weeks later the results were negative, then he told me to eat gluten again. So i was eating gluten and i didn't feel anything worse than before, i was already having this anxiety which didn't really went away. At this point i tell you that even tho i'm an adult man, i'm very small and i'm very weak, i never really developed any muscles or weight. In my childhood my pediatrician always sent me to serum tests that she thinks that i'm anemic but the tests were always negative. I realised that every time they take my blood for these serum tests 4-5 test tube, i always felt really really week like almost fainting on the spot... And in my younger years at the elementary school and later at the highschool i was so tired all day long that i was yawning all day long no matter what did i do or what time of the day it was. And every time i was yawning because of tiredness i always had huge amounts of tears coming out from my eyes. So i was eating gluten and feelins anxiety and generally bad, my father were helping me to take a shower, or he was sleeping with me, and he was bringing me to the university classes... After 2 months the internist told me to do another serum test for celiac, it turned out to be negative again. Then he told me i don't have a celiac disease the gastroenterologist was bad and i must take antidepressants. I was so scared from those pills and i'm still scared by them even today, i didn't take them and just went on with my life. After some time i grew more and more stronger mentally, coping with this really bad anxiety but i was scared from a lots of things, and i had lots of very bad thoughts because of it. The doctors told me that i'm a little weak piece of sh*t that i don't wanna finish the university and i don't wanna work and live i just want to steal my parents money and so on so on... that i must take huge amounts of antidepressants and ... It felt really bad hearing all that, i was crying in the inside, and after the days and the months slowly passed my mother started to actually believe it that i'm just a faggot and i don't want to finish the university and i'm just acting. So it really generated a generally bad family feeling at home. So my father were taking me to the university classes, i had lots of panic attacks at the classes and even more at the exams. At some point i was so down that i went to a psychiatrist again and he prescribed me "frontin ~ alprazolam", i took these for a year, but they didn't help while the psychiatrist told me to raise and raise and raise and raise the pills more and more and more until i feel good. After a year i told stop it, it doesn't help and in a half year by reducing the doseage i slowly dropped it... Meanwhile the years i have developed this weird sympthom that some of my urine doesn't completely come out of my urethra, i was checked by 5 different urologists and they all told that i have no problems. After 4 more years i passed the "final exam" of the university with the "best possible grade of 5"... My mother kept telling me afterwards that i will feel better that the university stress is now stopped, sadly it wasn't the case. So i was at home living with my parents and i don't work just stay at home and live day by day. After 1.5years after i finished the university, i started to develope this very bad feeling in my stomach and a big constipation, it hurted so badly that i the time is here and i'm going to die. So i took antispasmodic pills on my own suggested by my mother so i can live through this 2 months until i can see the internist (because he was away). So the internist has arrived back i went to him he sent me to a big serum test. After the results came my celiac tests were positive again: "anti-transglutaminase IGG", "anti-transglutaminase IGA", "anti-gliadin IGA", "anti-gliading IGG" the tests doesn't say any values just positive. So my internist told me something like "ohh so it seems like you are really a celiac then?!" i was like ... ... ... So i immediately started the celiac diet again. So slowly but surely i was feeling better my stomach pain went away slowly, then i started to have this huge "shortness of breath" like 5-6 years ago when i first did the diet. So i was looking for allergens and i found out that there is a thing called "lupin" "lupine" inside "schär" flours that i was baking with. I tried to eat a biscuit with a "may contain traces of lupin" sign and i still fellt the "shortness of breath" just like 5-6 years ago the same thing. So from that point i eliminated "lupin" from my diet, i started to feel better and better and my constipation went away but at some point, i started to eat like crazy, later i started to develop this huge sweating after eating. I was joking around i could eat a ******** amount from this tasty food, I ate 2 times more than my father. I started to gain weight and my constipation turned into a thing that i was sitting on the toilet for 5 times a day producing huge amounts of stool (s$#&), which is to this day still contains a huge amount of mucus. Every doctor before told me that i shouldn't care with mucus in my stool. After 6 months has been passed i went on a gliadin serum test again and all 4 values has become negative once again. I went on and paid for a celiac gene test too even tho the internist didn't say i should do it, which turned out to be that: i have a medium chance of having the celiac disease. The test result paper states me a range of brackets [1-6]: 1) Almost no chance: code 0; 2) Minimal chance: code 4, 5; 3) Small chance: code 6; 4) Medium chance: code 2, 3, 9, 10, 12, 13; 5) Medium/high chance: code 1, 7; 6) High chance: code 8, 11, 14. My result is a code 9 so i'm in the 4th bracket which is the "Medium chance bracket". It was a HLA-DQ2 and DQ8 haplotype test with PCR hybridization... After some time i ate some "tuna in olive oil" and some "gluten free potatoe chips" and started to feel very bad again. Like if somebody is spinning a knife in your stomach. Then after a half year passed by i started to develop headaches that just didn't really wanna go away. And i started to really sweat, like from my forehead and my popliteal huge amounts after eating. The internist told me to eat less and do some physical work. So i did that and it fellt better but then again i wasn't realising it i ate the same "rio-mare tuna in olive oil" and the same "gluten free potatoe chips" and "gluten free raw dates bars" i started to develop this huge nausea and bloating. So i went again to my internist and he told me that i should take this pill called "dicetel ~ pinaverium bromide" it hurted my stomach so badly that i was crying for 5 days taking the pill then i stopped it. I was eating only lactose free dairy products by this time because it happened to me 3 times before in the same year that my mother made "vegetable cream soup concentrated (scrambled ~ idk the right words for it) with milk" and after i ate the soup while i was eating the main dish i was s$#&ting in my pants like watery stool came out. So i realised yes i'm a lactose intolerant now, i asked my internist about it he said if it's like this i don't need to be tested for it, i should avoid lactose. So i'm here again i just started to feel a little better i wanted to eat something sweet so i ate some "ricola hard candies" and some "verbona hardcandies" which the pharmacist say are gluten free and some "gluten free potatoe chips" and some "gluten free raw dates bars" the things started to happen: I started to feel a headache for 2 days, after 2 days i still have the headache but i started to feel anxiety again, after the next 2 days with anxiety i started to feel a little better but the anxiety was changed to a huge throat pain, like a thore throat or a dry throat or a burning throat a mix of these 3 i can't really describe i still hurst at the moment i'm wrtiting this. Then shortness of breath came around the 4rth day, and it went away gladly around the 5th day but my thore throat is really bad at around 16:30 every day and my headache is still here. It's like my eyes want to come out of their place, and it's worse if i sit down or stand up. It's like i'm fainting cause of bad blood pressure but my blood pressure is good since i can test it at home. I never fellt this from of anxiety (or idk what this actually is) before... So i went to my internist again and he told me that i must eat antidepressants... So i'm here again that i don't want to take those pills and i'm writing this story to you. I have a huge vitamin D deficiency and some potassium deficiency that my internist knows about and i eat vitamin D orally "1000 NE kolekalciferol" twice every day. I eat lots of bananas and pomelos for the potassium since i can't really take these huge potassium pills atm and i'm going for another potassium serum test tomorrow. I really don't wanna take these antidepressant pills i may just lie to the doc cause i told him i wont take them but he still perscribed them. If anyone actually ready this wall of text and may give me some tips or anything to help me cure myself i would reall appreciate it. Maybe i just glutened myself somehow?! I really don't know since i think i'm eating gluten free. Please i must have someone or some thoughts on my side. Thanks in advance: James
  9. Recently, over the past few years I have had to take some steroids to control what has yet to be diagnosed as dermatitis or psoriasis, test results coming soon from biopsy. Also recently i have been diagnosed with diverticulitis. I have always had issues with stomach, pain, IBS, diarrhea, and heightened levels of anxiety and panic attacks. I am wondering if there is a connection with Gluten intolerance. Has anyone had any experience with anxiety and Celiac. Profuse sweating on palms, under arms and groin areas. With these i have also just started getting yeast/fungal infections in groin area, psoriasis/dermatitis on scalp, folds between buttocks and scrotum. Thinking all these symptoms are pointing to Celiac, any ideas or info is greatly appreciated.
  10. Hi all! New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?
  11. Hi - so I am 60 years old and have occasionally had issues of IBS after being diagnosed in my 20's. I also suffer from depressive/anxiety disorder and have been on the smallest dose of Effexor since 2009. Although there are other things going on in my life that are stressful, it seems like my Celiac diagnosis has catapulted me into depression and anxiety. I went for routine colonosopy and they added in a endoscopy due to my worsening symptoms. Biopsies came back for possible celiac and then my doc ordered blood test which confirmed. I was in disbelief. The first week I went gluten free I felt amazing. Then things kind of went down hill as I struggled to learn to eat especially since we had a lifestyle of eating out so much. Anxiety started kicking in and soon I couldn't tell if my worsening GI issues were anxiety or gluten I might have accidentally ingested. I struggled with feeling food that I was so much in love with was now potential poison. And while trying to adopt a glass half full attitude over what I could still eat I got depressed over what I couldn't or the hassle of constantly planning or trying to figure out meals. I read a blog somewhere that someone said the first year they felt they were going crazy. HELP. I don't know how to get out of this vicious cycle of anxiety which is messing up my efforts at eating right.
  12. Hello everyone. I have only been gluten-free for two weeks now but I felt like by day 6 or so I was feeling decently energetic and okay. Now I'm two weeks in and these last couple days I'm absolutely exhausted, irritable, moody. I know this is super early in recovery but why would I have started to feel decent then bad again? Is it normally like a roller coaster, one day you feel good the next you don't? I know your body needs to heal so it makes sense that you would be tired. I guess im nervous about not being careful enough and glutenating myself and not even knowing it because I dont know what good feels like yet and never feeling better. I also notice lately my anxiety is crazy. I'm thinking this has to do with adjusting to my new routine in the kitchen. I think now that I know gluten is whats been making me sick I'm afraid of it. Is that weird? The other day there were crumbs everywhere in the kitchen and pasta left out with some on the counter from my roommate and I basically looked at it as if there was human feces smeared on the counters. I'm afraid to touch anything and I keep washing my hands nonstop. Is this normal? Does it go away when you get into a better routine? Sorry this turned into more of a rant about various things. Hope you can follow. Thanks guys.
  13. I've been suspecting that I am Celiac for a while. I got a blood test about 2 years ago and it didn't confirm it and I got another today (waiting on results). I have heard that the blood test is not enough though, that I need the endoscopy... anyways, my symptoms/suspicions are as follows: My father was Celiac I have persistent anxiety/panic attacks/sleeplessness/occasional depressive episodes Feet/hands are super cold all the time, pins & needles all the time... Fatigue, headaches and brain fog very often Very frequent constipation and occasional bloating concentrated in the stomach Very infrequent periods, sometimes will go without for months on end... Irritable Should I wait for the blood results to get an endoscopy or should I do it either way?
  14. Hi, new here and this is my first post so please be kind. I'm wondering if anyone has suffered anxiety and panic attacks? I have struggled since childhood and recently decided to go gluten free to see if that helped. It was an amazing difference almost right away! Within days my severe anxiety had reduced drastically, and I feel like a whole new person. I'm hopeful to get my life back. I had no idea that I had to be eating gluten to get tested, and now I feel so good after 3 months that I don't want to go back. If you've had a reduction in anxiety or panic I'd love to hear about it. I really feel like I could've lived a better life had I known this sooner. When I tell people, they usually nod and smile, like I've bought into a fad diet. Thanks in advance for your info.
  15. Hi, I posted a while back and my symptoms have been so much better since I started on the Dr Fasano Gluten Cross Contamination Elimination Diet. Although the dermatologist said he wouldn't recommend I reintroduce gluten after five years of being gluten free because of the severity of my reactions and so couldn't diagnose whether or not I have DH, I wasn't reacting so strongly to trace amounts of gluten in my environment, so I was happy and well, getting stronger by the day. Then... my reactions started to increase. I was getting sick, but weirdly only on Tuesdays and Thursdays. It started off mild and I thought I just needed to take a break, open the window or sit outside for a while but that made me SO much worse. I started to realise that 2 hours 45 minutes after sitting outside I would get sick (this is how long it takes for gluten to hit me EVERY time). There is a building site for a huge building just feet away from my window and their work with cement and plaster had started six weeks ago, just when my reactions started coming back. In the last couple of weeks the head fog and feelings of unease and dread come and go, along with stomach symptoms. My skin problems are fairly mild at the moment which is a shame because they would be a good, visible way to get verification. I feel very alone with the symptoms. Whenever the dread and head fog came on in the past, I would enquire about whatever food I had eaten 2 hours and 45 minutes previously and someone would confirm they made a mistake and included gluten, so I learned what my symptoms are - but telling that to my doctor? I think he'll think I'm a nut, and what about disclosing that I think my reactions at work are gluten related? Talking about airborne gluten? I can't work in that environment - it knocks me out for 3 - 4 days at a time and I don't really feel right now, a week after my last exposure but I'm not sure whether to keep quiet about the reactions to the building site being really similar to my gluten reactions. I was doing so well I have agreed with work that I will go back and test my reaction on Thursday - dreading it! And to top it off, I am starting in a new job next week. I will turn up stuck in a total head fog, unable to function! Based on previous experience, it will take one to two months to get back to normality. Any sympathy or related experiences welcome.
  16. Okay well don't want to make this into a long story or post but I do have a lot of questions and information to share with you lovely people. If you want the main reason I seek help you can skip the 3 big paragraphs but they are very informative of my lifelong struggle with metal illness. Soo.. I ended up smoking Cannabis for many years of my like (14 years ) and I am now going to be 30. I found that marijuana really felt good and helped me feel a lot more calm and helped me sleep through the night everynight. I have always been a go go go person with too much energy. And as child I would always get very irritated and had some anger issues (temper tantrums), those went away perminately when smoking weed and just growing up and out of them i think. I would also drink a lot of beer on top of that. I have been on antidepressants (pristiq , Citalopram not at the same time ) for about 7 years since I noticed started noticing anxiety tremors and unbearable anxiety and social anxiety, and an anti-Psychotic for sleep for about 5 years ( Seroquel) . I hated being on these things but they were my only way of coping with the outside world. About 7 months ago I was still smoking marijuana and drinking almost daily while on Pristiq and Seroquel ( I know really bad ) but I barley any side effects besides brain fog in the morning till about 1 or 2 everyday from the seroquel which I found bearable and livable until I noticed the anxiety returninga and my crazy go go go hyperactivity. So back to 7 months ago researched magnesium glycinate which I noticed worked very very well making me feel almost normal again when I took very high doeses (600 -1000mg a day ) I used this amazing feeling from the magnesium glycinate to take advantage of stopping and getting of my meds that I was on (pristiq 50mg and Seroquel 50mgs) and I weened off them perfectly and slept fine with the help of marijuana. Then one day I had a magnesium overdose and was throwing up and having diarrhea all day. Magnesium wasn't working for me anymore as I assume I was deficient when it was so beneficial but wasn't deficient anymore hence the reason it stopped working . So I then went to a naturopath to help me check my levels of everything. First he tried some vitamins that usually help anxiety disorders before doing all my blood test and they seems to work for a bit then made my anxiety worse ( I was still smoking cannabis everyday and then started to notice it wasn't helping anymore but making me very hyperactive , increasing my anxiety and heart rate). When I decided to quit marijuana because it no longer was helping me but making things worse THIS IS WHERE SHIT GOT REAL, the withdrawal effect from stopping marijuana after 14 years of daily use made me have such crazy anxiety and I couldn't eat was loosing a pound a day and I need to eat a lot everyday to even maintain weight and not get scary thin. I am a male and want to put on muscle and not be skinny. ( I am a ultra rapid matabolizer as said from my genetic testing i just got done) which makes sense why i would loose weight so fast and why i need to eat so much to maintain weight. My stomach was hurting so bad and I have never had stomach pains like this just always had D after eating pizza and fast food which left me thinking i'm just a little lactose or can't handle fatty foods very well. My anxitey and stomach pains brought on my hypochondria so I needed test done. I did the barium swallow and my xrays just showed some indigestion. Then I told my doctor I wanted a test for celiac as my bowl movements have never looked this way (floating ). So my blood test results are Total iga 1.71 igG 24.8 * positive Iga AB 11.4 So I have celiac . It made sense as to why I always had D after eating fast food or pizza. The main reason I type this is that my anxiety has been way worse now that I have been gluten free for about 4 or 5 weeks. I have new insomnia which I never had before only sleeping 2 out of every 4 days (the days I don't sleep I don't get one second of sleep) I really don't want to go back on meds but it seems like that is the only way to get my life and sanity back. I'm hoping my life long anxiety and hyperactivity was because of gluten and after 6 months to a year i will be rid of it or be the person I feel I am inside my mind. I have been seeing my doctor ever two weeks and she seems to be getting fed up with me and ask why are you here (me- i'm here seeking help and opinions before I jump back on these life threatening meds). I have been seeing my naturopath every week even twice a week and have tried all the herbs and vitamins there are for me. We did all my blood test to rule out thyroid, testosterone, cortisol issues. We only found that i had high magnesium level not to my surprise, and low vitamin d (60 nmol/L) . Thankfully I am absorbing all my nutrients very efficiently still. So the past 3 weeks I have tried passion flower, valarien , pharma gaba, kava kava and this one 3 in one called neuropas balance (obviously on different days) and it seems like I am getting worse, sleeping eludes me and my anxiety has made me lose touch with all my friends in the past 3 months. Lavender oil pills 80 mg 2 a day has been one the main thing besides some benzos I was prescribed when going to the doctors 3 weeks ago as a mess in complete panic for no reason. Taking benozos as needed has helped me actually live, but i don't want to have to take them because the withdrawl can be worse then the actual reason to start them . Tried vitamin d for a week or so but something has been increasing my anxiety and insomnia that I stopped all of my suppliments ( vitamin E was in my vitamin d drops , doesnt vitamin E have gluten in it ?) I am also trying to sleep at night so i was taking life brand gravol , which i now saw it has Sodium starch and maltodextrin ( very suspect ingredients for gluten). So maybe I have been getting glutened every night just trying to sleep. I saw a therapist who prelims for a psychiatrist and said I have mild depression as well when I said I have lost interest in things I use to enjoy (music, activity's, friends, games.) I am at the last of my will and I would hope someone here has some insight or maybe have the same type of symptoms from gluten. Here are some questions .... Will being gluten free for 6 months to a year help me see some relief from this hell I am in? ( anxiety , insomnia and depression ) I have read some good stories on how people get relief from metal illness after 3 or 6 months to a year or two. The longer I ate gluten means the longer my mental recovery will be ????? I really don't want to be on any meds but at the moment I am so debilitated that I need some sort of help somehow right now or else I am just wasting my life and living in mental pain. Would going on meds while being gluten free help me with the time it takes for my gluten related mental illness to go away ( I hope to god it is because of gluten because if it isn't I will be doomed and will have to take horrible meds my whole life and have side that later in life will be horrible . ( Seroquel and benozos lead to early Alzheimers and dementia as an example of horrible side effects, not to mention blood clots and other horrible things ) What should I do? as I am out of ideas and drive on how to better myself and after trying so much and getting nowhere or getting worse in the process. Thank you very much to whomever read my whole story and thank you very much to who replies with positivity as I am in great need of support right now. and thanks to this great site , it has helped me very much ! Edit - ( okay anxiety and a little depression is one thing but my main worry now is NOT SLEEPING. Eveynight that I can fall asleep I don't feel like I'm sleeping at all, no rem sleep at all and only for max 4 hours a night and I wake up totally energized and unrested. Those hours I am supposeably sleeping I hear and feel my dog move on my bed and I'm never in a deep sleep. So I even question mysef if I am actually asleep for those hour. Is this gluten withdrawal real and even at 5 weeks gluten free? I need to get a real nights sleep so I can feel rested. It's been 3 weeks without any "real" sleep. )
  17. Before I get into the neurological symptoms, let me give you a synopsis of my background and family history. Both my parents smoke and my dad was always a heavy drinker. My mom had GERD / Acid Reflux pretty much her whole life and it should be noted that she's basically 100% Norwegian (I've read that Northern Europeans have GERD and gastrointestinal issues more than anyone else - same with the Irish). My mom was also recently tested positive for Celiac Disease (our diets growing up was filled with wheat products, so connecting the dots here, I think she was being bombarded with gluten and her body couldn't handle it). She would have severe mood swings, especially towards my dad (who is now passed on). Her acid reflux got so bad that she went in for an endoscopy and they told her that she had Barrett's Esophagus. She's still alive to this day though and seems to be holding up reasonably well. My sister also has severe acid reflux and panic attacks. Now to get to my own history. I was born in 1983. As a baby, I had severe eczema, and would rub certain areas of my body (such as my wrists) raw on the carpet, because I was constantly itchy. I would also constantly spit up breast-milk and even the baby formula. My parents had a hard time figuring out what to feed me! We would also drink tons of cow's milk. That finally hit a brick wall around age 25 (in 2008), when I started noticing that if I drank straight cow's milk I would end up with (and still do end up with if I drink it) sulfur burps which taste and smell like rotten eggs. I even tried drinking raw cow's milk one time and the result was the same, I was burping rotten egg smelling burps and would get diarrhea! This is also around the time when I noticed my acid reflux getting worse and worse. In 2009, I started lifting weights again after taking a long break from high school. When I would do any squatting motion exercises such as dead-lifts or squats, I'd almost pass out because I couldn't catch my breath afterwards. I finally went in for an endoscopy and they told me that my esophagus was raw and red. I also should note that I've read getting anesthesia and all the drugs they give you during that time, can cause long-term psychological issues, especially anxiety, which I never really had until after that year. I realized that I couldn't do those squatting exercises or anything that put pressure on the abdomen area, since it would push acid back up into my esophagus. I decided to start lifting weights on an empty stomach and that did work for awhile but I couldn't figure out why my acid reflux was still so bad. Acid shooting back up into the esophagus, is caused by inflammation. This affects the Vagus Nerve (which is the longest cranial nerve). Some of the main functions of the Vagus Nerve include, 1. Breathing 2. Speech 3. Sweating 4. Helping in keeping the larynx open during breathing 5. Monitoring and regulating the heartbeat 6. Informing the brain of the food that is ingested and food that has been digested 7. The Vagus Nerve performs the major function of emptying the gastric region of food Any damage to the vagus nerve causes Gastroparesis which is losing the muscular function in the stomach and intestines. This results in food being emptied slowly, that leads to other problems such as fermentation of food in the stomach and food getting compressed into hard pellets which can cause severe problems if the pellets get stuck in the intestine. Especially in people with diabetes, when sugar levels get high and are not well controlled, it can result in the vagus nerve damage. This can result in anxiety / panic attacks, OCD (Obsessive Compulsive Disorder), trouble swallowing, chills, asthma-like symptoms, heart palpitations, tingling / numbness in extremities and limbs, blood in the stool, hard of breathing, anxiety attack-like symptoms, canker sores, nightmares (including hypnogogic and hypnopompic auditory / visual hallucinations, such as hearing a gun shot upon waking up, even though no gun was fired), dry mouth, heart attack-like symptoms, and more (I had all these symptoms too btw). I believe that since our bodies are intolerant to wheat and dairy products, it is causing inflammation in the body, which then causes all these other symptoms. So at that point, I began having hallucinations (including hypnopompic and hypnagogic hallucinations). They were mainly auditory hallucinations and some (but fewer) visual hallucinations. They started around 2013, when I got sick with the flu and also had an in-grown toenail (I had to get it cut out by the doctor and it was the worst pain of my life!). I was extremely religious back then (I left my faith last year at end of 2015) and felt like these were omens or signs for some of the things that were deemed ‘sinful’. I then had a breakup with a gluten-free who lived in Montana and the auditory hallucinations continued. I’ve been having them again starting in 2016 after getting sick with a chest respiratory infection (I’m seeing a trend here with getting sick and having these), which I believe were caused by the Autumn Rhinitis / Hay Fever Allergies. I was at the gym around the start of August 2016, and I felt like I couldn’t catch my breath after each set of lifting. I went home and haven’t been back to the gym since. I was having trouble breathing just walking up a flight of stairs, and it was a daily nightmare until I started looking into ways to help solve my issues (which I’ll get into in a minute). I also don’t have a great sleep schedule from working late night shifts, so I’m typically always sleep deprived. I should also mention that I think I have formed P.T.S.D. (PTSD - Post Traumatic Stress Disorder) from watching a music video where it showed a death. The image of the woman dying kept playing in my head (this also happened around August 2016). Then on top of all that, I was lifting weights 2 times a week (full body workouts), doing H.I.I.T. (High Intensity Interval Training) a couple times a week in the morning, AND working night shifts. On top of all that, my dad died last year (October 3, 2015) and within a week afterwards around October 10th, I ended up with appendicitis so I had to get the appendectomy surgery to get my appendix removed. A few weeks later, I walked away from my faith (not due to emotional reasons, but due to extensive research, which was already in the process starting at the beginning of 2015). So I lost my dad, my faith and my appendix within a month's time period. It put a lot of stress on me I think. I’m 33 years old, so still somewhat young, but I think I was pushing my body to the limit, and it’s been affecting my brain chemistry. Not only that, but recently, I put the other dots to the puzzle and found out that I also have gluten intolerance / Celiac / Coeliac, so I’ve stopped eating gluten (and dairy) products. I also have done a few sessions of AAT (Advanced Allergy Therapy), by a doctor named Dr. Jill Cohn in the San Francisco / Berkeley / Oakland Bay Area. You don’t even have to be there in person for her to treat you, she does it all online through a conference call on a site similar to Skype. You can watch testimonials on YouTube as well, and I’m here to tell you that her system did cure me of Ragweed allergies. I now understand that because I was pushing my body to the limit as well as trying to stay 500 calories below maintenance (to cut fat and get shredded), that my body wasn’t getting the proper nutrients and vitamins due to eating wheat and gluten (as well as dairy). This damages the alveoli and villi in the intestinal tract which are crucial for absorbing the nutrients from your food. I also found out that my body reacts poorly to chocolate as well. Chocolate is a 'stimulant' and has been proven to affect the brain the same way that cannabis / marijuana will. This could be some of the problems you all are facing as well. At that point, your body is so run down, that it will start attacking ‘harmless’ invaders, such as ragweed pollen, pet dander or even just simple dust particles, which this process of your body in attack mode, will cause inflammation, hence the reason I was having trouble breathing (my body developed exercise-induced / allergy-induced asthma). Not only that, but when your body is so run down and not getting the proper nutrition, it can cause psychosis and schizophrenic symptoms as well! I started taking a ton of supplements and they’ve helped tremendously. Here are a few to get you started. Try these and eat a balanced diet for a couple months. I’ll bet you start to feel better and the hallucinations diminish. 1. Vitamin D3 (Jarrow Brand 5,000IU – take two to four per day) – This is especially necessary if you live above the 37 degree parallel (latitude) in the Fall and Winter (typically from September to March). The sun only produces Vitamin D3 in our body when it is 50 degrees (altitude not temperature) above the horizon and even during the Spring and Summer, this only occurs from around 10AM in the morning to 2-3PM in the afternoon. So you have only a 4 to 5 hour window in the morning to afternoon when the sun is producing Vitamin D3, which most people aren't really out during those times, because of work schedule. This is why around 75 to 80% of the world population are D3 deficient! A good source of information on this is Dr. John Cannell. Go research how vital and important D3 is for us! You want your ng/ml (nano-grams per milliliter of blood) to be from 50 to 100 (or even slightly over 100 is fine too!). 2. Magnesium (CALM BRAND) – Magnesium is the driver for Vitamin D3. It’s very important and we don’t get enough of it in our diet on average. 3. Vitamin C (take around 2,000mg per day) – Look up Dr. Thomas Levy and Dr. Linus Pauling for good information on this. The Liposomal type of Vitamin C is the best kind! 4. Vitamin K2 (different from Vitamin K1 – Get the Jarrow Brand called Vitamin K-Right) – Millions of people take calcium supplements to maintain healthy bones. Yet few patients or physicians realize that optimizing bone integrity involves more than taking a single mineral supplement. A critical additional component for bone and cardiovascular health is vitamin K2. Recent research has revealed that, without vitamin K2, calcium regulation is disrupted. In fact, low levels of vitamin K2 are associated with an increased risk of heart disease and atherosclerosis. K2 is the gateway that allows calcium to get to your bones. When you take vitamin D3, your body creates more of these vitamin K2-dependent proteins, the proteins that will move the calcium around. They have a lot of potential health benefits. But until the K2 comes in to activate those proteins, those benefits aren't realized. So, really, if you're taking vitamin D, you're creating an increased demand for K2. And vitamin D and K2 work together to strengthen your bones and improve your heart health.For so long, we've been told to take calcium for osteoporosis... and vitamin D3, which we know is helpful. But then, more studies are coming out showing that increased calcium intake is causing more heart attacks and strokes. That created a lot of confusion around whether calcium is safe or not. But that's the wrong question to be asking, because we'll never properly understand the health benefits of calcium or vitamin D3, unless we take into consideration K2. That's what keeps the calcium in its right place. 5. Coenzyme Q10 (CoQ10) Ubiquinol – it’s a substance similar to a vitamin. It is found in every cell of the body. Your body makes CoQ10, and your cells use it to produce energy your body needs for cell growth and maintenance. It also functions as an antioxidant, which protects the body from damage caused by harmful molecules. (Get the Jarrow Brand – no I don’t work for them, but I’ve heard they are the best in all of these, and it’s what I take). 6. Vitamin B-Right (Jarrow) which has all of the B vitamins in it. Niacin (B3) has proven to be very helpful for those with Schizophrenia and Psychosis. Look up Dr. Abram Hoffer and his research on mental illness and Niacin. Careful with Niacin in huge quantities, as it will cause a 'flushing' effect, but you still want enough to get the benefits. 7. Oxylent (which is one of the best tasting and best multi-vitamins out there in my opinion). It’s got most of all you need in there when included with what I mentioned above. (Those are the main ones above, but here are a few other supplements I take. ChlorOxygen, Serrapeptase {SerraGold Brand}, mushroom supplement called 'Breathe' by New Chapter Life-shield, HealthForce Green Alchemy Protein Powder, HealthForce Vitamineral Green, Probiotics, MSM, Bragg's Apple Cider Vinegar, local honey, and avocados for potassium, along with getting at least a half gallon of water per day - which I drink at least 32 oz. to 50 oz. of water on an empty stomach every morning). Within a month of taking all this (I started on November 2nd, 2016), I’m now feeling about 95% back to my normal self. The other 5% is caused by my poor sleeping habits, as well as stress. I now realize that these psychological issues were all subconscious from the heavy religious indoctrination. If I had never been introduced to these religious ideas, I’m sure I’d not have these particular religious themed hypnopompic and hypnagogic hallucinations. When it first started, I was seeing visuals such as numbers and objects floating in the air upon waking up, which, they’d disappear within a few seconds. I also hear voices, which would say terrible things, and then the voices would continue in my head as if it were having dialogue with me in my own mind. I would feel like God hated me, due to the content of what was being said. I’m pretty sure I have some sort of religious trauma after leaving my faith and also, after my dad dying within the last year (2015). They actually have a name for this type of PTSD and it’s RTS (Religious Trauma Syndrome). You can find some good material through Dr. Marlene Winell online if you suffer from the religious form of PTSD (Post Traumatic Stress Disorder). Anyways, I hope all of this helps someone else who may be going through similar! Just know you’re not alone and it’s more than likely happening because of nutrient deficiency and/or a traumatic experience you suffered as well as your diet if you are gluten intolerant / lactose intolerant. These aren’t devils, demons, hobgoblins or ghouls harassing you, this is all natural phenomena and it can be treated with the right diet, the right supplements and proper sleep! I am still getting cross-contaminated (or there is a cross-reactor food that mimics gluten and/or dairy) somewhere in my diet, so my psychological issues persist, including waking up feeling like something is trying to talk to me in my mind. I am trying to figure that out now. But they also have supplements you can take that will break down gluten if you are accidentally 'glutened.' Here is a study I found from WW2, that correlates to mental disease and gluten / wheat below. "One of the first hints that these circumstances could have implications for the psychological sciences was the observation that, in several countries, hospitalization rates for schizophrenia during World War II dropped in direct proportion to wheat shortages. In the United States, where over that same period the consumption of wheat rose rather than diminished, such rates increased instead (Dohan, 1966a,b). In South Pacific islands with a traditionally low consumption of wheat, schizophrenia was only found in 1 person out of 30,000. When Western grain products were introduced into their society, it dramatically rose to 1 person out of 100! (Dohan et al., 1984)."
  18. Story starts when I was young, feel great. kindergarten, first, second, but slowly getting more and more fatigued every year. Top student, interested in everything, never sleepy. Always stayed up during nap time and past bedtime, and never had to study because I would pay so close attention in class. Genuinely excited most of the time, but then come the later years. Past second grade, everything felt slow, but fast at the same time - every day would go by and I would not be able to express much of an opinion about it. I slept through MOST of every single day, especially in school. I told my mom I felt like I had a brain tumor repeatedly, year after year, something was always draining my energy and productivity. Constantly distracted. I cared less and less about everything, every year a little bit more, and a bit more, more still until... I barely invited friends over, went to movies, left the house, etc. Too much trouble, WAY too much effort when I could just sit in a chair all the time and look at a screen without much work involved. Sounds like depression? Well, maybe. Problem is, it never stopped. I had some emotional events in my childhood, everyone does, but honestly I recognized and dealt with them very fast. I am a very positive person, and I always find both sides of a problem to look at because I know not everything is just bad or good for me, I have great parents to teach me how to deal with emotional stuff, and I'm a resident assistant at my current college I attend (junior year), so I help other students deal with these issues as well. Considering that, still, I have the SYMPTOMS of depression - anxiety, fatigue, sleeping all day, trouble waking up, apathy, EXTREME MIND FOGGINESS, etc. Doesn't check out to me. I tell a nurse practitioner about these issues that I feel like I have absolutely no reason to have, and she prescribes me Lexapro, just to try it. Well, haven't tried it yet. That stuff is pretty terrifying, as it can lead to even worsened depression and suicide in young adults, as well as ED and lowered sex drive, (which I really do NOT desire, especially considering I have a romantic interest right now) so I have held it off. My mother has mentioned she has really intense joint pain and she thinks she might have Celiac disease because the doctors cannot figure out what's wrong with her in any other aspect. I look it up, and there it is. Absolutely everything that is and has been wrong with me that I can't explain. Everything. When I was younger, I would have ridiculously painful, gut demolishing hour-long pains in the middle of the night - this went on for years. I and others couldn't explain them, they just told me to stop eating so much cheese. So, that night, we have a gluten free dinner. I wake up feeling like seventy-trillion bucks. Not a million - at least seventy-trillion. I haven't felt this good since kindergarten. I only had four hours of sleep as well, usually I require at least seven. I immediately get up, shower, eat a gluten free sushi lunch, (I was at the dentist getting a cleaning) get coffee, and then come back home. I have a project to do over winter break, and I had been kind of procrastinating on it as I always do, but not that night. Noooo sir, I hopped on the computer and within two or three hours of straight working (which I NEVER do), I got everything done I needed to. Usually that work would have taken me at least 6 hours, but man I was having FUN while working! Not a care in the world, just enjoying my process... that's weird for me. I don't usually do that. I don't usually enjoy doing anything work-wise. In fact, I never realized it, but I always had extreme anxiety while working. I didn't have any of that then, not a trace. I continue with my evening, and things only improve. I feel like I'm on cocaine, or at least what I'd imagine it to feel like. Seriously, I couldn't stop having fun! I didn't sleep that night, either. Not because I couldn't, I just really, really wanted to have more fun. I hadn't been that productive in... ever. I was so productive that I was genuinely scared of what kind of person I had become. Well, here I am today and after a few days of gluten free and also having tonsillitis (have had it for weeks, medicated), I'm starting to feel sluggish and foggy again. I have been eating out a lot, so perhaps cross contamination is affecting me getting my gluten-free meals, or maybe it's the tonsillitis, or perhaps I completely imagined the effect of eating gluten-free and I'm just bulls$#&ting myself. TL;DR: Ate a gluten free meal for the first time, all depression, anxiety, and fatigue went away the next day, but slowly going back to a sluggish apathy ridden me after a few days. Have no idea what's wrong, am I just fooling myself into having a gluten sensitivity? Either way, I'm going to contact my doctor tomorrow, hopefully she is familiar with it and can help me work through this without just prescribing me more antidepressants. Just really curious as to anyone else's experiences and if someone can identify with me in the feeling of having some sort of tumorous drain physically and emotionally at all times of my life? I didn't even know things could be this good, but now that I do I really don't want to go back to the old, horrible me. Sorry if it's too long, thanks in advance!
  19. Hello, My name is Bryan and I'm 23 years old. I've never made an account on any website to talk about this, so this is my first because I have a lot to say and I have been avoiding this. I guess I'll start off giving some history of the issues that I have been having. When I was 18 I was getting pretty serious about lifting weights. I started off at about 160 lbs and got to about 180 when I was about 20. Once I hit 20 years old I injured my back pretty bad to where I was in bed for 3 months, and during the time I started to have some GI symptoms around this time. At the time I thought I was literally having heart attacks due to a serious pain in my chest. It would show up sometimes when I ate food, and especially when I drank caffeine (I never really cared for caffeine, but at this time a preworkout Jack3D got me hooked on it). However, I ended up going to Dr. and he ended up telling me I had GERD within 10 minutes, shortly after that he left the room and came back with Nexium (had to be prescribed at the time). I took Nexium for a while and it helped, but once I got off things were worse. I also couldn't take it anymore because I had a SERIOUS pain in the center of my lumbar spine that would only go away if I went #2. So, I tried the holistic path to get rid of this heartburn. Good news is that I beat heartburn, it's been years since I ever even had it. This event was from about 19 to 20 years of age (Just turning 20 it ended). On the flip side, right when I was turning 21 something else slowly started to happen. I first started off with symptoms of being EXTREMELY TIRED 30 minutes eating a lot of the time. When I was 21, I was working at a dollar store and the first time I noticed one of these episodes I was so tired that I couldn't stand up. So, I just sat on the floor. It felt like a tiredness that was almost induced from a drug, it was a different kind of tired. I worked at this dollar store about 2-3 times a week for 3 years, until I was 23. Me and my boss had subway for probably about 90% of our lunches through the course of these 3 years. Subway 2-3 times a week, every week (I eat NO other fast food, just how I was raised). After I noticed this tiredness I started to pay attention to my stool. It was yellow, inconsistent, and I was going anywhere from 2-5 times a day. Once I was aware of being being tired and not being able to go to the bathroom right, I started to get this shoulder tightness that started from under my right scapula at the rib cage. It crept up from my rib under my scapula, to the rhomboid, to my rear deltoid and scapula, and finally to my neck. This shoulder irritation got so bad I considered death thousands of times. Sometimes I was so happy thinking about death that I would literally smile about it, realizing that this would all one day end. Mentally at this point I have developed a serious anxiety. Everyday I woke up as if I had a grenade go off in my head, as if I was drinking ALL night. I would get a full 8 hours without waking up once just to wake up each morning to have a messed up head. Somewhere down the line I started to experience something very strange with my head. Many times before I ate my head would feel "jared". It's like my eyes wanted to roll back into my head and have a seizure, but what would I know, I never had one. Sometimes I thought I would fall on the ground. This would also happen when I would hear something loud or high pitch, a baby screaming, motorcycle going by, or if someone were to throw a beer bottle away in the garbage if it hit another bottle (making the glass hitting each other). I don't drink, smoke, or do any drugs. I have quit caffeine completely out of my life since the beginning of 2016. I forgot to mention, but caffeine and me no longer get along. It is as if I have a complete intolerance to it. I have had -Endoscopy -Colonoscopy -Blood tests for H-Pyl, Celiac, others I can't remember -Taken antibiotics for SIBO -Gallbladder scan -Liver scan -Pancreas is fine If I remember right -I will update more if I remember anything else. This all came up clear. I have had 2 different General Practitioners tell me that I have anxiety. For a long time I put off anxiety medication and have told them I'm not interested. Eventually I caved and got on zoloft, but I started to have bad side effects. Then they put me on Wellbutrin, currently on 300mg a day. Wellbutrin helps, but I feel it's not the answer. I still get tight shoulder issues, bathroom problems, and I forgot to mention that I have a throat clearing issue that's so consistent that it's simply ruining my life. I have tried gluten free 2 different times, both times I've lasted two weeks being 100% gluten-free. My symptoms are still there, but I don't THINK they are as severe. However I caved Sunday 11/6/2016 (ending my two week and two day streak), gluten-free Monday, and caved again yesterday (being Tuesday). Tuesday was the only day I noticed anything, I was super bloated/gassy/tight shoulder/bad head space. I was just unsure how to feel about it seeing as I only had symptoms on Tuesday when I caved and not Sunday. I'm sorry this is long and so jumbled, still have bad head space. Symptoms: Right shoulder tightness, bloating, gas, food cravings for sweets/chocolate (very noticeable while gluten-free), waking up tired, anxiety, symptoms 30 minutes after eating, will add more as I remember and experience them.
  20. Hey everyone!! Dealt with morning anxiety, complete lack of appetite in the AM/diarrhea if I tried to eat, fatigue, etc. for about two months. Saw doctor and they first prescribed me antidepressants while they ran bloodwork. Got bloodwork yesterday, positive result for celiac, going to get the endoscopy/biopsy soon. Anyone else have morning anxiety like CRAZY before cutting out gluten? Afraid to leave the house because of feeling faint, dizzy, etc., like I'm going to pass out. I haven't actually passed out, but the feelings are all there. It's hard to overcome the anxiety some time! Hoping someone else has had similar symptoms and that I can look forward to this being over soon!! Thanks everyone xoxo
  21. I was hoping that someone who's been dealing with celiac disease for longer than I have could weigh in on this. I was diagnosed about 6 months ago (early Feb.) and have been on the gluten-free diet ever since, though I know I made a lot of mistakes in the first few months. In the end of May and through most of June I was starting to feel like I was finally getting better. I was still having symptoms but they seemed to be subsiding and I was getting so hopeful. The last few weeks have been very stressful. While I'm fairy certain I haven't ingested any gluten, all of my symptoms seem to be back with a vengeance. Digestive problems regardless of what I'm eating (diarrhea, passing mucus, cramps, feeling like there are small creatures running around inside of my stomach all day long), anxiety, depression, aches and joint pain, fatigue, sinus problems... I feel like I did back in February. I should note that I dealt with anxiety for years before celiac disease, but after Celiac kicked into overdrive last year, my anxiety went from a minor but manageable nuisance to a panic-stricken, worrying stress ball from hell. I know anxiety can mess with my stomach but this is way over the top. I feel awful. Worse, after feeling like I was starting to make progress and heal, I'm now feeling really frustrated, discouraged and depressed. Today was my first day of student teaching (just observing right now, so it wasn't like I was front and center) and I just barely made it through today without breaking down in tears. Has anyone else experienced this? When life gets rough and stress levels go up, has anyone experienced a resurgence of their symptoms. I know that the damage from celiac disease can take years to heal and I've been okay dealing with symptoms up until now. But, for the last week or two, I feel like I'm back where I started and my hope is dwindling rapidly.
  22. i have a lot of anxiety with regards to my households shared kitchen-- i live with my non celiac hubby and two boys. they are all gluten lovers and have no intention of cutting back or going gluten free and its impossible to have a gluten-free kitchen i have accepted--though it would reduce my anxiety by about 99percent. so that being said, i have incredible amounts of anxiety daily about either touching, breathing in or accidentally ingesting even a minimal amount of gluten from their products. even to the point that when when i touch the counter and see gluten bread crumbs i will get panicky fearing somehow it will get inside of me. i have so much anxiety about becoming glutened i do not cook one gluten food for my family anymore. so every night basically we all eat something different, it has taken away so much of the joy of cooking for my family as they wont really eat rice or potatoes or any gluten free pasta and breads. not only do i really miss not cooking for them but we went from a very healthy eating household pre celiac to a household that carries out 4 x a week. (i cook my dinner, but order in for my kids) the guilt and frustration i feel daily is overwhelming, one day, im hoping to get a black and white yes./.no answer to my questions. maybe starting here will help -can i safely cook regular pasta (i envision gluten molecules floating in the steam when i cook and pour the water out --not to mention the anxiety of touching or being splahed by the gluten water--as you literally can see it in the water! -is it safe to kiss my husband who has had beer or pizza or anything with gluten in it if he hasnt washed out mouth, brushed teeth etc -is it safe to make gluten sandwiches for my kids, could i accidentally breath in gluten even from a tiny crumb -is it safe to wash all plates silverware cookware in same dishwasher or can gluten residue remain on plates - is is safe to cook and possibly breathe is gluten sauces like making soy sauce sturfry or teriyaki? i assume the gluten can be breathed in when it rises with oil in the air. (i avoid all hibachi places bc of this) -please any tips or insight into this would help..what do you do in your shared you cook gluten things? do you require gluten foods be prepared in seperate section on kitchen by someone other than you? -
  23. I've seen many posts where a Celiac whose gut has just healed is starving every 2 hours. That's me, I guess. Has anyone experienced accompanying EXTREME anxiety and abdominal pressure (as though a small child is standing on your gut)? I also have Graves Disease and thought I was simply hyperthyroid. Just got the results and not hyperthyroid. I can't stand the constant feel of wanting to pull out my hair or scream. I really wish this kid would get off my guts so I could breathe more easily... Seriously, this has been going on for about 6 months. Thanks for any responses.
  24. So i am undiagnosed and have been having severe problems for about 9 months. Ive had stomach problems my whole life. i had a small part of my bowel removed when i was a newborn and had a colostomy bag for 6 months but recovered. I was always active as a child and teen but still had problems, but nothing like this. So now I'm 21 and one day i got really sick in a car and it all started from there! Got very dizzy and wanted to puke. But then i started to have abdominal pain, bloating and bad chest pain. I thought it was a bug and let it pass but it went on for weeks. Then i got constipation and started getting very fatigue and weak. Could barley got to work. One day at work i started having suck bad lower abdominal cramps that they wheeled me out on a cart because i could not walk. I went to the er that night after they went away but since then i have had a lot of symptoms. Mostly lower abdominal pain around my pelvis.( By the way I'm a 22 year old male) . But i have been having bad fatigue, arthritis in my fingers when i wake up, severe abdominal pain that only goes away on occasions, testicular tenderness mostly when I'm constipated, severe stress mostly because of my sickness, bad mouth ulcers, and I'm sure there is a lot of symptoms I'm missing but i have been to doctors and even had a colonoscopy which came back good but I've never been tested for celiac or crohns that i know of. Sometimes i really feel like i dying, the depression had led me to hate everything. I can't really enjoy my wife and kids anymore, can't go out anywhere and have fun because I'm always sick. Im going to see a new family doctor this thursday and try to get some test ran but does anybody have symptoms like me and does this sound like celiac? Help me please i just want my life back. Also i have recently gotten itchy bumps on my hands, wrists and inner forearms and on the right side of my neck( kinda like bug bites all over).
  25. Hi, guys! I'm a 21 year old female and I've had anxiety (GAD and SAD) and hereditary depression for my whole life. I was diagnosed with a gluten allergy January of 2015 after five years of shot-in-the-dark diagnoses. I've had a very difficult time finding a medicine that eases my symptoms but does not send me into a full on gluten attack, if you will. I was wondering if any of you had similar experiences and could offer up any suggestions! A few more details that might be helpful: -I exercise regularly and along with being gluten free, I eat organic and non-processed foods (with the occasional cheat day). -Medication is absolutely necessary. Going without is not an option. Thanks in advance! Disclaimer: I'm new to this website and this is my first post, so please be kind