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neal posted a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)I have known for two years or so that wheat is messing me up, but I would start eating it again after I started feeling better and kind of forgot about it. Plus I like to believe that the body can somehow heal itself of anything. Or that maybe God is looking out for me. Three weeks ago my appendix ruptured, but I was so used to having pain in my abdomen, that I waited 3 days before letting someone drag me to the hospital. iv antibiotics/opiates for a week/ antibiotic pills and vicodens for another so here I am kind of feeling like I am about to die, and not to sure that I don't want to. similar to many here, my life has been a study in pain I know the appendix is attached to the small intestines, which are where the celiac gnomes hang out and trash stuff. Any thoughts on a relationship there? The lady at the healthy store recommended l glutamine to help restore the lining i take some probiotics that I know help, and pancreatin any other suggestions other than the obvious strategy of avoiding the glutoids I have not been clinically diagnosed, there seems to be little point in that I have researched all this celiac business, so I know the basics of it pretty well. I do not want to die from eating toast< that would be so lame
About ten years ago I developed an ache and dull pressure in the right side of my abdomen after taking probiotics for a couple of weeks. It was accompanied by cholestasis-clay colored stools. I lived with it and about six years ago finally got a CT scan, which only showed mild gallbladder inflammation. About four years ago I went on the Specific Carbohydrate Diet four two months, and within that time I stopped getting the ache and the cholestasis cleared up, only to return slightly within the last year after going back to a bad diet which included wheat (I'm gluten intolerant) and occasional dairy (I'm also casein and whey intolerant). Although it had returned slightly, it wasn't anything alarming and I just shrugged it off. Two weeks ago I had a large bowl of white rice and black eyed peas, and my right side began aching badly to the point that I could feel it somewhat in my back, along with increased cholestasis. It was only rice and peas, no butter or any additional fat. This began a pattern that I can't seem to figure out. It seems that most starch, possibly all grains, are causing my right side to feel swollen and bloated. Sometimes I can feel it all the way down around the inside of my right hip bone. I seem to be okay with potatoes and sweet potatoes for the most part, although sweet potatoes do give me diarrhea sometimes. For the past few days I've been trying to do the GAPS diet, but I can't tolerate the broth so I'm having to skip that part and just eat meat. Animal fat doesn't seem to cause the abdominal swelling, although last night it seemed that a pork country rib did cause it. All the meat I'm eating does seem to be making feel unwell though, as if my body is rejecting it. Another problem I have is that I can't tolerate probiotics or fermented foods. It seems that I'm in a catch 22; eat starch and I get the abdominal swelling, or eat mostly meat and feel terrible all day long. Fruit doesn't seem to cause swelling, but I'm hypoglycemic and can't eat too much of it in one day, which is also the reason I can't live on potatoes and sweet potatoes. Have any of you had an experience like this? Can any of you offer any suggestions? Thanks.
Hi, I am very upset and apologise in advance for the length and detail of this post. I live in Perth, Australia, and believe I have discovered more information on celiac.com relating to gluten health issues than any doctor has ever been able to provide. Bit of background, I am 21 and have always suffered from hay fever, worse than anyone in my family. I get bruised easily, my right knee is totally stuffed and both knees crack when I bend them. I love to run, although my knees (and occasionally hips) set me short. My hair has always been thin and dull, and apparenly I have "big glands/lymph nodes" in my neck. I have always been thinner than my two siblings (though my BMI is normal), however I have a pot belly. We have history of diabetes, high blood pressure, vertigo, chronic migraines and mild gluten intolerance in the family. No one in my family has been for a colonoscopy, endoscopy, or thoroughly tested for celiacs. In March 2009 I began to experience very sudden, short and uncomfortable stabbing pains in my intestines/stomach region - as if something sharp just wriggled around to 'ease through'. These pains would last for a couple of seconds, causing me to double over in pain. Occasionally they would last longer than a few seconds, like a dull cramp that eventually reached a 'stab'. Pregnancy was out of the question. I couldn't eat anything and lost 15 kg. I had diarrhea, a constant fever, cramps - the doctor put me on gastro medication and didn't give me a blood test. I woke in the middle of the night with a temperature of 42.6 C - my mother took me to a different doctor and demanded a blood test. My white blood cell count was astronomical - apparently I had been suffering appendicitis for the past month, and since the doctors were unable to locate my appendix on the scan due to accumulation of fluid/gas in my intestines, we had to assume the fever resulted after it ruptured. I had key hole surgery because the surgeons didn't know what was going on. Has anyone with celiacs experienced these symptoms??? For the majority of 2010 I didn't eat very much gluten. I was on antibiotics and painkillers. I was never hungry and after losing 15 kg I preferred to eat 'lighter' types of food, such as salads and fruit. However, I ate crumbed calamari and a variety of sauces. Life was beginning to return to normal when I experienced a very unsightly rash on the right side of my face and body. I was also experiencing depression, crying for no reason, dandruff and mild intestinal pains (doctors said it was abdominal adhesions from my operation, undetectable on ultrasounds, couple of years to form, can lead to blockages, food intolerance, stomach cancer, all that jazz). I was put on acne medication. I requested another blood test - coeliac said 'negative', however by that stage I was not consuming obvious forms of gluten (bread, pasta, pizza) because I preferred to eat light. In 2011 I started a food diary that proved eating products containing gluten caused stomach aches, dizziness, tiredness, depression, irritability and headaches. I decided to avoid gluten completely in 2012. I have been paleo since February and have been feeling absolutely fantastic. I became extremely fit and my appetite diminished. My hair looks very shiny, my complexion is better than usual and people think I'm on drugs because I'm so happy and glowing. I can go all night without sleep and bounce back the following day, no troubles, all I want to do is exercise. However, after consuming corn chips/a teaspoon of unusual dip at a gluten-free restaurant, my entire face broke out in a rash - red cheeks, forehead, swollen jowels. I looked a bit like an orange hamster. Fatigue set in, and I was in an irritable and depressed mood. Just as things were returning to normal, I consumed a large amount of gluten-free cakes during a family gathering, and probably corn/dairy products. The pain in my stomach was very dull, but it was there. I was constipated. After a couple of days of mild stomach discomfort, it skyrocketed. I could feel something snaking (almost sharp and flipping, like a cut) through my intestines - very sore and tender to touch, the pain was concentrated on the right side across from my belly button and under my ribs. It slowly travelled around to the left side, then moved under my belly button. I was sweating, couldn't breathe properly, irritable, sleepy, lost motivation, wanted to eat everything I could see and puke up my guts at the same time. 3 days stuck on the toilet. I had bladder problems, urinating constantly, it felt like a combination of a UTI and thrush. I wasn't digesting anything - it just went straight through me. That was nearly 2 weeks ago. I'm slowly returning to normal, although I feel very depressed, not chatty, irritable, mild pain is present roughly 15cm to the right of my bellybutton and my pot belly is back. I can't exercise or focus on studying for my exams. Needless to say, I'm back on paleo. Has anyone had a similar experience?? Do I have coeliac disease or a gluten allergy? Will a colonoscopy or endoscopy show results, even if I'm off gluten? Any help is greatly appreciated and thank you so much for taking the time to share in my journey.