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Found 13 results

  1. Hi, I'm newly diagnosed. Had endoscopy & colonoscopy first, then one week later GI's office called and told me to go have bloodwork done. About one week after the bloodwork GI's nurse called saying I have Celiacs and to go ahead and start a gluten-free diet. Didn't speak to the doctor, I follow up with him July 27th. Test Results: EMA Titer 1:20 Gliadin Deamidated AB - IgA 17 (<20 antibody NOT detected); IgG 68 H (>20 antibody detected) Tissue Transglutaminase AB - IgG 1 (<6 antibody NOT detected); IgA 28 H (>4 antibody detected) Total IgA 153 (Range 81-463) I've done some reading and *think* I understand these results, except for one thing... Does it tell me anything that my TIgG and Gliadin IgA are lower (not detecting antibodies)? I would have assumed both test IgAs would be low or both IgGs but not flip flopped. I didn't follow a gluten-free diet prior to bloodwork, however, I do follow a predominately whole food based diet, could that account for any of these numbers? I guess my real question is: can these numbers tell me anything other than, "you have Celiac Disease" ? My understanding is that these numbers cannot tell you anything about the severity, gluten sensitivity or level of damage... is that correct? I would like to extrapolate the most I can from this test. Is there anything else I might be able to surmise before I see my GI in a few weeks? Thanks so much, I've already learned a lot from poking around on these forums!
  2. Could someone please help interpret my husbands bloodwork the doctor says it suggests celiac. And the doc thinks he does have celiac deliseas. He also has the symptoms! I believe he has celiac, we have just been told wrong in the past that we are kind uneasy when it comes to doctors... He's been gluten free since having the test done. It's been 2 weeks and he's feeling some better! Thanks! Ttg iga- 1 -normal equal or more than 4 Ttg igg- 8 -normal less than 6 they said Immunoglobulin- 50 normal 80 greater or equal to 4 anti bodies * sorry I know it's kinda scattered I was jotting down quickly as the nurse was talking over the phone and I'm having trouble putting it together thank u!! *
  3. Hi Celiac community, I got a stress fracture and then went to a bone doctor, who tested me for Celiac. I was surprised (but not really, I had terrible symptoms to wheat as an infant but that is another story) when my blood test results came back. Anti tTransglutaminase, IgA was >250 (normal 0-13), and Anti Deaminated Gliadin, IgG was 68 (normal 0-13). At the same time, my TSH was a bit low so I was advised to drop my thyroid dose, which I have done. A week later, I left for an internship overseas, and have to wait 3 months to get scoped. Due to my stress fracture, my doctor advised me to eat gluten-free anyway, which I have been doing (with a few mishaps, argh, and I am still eating oats). I feel like I am sitting in limbo--do I have Celiac's or not? I realize this is not somewhere I can get a definitive diagnosis, but what is the probability that these tests were false positives due to my thyroid medication being too high? I will get scoped next month or do a genetic test, or both.
  4. I was diagnosed with Celiac Disease back in October through blood work. I have an appointment with Gastroenterology at the end of this month. I have heard horror stories that doctors not finding the villi damaged will make them not diagnose you with Celiac Disease, when in fact you still have it. I have had a upper endoscopy before and it was the worst experience. (This was years ago when I first started having severe stomach issues. But also before I got severely ill like I am now. He did not take biopsies and did not find anything. Of course, again he blamed all my pain and symptoms on anxiety) Now that I have been diagnosed with Celiac disease my whole life and symptoms make sense now. Anyway I wanted to meet with the doctor first, to see what he believes when it comes to properly diagnosing celiac disease. What are some questions that I should be asking this doctor and how can I make the next endoscopy a better experience? Any advice would be greatly appreciated. Thanks, Shelby
  5. I'm not sure if this is a personal topic to talk about or not but I was just wondering what other peoples IgA level was after they got there blood work results in? Mine seemed very high but I wanted to know what other people's number was? Mine was 128.
  6. Hi All- new here and new to all of this. Quick info: I have hashimoto's disease and was hoping that trying gluten free might help with some ongoing symptoms that have not been relieved by levothyroxine and liothyronine (synthroid and cytomel). Well- one my main symptoms has been weight gain and an inability to lose weight and in the past couple of months since reducing gluten I've lost 30 pounds without really any other change to my diet/exercise. In the past month I've done my best to remove it completely (using apps etc. to scan my food) but since I am new at it there have of course been some misses on things that it is in and times that I've fudged it thinking it wouldn't matter. Additionally, I've always struggled with GI issues on and off. There have been times where I've seen the GI doctor for frequent diarrhea and mid-stomach pain without anything being resolved in terms of diagnosis, and then periods where I haven't had as much issue with these things. Since going gluten free I was feeling things were more regular, but having some out of town visitors and eating out more led to less meticulousness on my part. I was still getting gluten free items but not checking all the time if say fries were not coated in something, etc. and noticing more stomach upset and sometimes a cough/sneezing/nose congestion- which has also been an issue for me (I don't know if this is typically something that goes with Celiac or something else entirely, but something I've noticed when I eat often nonetheless). Anyway, I saw my regular doctor and mentioned this all to her and she did the bloodwork for Celiac, which came back negative. I've read that if one has been on a gluten free diet for 2+ weeks it can lead to inaccurate test results. I am wondering if anyone has had this experience and is something I should continue to pursue? Or if considering the information I've laid it is probably the case that Celiac is not to blame for whatever is going on and maybe I just have some kind of intolerance related to my hashimoto's as I'd originally suspected. Either way I surely have seen a benefit from eliminating gluten and my body has an issue with it, I would just prefer to know if it may still be Celiac that is causing GI and other gluten related problems for me! I've kind of gotten to that point with things that I'm worn down from pressing doctors about my thyroid and getting nowhere, don't want to do it with this one too if it's not going to be worth it. Thanks in advance!
  7. Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal. My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better. I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him. Something, something's gotta give. Just not really sure where to turn or what to think anymore. -Jessica
  8. I was wondering if someone could help interpret my blood test results. It appears to me to be a negative result, but in the notes my GI doc said, "Results are indicative of Celiac" so I am very confused. Tissue Transglutaminase Antibody, IGA <1 (<4 means no Antibody detected) Immunoglobulin A: 215 (Flag reference range: 81-463) I would be most grateful for any help analyzing these results, if anyone feels moved to share their insight with me. Thanks so much!
  9. Hi......I am once again being tested through bloodwork and was told to eat gluten for 48 hours prior...is this correct?
  10. Would love some help understanding my blood work. Went to the dr and saw the NP. Ive always had stomach problems since I was a little girl but after a stressful year, it seems my symptoms have gotten worse. Gas, cramping, extreme constipation, feeling like someone is squeezing my stomach with ice cold fingers, and I could go on and on. Every time I have so much as a crumb of gluten, these symptoms kick in. Its gotten worse and worse. I want to cry, Im so depressed. Long story short, the nurse practitioner that I saw never called with my blood work up results and when I finally got a hold of her, she said I was fine. I was not convinced I was fine, so I picked up my results and this is what I saw: I'm positive for: Anti- tTg IgA antibodies detected Anti-gliadin IgG antibodies detected Anti-gliadin IgA antibodies detected Can someone help determine what this means? And why would the NP say I was fine if Im positive? Other blood work was inconclusive and needed to be redone. Thank you so much for any help. Cindy
  11. Hello, all. I'm very new but wanted to jump in with a question that's a little time-sensitive. My 6-year-old son has been officially diagnosed with "short stature" since he was three years old. Basically, he was of average height and weight until he was about 18 months old and then just stopped growing. I took him to an endocrinologist in 2011 and all of his bloodwork came back normal, including a celiac panel. He's been going back for follow-up appointments since then, and because he was hitting the minimal-required-growth rate of 2.5" a year and clinging to his spot on the percentile chart (2.5th), his doctor was content. And really, so was I, despite the fact that his father and I are of average size (5'11" and 5'5"). Then last October, after more than 20 years of thinking I just had a nervous stomach, I was biopsy-diagnosed with celiac disease. With this information, I'm looking at my son's lack of growth in a new light, and at his annual endocrinologist follow-up, I mentioned this change. They ran the celiac panel and other tests, and the doctor feels everything came back normal, but I'm not as convinced. HIs vitamin was just below normal, which seems odd for a kid who drinks milk all day and has been outside all summer. He was also just below the low end of normal prealbumin. His thyroid function was iffy as well (edge of normal; she wants to retest in 4 months). So my simplest question is: now what do I do? I'm sure the most logical answer is to put him on a gluten-free diet, but there are a couple complicating factors: 1) His father and I share custody, so his dad would have to be totally on-board and able to maintain the requirements. 2) I live in a house with 8 other people (2 other adults and 5 other kids), so it would be really hard to keep him away from "bad" food. In light of these, I feel like I really need to know FOR SURE if he has celiac, even though I know not everyone even gets that answer. Is there any intermediate step between here and endoscopy, other than a gluten-free diet?
  12. Hi My blood values are coming down, but while the anti-deaminated gliadin IGG has come down to normal values, the TTG IGA is still lagging behind at 12 (should be <7). TTG IGA was 15 in January. Why is it that the anti-deaminated gliadin comes down before the TTG?
  13. A little history...I am 39 years old. I've had belly issues for as long as I can remember. I was diagnosed with irritable bowel syndrome in my early 20's. My symptoms: Nausea (I don't always feel awful, but I never feel good. This is daily. Something I unfortunately considered normal for me. It's all I've known for over 20-25 years). Abdominal cramping Constipation and diarrhea (less C and more D) Stool contains a lot of mucous, floats (fatty stool?) Frequent headaches Fatigue/sleepiness Numb/tingly hands and feet (most intense after eating) Brain fog (feels like "medicine head") I had my gallbladder removed three years ago. I have another autoimmune disorder that caused six miscarriages (I now am the mom to three nine year olds as a result of INVITRO. They administered IVIG and heparin to sustain pregnancy). My numb/tingly hands started just a few months before I had my gallbladder removed. I saw a doctor at that time to discuss the numbness (I had an MRI to rule out MS and stroke, bloodwork and EKG to rule out heart issues). When that came out all normal, he said he didn't know what else could be causing it. He said the fatigue was due to being the mom of three kids. This kind of ticked me off. I get that it's tiring, but there is a difference between being exhausted from life, and SLEEPY all the time. My headaches he attributed to three children as well. Sigh. My constipation and diarrhea due to ibs, and for my nausea, suggested I give up dairy to see if I was possibly lactose intolerant. I gave it up for about two weeks. No change. Perhaps I didn't give it long enough. I was so happy to have MS ruled out, I let it go. I blame myself for not being proactive in getting to the bottom of what was wrong with me. Nausea and these weird numb hands and feet were my new normal. I'm not the person I used to be. I used to be fun, cheerful. I feel like I'm just this lump of grumpy because I never feel good. I guess I could add irritability as a symptom, but I feel of course I'm irritable, I feel like crap! Zoom to now. I've gained 30 pounds the past two years. I can't lose weight. No matter what I eat, how much I exercise, the scale doesn't move. If it does, it moves up. I was playing around online seeing what I could do, and why I wasn't losing. It kept leading me to gluten and celiac. I read the symptoms...nausea, headaches, etc are symptoms to almost all ailments it seems. Then I got to the numbness and miscarriages...and a lightbulb went off. I saw a new doc . She said it could be thyroid, vitamin B deficiency, or celiac. Thyroid and VB came back normal. She did one blood test for celiac (iGa?). It came back negative, but she said it is not uncommon for false negatives, so she recommend I go in for a biopsy to confirm or rule it out. I had my biopsy this morning. I'm frustrated because the GI doc seemed totally aggravated that I was having a biopsy done. He said that since my bloodwork came back negative, I do NOT have celiac. He said the numbness has nothing to do with celiac...unless of course I was malnourished, which I didn't appear to be (yes, I am overweight), and my bloodwork didn't reflect that. He said when it comes back negative (not if, when), we can meet again to look into getting meds to help with my IBS. Good news is that even though he gave me attitude, he did perform the biopsy. I should get results early next week. I told him that if it turns out negative, I still plan to eliminate gluten to see if that helps rid me of my symptoms. He looked at me like I was out of my kind and said dryly, "if you don't have celiac, you don't have problems with gluten." Fine. Whatever. I didn't argue with him. What does it hurt to try? I'm happy I got my biopsy. I'm hoping it gives me answers. If any of this sounds like your experience. If you could give me any advice. I really appreciate it!
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