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Showing results for tags 'celiac symptoms'.
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A Wedding Night Gone Wrong: The Impact of Gluten Contamination
Scott Adams posted an article in Additional Concerns
Celiac.com 11/16/2024 - The wedding of Blake and Bryce Shoemaker started as a picturesque day filled with love, joy, and excitement. The couple, celebrating their October 2022 nuptials in Joshua Tree, California, planned for an intimate ceremony with close family and friends. However, their magical night took a sharp turn when Bryce, who has celiac disease, accidentally consumed gluten, leaving him sick for much of their wedding night. Blake, now able to laugh about the incident, reflects on what happened and how it strengthened their bond as a couple. The Importance of Gluten-Free Choices Planning a wedding in Joshua Tree presented logistical challenges, especially when it came to ensuring that the cake was safe for Bryce, who has celiac disease. Celiac disease is an autoimmune disorder where ingesting gluten can cause severe reactions, ranging from digestive distress to long-term health complications. Because the options in the desert were limited, Blake’s mother took on the responsibility of finding a gluten-free cake. Though her mother believed she had located a gluten-free bakery, upon arriving at the baker’s home, they were met with an environment that was less professional than expected. However, they proceeded to use the cake, assuming it was safe for Bryce to eat. Unfortunately, Bryce unknowingly consumed a cake contaminated with gluten, leading to an unexpected and unfortunate series of events later in the evening. Bryce’s Reaction to Gluten Exposure For those with celiac disease, reactions to gluten can vary significantly from person to person. Some may experience mild symptoms, while others, like Bryce, can have severe reactions even after consuming a small amount. Bryce, after taking just one or two bites of the cake, began to feel nauseous a few hours later. As the evening progressed, his nausea worsened, and he eventually started vomiting. While this was one of the worst reactions Bryce had ever experienced, he remained determined to enjoy the remainder of the evening. Rather than retreating to bed, Bryce stayed with his guests, even bringing a trash can to the center of the room so he could still participate in the afterparty, despite his illness. His ability to persevere and make the most of the situation highlighted his resilience and positive attitude. A Moment That Brought Them Closer Looking back on the experience, Blake reflects on how the incident, though unfortunate, helped them grow stronger as a couple. They had been together for nearly 11 years, having met in the third grade, and this situation was just one of the many challenges they would face together. Blake was heartbroken watching her husband suffer, but she did everything she could to comfort him, sitting by his side and rubbing his back as he dealt with the nausea. Blake notes that moments like these, though minor compared to larger life events, teach couples how to support each other through adversity. They adapted to the situation, showing how a strong relationship can thrive even in the most unexpected circumstances. For them, the takeaway from the experience was how important it is to be there for each other, especially when things don’t go as planned. The Aftermath and Moving Forward After the wedding, Bryce recovered quickly, feeling better the next morning. The couple enjoyed a few more days in Palm Springs before heading off on their honeymoon, making up for the unfortunate incident on their wedding night. Blake shared their story on TikTok, taking a humorous approach to what could have been a much more stressful memory. While the couple is now able to laugh about the incident, it also serves as a reminder of how important it is to thoroughly vet gluten-free products and suppliers, especially for those with celiac disease. Despite the baker’s assurances, the cake contained gluten, leading to Bryce’s reaction. Blake’s mother called the baker afterward, but the conversation did not yield any new information, leaving the family with lingering questions about what went wrong. Why This Story Is Meaningful for People with Celiac Disease For individuals with celiac disease, Bryce’s story is a cautionary tale about the importance of vigilance when it comes to gluten-free food. Even in situations that seem safe, such as ordering from a gluten-free bakery, contamination can still occur. This story emphasizes the need for people with celiac disease and their loved ones to ask thorough questions, research suppliers, and never take chances when it comes to gluten. It also highlights the challenges of living with celiac disease in social situations, particularly at events like weddings, where food is often central to the celebration. Bryce’s determination to enjoy his night despite his illness shows the resilience many people with celiac disease develop as they navigate a world full of potential risks. Ultimately, this story is a reminder that living with celiac disease requires constant awareness, but with the right support and preparation, even difficult situations can be handled with grace and humor. Read more at: people.com -
Celiac.com 02/27/2019 - Celiac disease is an autoimmune condition with numerous symptoms, and associated conditions. People with celiac disease often have gastrointestinal symptoms, including upset stomach, abdominal pain, gas, bloating, indigestion, and diarrhea. Some suffer from many of these on a regular basis. However, many people show few or no symptoms. No single set of signs or symptoms is typical for everyone with celiac disease. Signs and symptoms can vary greatly from person to person. Symptoms of Celiac Disease Fall Into 7 Major Categories Digestive symptoms such as abdominal pain, bloating, gas, diarrhea, constipation, nausea, vomiting, and steatorrhea (fatty stools); Non-digestive symptoms such as fatigue, weakness, anemia, weight loss, malnutrition, delayed growth, irritability, depression, anxiety, and cognitive impairment; Dermatological symptoms such as skin rash, itching, blistering, and dermatitis herpetiformis; Musculoskeletal symptoms such as joint pain, muscle pain, muscle cramps, and osteoporosis; Neurological symptoms such as headache, migraine, ataxia, neuropathy, seizures, and cognitive impairment; Reproductive symptoms such as infertility, menstrual irregularities, and recurrent miscarriage. No obvious symptoms or asymptomatic; Symptoms Can Vary Between Children and Adults The signs and symptoms of celiac disease can vary greatly and are different in children and adults. The most common signs for adults are diarrhea, fatigue and weight loss. Adults may also experience bloating and gas, abdominal pain, nausea, constipation, and vomiting. Many symptoms caused by celiac disease are the result of nutritional deficiencies caused by flattened villi and subsequent malabsorption. Symptoms in Children Children under 2 years old celiac symptoms often include vomiting, chronic diarrhea, failure to thrive, muscle wasting, poor appetite, and swollen belly. Older children may experience diarrhea, constipation, weight loss, irritability, short stature, delayed puberty, and neurological symptoms, including attention-deficit/hyperactivity disorder (ADHD), learning disabilities, headaches, lack of muscle coordination and seizures Vague Symptoms Can Delay Celiac Diagnosis It is not uncommon for symptoms of celiac disease to be vague or confusing. Vague or confusing symptoms can include dental enamel defects, bone disorders like osteoporosis, depression, irritability, joint pain, mouth sores, muscle cramps, skin rash, stomach discomfort, and even neuropathy, often experienced as tingling in the legs and feet. To make matters more challenging, celiac symptoms can also mimic symptoms of other diseases, such as anemia, Crohns disease, gastric ulcers, irritable bowel, parasitic infection, even various skin disorders or nervous conditions. Vague or confusing symptoms can delay celiac disease diagnosis. Signs and Symptoms of Celiac Disease Abdominal cramps, gas and bloating Acne Anemia Ataxia (gluten ataxia) Borborygmi—stomach rumbling Coetaneous bleeding Delayed puberty Dental enamel defects Diarrhea Dry skin Easy bruising Epistaxis—nose bleeds Eczema Failure to thrive or short stature Fatigue or general weakness Flatulence Fluid retention Folic acid deficiency Foul-smelling yellow or grayish stools that are often fatty or oily Gastrointestinal symptoms Gastrointestinal hemorrhage General malaise, feeling unwell Hematuria—red urine Hypocalcaemia/hypomagnesaemia Infertility, or recurrent miscarriage Iron deficiency anemia Joint Pain Lymphocytic gastritis Malabsorption Malnutrition Muscle weakness Muscle wasting Nausea Obesity/Overweight Osteoporosis Pallor—pale, unhealthy appearance Panic Attacks Peripheral neuropathy Psychiatric disorders such as anxiety and depression Skin Problems—acne, eczema, DH, dry skin Stunted growth in children Underweight Vertigo Vitamin A deficiency Vitamin B6 deficiency Vitamin B12 deficiency Vitamin D deficiency Vitamin K deficiency Vomiting Voracious appetite Weight loss/gain Zinc deficiency Conditions Associated with Celiac Disease People with one or more of these associated conditions are at higher risk for celiac disease: Addison's Disease Anemia Anorexia Nervosa, Bulimia Arthritis Asthma Ataxia, Nerve Disease, Neuropathy, Brain Damage Attention Deficit Disorder Autism Bacterial Overgrowth Cancer, Lymphoma Candida Albicans Canker Sores—Aphthous Stomatitis) Casein / Cows Milk Intolerance Chronic Fatigue Syndrome Cognitive Impairment Crohn's Disease Depression Dermatitis Herpetiformis Diabetes Down Syndrome Dyspepsia, Acid Reflux Eczema Epilepsy Eye Problems, Cataract Fertility, Pregnancy, Miscarriage Fibromyalgia Flatulence—Gas Gall Bladder Disease Gastrointestinal Bleeding Geographic Tongue—Glossitis Growth Hormone Deficiency Hashimoto’s Thyroiditis Heart Failure Infertility, Impotency Inflammatory Bowel Disease Intestinal Permeability Irritable Bowel Syndrome Kidney Disease Liver and biliary tract disorders (transaminitis, fatty liver, primary sclerosing cholangitis, etc.) Low bone density Lupus Malnutrition, Body Mass Index Migraine Headaches Multiple Sclerosis Myasthenia Gravis Celiac Disease Obesity, Overweight Osteopenia, osteoporosis, osteomalacia Psoriasis Refractory Celiac Disease & Collagenous Sprue Sarcoidosis Scleroderma Schizophrenia / Mental Problems Sepsis Sjogrens Syndrome Sleep Disorders Thrombocytopenic Purpura Thyroid & Pancreatic Disorders Tuberculosis Nutritional Deficiencies Associated with Celiac Disease and their Related Clinical Manifestations .divTable{ display: table; width: 100%; } .divTableRow { display: table-row; } .divTableHeading { background-color: #EEE; display: table-header-group; } .divTableCell, .divTableHead { border: 1px solid #999999; display: table-cell; padding: 3px 10px; min-width: 120px; } .divTableHeading { background-color: #EEE; display: table-header-group; font-weight: bold; } .divTableFoot { background-color: #EEE; display: table-footer-group; font-weight: bold; } .divTableBody { display: table-row-group; } Nutritional deficiency Most frequent signs and symptoms Iron Hypochromic, microcytic anemia, glossitis, koilonychia, fatigue, pallor, cognitive impairment Folate Megaloblastic anemia, glossitis, diarrhea, cognitive impairment Vitamin B12 Megaloblastic anemia, posterior columns syndrome, dementia, depression, psychosis Vitamin D Osteomalacia (deformity of bone, pathologic fractures), osteoporosis, cognitive impairment, secondary hyperparathyroidism Zinc Growth retardation, hypogonadism, infertility, dysgueusia, poor wound healing, diarrhea, dermatitis on the extremities and periorificial, glossitis, alopecia, corneal clouding Less frequently occurring Protein Edema, muscular atrophy Vitamin B1 (thiamine) Irritability, fatigue, headaches, peripheral neuropathy, wet Beriberi: congestive heart failure; Wernicke: nystagmus, ophtalmoplegia, ataxia; Korsakoff: hallucinations, impaired short-term memory and confabulation Vitamin B3 (niacin) Pellagra: diarrhea, dementia, pigmented dermatitis; Glossitis, stomatitis, vaginitis, vertigo, burning dysesthesias Vitamin B6 (pyridoxine) Stomatitis, angular cheilosis, glossitis, irritability, depression, confusion, normochromic normocytic anemia Vitamin A Follicular hyperkeratosis, night blindness, conjunctival xerosis, keratomalacia Vitamin E Hemolytic anemia, peripheral neuropathies, ophtalmoplegia, posterior columns syndrome Vitamin K Easy bleeding Top Scientific References on Celiac Symptoms University of Chicago Celiac Disease Center Mayo Clinic Celiac Disease Center Vitamin and Mineral Deficiencies Common in Newly Diagnosed Celiac Disease Patients Celiac Disease: Extraintestinal Manifestations and Associated Conditions
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Celiac.com 03/21/2018 - Many people with celiac disease suffer from non-gastrointestinal symptoms. Here are 15 non-gastrointestinal symptoms that can make celiac disease difficult to diagnose. If the general public knows anything about celiac disease, it is likely that eating wheat can cause stomach problems in people with the condition. And that’s often true, classical celiac symptoms include abdominal bloating and pain, chronic diarrhea and/or constipation, and vomiting. Young children are more likely to show classic signs of celiac disease, including growth problems (failure to thrive, chronic diarrhea/constipation, recurring abdominal bloating and pain, fatigue, and irritability. Older children and adults tend to have symptoms that are not entirely gastrointestinal in nature. So, depending on age, and other factors, celiac disease affects different people differently. In fact, there are more than 200 signs and symptoms of celiac disease. Some patients have several, some just a few. Many report non-gastrointestinal symptoms. And many people with celiac disease never show any symptoms at all. Yet, both people with vague symptoms and those with no symptoms still face a higher risk of developing complications associated with celiac disease, as well as for celiac-associated conditions. Recent research has demonstrated that only a third of adult patients diagnosed with celiac disease experience diarrhea. Weight loss is also not a common sign. In fact, far more patients diagnosed these days are over weight. We’ve covered the most common physical complaints of people with celiac disease, but here is a list of fifteen common non-gastrointestinal symptoms that can make celiac disease hard to diagnose: 1) ANEMIA—The most common non-gastrointestinal problem faced by people with celiac disease is anemia. About one in three celiacs (34%) suffer from anemia. Anemia and Celiac Disease Is Celiac Disease Worse In People With Anemia? Celiac Disease and Iron Deficiency Linked in Caucasians, But Not Non-Caucasians 2) BLOATING—20% of celiacs complained of bloating prior to diagnosis. 3) DERMATITIS HERPETIFORMIS, PSORIASIS & other skin conditions—Many people with celiac disease suffer from dermatitis herpetiformis, psoriasis, or other skin conditions. Dermatitis Herpetiformis: Skin Condition Associated with Celiac Disease Skin Problems and Celiac Disease Five Common Skin Conditions Associated With Celiac Disease Psoriasis and Celiac Disease 4) ATAXIA, NERVE DISEASE, NEUROPATHY—Many people with celiac disease suffer from ataxia, nerve disease, or neuropathy, especially peripheral neuropathy. Peripheral Neuropathy 5) CRYPTOGENIC HYPERTRANSAMINASEMIA—nearly one-third (29%) of people with celiac disease, have what is called cryptogenic hypertransaminasemia, also known as celiac hepatitis. 6) THYROID DISEASE—Thyroid disorders are common in people with celiac disease. Thyroid & Pancreatic Disorders and Celiac Disease Should Patients with Autoimmune Thyroid Disease Be Screened for Celiac Disease? 7) JOINT PAIN—Joint pain is a common complaint of many people with celiac disease, possibly due to associated inflammation. 8) DENTAL ENAMEL DEFECTS—Researchers have recently linked dental enamel defects with celiac disease. In the future, dentists may play an important role in helping to diagnose celiac disease, especially in patients with non-classical or vague symptoms, by noting dental enamel defects common in people with celiac disease. Dental Enamel Defects Indicate Adult Celiac Disease Distinct Tooth Enamel Defects Can Help Reveal Celiac Disease 9) UNEXPLAINED INFERTILITY, RECURRENT MISCARRIAGE—Women who suffer from unexplained infertility an/or recurrent miscarriage have a much higher risk of celiac disease. 10) OSTEOPENIA/OSTEOPOROSIS—A full 52% of patients with celiac disease suffer from osteopenia/osteoporosis. Osteoporosis is a more serious bone density problem. Many people with celiac disease suffer from low bone density. Osteoporosis, Osteomalacia, Bone Density and Celiac Disease 11) PSORIASIS—Many people with celiac disease also have psoriasis. It’s also true that many people with psoriasis claim to find that a gluten-free diet can help their symptoms to improve. 12) PSYCHIATRIC DISORDERS—Many people with celiac disease suffer from psychiatric disorders such as anxiety and depression. In some cases, especially in those without classic symptoms, these psychiatric disorders can be among the few symptoms, and can make celiac disease difficult to diagnose. 13) CANKER SORES (Aphthous Stomatitis)—People with celiac disease have much higher rates of canker sores. In fact, nearly 20% of people with symptomatic celiac disease had canker sores as one of their symptoms. In many cases, these canker sores are recurrent, and can be one of the few or only signs of celiac disease. 14) FATIGUE—Many people with celiac disease report recurrent fatigue as one of their symptoms. Sometimes, fatigue can be one of the few or only symptoms, making celiac disease difficult to diagnose. 15) WEIGHT GAIN—Classic celiac disease patients commonly suffered weight loss or low body weight. That has changed. These days, it is much more common for people with celiac disease to be overweight. Screening Versus Symptoms: Does Detection Method Affect Body Mass For Celiacs on a Gluten-Free Diet? How can I be overweight with Celiac ? Sources: Celiac.com Cureceliacdisease.org
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Hi, my 5 year old daughter is being investigated for possible Celiac disease after several months of GI symptoms (pain, diarrhea alternating with constipation, recurring bouts of severe nausea, vomiting...). She scored >300 on a blood test where normal values are under 15 (transglutaminase antibodies I think). At the moment, we are waiting for the results of a second blood test to confirm the earlier results before a biopsy is scheduled in January. Her pediatric gastroenterologist offered no suggestions for dealing with "flare ups" and I've turned to you for advice. Can you think of anything that might appease the symptoms, especially the nausea and vomiting which really scare her? I thought drinking water might help to move the food faster through the GI tract and make her symptoms more "stool related", does anyone have any support for this theory? Tonight, I tried an acupressure point that had worked for me during my pregnancy-related nausea, and it seems to have helped (time will tell). I'm not expecting medically validated advice, but I would appreciate any anecdotal experience you might have so I could try to ease her suffering while I still have to feed her gluten. It breaks my heart to see her in pain like this. Thanks for your help.
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Celiac.com 09/25/2017 - There are currently several efforts underway to develop successful commercial enzyme treatments for celiac disease. Efforts include looking at the digestive enzymes in plants, such as the papaya and star fruits, including such predatory plants, such as the pitcher plant. One focus has been on developing enzymes that can break down gluten before it can trigger an immune reaction. This could prove helpful to many people with celiac disease. One such enzyme under development is Latiglutenase, formerly known as ALV003. Latiglutenase is a new name for an enzyme therapy designed to be taken with meals. The idea is that a person with celiac disease would take an enzyme tablet with a meal. If the meal had mild gluten contamination, the enzyme’s two recombinant proteins would break gluten into fragments that are not toxic to the immune system, thereby preventing exposure, and symptoms. But the stomach is a notoriously difficult environment to work in, so what seems like a simple idea quite a challenge from a science and biology perspective. Seeking to explore the ability of Latiglutinase to improve symptoms, a team of researchers recently set out to test latiglutenase on celiac patients who are seropositive despite following a gluten-free diet. The research team included Jack A. Syage, Joseph A. Murray, Peter H. R. Green and Chaitan Khosla. They are variously affiliated with the Division of Gastroenterology and Hepatology, Mayo Clinic, Rochester USA, the Celiac Disease Center at Columbia University, New York, USA, the Departments of Chemical Engineering and Chemistry, Stanford University, USA, and with ImmunogenX, Newport Beach, USA. "Though the ALV003-1221 trial was inconclusive regarding histologic improvement from latiglutenase, the evidence for symptom benefit, which is more quickly achieved, is quite convincing and clinically relevant," Joseph Murray, MD, of the Mayo Clinic in Rochester, Minn., said in a press release. In these trials, patients with celiac disease who were seropositive despite following a gluten-free diet saw major improvement in symptoms when taking latiglutenase with meals, according to a post hoc analysis of the CeliAction study. The team was really hoping to see histological improvement, but they feel satisfied that this trial shows, says Dr. Murray, that a "therapy to help patients struggling with symptoms due to celiac disease is now within reach." Stay tuned for more on efforts to develop effective enzyme treatments for celiac disease. Read more: Dig Dis Sci. 2017 Doi:10.1007/s10620-017-4687-7.
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