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Found 3 results

  1. gabriele ariana

    7 month old I think has Celiac

    Hello! I am a new mom of a 7 month old baby. At the age of 6 months I began to feed my daughter vegetable based foods and also cereal with wheat, she developed two small dots on her face (one near chin, the other on her cheek.) I thought it was just baby acne since she had had it before.. Little did i know this "acne" would spread. Within a weekend of being on vacation and having limited access to her vegetable based food, I opted to feeding her mostly the cereal. My mistake. The two dots began getting larger and spreading to her cheeks. I began to research to try and find a skin condition that matched hers, the closes thing was Celiac Disease and DH Dermatitis Herpetiformis. I could see the areas being affected were on the back of her neck, cheeks, arms and elbows, and her ankles. It became blistery obviously itchy and uncomfortable. My husband did a DNA test that showed that he carries the genetic trait for Celiac Disease, so I have no doubt thats what it is. I stopped the cereal within immediate realization that she could have a gluten intolerance. Which I suppose I shouldn't have done because thats the only way to find out if they are indeed intolerant. Within a few days of gluten being withheld from her diet her face began to clear up again, but still from time to time will flair back up. (its only been about two weeks.) Is there a chance gluten is still in her system?? I also am breastfeeding, which I have read different things about it passing through the milk. As of now I am trying to keep my gluten intake level at a 0. Is there anyone who knows more information about Celiac in infants and how long a rash will last? or where I can find information for my sweet baby girl? Thank you in advance <3
  2. I have been doing a lot of research and trial/error on finding the right products and food. It’s been 1 year since my diagnosis and it hasn’t been easy but definitely found my way. Anyway...the main reason I’m making this post is because I need to find a way to make companies aware of making gluten free products. I see too many of them are using shared equipment and it’s frustating!!!!! Thats like....giving something that is peanut free to a child but made in a facility where peanuts are all over the place. Why would they emphasize gluten free when it is not. I really wanna push companies to providing a separate room or building to manufacture their products. If they have the money, why not spend it knowing consumers such as myself would purchase it especially if it is gluten free?! Any ideas?
  3. I was diagnosed with Celiac Disease back in October through blood work. I have an appointment with Gastroenterology at the end of this month. I have heard horror stories that doctors not finding the villi damaged will make them not diagnose you with Celiac Disease, when in fact you still have it. I have had a upper endoscopy before and it was the worst experience. (This was years ago when I first started having severe stomach issues. But also before I got severely ill like I am now. He did not take biopsies and did not find anything. Of course, again he blamed all my pain and symptoms on anxiety) Now that I have been diagnosed with Celiac disease my whole life and symptoms make sense now. Anyway I wanted to meet with the doctor first, to see what he believes when it comes to properly diagnosing celiac disease. What are some questions that I should be asking this doctor and how can I make the next endoscopy a better experience? Any advice would be greatly appreciated. Thanks, Shelby
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