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Found 11 results

  1. New here! In short, I’m a 22yo female with chronic nausea/vomiting, loss of appetite, painful diarrhea, 90+ pound weightloss in a bit over a year, tingly hands/feet, awful fatigue, and stomach pains with a history of anxiety/depression dating back to childhood, but absolutly no other previous conditions. I think there’s a possibility I have celiac, but my doctors don’t seem to be too helpful communicating with me the meaning of the tests results. They pretty much just said “hmmmm...it could be, but maybe not” which to me is a lame answer. I was hoping someone could take a look at these results and interprete if it sounds like it could be Celiac or not. igA- 595 mg/dL *went up from 555 three weeks ago if that means anything, they accidentally ordered the same test twice Ttg- 1 U/mL HLA DQ2- positive HLA DQ8- negative Endoscopy/colonoscopy biopsies- Duodenal mucosa with patchy mildly increased intraepithealial lymphocytes, preserved villous architecture Gastric oxyntic mucosa with focal mild chronic inflammation focal active colitis in right colon *I don’t know if this is relavent, but my bilirubin is slightly elevated I’m still waiting on results from deamidated gliadin peptic antibodies igA igG. I was also wondering if anyone here is a cigarette smoker and if that delayed diagnosis, I read that somewhere, and I do smoke maybe a pack and a half a week as I have been for the last 5 years (symptoms started a year and a half ago). What do yas think? Should I cut out the gluten? Right now, while I don’t eat a lot, when I do it’s definilty not gluten free.
  2. Hi everyone! i have just been told I have to have an endoscopy and colonoscopy, not because of any gastro symptoms but because of non iron anaemia. These tests seem a bit invasive and maybe a little premature ? I do have the coeliac gene but apparently so do 33% of the population. Why would it be so important for me to go straight to this? Any help to understand/convince me appreciated
  3. LolaB


    Good Morning! I had my 5 year colonoscopy/endoscopy and was told they found a polyp. My follow up with my Gastro is in May - and of course I decided to Google Polyps and now I am freaked out. I am 43 with Celiac and also IBS - anyone else have a polyp? I know the best is to wait to talk to my Dr but I am stressing myself out. I don’t know the size or which type I am looking for support and someone to help calm me down!! Thanks!!!!
  4. Hi Everyone! I had a endoscopy and a colonoscopy performed today. I don't see my doctor for 4 weeks, once she receives the pathology report and such. I do have a copy of the procedure note and was wondering if anyone had any input for me that maybe had similar results. I only had one blood test for Celiac the IgA (I think) and it was normal. I do have many other symptoms though. Endoscopy: Z-line was irregular. Minimal inflammation was found in the gastric antrum. The duodenum was normal. Colonoscopy: The colon appeared normal. The terminal ileum appeared normal. Has anyone had results similar to these? Anything seem concerning with this... Thanks!
  5. I am normally a very shy person just wanting to blend in and willingly do what I am asked. However, when doctors told me that I needed to drink high fructose corn syrup, corn in my medications, and plastic (Mira lax) they had overstepped their power and I felt threatened. I swell up if I smell corn, so I knew I couldn't eat it. They dismissed my concern about this saying, "You can do it for the test." I set out to figure out a safe alternative for me to prep for my colonoscopy. This process took me over a month of most of my daily thoughts to figure out. I felt in above my head. I asked pharmacists that worked with my doctor for alternative products. They referred me back to the doctor. I told them that the doctor would not provide me with an alternative product. They said well the doctor must not be concerned about your allergy problems. I asked the pharmacist at the local drugstore who also referred me back to the doctor. Baffled I finally asked a friend that was a pharmacist who I should ask that could help me. She said that she could help. She also said that she would not have believed my allergy problem, but she had a relative having the same sorts of issues. Finally, I felt ready and the day for prep arrived. I woke up that morning and for the second day in a row had diarrhea. I mean BEFORE my prep even began! As the day went on I scolded myself about not just being able to do what the doctor said it do. Still, the product should work, all I have to do is be absolutely sure I get enough fluids. I also had made broth with meat and veggies and had this strained for meals. I remembered the product mostly would not be absorbed by my body, so even know I took a large quantity, it would pass through. I trusted my friend the pharmacist and she had used this very substance for her colonoscopy a few years back. Besides the doctor had prescribed this substance to use in prep, just not the brand and form which I had. Finally, I convinced myself and poured the capsules into a cup. I added water and stirred. I drank it down. IN the bottom of my cup was soggy powder, so I chewed and swallowed. My pharmacist friend had told me that when the treatment was finished with the job, the stool would come out yellow and clear. Mind did by the end of the first dose. That meant that I could stop, but I did the second dose anyway, because I knew I had to be sure. The doctor's prep had also a morning prep before the test, but for me that would have meant being up at 3 am. I hadn't known this when I signed up for their first appointment of the day. I did both parts the day before so that I didn't have to get up during the night or worry about driving to the office with diarrhea. I first talked with a nurse that asked which prep I did. I told her I prepped with magnesium citrate. She asked if it were the one prescribed and I said I ordered one I could tolerate without corn. Are you]allergic to corn, she asked? I can't eat corn I replied. What are your symptoms? My body swells up. "You could have done it for the test." Anyway, I felt angry with her. She left me to dress. Another nurse came in and started going over more info that my prep wasn't good enough. The doctor came in and announced that she heard I was rude to the nurse. Then she went into a lecture about how my prep wasn't good enough. Her nurse told her that I did my own prep and this was foolish behavior! I began to yell about them dismissing a person when they say they can't have corn and ordering only giving meds with corn. The doctor claimed she wished she would have known I couldn't have corn... I had told her I couldn't, but they kept saying, but you can have it. Only bloating. Ahhhhhhhhh, I thought! . The doctor said that it was dangerous of me to take the same dose of magnesium citrate which she called for in a part of her plan. It can tend to give kidney problems. I didn't take the same formula, because it had lemon juice which I cannot have either. Also, she mentioned my kidney had showed somewhat dehydrated a couple of days before. Everything had looked within normal limits to me. And she affirmed that it was just a little borderline. They reminded me the Miralax doesn't have corn, but I said it is plastic which isn't to eat! ) I asked them with my hands on the oxygen tube in my nose if they wanted me to leave?! Finally I said, 'You know I think we both have the same goal-to keep me safe. I know that I can't eat corn. Finally everyone seemed a bit disarmed. The doctor decided to start in without sedatives to see if the "prep" worked." I alerted them that I read up on the sedatives and thought we needed to keep the dosage low. . I enjoyed watching the bright red shiny pictures as the scope traveled through a twisting tunnel. Everything looked clean except for a tiny wisp of mucous. The doctor looked rather excited (in a good way) over what she saw as if she were marveling also. Suddenly she hit a twist and began to turn. I felt extreme pain as if someone took a credit card and scraped it against the side of an open sore. This brought a muffled cry as I never recall making except perhaps in childbirth. It sounds a little like a chicken cackling after laying an egg. " I am sorry I said, I can't." I couldn't lie still as it hurt too much. Then she said that the prep looked good enough, so I got the sedatives,. . When I woke up, I was in a bed facing a huge window with the light cheerily coming in. The doctor was standing nearby looking concerned. She said that she knew that I wanted less dose of sedative, but they ended up giving more than usual. The kinks they found were so sensitive. Then she said that we could do the same prep again if we ever needed to. She mentioned fodmaps diet for me. I looked into it and it is similar in many respects to what I am doing. Fruit variety is limited, but my recent favorites strawberries and bananas are allowed. Many of the ones I can't eat are on the bad list that seemed interesting. It is also gluten free. The doc also said that the endoscopy looked great. Everything looked healed up. I apologized to the nurse and the doctor, for indeed I had been rude to them. I know a person who, "though He was reviled, He reviled not again" and would like to do likewise regardless of circumstances. I felt somewhat dizzy from the sedative. We walked to the lab to get my blood work. We got in the car. I gulped down two thermoses of home tap well water as I felt so thirsty. We drove for a while and then I started searching for a plastic bag if you get my drift. There were holes in the bag I found. oops, I had planned to put a bucket or something in. Anyway, I felt better when the water was gone and decided to wait til I got home to drink more and have some food. I came home and put on my robe and collapsed on the couch with my pillow. The children were duly impressed when they came home later. Actually they were a little worried. I had heard of the robe tactic when you need to rest and it truly worked. I really didn't feel too bad, but was told to lay low. I looked up kinks in the intestine. It can be cancer. my dad said that no one in the family has had cancer. He has a nice point. BUT "nobody" has had celiac either and that didn't stop me from getting it and or the genes Okay, but the doctor said that they found one polyp that looked benign She brought up cancer for that. She mentioned the kinks, but didn't mention cancer as an option. She took biopsy's, though, so we're bound to find out. Kinks can also be linked to celiac or chrohns, or pelvic inflammatory disease. I took from the Fodmap diet option that she is thinking food problems and that stands good for my side. My side of defending my right to not eat corn. Since, the doctor offered me a fruit intolerance test. But she mentioned you just drink some stuff and blow into something. I probably will stall out, because what do you think that the stuff will be? It is probably high fructose corn syrup. The results of my tests showed no cancer or significant ungoing damage to my digestive track. Thanks to my friend the pharmacist I knew to have the doctor check for electrolyte balance after that test. This test came out well. My prep didn't damage as was feared. Also the doctor said that if we needed to ever, we could use that same prep again, except perhaps would need to do the last coarse the morning of the exam. Personally, I hope there never is a reason, but am glad that if there is ever was I know where to go for help!
  6. Hi everyone. I'm a nineteen year old female. A year ago I began to get lots of stomach pain, constipation, and diarrhea. I also experienced an increase in fatigue, anxiety, and depression. I also have autism, diagnosed at age thirteen. A few weeks ago I got blood test results that strongly suggested the possibility of having Celiac disease. My endoscopy and colonoscopy are scheduled for July 11. I'm so nervous. Hoping the doctor will be able to tell me that they know what's wrong. Looking for support, but if anyone else is going through similar stuff, feel free to message me or post on this thread- either way.
  7. Is seeing a Celiac GI specialist important if I'm not seeking diagnosis? My current doctor has recommended me to a new GI doc. I told her I didn't want a doctor who wasn't up on Celiac and she told me he was a good doctor. Nine years ago, I had an adenoma polyp removed and that GI doctor was "blown away" that I had that at my age. The only reason I had the colonoscopy is because of the undetermined 2-month stomach illness after returning from Mexico. Three years later (six years ago), I had another one and I got the all clear - no colonoscopy for another five years. I'm a year late getting my third colonoscopy and know I need to get in there. I have not been diagnosed with Celiac and do not know if there is anything a Celiac specialist would look for outside the bounds of an ordinary GI doctor. If I hadn't have been down so many paths with doctors who missed things, I wouldn't be concerned. I know a colonoscopy can't determine Celiac and that's not why I'm going (I've tried but I cannot complete the gluten challenge). I just don't want to go to someone who doesn't have keen knowledge on what to look for if there WAS something a person with Celiac might be more predisposed to having/developing. I don't want to screw up on this but I haven't read anything that would indicate a specialist is warranted.
  8. Hello. My health team has still not diagnosed me after being sick for over 4 months. It has been recommended that I get a colonoscopy. I am really nervous. Will it tell me for sure if I have Crohn's disease or diverticulitis? How painful is it? What are the risks? How bad is it really? I am not looking forward to this.
  9. Hello world, This is my first time ever posting, so bare with me as I make it through the learning curve. I'm a 26 year old female, with symptoms starting over 10 years ago. It started with terrible pain and nausea eating Tex-Mex. Not gassy pain, but someone is slicing open my stomach and rubbing broken glass around kind of pain. It took me years to figure out it was the avocado in the guacamole. Fast forward 5 years and I start to have the same reaction to eggs. After 5 years of not eating eggs, i'm baffled by the blood test that came back negative for a food allergy. What is causing my body to react that way? I've had preliminary blood work, but the only positive results for celiac was the igG gliadin. Does this indicate anything? igg- 33 (30 is cut off for "normal") iga- 4.5 (5 is cut off) iga 17 (20 is cut off) i think this is the tissue one I'm scheduled for an endoscopy and colonoscopy, but that wont be for a few weeks. More info that may or may not be related. Most of the symptoms have been around a while: Anxiety/depression (mostly severe anxiety) add/mental fog patch of unidentifed "stuff" on my face. (ive always assummed it was a dry patch that comes and goes, but it is very smilar to that of lupus's butterfly skin condition on face) dry burning eyes and need of glasses insomnia (no matter how tired I am) fatigue (no matter how much sleep I get) loss of weight and appetite cold hands and feet (all the time, i can be sweating and they are still icicles) mild fevers milder, constant, lower back and gut pain sometimes pain is sharp in my gut, and i'm finding blood in my stool (this can happen for weeks at a time) sometimes after I eat, I have to go to the bathroom right away. do not pass go, do not collect $200 Mother and sister have autoimmune problem with thyroid and hashimotos, and both grandfathers with colon cancer I was gluten free for 24-48 hours before i realized i needed to keep with it for testing, and i was ravenously hungry and fell asleep before my husband, which could be considered a small miracle. mind over matter, or actuall helpful in such a small time frame. I'm also being tested for lupus, and i'm guessing they'll know If I have an IBD when I get my Scopys done (irritable bowel disease) I can find a lot of my symptoms on a few different diseases/autoimmune lists, so i'm more confused that ever.
  10. I'm about to start my two day prep for a colonoscopy and enoscopy. I read that red food dye should be avoided because it looks like inflation when in your intestines, but green and yellow (lime or lemon jello) is okay? Does anyone have suggestions on food? I currently have power-aid, jello, broth, apple juice, and Popsicles. It looks very sad for two whole days worth of food. Also, can I take my medications during this 2 day prep? adderall - ADD medication dicyclomine - For stomach pain, anti-spasm i think Narco - from ER for severe pain Xanax - sleep/anxiety It's really hard to get a hold of anyone at my GI office, so any information on the procedures would be welcomed. I was originally scheduled for 3 weeks from now, but got moved up thanks to my ER visit. I don't want to do anything to mess up my prep and have to do it again.
  11. This is not Medical advice: The biopsy determination of celiac disease requires demonstration of the abnormalities in the proximal small intestine. It is not possible to get such a biopsy going through the anus. The colonoscope does not reach that far. The biopsy instrument must go through the mouth. This is usually achieved with a upper endoscopy (AKA gastroscopy, EGD) A colonoscopy is frequently preformed for the investigation of diarrhea but does not and can not detect celiac disease. Joseph A. Murray, MD.