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So I was diagnosed with " Severe Celiacs disease " last year, but I was told nothing was seen in biopsy and I haven't done blood work yet, the only thing that indicated Celiacs was the damage done to my villi.... before I was diagnosed I was very sick I couldn't eat at all, like throwing up, diarrhea, chest pain, neurological problems and headaches, thought I had cancer. Ok skip forward, I've been on this gluten free diet since November of last year and decided to go ahead and cheat my diet, well I've been eating nothing but gluten for over a week and wasn't getting sick but now I'm starting to get chest pain, weird headaches and a little bit of an upset stomach... Is it possible I wasn't getting sick because I'm now I silent celiac even tho before symptoms were obvious, or could I have been misdiagnosed? Still haven't done blood work and nothing was in the biopsy, However my villi is damaged severely, is more positive I'm sensitive to gluten and the damage of the villi is caused by something else? Please help me, I'm so frustrated with my body because of all this and even more frustrated I wasn't getting sick before but now I think I am.
I was diagnosed with Severe Celiacs last November plus 2 forms of glaucoma and recently degenerative arthritis. I'm only 22 and finding all this out is exhausting and stressful, well recently I decided to take a break from the gluten free diet and ordered a stuffed crust pizza from pizza hut, a few things from taco bell and a buffet at golden corral! And I have not gotten sick! Maybe I rash but the rash was there before hand, now I'm concerned my doctor was wrong and misdiagnosed me somehow? Before I started the gluten diet I was severely sick, throwing up and couldn't eat, I thought I had cancer, can someone help idk who else to go to, is this normal? Getting sick and then not getting sick? Oh and the rash has been there for weeks doctor has no idea what it is gonna see specialist, auto immune diseases are in family, I did have pelvic inflammatory disease could that of caused something?
Hi Everyone, I believe I have had SILENT celiac for years but have been putting off a test because it is a very scary, very restrictive diagnosis to have. (all I know is that SOMETHING is up with my health) Specs: 30 yo Female 5'7 117lbs I will list the reasons I think I have it in bullet points, starting from the beginning. 0. It starts here: As a toddler, suffered from extreme constipation. Very painful.. sometimes would not pass stool for days. but would TRY. very small thin child. 1. As an 8 year old child, I could sleep for excessive lengths of time. I often missed school because I felt too exhausted to get out of bed.... after sleeping for 9-10 hours. Would lay still for days/hours at a time. (tough to reference time.. but it was a long time) I was tested for mono and scanned for tumors. this is how lethargic and I thin I was. 2. On the contrary, at other times, I would obtain excessive bursts of energy. Running jumping shouting, laughing. (this is obviously when I would go to school). Teachers loved me. 3. Diagnosed with ADHD at age 12. Mom would not medicate me until my teens (what a saint). 4. Somewhere in my childhood I listened to my parents talk about how my paternal uncle was diagnosed with celiac. His children were tested and a male cousin tested positive at 6yo. My dad was tested. his test was negative. his children were not tested. 5. 13-16yo suffer from extreme COLD urticaria. Walked a long way to and from school and had awful ITCHY ITCHY hives on my thighs when I arrived home to warm up. 7. 18yo, rapid hair loss. Had thick hair andlost about 3/4... it's still OK.... but was concerning when I was watching it wash down the shower drain. 6. No symptoms from 18-23 (aside from constipation, which has been lifelong ... so NBD) 7. 26yo Develop a really nasty rash on both my elbows..... looks like eczema... so that's what I think it is. tried to treat it... the "eczema" last 3 years, worsening during the winter, but persisting during the summer. Suddenly dissipated a year ago.... skin all around is very dry...no sign of strange nasty itchy rash for some time. (I didn't even notice when it went away... I think it was sudden. one day I just realized it was gone.) 8. 27yo-PRESENT Toe next to my pinky toe frequently goes numb for no reason. when I look at it it's WHITE. No blood or nutrients there. 9. Sometimes hear a buzzing noise in my ear. ringing and buzzing and popping.... not frequent enough to be invasive... but frequent enough. 10. Developed Cold Urticaria again... hives on face after cold exposure.... not itchy like the hives in my teens.. but unsightly. I know the hives are caused by cold exposure. 11. lost 15lbs without trying... but will admit my appetite declined. 12. Opposite problem with my bowel movements. soft and plentiful. (lol) frequent urge to urinate. Important notes: I have rarely vomited in my life, I have never had heartburn, and aside from energy inconsistency, poop stuff, and skin stuff, I have had no other health issues.