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Jefferson Adams posted an article in Additional Celiac Disease ConcernsCeliac.com 12/17/2018 - A 39-year-old woman with possible celiac disease was left brain dead after a dangerous internet “soy sauce colon cleanse” caused critically high levels of salt in her blood, which led to organ failure and death. The medical YouTube channel Chubbyemu, says that the woman, identified only by the initials, CG, arrived at the emergency room with a rapidly deteriorating mental status. Earlier that day, CG had performed a “soy sauce colon cleanse,” a dangerous internet fad in which people drink an entire liter of soy sauce in two hours. CG had been unwell for weeks before the incident. She had begun a diet made up exclusively of white bread and canned fish six months prior, and had lost 11kg, nearly 25 pounds, in the three weeks leading up to the soy sauce incident. Additionally, CG had been recently diagnosed with untreatable paranoid schizophrenia. She suffered from a psychosis that caused her to believe the government had poisoned her. Somewhere online, she read that the soy sauce colon “cleanse” would purge the toxins form her body. There are indications that CG may have suffered from celiac disease. Soon after drinking the highly salt-laden soy sauce her heart began to beat rapidly, according to a person identified only as Bernard, who claims to be a U.S.-based medical doctor, and who runs the popular Chubbyemu channel, which features videos on medical issues like kidney disease and cancer. After resisting all attempts to get her to drink water, CG began to stumble around and and mumble unintelligibly until she collapsed. She was rushed to a hospital and while en route went into cardiac arrest, before being resuscitated. Eventually, though, CG died as a result of acute hypernatremia— extremely high levels of salt in the blood. Bernard believes the woman had undiagnosed celiac disease, which manifested as psychosis and delusional disorder. He adds that a microscopic examination of her cells revealed “marked villous blunting and atrophy”, a common sign of celiac disease. Bernard argued she developed gluten sensitivity, became delusional and was misdiagnosed, and later falling victim to internet misinformation. If that is true, then the story is a sad one, indeed. In any case, the dangers of drinking large amounts of soy sauce or any other salty substance can hardly be overstated. Be very careful and always seek out the advice of a doctor before beginning any type of “cleanse” or “purge” meant to rid the body of “toxins.” See the video on the YouTube Channel Chubbyemu. Read more at: News.com.au
Jefferson Adams posted an article in Additional Celiac Disease ConcernsCeliac.com 06/09/2017 - More and more people are avoiding gluten these days, even folks who do not have a medical reason to do so. Perhaps looking to take advantage of the popularity of gluten-free dieting, or perhaps hoping their targets are easily fooled, one cheeky police department in California is offer to run a gluten check on people's meth. The Newark Police Department posted the offer on their Facebook page. The offer reads: "Is your meth laced with deadly gluten? Not sure? Bring your meth down…and we will test it for you for free!" Of course, however bad may be, and meth is plenty bad, it likely contains no gluten. Also, gluten aside, anyone who takes the police up on the offer will likely be arrested, which seems to be the point. The post appeared on Thursday, and by Saturday, had been shared over 80,000 times, and received more than 14,000 'likes.' According to the National Institute on Drug Abuse, over 12.3 million Americans age 12 and older have tried meth at least once. So far, no word from the Newark PD about whether their plan has actually found any gluten in meth, or led to any arrests. Read more at HuffingtonPost.uk.
Celiac.com 01/15/2014 - Complicated celiac disease is uncommon, but patients have high death rates, say a team of researchers, who recently set out to better understand the epidemiology of complications in patients with celiac disease. The research team included F. Biagi, P. Gobbi, A. Marchese, E. Borsotti, F. Zingone, C. Ciacci, U. Volta, G. Caio, A. Carroccio, G. Ambrosiano, P. Mansueto, G.R. Corazza. They are affiliated with the Coeliac Centre/First Department of Internal Medicine at the Fondazione IRCCS Policlinico San Matteo at the University of Pavia in Italy. The team conducted a retrospective multi-center case-control study based on collection of clinical and laboratory data. They looked at incidence of complicated celiac disease among celiac patients directly diagnosed in four Italian centers. Their study did not include patients referred to these centers after being diagnosed with celiac disease and/or complicated celiac disease at other facilities. Between January of 1999 and October 2011, the team followed-up on 1840 adult celiac patients, for a total of 7364.3 person-years. They found that fourteen patients developed complications to they celiac disease. Five patients died by the end of the observation period in October 2011, making the rates of complicated celiac disease nine cases out of 1835 celiac patients (1/204, 0.49%, 95% CI 0.2-0.9%). The annual rates of complicated celiac disease in the study period was 14 out of 7364 celiac patients, or about 0.2%, 95% CI 0.1-0.31%. Although complications tend to occur soon after the diagnosis of celiac disease, Kaplan-Meier curve analysis showed that they can actually occur at any time after the diagnosis of celiac disease. Overall, complications of celiac disease in this study group were quite rare, but those patients with complications faced very high mortality rates. Source: "Dig Liver Dis. 2013 Nov 19. pii: S1590-8658(13)00624-5. doi: 10.1016/j.dld.2013.10.010.