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Hi guys, this is a question specifically for those living in the UK who are under the NHS. If any of you have read my previous posts on iga deficiency you'll know i've been finding it difficult trying to get blood tests to check if i have a deficiency or not. I was just wondering if anyone in the UK, but also if anyone has had issues regarding this issue internationally your experiences are welcome too. I ask people within the UK, because I am being told by different doctors that IGA deficiency isn't available on NHS, but that it could be, and then i have also been told that depending on the results of my celiac panel they would test further for iga deficency.. But surely if you have a false negative celiac panel (which i have many times) then you should check for an iga deficiency or at least could be worth checking for that? But its so hard to get any doctor to listen properly. If its available on NHS, i'd like to try my hardest to get it done on the NHS as I am currently out of work because of how chronic my digestive issues are now. Maybe i've got my wires crossed on iga deficiency in which case if anyone has any links, or would like to correct me with some facts, that would be greatly appreciated. I ask because I have booked another appointment to see the fourth doctor within a month, and would like some idea on how to approach it and to know if i can request an iga deficiency blood test ( i believe its Igg blood test?) Any help appreciated, the sooner the better! thanks guys
Jefferson Adams posted an article in Anemia and Celiac DiseaseCeliac.com 10/17/2017 - Are primary care physicians under-testing for celiac disease in patients with iron deficiency anemia? A new survey of primary care doctors indicates that they are. It's fairly common for people with celiac disease to develop iron deficiency anemia (IDA), but researchers don't know much about the frequency with which primary care physicians test for celiac disease in patients with IDA. A team of researchers recently set out to describe how primary care doctors approach testing for celiac disease in asymptomatic patients with IDA. The research team included Marisa Spencer, Adrienne Lenhart, Jason Baker, Joseph Dickens, Arlene Weissman, Andrew J. Read, Seema Saini, and Sameer D. Saini. They are variously affiliated with the Department of Internal Medicine, University of Michigan, Ann Arbor, Michigan, United States of America; the Department of Internal Medicine, Henry Ford Health System, in Detroit, Michigan, United States of America; the Department of Statistics, University of Michigan, Ann Arbor, Michigan, United States of America; the Research Center at the American College of Physicians, in Philadelphia, Pennsylvania, United States of America; Department of Internal Medicine, University of Michigan, Ann Arbor, Michigan, United States of America, Ambulatory Care, Veterans Affairs Medical Center, Ann Arbor, Michigan, United States of America. For their study, the team began by electronically distributing a survey to primary care doctors who are members of the American College of Physicians. The survey asked whether doctors would test for celiac disease, either by serologic testing, referral for esophagogastroduodenoscopy [EGD], or referral to GI) in hypothetical patients with new IDA, including: (1) a young Caucasian man, (2) a premenopausal Caucasian woman, (3) an elderly Caucasian man, and (4) a young African American man. The team chose the scenarios to assess differences in testing for celiac disease based on age, gender, and race. They used multivariable logistic regression to identify independent predictors of testing. Testing for celiac disease varied significantly according to patient characteristics, with young Caucasian men being the most frequently tested (61% of respondents reporting they would perform serologic testing in this subgroup (p Interestingly 80% of doctors surveyed said they would definitely or probably start a patient with positive serologies for celiac disease on a gluten-free diet prior to confirmatory upper endoscopy, which is contrary to guideline recommendations. This survey indicates that primary care doctors are under-testing for celiac disease in patients with IDA, regardless of age, gender, race, or post-menopausal status. The majority of primary care doctors surveyed do not strictly adhere to established guidelines regarding a confirmatory duodenal biopsy in a patient with positive serology for celiac disease. Clearly, even with all of the advances in celiac disease awareness and with more refined protocols, primary care doctors have some work to do when it comes to testing IDA patients for celiac disease, and even more work to do in following proper referral guidelines before putting patients on a gluten-free diet. Source: PLOSONE