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Hi, I am 16 years old and have been gluten free for about 4 months now however I was just officially diagnosed with celiac a month ago. I was completely gluten free for the first week however now I cannot seem to cope with the idea of not eating gluten. And yes I know how damaging it is to my body and it makes me so sick for so long however, I can't seem to stop eating it. I keep putting on a ton of weight and my stomach is so bloated it looks as if Im pregnant (which let me make very clear, I am not). I just don't know what to do. I have suffered from an eating disorder before my diagnosis and am worried that I am going to develop it again. My gluten eating binges usually end with me so sick I can't move or focus and me crying in a bathroom. My entire house is gluten free because my parents are so so supportive of me. I just really need help because as I am typing this I just ate a panini and a croissant. I really need help I can't keep living like this and I thought that someone on here would be able to offer me some much needed advice. Please Please Please help me. ps... I should also mention that I suffer from many other food sensitivities, mainly dairy, soy and coconut.
This has got to be one of the saddest days for me. Although I think the doctors have finally figured out what's wrong with me, I'm now faced with a life-changing illness that has gotten hold of me at age 28- and I still have my whole life ahead of me. Now, for the rest of my life, all the foods I've enjoyed eating or cooking are making me miserable and I can no longer just be part of the many people who enjoy whatever they want whenever they want. For so long, I've been battling with gluten sensitivity but never truly knowing what was the problem. For years I've felt it coming on but always chalked it up to feeling too full or eating too much sugar or greasy foods. Within the last 6 months, my body has severely rebelled and the moment I ingest any gluten into my system, I blow up like I'm 9 months pregnant and it takes several hours to begin to deflate. I always compared the feeling of the extreme bloated reaction to having a balloon inside me that just wouldn't pop. No matter what I did, I could gain no relief. I'd begin drinking tons of lemon water and working out but sometimes, working out would just make things worse. I would actually feel pain when I did a sit up- probably from all the inflammation occurring inside my body. I think the biggest problem I'm dealing with now is, I'm only 28. I feel like my life is just beginning. I'm engaged to be married, I want to have a family soon, and now for the rest of my life, I can't live a "normal" life anymore. Now I'm one of the people I always laughed at and thought "how awful to have to be a label checker"- now I am one. I'm going to have to be the person who turns around every box to check the ingredients. I'm someone who cannot just go into the kitchen and start baking unless I'm baking for someone else, but how fun is that? I'm living the life of someone I never wanted to have to deal with. I always became so annoyed by my mom and aunt constantly talking about nutrition and talking Paleo and all the other diet fads. Little did I know, I would become one. I'm absolutely beside myself with now feeling like this is all I have left. I know life doesn't revolve around food, and I know there is so much wholesome and delicious food out there to be had and I realize all of the benefits like weight loss that will probably come as a result from this, but I didn't think at this point in my life, I'd have to be dealing with this. What about those who don't take care of their body, eat 10 times worse than me, snack on cookies and chips all day and drink soda with every meal?? I was never even that bad at my absolute worst! My biggest vice was pizza and bakery goods. So what? That's probably 75% of all americans. I love water and drink it daily- probably 2 gallons a day without even thinking about it. I never felt the need to snack, but I would make my meals mostly about gluten. I'm sure about 75% of my meals revolved around gluten. Ordering pizza and breadsticks as my meal. Going to a restaurant and ordering beers, fries, and wings wasn't the best option but who doesn't do that once in a while? I just feel targeted. Why me? Pity party for 1 right here. If anyone out there has a similar story, a success story, any helpful tips on how to cope, or just any general uplifting comments to add, I could really use it. I'm beginning a new journey, one that I tried so hard to rebel against, but now I'm out of options. I don't want to take years off my life. I want to live long and happy the way I always envisioned my life. I need inspiration. I would love to upload a picture of what the gluten looks like in my belly- but I can't figure out how to do that either. I'd appreciate help with this as well
Hi there, First post from me. I have been gluten-free for about four years now, I am also lactose intolerant and incredibly carful. But I just can't get it right, to be honest I could burst into tears just thinking about it and typing. I have spent more time feeling unwell than well for all my gluten-free time and the year I spent being diagnosed. I feel heavy, like my stomach is made of lead, I feel constantly bloated to the point that I am uncomfortable to leave the house, I feel so low and I don't know how to be any more compliant. My reactions last around two weeks and I feel emotional and depressed every time, I exercise a lot and training is really important to me so every time that I feel bloated (my whole body swells and I retain water under my skin everywhere) I just can't cope with it. The doctors don't help, I have been tested for everything and I don't know which way to turn, I just need to feel well!!!! and for my belly to feel normal again! Any help, advise, suggestions greatly appreciated as I want to feel well more than anything, Thank you, Imari
Vijay Kumar, M.D., Research Associate Professor at the University of Buffalo and President and Director of IMMCO Diagnostics: Not really. It is not true that the serological methods have lower predictive value in children less than two years of age. In all the studies that we did, there was 100% correlation of the EMA to the disease activity irrespective of the age. Karoly Horvath, M.D., Ph.D., Associate Professor of Pediatrics; Director, Peds GI & Nutrition Laboratory; University of Maryland at Baltimore: There are age dependent changes in several blood parameters during childhood. It is well known that immunoglobulin levels depend on the age of children. E.g. the IgA class immunoglobulins reach the adult level only by 16 years of age, and the blood level of IgA immunoglobulins is only 1/5th of adult value below two years of age. A large study from Europe (Brgin-Wollf et al. Arch Dis Child 1991;66:941-947) showed that the endomysium antibody test is less specific and sensitive in children below two years of age. They found that the sensitivity of the EmA test decreased from 98% to 88% in children younger than 2 years of age. It means that 12% of their patients with celiac disease, who were younger than two years of age, did not have an increase in their endomysium antibody levels.