Search the Community

Showing results for tags 'depression'.



More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Celiac Disease: Diagnosis, Recovery, Related Disorders & Research
    • Gluten-Free and Celiac Disease Calendar of Events
    • Celiac Disease - Pre-Diagnosis, Testing & Symptoms
    • Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
    • Celiac Disease - Related Disorders & Research
    • Dermatitis Herpetiformis
    • Gluten Intolerance and Behavior
  • Celiac Disease Support & Help
    • Celiac Disease - Coping With
    • Celiac Disease - Parents of Kids or Babies With Celiac Disease
    • Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet
    • Celiac Disease - Doctors
    • Celiac Disease - Teenagers & Young Adults Only
    • Celiac Disease - Pregnancy
    • Celiac Disease - Friends and Loved Ones of Celiacs
    • Celiac Meeting Room
    • Celiac Disease - Sleep
    • Celiac Disease - Support Groups
  • Gluten-Free Lifestyle
    • Gluten-Free Foods, Products, Shopping & Medications
    • Gluten-Free Recipes - Baking & Cooking Tips
    • Gluten-Free Restaurants
    • Gluten-Free Ingredients & Food Labeling Issues
    • Celiac Disease - Publications & Publicity
    • Gluten-Free Travel
    • Gluten-Free Diet & Weight Issues
    • Gluten-Free International Room (Outside USA)
    • Gluten-Free Sports and Fitness
  • When A Gluten-Free Diet Just Isn't Enough
    • Other Food Intolerance and Leaky Gut Issues
    • Super Sensitive Celiacs & Gluten Sensitive
    • Alternative Diets
  • Forum Technical Assistance
    • Board/Forum Technical Help
  • DFW/Central Texas Celiacs's Events
  • DFW/Central Texas Celiacs's Groups/Organizations in the DFW area

Blogs

There are no results to display.

There are no results to display.

Categories

  • Celiac.com Sponsors
  • Celiac Disease
  • Safe Gluten-Free Food List / Unsafe Foods & Ingredients
  • Gluten-Free Food Reviews
  • Gluten-Free Recipes
    • Gluten-Free Recipes: American & International Foods
    • Gluten-Free Recipes: Biscuits, Rolls & Buns
    • Gluten-Free Recipes: Noodles & Dumplings
    • Gluten-Free Dessert Recipes: Pastries, Cakes, Cookies, etc.
    • Gluten-Free Bread Recipes
    • Gluten-Free Flour Mixes
    • Gluten-Free Kids Recipes
    • Gluten-Free Recipes: Snacks & Appetizers
    • Gluten-Free Muffin Recipes
    • Gluten-Free Pancake Recipes
    • Gluten-Free Pizza Recipes
    • Gluten-Free Recipes: Soups, Sauces, Dressings & Chowders
    • Gluten-Free Recipes: Cooking Tips
    • Gluten-Free Scone Recipes
    • Gluten-Free Waffle Recipes
  • Celiac Disease Diagnosis, Testing & Treatment
  • Miscellaneous Information on Celiac Disease
    • Additional Celiac Disease Concerns
    • Celiac Disease Research Projects, Fundraising, Epidemiology, Etc.
    • Conferences, Publicity, Pregnancy, Church, Bread Machines, Distillation & Beer
    • Gluten-Free Diet, Celiac Disease & Codex Alimentarius Wheat Starch
    • Gluten-Free Food Ingredient Labeling Regulations
    • Celiac.com Podcast Edition
  • Celiac Disease & Gluten Intolerance Research
  • Celiac Disease & Related Diseases and Disorders
    • Lists of Diseases and Disorders Associated with Celiac Disease
    • Addison's Disease and Celiac Disease
    • Anemia and Celiac Disease
    • Anorexia Nervosa, Bulimia and Celiac Disease
    • Arthritis and Celiac Disease
    • Asthma and Celiac Disease
    • Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
    • Attention Deficit Disorder and Celiac Disease
    • Autism and Celiac Disease
    • Bacterial Overgrowth and Celiac Disease
    • Cancer, Lymphoma and Celiac Disease
    • Candida Albicans and Celiac Disease
    • Canker Sores (Aphthous Stomatitis) & Celiac Disease
    • Casein / Cows Milk Intolerance and Celiac Disease
    • Chronic Fatigue Syndrome and Celiac Disease
    • Cognitive Impairment and Celiac Disease
    • Crohn's Disease and Celiac Disease
    • Depression and Celiac Disease
    • Dermatitis Herpetiformis: Skin Condition Associated with Celiac Disease
    • Diabetes and Celiac Disease
    • Down Syndrome and Celiac Disease
    • Dyspepsia, Acid Reflux and Celiac Disease
    • Epilepsy and Celiac Disease
    • Eye Problems, Cataract and Celiac Disease
    • Fertility, Pregnancy, Miscarriage and Celiac Disease
    • Fibromyalgia and Celiac Disease
    • Flatulence (Gas) and Celiac Disease
    • Gall Bladder Disease and Celiac Disease
    • Gastrointestinal Bleeding and Celiac Disease
    • Geographic Tongue (Glossitis) and Celiac Disease
    • Growth Hormone Deficiency and Celiac Disease
    • Heart Failure and Celiac Disease
    • Infertility, Impotency and Celiac Disease
    • Inflammatory Bowel Disease and Celiac Disease
    • Intestinal Permeability and Celiac Disease
    • Irritable Bowel Syndrome and Celiac Disease
    • Kidney Disease and Celiac Disease
    • Liver Disease and Celiac Disease
    • Lupus and Celiac Disease
    • Malnutrition, Body Mass Index and Celiac Disease
    • Migraine Headaches and Celiac Disease
    • Multiple Sclerosis and Celiac Disease
    • Myasthenia Gravis Celiac Disease
    • Obesity, Overweight & Celiac Disease
    • Osteoporosis, Osteomalacia, Bone Density and Celiac Disease
    • Psoriasis and Celiac Disease
    • Refractory Celiac Disease & Collagenous Sprue
    • Sarcoidosis and Celiac Disease
    • Scleroderma and Celiac Disease
    • Schizophrenia / Mental Problems and Celiac Disease
    • Sepsis and Celiac Disease
    • Sjogrens Syndrome and Celiac Disease
    • Skin Problems and Celiac Disease
    • Sleep Disorders and Celiac Disease
    • Thrombocytopenic Purpura and Celiac Disease
    • Thyroid & Pancreatic Disorders and Celiac Disease
    • Tuberculosis and Celiac Disease
  • The Origins of Celiac Disease
  • Gluten-Free Grains and Flours
  • Oats and Celiac Disease: Are They Gluten-Free?
  • Frequently Asked Questions
  • Journal of Gluten Sensitivity
    • Journal of Gluten Sensitivity Spring 2018 Issue
    • Journal of Gluten Sensitivity Winter 2018 Issue
    • Journal of Gluten Sensitivity Autumn 2017 Issue
    • Journal of Gluten Sensitivity Summer 2017 Issue
    • Journal of Gluten Sensitivity Spring 2017 Issue
    • Journal of Gluten Sensitivity Winter 2017 Issue
    • Journal of Gluten Sensitivity Autumn 2016 Issue
    • Journal of Gluten Sensitivity Summer 2016 Issue
    • Journal of Gluten Sensitivity Spring 2016 Issue
    • Journal of Gluten Sensitivity Winter 2016 Issue
    • Journal of Gluten Sensitivity Autumn 2015 Issue
    • Journal of Gluten Sensitivity Summer 2015 Issue
    • Journal of Gluten Sensitivity Spring 2015 Issue
    • Journal of Gluten Sensitivity Winter 2015 Issue
    • Journal of Gluten Sensitivity Autumn 2014 Issue
    • Journal of Gluten Sensitivity Summer 2014 Issue
    • Journal of Gluten Sensitivity Spring 2014 Issue
    • Journal of Gluten Sensitivity Winter 2014 Issue
    • Journal of Gluten Sensitivity Autumn 2013 Issue
    • Journal of Gluten Sensitivity Summer 2013 Issue
    • Journal of Gluten Sensitivity Spring 2013 Issue
    • Journal of Gluten Sensitivity Winter 2013 Issue
    • Journal of Gluten Sensitivity Autumn 2012 Issue
    • Journal of Gluten Sensitivity Summer 2012 Issue
    • Journal of Gluten Sensitivity Spring 2012 Issue
    • Journal of Gluten Sensitivity Winter 2012 Issue
    • Journal of Gluten Sensitivity Autumn 2011 Issue
  • Celiac Disease Support Groups
    • United States of America: Celiac Disease Support Groups and Organizations
    • Outside the USA: Celiac Disease Support Groups and Contacts
  • Celiac Disease Doctor Listing
  • Kids and Celiac Disease
  • Gluten-Free Travel
  • Gluten-Free Cooking
  • Gluten-Free
  • Allergy vs. Intolerance
  • Tax Deductions for Gluten-Free Food
  • Gluten-Free Newsletters & Magazines
  • Gluten-Free & Celiac Disease Links
  • History of Celiac.com
    • History of Celiac.com Updates Through October 2007
    • Your E-mail in Support of Celiac.com 1996 to 2006

Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Joined

  • Start

    End


Group


AIM


MSN


Website URL


ICQ


Yahoo


Jabber


Skype


Interests


Location

Found 54 results

  1. TL;DR Mom is a celiac. Father, Brother are lactose intolerant. Sister has IBS problems as well. I believe I have gluten allergy, even though every doctor test is negative. But I do have geno-type for celiac. Marijuana has become my only solution to stop the pain and get hours of relief. No other medicine works. but pot lets me go to work, without crapping my pants and getting paid to s$#&. Anyone else in my particular situation or does everyone else feel it differently? Hello, My name is Ryan and I am a twenty-four male, 300lbs, 6ft 4in. Ive been haunted by stomach/head aches for almost my whole life. Gaining depression in middle school, which downward spiraled by the time I was 20-21. Ive been diagnosed with Chronic Lyme Disease which is, I guess, controversial among physicians on whether or not it is actually a real thing. My Dr. gave me that diagnosis at 16, after going to him with Lyme for the 8th time. My mom figured out she was a celiac when I was 20 years old, so I then started on a gluten-free diet and felt good, but didnt realize that it was actually helping me. I went back on gluten to have the testing done, but it came back negative. So I said okay, I'm not allergic to gluten it must be my imagination or something else and went on my way. Had two more doctors tell me I probably wasnt Gluten intolerant. I then started to get serious urinary issues, and started to go to urologists. They couldnt find anything wrong, so I went to a GI and they told me nothing was wrong, after doing all the testing over the years, they said I wasnt allergic to Lactose or Gluten, however my most recent GI said I have a Geno-type for it. MFer*** I know its already here. It doesnt take but an hour and I am in gut wrenching pain and cant get off the toilet for sometimes hrs, with breaks in between (4 times on) and the pain and discomfort lasts for hrs. The doctor has put me on every kind of medicine and nothing works. He said well you dont have anything we test for, so I'm just going to say you have IBS. Which still makes sense, because there is times, I know I havent touched gluten ( I dont think, I'm not a very good label checker) or cheese and I'm still in the BR. I am currently on 50MG Amytriptaline (spelling) for the depression, urinary issue and intestinal inflammation(whether its there or not, the gastro put me on it, and it keeps the other two things at bay, so I cant go off it. However, it doesnt do too much for the stomach problem. The only solution I have found is Marijuana, which I have only recently started (1yr), but man does it make a difference. Now I can have a full time job, but I have to smoke to go to work. Which isnt my most favorite thing to do , but Ive gotten used to it and it helps me tremendously. So its become my catch all illness defeater. However, it only puts my intestines on hold(how long depending on how much pot, but usually a small amount keeps my stomach at bay for about 6-8 hrs. I can suffer the last hr at work, but at least I'm not in the bathroom for my whole shift. Which is great, its an amazing feeling to be at work without something plaguing you. I still dabble in gluten, like 1 slice of pizza, here and there (bc im supposed to be not gluten intolerant) but the devil strikes every time. Im sure Ive missed some stuff, but would like some feedback on the route I should take, get some insight, my wife said I should go to a holistic doctor, which has amazing reviews near us, but its 500 dollars cash to get the evalution and its not covered by insurance. She thinks I'm allergic to soy, which I guess is in both lactose and gluten?? But ive never been tested for that. I want some light to follow. Thanks Is it typical to feel an attack so fast? It happens between 15 minutes to 2 hrs, giving the span, but usually an hour. Does everyone react the same way to gluten? - I dont get diarrhea or constipation, I get a little of both, its loosely packed and hard to pass with excruciating pain. Other times ( I think this is the IBS part), it'll just come out of no where, but its not super painful, but I cannot hold it at all. Could all of my problems be Gluten/Lactose...or just part of it/none of it? Has anyone else gotten a negative test, but still said hell with it, Gluten Free? Are there any good, well organized mega threads for stuff to not touch if you're allergic to gluten, especially lesser known things (to avoid oops moments)
  2. I'm new here, so I'm not sure if I'm even posting this in the right forum, but here goes. It's been about 3 months and I am at my wit's end. Forgive me for being dramatic, but I don't wanna suffer alone anymore. My gluten intolerance emerged when I hit puberty, but it was never serious: just bloating, constipation, fatigue. However, along the years, I noticed some strange symptoms come about. The weirdest being a "globus" sensation, as if something was caught in my throat. After attempting to cough it up to no avail, I decided to ignore it, assuming it was simply mucus. Once again, I continued to eat gluten, not realizing the damage it was causing. Then slowly over the course of a couple more years, I noticed that food would take awhile to go down. I didn't think much of it, just that I had to drink a lot more water than usual. Fast forward to the present time, and now I can hardly swallow my own saliva. I went to the doctor, who said I had nothing more than a mere chest cold. So I took the medicine, and only got worse. I don't know how it happened, but I stumbled upon a forum post, about a woman whose dysphagia was linked to celiac disease. It all makes sense now. After a month of starvation, my swallowing returned to (somewhat) normal, and as you can imagine, I stuffed every food imaginable down my throat: pizza, bread, ramen, my favorite foods basically. And now I'm back to step one, and I've never felt more miserable. I've avoided gluten like the plague ever since, yet I still cannot swallow. I really hope that someone out there can relate to the toll that this is taking on my mental health. I've never been suicidal, but it just seems like each day, a new symptom arises for no utter reason, and I think that being dead would be so much easier. As of now, I haven't eaten gluten in weeks, yet I have the sensation of a walnut stuck in my throat, and I am scared to death to eat a morsel of mashed potato. I've been waking up every morning choking on my saliva. No one is taking me seriously. My mom just tells me to eat less dairy and gluten. But my throat literally feels like it's the size of a straw. That's not all either. Don't even get me started on the brain fog, the random rashes, my bones aching for no reason, falling asleep while eating, the list goes on. I've managed to eat some soup now, although it takes me an hour to eat half a cup. This, along with the stress of college is beating me to a pulp right now. I hate to complain so much, but I really just want someone to tell me that they know what I'm going through, because no one in my life can relate to me right now, or even have any sympathy. Please, tell me I'm not alone.
  3. 6 years ago I started having anxiety. Over time it got worse. Then came depression. I was treated with 50+ medications, a year of ECT treatments. Nothing helped. 4 years ago my doctor at the time thought I might have celiac's disease. At the time I did not have health insurance, and could not afford to see a specialist. 2 years ago I was diagnosed with celiac's disease. Since going totally gluten free. My depression is gone, and my anxiety is better. Adding vitamins and suppliments to helped due to malabsorption. Adding daily exercise helped. Dispite all of this, a small amount of my symptoms still exist. When I mention these to my PCP, and ask if the symptoms are possibly from other things. Example: hypothyroid, fibromyalgia, chronic fatigue syndrome, perimenopause, PMDD, or other mental illnesses. She has no idea what to say to me. Usually it is "try this new medication for a while and come back". That medication doesn't help. I have crazy side effects. Because it is used to treat something I don't have. Does anyone else relate to this? How do you get your doctor to recognize and help what is really going on with you? What helped, and what did it treat? Any suggestions for anything I mentioned?
  4. Hi everyone. This is my first post so bear with me. Let me start by saying that as little as one month ago, I had absolutely no reason to believe that I would ever be posting here. I, like many of you, was getting ready for the holidays and had no suspicion whatsoever that anything was wrong with me. One thing I had to do in preparation for the holidays was get a refill of my Synthroid (thyroid medication). I went for what I thought was a very routine appointment that would ultimately change my life. My previous doctor left the practice, so I saw the new endocrinologist that was hired to replace her. She asked me all the usual questions and took my height and weight. Then she looked through my file to see what dosage I was on. She looked surprised and said it was a relatively high dose for someone of my size, so she wanted to test me for celiac in case I had an absorption problem. I just shrugged it off, fully confident it would come out negative. I know there is a strong association between Hashimoto's and celiac, but I have never had any symptoms or nutrient deficiencies, other than Vitamin D (which improved as soon as summer came around and I was getting more light). No one in my family has celiac either (or at least hasn't been diagnosed with it). So imagine my surprise when my TTG test came back positive. It was a weak positive, but a positive nonetheless. Despite that, I still held out hope. I read that the TTG test has an extremely high rate of false positives, especially in people with other autoimmune disorders. I followed up with a GI and he was not prepared to say I was even likely to have it based on that one test result. He needed more information before he could confirm, so he ran some more tests. In the meantime, he told me to not worry about it, eat normally, and enjoy the holidays, which I tried to do, but I was pretty scared. I scheduled my endoscopy for Jan. 5 because that was the earliest possible date available. I did not get my test results until I went in for the procedure this past Friday. He told me they all came back positive (still a weak positive, but positive). I just nodded because I was afraid if I tried to talk, I would start crying. When I was hooked up to the monitor, he noted my heart rate and asked me if I was nervous. I nodded again. He asked me if it was about the procedure or about the results. I told him it was the results and I did indeed start to cry (he held my hand and told me I could keep a poker face, but I can't hide from the heart rate monitor). Then he said to just relax. The blood tests weren't definitive and I should just wait and see what the biopsy shows. I knew he was just saying that to make me feel better, though. I did my research, and I know that if all the tests are positive, then it means I have it. At this point, all the biospy will tell me is how much damage is there. He noted that my intestines looked fine superficially, but that they do in about 80% of celiac cases. I'm not going to get into all the details of why this makes me so upset. All of you are already familiar with the challenges of this extremely onerous diet: the hypervigilance, lack of spontaneity, social isolation, etc. The reason I am so depressed is because I'm not suffering to begin with! At least not in a way that I can physically feel. I'm not going to feel better because I don't feel bad in the first place, which makes all of this seem like even more of a burden. Not to mention I have no idea how to find out if I HAVE accidentally ingested something bad if I don't notice it physically. I eat a LOT of gluten-containing foods, and even in the quantities I consume now, I feel nothing. If I ate a crumb of bread, I won't experience anything. I know I must sound incredibly whiny to most of you who actually experience suffering from ingesting gluten. I'm lucky not to be very sensitive or experience a great deal of pain. But at least you must have felt some relief to finally have an answer to and a solution for your suffering. I have no nutrient deficiencies, no pain, no GI issues, no brain fog, etc. I only have a bit of fatigue, but so does everyone I know. Having to give up all my favorite foods and cultural cuisine sucks, and I don't know where I'm going to find the time to cook the majority of my meals from scratch (not to mention I don't even enjoy cooking). I'm also a vegetarian of 15 years, which I don't think I can maintain anymore, and that utterly breaks my heart. The whole ordeal has sunk me into a serious depression. I can't stop thinking about it and obsessing over it. It feels like a nightmare I can't wake up from. I sincerely hope it won't be as bad as it seems right now, but in the meantime, I just needed a vent. I don't know if there's anyone reading this who has also gone through a similar thing (asymptomatic, surprise diagnosis, depression from the results). I just wish I could rewind a month and never see that endocrinologist. There is something blissful about ignorance.
  5. MrsChoplin

    Someone has it worse.....

    I've been in a really bad place this week. I've struggled a lot with the Celiac diagnosis. I was doing better and then this week hit me like a ton of bricks.... I think because I officially transition to gluten-free on Monday..... I am scared. Scared of losing the convenience I'm used to. Scared of losing the food I'm used to and love. I don't care how it sounds.... I'm fat because I eat bad. I like bad food. I no longer will be able to eat that food. Not just for a short time-not just for a year-forever. I look at #celiac on instagram and the food doesn't appeal to me. I love salads/fruits/veggies but I don't love all the other stuff I see pictured. I literally am terrified of having nothing to eat. The cost of eating gluten-free is also astronomical. I'm putting my family in such a bind... we're struggling and I feel so much guilt. So... I'm struggling but that wasn't the point of my message. My message was to say that I stumbled upon a story of a little girl who just passed away last month from DIPG (incurable brain cancer). It kills kids ages 5-9 usually. I cannot even imagine.... It breaks my heart...it kills me inside...and it puts into prospective that while Celiac sucks for me... it'll be hard for me... it's not the worst thing in the world. If my mom were here she would be amazingly supportive, she would hold my hand and hug me and promise to be there for me all along the way but when I sank too low and was too depressed she would say "Someone out there has it worse than you Chanda". And she would be right....
  6. Lori HC

    Anger?

    Hello everyone, I am new to join this forum, though I have been look at your posts since I was diagnosed in September (it's now end of October). Just wanted to introduce myself. My name is Lori. I'm 43, female, and have had stomach issues for my whole life. As a child, I was ALWAYS tired. My doctor couldn't figure out what was wrong with me and just told my mom to get me into sports to help tire me out at night. I missed a lot of school because I was sick quite a bit, but got good grades so no one seemed to be bothered by it. Over the past 2 years my symptoms were consistently getting worse. Just before I had my gallbladder removed (gall bladder attacks that were getting longer), I started vomiting on a regular basis. Didn't seem to matter if I had an empty or full stomach or if I felt okay. I would be vomiting at least 2 times a week and chewing on ginger tablets constantly. Diarrhea also got worse but I didn't think much of it because I had been diagnosed with IBS when I was 20 and the celiac biopsies came back negative. I was taking 2 to 4 Immodium gel pills every day just to get through work. My doctor did numerous tests to find out why I was so sick all the time but no positive results for anything. She decided to send me for another gastroscopy and colonoscopy since it had been over 20 years since my last one. There, the doctor found out that I have a sliding hiatus hernia, ulcers, and bile reflux. He also did some biopsies which came back "blunted villi" so he recommended that my doctor send me for celiac blood tests. Sure enough, they both came back positive. This after a psychiatrist told me I should be tested again - years ago when the depression medication didn't work and my inflammation levels were through the roof. Today I also found out I have osteopenia. I thought I had worked through the anger that I hadn't been diagnosed years ago (when it wasn't too late to prevent a lot of the issues I have now), but it has raised it's ugly head again. My question to all of you is, how did you get past the anger at all the missed/wrong diagnoses over the years? I would have gone back and insisted on the doctor doing something if I hadn't assumed I had IBS for over 20 years. Maybe I could have had children. Maybe I could have prevented the bone loss and hair loss. Also, did anyone find that their hair grew back? How long did it take? Happy to have found all of you! Lori Here are my symptoms/related illnesses: Depression (diagnosed at 19 with intermittent success with medication combinations) Chronic inflammation Joint pain Skin rashes Chronic fatigue B12 and Iron deficiency anemia for years - I have had to take strong supplements for over 20 years. Hair loss PCOS (but I still ovulate so I'm wondering if this is true) Insulin resistant/pre-diabetic Very overweight beginning in 20s with difficulty losing weight for years (except the time I eliminated ALL grains)
  7. Hi there, I was just diagnosed (well sort of, the blood test was positive and the nurse said she was nearly certain based on what she saw in the biopsy but are waiting results from the samples) and Im dealing with a lot of the emotional stress with seemingly none of the support. I have received next to no info on how to actually go gluten free from any doctor and that is only part of the problem. Im wondering how long I could have possibly had this? Ive had symptoms that dont actually match celiac disease very well but closely enough? for years but none of them stem from eating foods containing gluten. Every once in a while (maybe 2-4 times a year) I have these attacks where no matter what I eat I get sick, during these attacks I avoided food but when Im finally able to eat again the foods that provide the most relief and ease as bagels and crackers. I cant even get liquids down have the time and soup always sits too heavily. I dont get reactions from gluten at all. The only reason I was tested in the first place was because I had taken some new hormone pill for an unrelated illness that set off a bad reaction at first and I just never got better. I do have to say after reading a few of these forums Im terrified about what awaits me in my 30's and 40's. Ive read so many horror stories about pain and complications I have to say Im in a little bit of a panic. I dont know if I can take anymore daily pain. I have endometriosis and pcos (poly cystic ovarian syndrome) and Im already in pain that some days is just too much to take. On top of that dealing with years of depression and anxiety (that I pray are not caused by celiac because that would mean Ive have celiac since I was 13). I have to wonder how much damage has been done and if theres a way I can avoid suffering that much more. Sorry this was long and a little hard o follow Im sure but I feel Ive received no information or support from my doctors and I dont know where else to turn.
  8. Here is my morning: My roommate toasts a bagel (which is now a gluten free bagel, but in a toaster that hasn't always been) , I twinge a little at the smell but am fine. Two hours later, I notice my skincrawling/arthritic sensations that I get in my arms, 30 minutes later I am annoyed that my bag is too heavy and that my cell phone is not charged- bam! trigger: I smash my bag on the ground, and begin The Weeping. Big giant weeping, like a woman who has just found out that her only son has been killed. 5 minutes later- I am complete, I clean up the mess I made, and head to work, perfectly fine. It ALWAYS happens like this: smell of bakery/toaster oven/conversing with someone eating a bagel, then 2-3 hours later I get the creepycrawlies in my arms and/or the really intense weeping fit with no reason. IF I have the chance to weep fully (it's actually helpful to have a trigger event), it clears in a few minutes and I am suddenly even free of the brain fog I hadn't even noticed before. if I don't weep fully, and IF I can hold it back (like when I have to work) I will wrestle with it uncomfortably for hours until I do. But I Don't Always smash my bag on the ground....that's why I am writing today....I've gotten mad, physically a few times, but not often- But It's happened twice in the last few weeks. I'm also travelling soon...I am going to be exposed to lots of things....I won't have the safety of roommates and co-workers who have gotten used to my "episodes". A nurse in the past suggested benadryl because of its mild muscle relaxants, and I am so grateful! It helps with the arm stuff. (I have to type and all that at work so it has made my job in less jeopardy and reduced the added stress of my hand shaking when I give someone's card back, that's already enough to make one want to cry), But it doesn't prevent the weeping.....anyone have any emergency tips? My history: Depression for a very long time, discovered going gluten free about 5 years ago, it helped pull me back from chronic depression and suicidal thoughts. Went through SIBO diet, and got even better, been strict at gluten free for last two years. Ever since the SIBO diet, my gut issues are fairly negligible ( I used to experience extreme bloating) My gluten sensitivity manifests itself through emotion and the creepy crawlies only (which includes a sensitivity to touch, I can sometimes know that I have been glutened even before the emotions set in, by observing my reactions to my partners touch). In the last year I have been noticing this smell phenomenon, that seems distinct, and because of it's intensity and brevity, really noticeable. I can't sit in coffee shops anymore, I avoid group gatherings because someone might have just eaten a bagel, I can't go into the grocery store because of the bakery, ----I will start to get emotionally jagged, arms hurting, until Bam! the weeping kicks in. I don't know if I am getting more sensitive to gluten, or if it's just more noticable because I am no longer in constant mood disfunction. Does anyone have any tips for people with largely neurological symptoms? Does anyone have any tips for what to take if I smell that smell?
  9. So, where to begin... I was officially diagnosed with Celiac Disease about 2.5 years ago and have been trying to fully heal since then. I knew prior that I had celiac disease but didn't know how serious being gluten free needed to be if you have it. My intestines got so damaged that I had no energy (needed about 12 hours of sleep a day when I normally would sleep 8) and could barely function. I ended up having to quit my job because of how much time I had missed (had used all FMLA, vacation, etc) and spent about 5-6 months recovering till I had enough energy to work a 32 hour/week job but even then was calling out because of gluten exposure. The biggest problem for me has been Rx medication. Food has been hardly an issue at all, at least in comparison. I currently take 2 types of prescriptions and have had problems with both over the past 2.5 years; Hypothyroid medication (T3/T4) & SSRI for depression/energy. I used to go between Paxil and Cymbalta. I would be on one for about 9 months, switch to the other, and repeat (because of the immune system's "short term memory"). I've had a lot of trouble with generic brands and more recently have been using only name brands because they are the only ones now that are listed as Gluten Free on glutenfreedrugs.com, but, now I seem to be having problems with them as well. My doctor has told me that I'm very sensitive to gluten (I think she said I've ranged from an 8-12?). I'm not sure what scale she was referring to, but I know I'm very sensitive based on how my body's reacted to the smallest amount of gluten. When I ingest gluten, my body seems to react by my gallbladder producing a lot more bile (this is most noticeable about 8 hours after I consume gluten), which causes me to have severe diarrhea for about a week (it's basically all liquid). I take my Rx medications everyday, so it's non-stop diarrhea, which makes it hard to stay hydrated. The more water I drink, the more I just end up ****ing it out. I've been taking Benadryl at night because I heard it can help with upset stomach for people with celiac disease. Before I started taking the Benadryl at night I was waking up after about 6 hours of sleeping with extreme stomach pain (too much bile in my stomach?) and having to rush to the bathroom, and would be in there for about an hour. I'm very in tune to knowing when I'm getting gluten exposure for 2 reasons: 1) the slightest amount will cause my stool to get softer and I can smell a difference when I go to the bathroom (my guess is it's from the bile, which has a strong odor), and 2) the amount of long acting insulin required for me per day is less depending on how damaged my small intestines are (I have type 1 Diabetes). I started taking Cymbalta 60 mg about 2 weeks ago and notice severe gluten exposure. I was on it for about 5 days and stopped taking it for a day to see if the symptoms lessened and I couldn't see a difference from only a day. I tried to stop taking it for 2 days but the withdrawl symptoms were too severe (intense sadness/hopelessness, strong suicidal thoughts, etc) and I don't even remember if the gluten exposure symptoms lessened because I could barely function mentally. I'm pretty sure that's where the gluten is coming from because it was the biggest change at the time. I had actually switched from a generic Cymbalta (duloxetine by Mylan) slightly early from my 9 month usual switch because I was having gluten symptoms (at the time, glutenfreedrugs.com listed it on their list but soon changed it to "now questionable"). I'm currently trying Zoloft (been on it for about 3 days now) and the gluten symptoms seem to be slightly less but I won't know for at least another few days. Plus, I don't know if it's actually going to work for me (depression wise). I was going between Paxil & Cymbalta for about 15 years and they were working for me very well (as far as depression) up until recently (because of gluten). I know I've tried Celexa, Lexipro, & Wellbutrin in the past and cannot take them because they either make things worse or the negative side effects outweigh the benefits. I may have tried another type or two of SSRI but it's been so long that I can't remember for sure. I'm making this post to try and get some advice, or even just words of encouragement, on any generic Rx versions of Cymbalta (and Paxil as well, but I won't be taking it for a while so it's less relevant at this point) that people have recently had success with. I've searched online & this site but haven't been able to find anything recent about these medications (most of the posts I've found are from many years ago). I'm scared. Scared of all the times I want to kill myself in any given day because of not taking an SSRI to try and reduce the gluten exposure. Scared that things will get as bad as they've gotten before and I will have to quit my job again. Scared to cry because I'll become even more dehydrated and may not be able to keep fluid in me because of my body is currently not being able to absorb water the way I need it to. The past 3 years have been really tough and I don't really know where to turn at this point. Sorry if this post isn't the most organised. I'm currently an emotional wreck while typing this and at least trying to get out all the important info. Here is a list of new things I've been eating in case someone reads this and sees something they've had problems with that might (also?) be causing gluten issues: Schär Gluten Free Artisan Baker Multigrain Bread (to try and soak up some of the bile, but with constant gluten exposure this doesn't help much) Ensure Original Nutrition Shake (says Gluten Free on it) Pedialyte Advanced Care+ Benadryl
  10. Hi all! New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?
  11. Before I get into the neurological symptoms, let me give you a synopsis of my background and family history. Both my parents smoke and my dad was always a heavy drinker. My mom had GERD / Acid Reflux pretty much her whole life and it should be noted that she's basically 100% Norwegian (I've read that Northern Europeans have GERD and gastrointestinal issues more than anyone else - same with the Irish). My mom was also recently tested positive for Celiac Disease (our diets growing up was filled with wheat products, so connecting the dots here, I think she was being bombarded with gluten and her body couldn't handle it). She would have severe mood swings, especially towards my dad (who is now passed on). Her acid reflux got so bad that she went in for an endoscopy and they told her that she had Barrett's Esophagus. She's still alive to this day though and seems to be holding up reasonably well. My sister also has severe acid reflux and panic attacks. Now to get to my own history. I was born in 1983. As a baby, I had severe eczema, and would rub certain areas of my body (such as my wrists) raw on the carpet, because I was constantly itchy. I would also constantly spit up breast-milk and even the baby formula. My parents had a hard time figuring out what to feed me! We would also drink tons of cow's milk. That finally hit a brick wall around age 25 (in 2008), when I started noticing that if I drank straight cow's milk I would end up with (and still do end up with if I drink it) sulfur burps which taste and smell like rotten eggs. I even tried drinking raw cow's milk one time and the result was the same, I was burping rotten egg smelling burps and would get diarrhea! This is also around the time when I noticed my acid reflux getting worse and worse. In 2009, I started lifting weights again after taking a long break from high school. When I would do any squatting motion exercises such as dead-lifts or squats, I'd almost pass out because I couldn't catch my breath afterwards. I finally went in for an endoscopy and they told me that my esophagus was raw and red. I also should note that I've read getting anesthesia and all the drugs they give you during that time, can cause long-term psychological issues, especially anxiety, which I never really had until after that year. I realized that I couldn't do those squatting exercises or anything that put pressure on the abdomen area, since it would push acid back up into my esophagus. I decided to start lifting weights on an empty stomach and that did work for awhile but I couldn't figure out why my acid reflux was still so bad. Acid shooting back up into the esophagus, is caused by inflammation. This affects the Vagus Nerve (which is the longest cranial nerve). Some of the main functions of the Vagus Nerve include, 1. Breathing 2. Speech 3. Sweating 4. Helping in keeping the larynx open during breathing 5. Monitoring and regulating the heartbeat 6. Informing the brain of the food that is ingested and food that has been digested 7. The Vagus Nerve performs the major function of emptying the gastric region of food Any damage to the vagus nerve causes Gastroparesis which is losing the muscular function in the stomach and intestines. This results in food being emptied slowly, that leads to other problems such as fermentation of food in the stomach and food getting compressed into hard pellets which can cause severe problems if the pellets get stuck in the intestine. Especially in people with diabetes, when sugar levels get high and are not well controlled, it can result in the vagus nerve damage. This can result in anxiety / panic attacks, OCD (Obsessive Compulsive Disorder), trouble swallowing, chills, asthma-like symptoms, heart palpitations, tingling / numbness in extremities and limbs, blood in the stool, hard of breathing, anxiety attack-like symptoms, canker sores, nightmares (including hypnogogic and hypnopompic auditory / visual hallucinations, such as hearing a gun shot upon waking up, even though no gun was fired), dry mouth, heart attack-like symptoms, and more (I had all these symptoms too btw). I believe that since our bodies are intolerant to wheat and dairy products, it is causing inflammation in the body, which then causes all these other symptoms. So at that point, I began having hallucinations (including hypnopompic and hypnagogic hallucinations). They were mainly auditory hallucinations and some (but fewer) visual hallucinations. They started around 2013, when I got sick with the flu and also had an in-grown toenail (I had to get it cut out by the doctor and it was the worst pain of my life!). I was extremely religious back then (I left my faith last year at end of 2015) and felt like these were omens or signs for some of the things that were deemed ‘sinful’. I then had a breakup with a gluten-free who lived in Montana and the auditory hallucinations continued. I’ve been having them again starting in 2016 after getting sick with a chest respiratory infection (I’m seeing a trend here with getting sick and having these), which I believe were caused by the Autumn Rhinitis / Hay Fever Allergies. I was at the gym around the start of August 2016, and I felt like I couldn’t catch my breath after each set of lifting. I went home and haven’t been back to the gym since. I was having trouble breathing just walking up a flight of stairs, and it was a daily nightmare until I started looking into ways to help solve my issues (which I’ll get into in a minute). I also don’t have a great sleep schedule from working late night shifts, so I’m typically always sleep deprived. I should also mention that I think I have formed P.T.S.D. (PTSD - Post Traumatic Stress Disorder) from watching a music video where it showed a death. The image of the woman dying kept playing in my head (this also happened around August 2016). Then on top of all that, I was lifting weights 2 times a week (full body workouts), doing H.I.I.T. (High Intensity Interval Training) a couple times a week in the morning, AND working night shifts. On top of all that, my dad died last year (October 3, 2015) and within a week afterwards around October 10th, I ended up with appendicitis so I had to get the appendectomy surgery to get my appendix removed. A few weeks later, I walked away from my faith (not due to emotional reasons, but due to extensive research, which was already in the process starting at the beginning of 2015). So I lost my dad, my faith and my appendix within a month's time period. It put a lot of stress on me I think. I’m 33 years old, so still somewhat young, but I think I was pushing my body to the limit, and it’s been affecting my brain chemistry. Not only that, but recently, I put the other dots to the puzzle and found out that I also have gluten intolerance / Celiac / Coeliac, so I’ve stopped eating gluten (and dairy) products. I also have done a few sessions of AAT (Advanced Allergy Therapy), by a doctor named Dr. Jill Cohn in the San Francisco / Berkeley / Oakland Bay Area. You don’t even have to be there in person for her to treat you, she does it all online through a conference call on a site similar to Skype. You can watch testimonials on YouTube as well, and I’m here to tell you that her system did cure me of Ragweed allergies. I now understand that because I was pushing my body to the limit as well as trying to stay 500 calories below maintenance (to cut fat and get shredded), that my body wasn’t getting the proper nutrients and vitamins due to eating wheat and gluten (as well as dairy). This damages the alveoli and villi in the intestinal tract which are crucial for absorbing the nutrients from your food. I also found out that my body reacts poorly to chocolate as well. Chocolate is a 'stimulant' and has been proven to affect the brain the same way that cannabis / marijuana will. This could be some of the problems you all are facing as well. At that point, your body is so run down, that it will start attacking ‘harmless’ invaders, such as ragweed pollen, pet dander or even just simple dust particles, which this process of your body in attack mode, will cause inflammation, hence the reason I was having trouble breathing (my body developed exercise-induced / allergy-induced asthma). Not only that, but when your body is so run down and not getting the proper nutrition, it can cause psychosis and schizophrenic symptoms as well! I started taking a ton of supplements and they’ve helped tremendously. Here are a few to get you started. Try these and eat a balanced diet for a couple months. I’ll bet you start to feel better and the hallucinations diminish. 1. Vitamin D3 (Jarrow Brand 5,000IU – take two to four per day) – This is especially necessary if you live above the 37 degree parallel (latitude) in the Fall and Winter (typically from September to March). The sun only produces Vitamin D3 in our body when it is 50 degrees (altitude not temperature) above the horizon and even during the Spring and Summer, this only occurs from around 10AM in the morning to 2-3PM in the afternoon. So you have only a 4 to 5 hour window in the morning to afternoon when the sun is producing Vitamin D3, which most people aren't really out during those times, because of work schedule. This is why around 75 to 80% of the world population are D3 deficient! A good source of information on this is Dr. John Cannell. Go research how vital and important D3 is for us! You want your ng/ml (nano-grams per milliliter of blood) to be from 50 to 100 (or even slightly over 100 is fine too!). 2. Magnesium (CALM BRAND) – Magnesium is the driver for Vitamin D3. It’s very important and we don’t get enough of it in our diet on average. 3. Vitamin C (take around 2,000mg per day) – Look up Dr. Thomas Levy and Dr. Linus Pauling for good information on this. The Liposomal type of Vitamin C is the best kind! 4. Vitamin K2 (different from Vitamin K1 – Get the Jarrow Brand called Vitamin K-Right) – Millions of people take calcium supplements to maintain healthy bones. Yet few patients or physicians realize that optimizing bone integrity involves more than taking a single mineral supplement. A critical additional component for bone and cardiovascular health is vitamin K2. Recent research has revealed that, without vitamin K2, calcium regulation is disrupted. In fact, low levels of vitamin K2 are associated with an increased risk of heart disease and atherosclerosis. K2 is the gateway that allows calcium to get to your bones. When you take vitamin D3, your body creates more of these vitamin K2-dependent proteins, the proteins that will move the calcium around. They have a lot of potential health benefits. But until the K2 comes in to activate those proteins, those benefits aren't realized. So, really, if you're taking vitamin D, you're creating an increased demand for K2. And vitamin D and K2 work together to strengthen your bones and improve your heart health.For so long, we've been told to take calcium for osteoporosis... and vitamin D3, which we know is helpful. But then, more studies are coming out showing that increased calcium intake is causing more heart attacks and strokes. That created a lot of confusion around whether calcium is safe or not. But that's the wrong question to be asking, because we'll never properly understand the health benefits of calcium or vitamin D3, unless we take into consideration K2. That's what keeps the calcium in its right place. 5. Coenzyme Q10 (CoQ10) Ubiquinol – it’s a substance similar to a vitamin. It is found in every cell of the body. Your body makes CoQ10, and your cells use it to produce energy your body needs for cell growth and maintenance. It also functions as an antioxidant, which protects the body from damage caused by harmful molecules. (Get the Jarrow Brand – no I don’t work for them, but I’ve heard they are the best in all of these, and it’s what I take). 6. Vitamin B-Right (Jarrow) which has all of the B vitamins in it. Niacin (B3) has proven to be very helpful for those with Schizophrenia and Psychosis. Look up Dr. Abram Hoffer and his research on mental illness and Niacin. Careful with Niacin in huge quantities, as it will cause a 'flushing' effect, but you still want enough to get the benefits. 7. Oxylent (which is one of the best tasting and best multi-vitamins out there in my opinion). It’s got most of all you need in there when included with what I mentioned above. (Those are the main ones above, but here are a few other supplements I take. ChlorOxygen, Serrapeptase {SerraGold Brand}, mushroom supplement called 'Breathe' by New Chapter Life-shield, HealthForce Green Alchemy Protein Powder, HealthForce Vitamineral Green, Probiotics, MSM, Bragg's Apple Cider Vinegar, local honey, and avocados for potassium, along with getting at least a half gallon of water per day - which I drink at least 32 oz. to 50 oz. of water on an empty stomach every morning). Within a month of taking all this (I started on November 2nd, 2016), I’m now feeling about 95% back to my normal self. The other 5% is caused by my poor sleeping habits, as well as stress. I now realize that these psychological issues were all subconscious from the heavy religious indoctrination. If I had never been introduced to these religious ideas, I’m sure I’d not have these particular religious themed hypnopompic and hypnagogic hallucinations. When it first started, I was seeing visuals such as numbers and objects floating in the air upon waking up, which, they’d disappear within a few seconds. I also hear voices, which would say terrible things, and then the voices would continue in my head as if it were having dialogue with me in my own mind. I would feel like God hated me, due to the content of what was being said. I’m pretty sure I have some sort of religious trauma after leaving my faith and also, after my dad dying within the last year (2015). They actually have a name for this type of PTSD and it’s RTS (Religious Trauma Syndrome). You can find some good material through Dr. Marlene Winell online if you suffer from the religious form of PTSD (Post Traumatic Stress Disorder). Anyways, I hope all of this helps someone else who may be going through similar! Just know you’re not alone and it’s more than likely happening because of nutrient deficiency and/or a traumatic experience you suffered as well as your diet if you are gluten intolerant / lactose intolerant. These aren’t devils, demons, hobgoblins or ghouls harassing you, this is all natural phenomena and it can be treated with the right diet, the right supplements and proper sleep! I am still getting cross-contaminated (or there is a cross-reactor food that mimics gluten and/or dairy) somewhere in my diet, so my psychological issues persist, including waking up feeling like something is trying to talk to me in my mind. I am trying to figure that out now. But they also have supplements you can take that will break down gluten if you are accidentally 'glutened.' Here is a study I found from WW2, that correlates to mental disease and gluten / wheat below. "One of the first hints that these circumstances could have implications for the psychological sciences was the observation that, in several countries, hospitalization rates for schizophrenia during World War II dropped in direct proportion to wheat shortages. In the United States, where over that same period the consumption of wheat rose rather than diminished, such rates increased instead (Dohan, 1966a,b). In South Pacific islands with a traditionally low consumption of wheat, schizophrenia was only found in 1 person out of 30,000. When Western grain products were introduced into their society, it dramatically rose to 1 person out of 100! (Dohan et al., 1984)."
  12. Story starts when I was young, feel great. kindergarten, first, second, but slowly getting more and more fatigued every year. Top student, interested in everything, never sleepy. Always stayed up during nap time and past bedtime, and never had to study because I would pay so close attention in class. Genuinely excited most of the time, but then come the later years. Past second grade, everything felt slow, but fast at the same time - every day would go by and I would not be able to express much of an opinion about it. I slept through MOST of every single day, especially in school. I told my mom I felt like I had a brain tumor repeatedly, year after year, something was always draining my energy and productivity. Constantly distracted. I cared less and less about everything, every year a little bit more, and a bit more, more still until... I barely invited friends over, went to movies, left the house, etc. Too much trouble, WAY too much effort when I could just sit in a chair all the time and look at a screen without much work involved. Sounds like depression? Well, maybe. Problem is, it never stopped. I had some emotional events in my childhood, everyone does, but honestly I recognized and dealt with them very fast. I am a very positive person, and I always find both sides of a problem to look at because I know not everything is just bad or good for me, I have great parents to teach me how to deal with emotional stuff, and I'm a resident assistant at my current college I attend (junior year), so I help other students deal with these issues as well. Considering that, still, I have the SYMPTOMS of depression - anxiety, fatigue, sleeping all day, trouble waking up, apathy, EXTREME MIND FOGGINESS, etc. Doesn't check out to me. I tell a nurse practitioner about these issues that I feel like I have absolutely no reason to have, and she prescribes me Lexapro, just to try it. Well, haven't tried it yet. That stuff is pretty terrifying, as it can lead to even worsened depression and suicide in young adults, as well as ED and lowered sex drive, (which I really do NOT desire, especially considering I have a romantic interest right now) so I have held it off. My mother has mentioned she has really intense joint pain and she thinks she might have Celiac disease because the doctors cannot figure out what's wrong with her in any other aspect. I look it up, and there it is. Absolutely everything that is and has been wrong with me that I can't explain. Everything. When I was younger, I would have ridiculously painful, gut demolishing hour-long pains in the middle of the night - this went on for years. I and others couldn't explain them, they just told me to stop eating so much cheese. So, that night, we have a gluten free dinner. I wake up feeling like seventy-trillion bucks. Not a million - at least seventy-trillion. I haven't felt this good since kindergarten. I only had four hours of sleep as well, usually I require at least seven. I immediately get up, shower, eat a gluten free sushi lunch, (I was at the dentist getting a cleaning) get coffee, and then come back home. I have a project to do over winter break, and I had been kind of procrastinating on it as I always do, but not that night. Noooo sir, I hopped on the computer and within two or three hours of straight working (which I NEVER do), I got everything done I needed to. Usually that work would have taken me at least 6 hours, but man I was having FUN while working! Not a care in the world, just enjoying my process... that's weird for me. I don't usually do that. I don't usually enjoy doing anything work-wise. In fact, I never realized it, but I always had extreme anxiety while working. I didn't have any of that then, not a trace. I continue with my evening, and things only improve. I feel like I'm on cocaine, or at least what I'd imagine it to feel like. Seriously, I couldn't stop having fun! I didn't sleep that night, either. Not because I couldn't, I just really, really wanted to have more fun. I hadn't been that productive in... ever. I was so productive that I was genuinely scared of what kind of person I had become. Well, here I am today and after a few days of gluten free and also having tonsillitis (have had it for weeks, medicated), I'm starting to feel sluggish and foggy again. I have been eating out a lot, so perhaps cross contamination is affecting me getting my gluten-free meals, or maybe it's the tonsillitis, or perhaps I completely imagined the effect of eating gluten-free and I'm just bulls$#&ting myself. TL;DR: Ate a gluten free meal for the first time, all depression, anxiety, and fatigue went away the next day, but slowly going back to a sluggish apathy ridden me after a few days. Have no idea what's wrong, am I just fooling myself into having a gluten sensitivity? Either way, I'm going to contact my doctor tomorrow, hopefully she is familiar with it and can help me work through this without just prescribing me more antidepressants. Just really curious as to anyone else's experiences and if someone can identify with me in the feeling of having some sort of tumorous drain physically and emotionally at all times of my life? I didn't even know things could be this good, but now that I do I really don't want to go back to the old, horrible me. Sorry if it's too long, thanks in advance!
  13. Hey everyone!! Dealt with morning anxiety, complete lack of appetite in the AM/diarrhea if I tried to eat, fatigue, etc. for about two months. Saw doctor and they first prescribed me antidepressants while they ran bloodwork. Got bloodwork yesterday, positive result for celiac, going to get the endoscopy/biopsy soon. Anyone else have morning anxiety like CRAZY before cutting out gluten? Afraid to leave the house because of feeling faint, dizzy, etc., like I'm going to pass out. I haven't actually passed out, but the feelings are all there. It's hard to overcome the anxiety some time! Hoping someone else has had similar symptoms and that I can look forward to this being over soon!! Thanks everyone xoxo
  14. Celiac.com 06/23/2016 - Digestive Disease Week 2016 took place in San Diego from May 21-24. Among the presentations given was one that stood out for its obvious health impacts. That presentation was given by Jonathan Cordova, DO, pediatric gastroenterologist at the University of Chicago Medical Center. His presentation tied celiac disease to major depressive disorder in adolescents, and stated that most adolescents with celiac disease have symptoms consistent with the disorder. Dr. Cordova said that "...interim analysis does suggest that a majority of adolescents living with celiac disease may have symptoms consistent with major depressive disorder," and that the depression has a negative impact on their quality of life, "but does not appear to be associated with their celiac disease state." That is, the depression does not seem to be impacted by how well their celiac disease is doing. Healthy gut and gluten-free diet, or unhealthy gut, with symptoms, it doesn't seem to matter. The depression levels seem about the same whatever the case. A number of recent studies indicate that depression and anxiety are the main reasons people with celiac disease report decreased quality of life, Dr. Cordova and his colleagues wrote. But, most of these studies were done on adults, almost none used adolescents, and adolescents may be more susceptible to depression. The research team was able to connect celiac disease with mental health disorders in adolescents by administering questionnaires to adolescents and their parents. Average age of adolescents was 14.6 years at the time of survey and 11.2 years at the time of diagnosis. The researchers found no correlation between celiac disease and depression, anxiety, ADHD, age at survey, quality of life, age at diagnosis or length of time on a gluten free diet. However, the majority of adolescents and parental reports screened positive for major depressive disorder. Interestingly, a parent's perception of the state of their child's celiac disease impacted their perception of depression in their child. Dr. Cordova says that "the data suggests that early screening for depression in any adolescent with celiac disease is crucial to help optimize behavioral health," Dr. Cordova's team plans to follow these patients into young adulthood, and aims to re-screen them again in 5 years. Reference: Cordova J, et al. Abstract #844. Presented at: Digestive Disease Week; May 21-24, 2016; San Diego
  15. Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are: I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active): Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes) Chronic constipation and bloating Acne HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
  16. I am a 27 year old male that has not been officially diagnosed as a Celiac, but after going to countless doctors for 2 years to no avail, going gluten free / casein free cleared up almost all of my symptoms that I have been plagued with since I was a child. When I eat gluten I get a lot of typical gastro symptoms for the first couple days. Bloating, gas, burping, cramps, but the part that is really tearing me down are the psychological effects. The number one way I know I have been glutened besides immediate bloating/burping is that I will have nightmares the night that I eat it. Nightmares so vivid that I am afraid to close my eyes because I will wake up within an hour drenched in sweat, and the process will repeat itself for remainder of the night. For the rest of the week, I am in a constant state of paranoia. I have anxiety, brain fog, negative thought patterns, anger easily and an extreme trouble focusing. It's as if I am taken over by my negative thoughts no matter how hard I try to stay positive or what I do to distract myself. After the first week I start to have periods where my brain chemistry returns to normal followed by periods of brain fog. At around 2 weeks, almost to the day, my symptoms completely go away. Having said that, I have some how managed to consume gluten at some point during the 2 week recovery since December 24th, 2015. 5 times in total. Restaurants where I used to have safe menu choices now seem to be causing full blown reactions. I understand that it is normal to become more and more sensitive the longer you are gluten free, but it has gotten to the point where I feel if I don't make 100% of my meals at home I am running a serious risk of 2 weeks of mental anguish. Mentally, I am at my wits end. Within the past month I have made all of my meals at home except for 2. Once I ate white rice with no other ingredients at a friends house (and got glutened from CC) and last night I handled a pets gluten containing food AND washed my hands (perhaps not as thorough as I should have) and then had a reaction to a gluten-free bread that I eat almost everyday with no problem. I met a girl in October that I felt something for that I had never felt for anyone in years and I have slowly watched as the relationship crumbled by not being able to be myself at any point in time over the past 2 months. It's getting to the point that I am forgetting who I am as a person (not literally, but how I used to behave), having been totally consumed by negativity for 2 months. Having the pressure to be "normal" at work and in my relationship has left me depressed, as I feel helpless to make any of these situations better, until I can recover from this. I realize that I have to take even more control over the CC and change the pets diet to a completely gluten-free source, but I am wondering if anyone has ANY coping techniques/suggestions/medications/supplements to help deal with the almost "psychosis" that affects me after I eat it. I am a single male, and thus have a very self reliant lifestyle that requires me to be on my A game as much as possible. Even if there are no suggestions, just reaching out to a community that truly understands how debilitating this can be is comforting. Thank you all.
  17. I had been having some issues with a bad tooth and the dentist gave me a prescription for Amoxicillin. Seems like every day this week I have felt glutened in some way. Have pretty much finished the antibiotic but was wondering if anyone else has had the same reaction after taking an antibiotic. My stomach feels like it is in knots, I don't have an appetite, I don't think I have come in contact with gluten as I try to be extra careful. It is almost like my anxiety level is at a 10 and I can't focus like I could just over a week ago. Anyone have any suggestions?
  18. Celiac.com 01/09/2012 - Women with celiac disease face a higher risk for depression than the general population, even once they have adopted a gluten-free diet, according to U.S. researchers. A team of researchers recently used a Web-mediated survey to assess a range of physical, behavioral and emotional experiences in 177 U.S. adult women, who reported a physician-provided diagnosis of celiac disease. The team was led by Josh Smyth, professor of biobehavioral health and medicine at Pennsylvania State University, and included members from Syracuse University and Drexel University. The survey gathered information about how closely people follow a gluten-free diet and assessed various symptoms of celiac disease from physical symptoms to the respondents' experience and management of stressful situations, along with charting symptoms of clinical depression and frequency of thoughts and behaviors associated with eating and body image. Perhaps unsurprisingly, many women with celiac disease suffer from disordered eating, given that the management of celiac disease requires careful attention to diet and food, Smyth said. "What we don't know is what leads to what and under what circumstances," Smyth said. "It's likely that the disease, stress, weight, shape and eating issues, and depression are interconnected." The findings are forthcoming in the journal of Chronic Illness. Source: http://www.upi.com/Health_News/2011/12/28/Celiac-ups-depression-risk-for-women/UPI-75401325131984/#ixzz1iQynze9k.
  19. Hi all, Last week I underwent extensive blood, urine, and skin testing for psychiatric purposes. I had previously been diagnosed by a psychologist with depression (dysthymia), generalized anxiety disorder, and ADHD inattentive type. When I saw a psychiatrist, he suggested that my illness may be due to food reaction. Today I got back my test results, some of which pertain to gluten intolerance. Gliadin (deamidated) IGA: 7 units <20 antibody not detected Gliadin (deamidated) IGG: 3 units <20 antibody not detected Transglutaminase IGG: 3 U/ml <6 no antibody detected Transglutaminase IGG: 1 U/ml <4 no antibody detected (To me it seems if the antibody is not detected, then gluten intolerance/sensitivity shouldn't necessarily be the issue. Am I correct, or do I have it the other way around?) I was also administered injections of diluted (not concentrated, not sure if that matters) gluten and wheat that produced no symptoms or immediate reaction, but gave a very mild delayed reaction after 24 hours. Milk and corn, by contrast, produced more noticeable reactions. Still, the psychiatrist recommended immediately cutting all gluten out of my diet (along with dairy and corn, among some other dietary changes). I plan on taking his suggestion, but I have never had any of the common symptoms of gluten intolerance/sensitivity in the past to my knowledge. I am 22 years old. Not asking for medical advice but possibly some anecdotal comparisons: do my gliadin and transglutaminase results seem to significantly suggest gluten intolerance/sensitivity? Other posters in this forum have used more stringent reference ranges, but even then, my results seem low. Even though this diagnosis is coming from a medical professional with much greater expertise on the matter than I have, it seems to rely on a reading of my results as >0 automatically equating to gluten intolerance/sensitivity. I study statistics, so I'm skeptical of using rejection ranges that liberally. Curious what you all think. Thanks, Matt
  20. Hey Everyone, I'm 23 and was diagnosed in October, have been gluten-free since March (because I never "got sick" my doctor told me to minimize gluten and not get rid of it until much much later in March). February of this last year I had anxiety attacks on a daily basis, couldn't go to work, etc. OBGYN switched my BC pill and also put me on Paxil. Paxil made me INSANE-it was like I was constantly having an anxiety attack inside my head, but there was no sound for my inner freak-out. And then once my GI Dr. told me to get rid of gluten entirely, my OBGYN took me off all meds, BC pills and Paxil. 2 months go by and I feel great! Even my period comes and I don't notice it coming since before my PMS was insane. I thought I had found the cure! Then i get diagnosed with mild herpes that my dr thinks wont ever come back, but it sends my anxiety through the roof, which then throws my body for a loop. Can't eat, can't sleep, etc. Finally go out with my friends, but eat out all weekend, come home sick for a few days which triggers my anxiety. Just spent the last week on a new BC pill and coincidentally (or not) got bad diarrhea all week, and spent today in the ER. Got a Cat scan, blood work, etc. no issues. I started seeing a new therapist in June who has helped, but now all my doctors really want me to be on antidepressants like Buspar or Librax to help cope with BOTH anxiety and my GI issues while I heal. Has anyone dealt with something like this? What did you do? Is it possible to take these meds for a few months while the body heals and then stop taking it? I really really want to try to avoid an SSRI since I had such a bad reaction to Paxil. I've heard GABA is a great vitamin for anxiety, and I've been taking it every day, do any of you take vitamins or natural supplements for this? How long did it take where both your body and mind were normal and linked? Was Also told to try acupuncture, anyone do that? Right now I'm overwhelmed by how many options I have in front of me, please let me know if any of this has helped or hurt you in your healing process. I don't know what normal is for my body anymore, some days I'm nauseous all day, other days I'm ravenous, some days my poop is normal, other days it's the big D. Everything that is different is scaring me right now, and unfortunately, EVERYTHING is different while I heal. Would appreciate all and any advice.
  21. IMPORTANT: I trust my doctor, I am willing to answer questions, but I want you all to know that where I am in the process of getting a diagnosis requires me to have an endoscopy- a positive blood test in my situation does NOT give me all of the information the doctors need. With that being said, here's my story... This past Friday was the end of my eight week gluten challenge, a blood test, and another day in the land of waiting around for a specific diagnosis. I am here to tell you that I am sick and tired of feeling sick and tired, but only one biopsy was taken at my endoscopy in the summer, so I get to repeat the process of another endoscopy on February 19th, 2015. However, there are a couple pieces of GOOD NEWS that I want to share with all of you. 1. I got my blood test results today and there is no question about it- I tested positive just like before. Why is this good news, might you ask? I was told that if the test wasn't positive "enough", I'd have to keep eating gluten until I returned to being positive so that I could have my endoscopy. Before, I had been five months gluten free, so the last eight weeks were awful physically, emotionally, mentally, and even socially. So I'm so happy to be headed towards an actual label of a diagnosis that I can DO something with to feel better. 2. I did NOT end up in the Emergency Room YAYYY . ( There were several panic attacks, many bouts of stomach pain/problems, and my depression/anxiety skyrocketed during the eight weeks, fatigue was over the top, and this will continue to be the way it is until after the endoscopy because I MUST eat gluten to get an accurate biopsy/sample, but I'm just SOOO happy to have made it this far! ) 3. I am my own advocate for my health. It was April of 2013 that things first went haywire, but I will not give in or give up until I feel better and get a diagnosis! Thank you for reading. Feel free to comment here or instant message me if you do not feel comfortable with posting to the public forum. I invite anyone and everyone to ask questions, partially because I enthusiastic about helping others in any way I can, but also because I need to pass the time until my endoscopy Good luck to everyone on their own individual journeys~ Val
  22. I knew it wasn't just my autism. I knew it wasn't just depression. I knew it wasn't just anxiety. I know my body. it's been just under two years of searching and waiting and testing... and finally, I have a diagnosis. After all that effort, yes, I do have celiac disease. *throws confetti* It's not all in my head!
  23. Celiac.com 07/13/2010 - More and more, researchers are showing connections between inflammatory diseases, like celiac disease, and complex disorders, such as anxiety and depression. There's also a good amount of anecdotal evidence to suggest that people with celiac disease have higher rates of anxiety and depression than the general population. A study of the German population is the first to show that female adults following a gluten-free diet for celiac disease show higher levels of anxiety than do members of the general population. The researchers are recommending that female celiacs on a gluten-free diet be screened for anxiety. The researchers included W. Häuser, K. H. Janke, B. Klump, M. Gregor, and A. Hinz of the Department of Internal Medicine I of the Klinikum Saarbrücken, Winterberg in Saarbrücken, Germany. The team set out to examine levels of depression and anxiety between adults with celiac disease following a gluten-free diet (GFD), and in control subjects drawn from the general population. For their study, the team used the Hospital Anxiety and Depression Scale to measure levels of anxiety, depression, and likely anxiety or depressive disorder, in 441 adult patients with celiac disease recruited by the German Celiac Society. They then conducted the same assessments on 235 comparable patients with inflammatory bowel disease (IBD), either in remission or with slight disease activity. They did the same for the cross-sample control group of 441 adults from the general population. The team used regression analysis to test possible demographic and disease-related predictors of anxiety and depression in celiac disease. Demographic predictors included age, sex, social class, and family status. Disease-related predictors included latency to diagnosis, duration of GFD, compliance with GFD, thyroid disease. The team found that female gender (P = 0.01) was the main predictor (R(2) = 0.07) of anxiety levels in patients with celiac disease. Female patients had a higher risk for a probable anxiety disorder (OR = 3.6, 95% CI: 1.3-9.4, P = 0.01) Patients who lived alone (OR = 0.5, 95% CI: 0.2-0.9, P = 0.05) enjoyed a lower risk of anxiety disorder. None of the demographic and medical variables for which the team screened predicted either depression levels or risk for a probable depressive disorders. Patients with celiac disease showed anxiety levels of 6.6 +/- 3.4, and those with IBD, anxiety levels of 6.9 +/- 3.7, both higher than the general population's level of 4.6 +/- 3.3 - (both P < 0.001). Depression levels were similar for people with celiac disease (4.2 +/- 3.4), IBD (4.6 +/- 3.4) and the general population (4.2 +/- 3.8) (P = 0.3). Rates of likely anxiety disorders in people with celiac disease were 16.8%, and 14.0% for IBD, both higher than the rates of 5.7% in the general population (P < 0.001). All three groups showed similar rates of probable depressive disorder (P = 0.1). Their results provide strong indications that adult women with celiac disease on a gluten-free diet suffer higher rates of anxiety than persons of the general population. They encourage clinicians to provide anxiety screens for adult women with celiac disease on a gluten-free diet. Source: World J Gastroenterol. 2010 Jun 14;16(22):2780-7. PMID 20533598
  24. Hi everyone. I'm a new poster here. I'm glad I found this place. I have not been officially diagnosed with a gluten intolerance. The last time I brought up testing with a doctor she informed me they don't do food testing, and it's highly unlikely I will find a place that will diagnose me with having an intolerance (?). So, I figured I know my body best, and I'll just eliminate wheat. I noticed about two years ago I was feeling dizzy, and nauseous. I had a headache all the time, and I couldn't concentrate. Pin that with sinus pain and pressure nonstop. I read about giving up wheat, so I tried. Fast forward to today, I decided last week it would be okay to have breaded food (Wednesday), 6 donuts (Wednesday-Friday) plus toast for breakfast on Sunday. As of today, I'm really feeling down in the dumps. It's been this way since about Tuesday. Zero motivation, brain fog, struggling to concentrate and stay motivated at work. The other night I was watching a TV show about people buying homes, and I seriously got emotional over this abandoned house that nobody seemed to care about anymore. I'm short tempered, and I get easily annoyed with my partner. As far as sleep goes, I can't. I wake up during the night, and usually use an OTC sleep aid to fall asleep. How long will it take for this to pass? I haven't had gluten since Sunday, I'm hoping I can feel normal soon again. I feel like I'm walking around in a fog, with zero direction and zero motivation. But, it's a double-edged sword, because when I feel that way emotionally, all I crave is bread/sweets. Any advice would be appreciated, just so I can feel like I'm not alone feeling this way. I am 100% committed to becoming more careful about my food choices. I cannot continue to live this way. Thanks so much. Lynn
  25. It seem my anxiety attack has brought on adrenal fatigue and progesterone drops. I lost a bunch of weight, having menopausal symptoms and feeling the same adrenal fatigue as before. Hands are dumb, dropping stuff, tingling in hands and feet, muscle weakness. I've got two kids to take care of and this is just not convenient. I'm wondering...with my stress issues...I've been seeing a counselor yes, I'm told to stay away from the stuff that's causing these attacks and that would be my relatives at the moment. I'm wondering...would pot help me with my anxiety and my autoimmune disorder? Maybe help calm my over reactive body down so I can gain some weight and sleep better? So far nothing of a gluten free diet for the last 9 yeas isn't saving my carcass.