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  1. Hey, I have had this rash on the fingers of my right hand for about a year now. When I first got it, it showed up a bit on my toes as well, but having it on my fingers is much more common. I've been to many doctors and no one could figure out what it is. I've done a lot of my own research and put myself on a million diets. With trial and error, a lot of error, I've come to the conclusion that a gluten free diet is the key! My rash subsided for a few months until I accidentally consumed something I shouldn't have. Anyway, 80% of the time I have it sort of under control but recently i used a lotion on my feet that contained wheat & oats. (Dummy me, I didn't even think of lotions) Now, my toes are so riddled with blisters that putting on socks & shoes is out of the question. I have never felt a painful itch of this extreme with my fingers and now I want to know once and for all, what's going on with me. So, is there anyone out there who knows of a good doctor that can officially diagnose me on or near Long Island? Any help or info is much appreciated!
  2. I apologize in advance for the long post. I am extremely frustrated with my doctors. A year ago, I saw 3 different doctors for extreme bloat, yellow diarrhea, stomach and back pain. (Also had migraines, chronic fatigue, red splotchy face and brain fog, but didn’t connect them). I told all 3 doctors that I had celiac in my immediate family. Did ANY of them take blood? NO! Of course not. They all said “stop eating gluten, you probably have a sensitivity “. Me, not knowing you have to be eating gluten to be tested dutifully did so. One a-hole doctor, looking at my extremely bloated stomach said “you’re fat and you carry your weight like a man, just lose weight”. Lots of tears after that appointment! (I was also subjected to thousands of dollars of needless tests for gallbladder etc. but no blood work). Almost a year later, I had one bite of licorice before I realized the first ingredient was wheat. I thought, “I just have a sensitivity, it probably won’t affect me much “. WRONG, I blew up like a balloon, had back and stomach pain and the lovely yellow diarrhea came back. My intestines felt like they were on fire. So I go back to the original doctor and tell him about this reaction. He says “oh, you definitely have celiac disease”. WHAT?!? “Let’s run an antibody test” he says. I tell him I haven’t had a molecule of gluten for a year except for that one bite and have recently learned the test will be negative if I’m not actively eating gluten. I have crappy insurance and I have to pay for the blood work out of pocket, so what’s the point? He says “you might have antibodies, so we’re gonna go ahead and run it”. WTF! You didn’t think to run the test a year ago when I was so bloated you were flicking my stomach like a watermelon saying “something is very wrong” so I could have an accurate diagnosis? So the doctor says I have it, but I know the test will be negative. So when people ask me if I have celiac I feel like a liar no matter what I say. Not to mention all the money wasted. I am so frustrated I could cry. And to add insult to injury, I took my husband out to eat today for his birthday and despite my best efforts got glutened. *sigh*.
  3. Hi all, I'm new to the forum so I'm really hoping someone will be able to help. I've been having digestive issues for the past 2 years and have lost nearly 4 stone in weight. All of my symptoms suggest celiac disease, I not only have digestive issues, bloating ect but my upper arms are covered in a rash, obviously the weight loss and then I'm also constantly anaemia and I now have low vitamin D levels along with depresssion, anxiety, constant headaches, tiredness, stomach pain ect. I know these symptoms could suggest a number of issues but I have noticed once I've stopped eating gluten products my symptoms seem to at least lessen. I've asked the doctor what he suggests and he does think it is likely but i'm struggling to be put forward for further testing. I'va had countless generic blood tests but obviously this isn't enough to diagnose if I have it or not. I'm honestly losing my mind with not only feeling so ill but also not knowing what exactly is wrong with me. Should I just try a gluten free diet and see if my symptoms continue to improve or what?
  4. Hello all, So, long story short, in 2011 I started getting really really sick, with no discernible cause. Violent vomiting daily, rapid weight gain (40 pounds in one month) unbelievable exhaustion, depression, social anxiety to the point of not being able to leave the house, hives, acne, rashes, brain fog, and my LEAST favorite, the all-over bruised body feeling you get when you have the flu (that horrible bone deep aching that makes it uncomfortable to move at all, and any clothing touching you hurts.) Oh, and monstrous swelling of my face and stomach. I wound up figuring out through elimination of certain things in my diet that what was doing it was gluten and dairy. So, over the years I've cut them out (at first, after I cut them out, I was still getting horrendously sick, just less often and it took me too long to realize CROSS CONTAMINATION WAS A THING) So fast forward to now, I'm able to function like a human again by being INCREDIBLY strict with my diet and making almost all of my food myself and NEVER taking any chances with anything that was "processed in the same facility with..." etc etc I've also recently started going back to school, which means I have to be EXTRA careful, or I won't be able to attend classes or study because my brain, and my body just don't function when I've been exposed. However, I've always been a do it yourself girl, so after having endoscopies and colonoscopies years ago, and having a doctor tell me I had "acid reflux" (way to diagnose the symptom, not the cause, ya jerk) and having no doctors know why I was getting so sick, and eventually figuring it out myself, I never was tested for Celiac's Disease. So obviously, I'm scarred for life, and terrified to death of gluten and I was wondering; does anyone know of some way that I could be tested for it WITHOUT exposing myself to it? Thank you so much in advance
  5. Hello everyone! My mom recommended this site and I already feel comforted and not insane anymore reading what you guys have said about your experiences... so let me introduce you to my hell. So I was diagnosed with a gluten allergy in 7th grade and completely ignored it... not even knowing what gluten was. For example, one year my friends got me a huge box with 48 packs of pop tarts inside and I ate every single one in about a month. Let's just say I'm a pig. I always took pride in myself for being able to eat like a monster and still be skinny and an amazing athlete. I was an excellent swimmer and always went to States and Nationals with my school team, mind you while not being on year round teams at all. I think it was 2 years ago, yes, April 22, 2016, the doctor told my mom and I and that I have Crohn's disease and that I need to go on drugs immediately. Of course I was in denial for the next 6 months and still am to some degree and kept eating gluten in sadness, fear and denial. I went on Imuran for about 3 1/2 months but of course, the lovely teen that I am I didn't take many of the pills. My mom and I "doctor shopped" a lot because she has always been into the natural route and I love and trust her fully so I listened to her. I had a colonoscopy done and didn't eat much of anything. I remember there was a period of maybe a month where all I could keep in was white rice with butter. It felt like candy I'm not kidding. Anyways, we bounced around from 4 different doctors till we finally found an integrative medicine doctor who was willing to help and was certain he could heal me. I was finally ready to accept Crohn's and do what I could to heal myself naturally. I'd seen too many documentaries on our current food (What the Health and Supersize Me for example) and read too much online about the effects of long term high class drugs--the biologics like Humira etc. and was scared that my little body would't be able to handle it so why not try the natural route. So my current doctor did blood work and collected stool--as most do, and it came back that I was severely allergic to 60 out of the main 61 types of gluten or whatever the number is...I was a rare case for him and very severe. I also presented allergies to rice, eggs, most meats--I can eat cooked chicken and pork , allergic to most vegetables and most fruits, and seafood--I can have raw and cooked salmon, cooked sea bass, trout and raw tuna. So now I am left with not many options and a million supplements to take. So I have some questions for anyone willing to help me... 1) Does anyone else have severe food allergies like me and can you make any suggestions for recipes? I take SeaCure--a fish protein supplement in between meals but I need some protein to eat! I love to eat and have already lost yet another pound because I am just not getting enough nutrients even though they are gluten free and safe foods. 2) How long till my hair will get thick and beautiful again?? I read that Imran affects hair and makes you lose it and thin it out...how long will it take to heal that?? 3) My skin, especially my hands crack really badly and the lines are white with rawness and dryness. Help me! I use Palmer's Coconut Oil Formula which is gluten-free and because I can have coconuts. Anyone have any other good recommendations for gluten-free lotions? My hands are painful! 4) Has anyone been so severe like me where you haven't been pregnant but have hemorrhoids on the outside of your butt?? Super weird and uncomfortable...Have they ever gone back in? Also, what should I do to relieve the burning sensation they give me? Or that area in general? 5) I am only 19 but long to have a family one day and lots of children. If I healed myself by the time I was let's say 26, do you think I could have kids?? 6) Speaking of kids, I haven't had my period in over two years. When should I expect that to come back? 7) Does anyone else crack their hands, neck, fingers, back, knees, or toes? I do and I'm wondering if that could be related to joint/skeletal discomfort.. 8) When will my irritability go away? I used to be the happiest person on earth and never cursed but now it seems like it's all I do. I hate feeling this way!! 9) Do you have any recommendations like meal prepping or anything to help me? I am in college and have no time to do anything already...Have any fast and easy meals to make that will last the weekdays? 10) I have talked your ears off so I am so thankful if any of you read this far. I appreciate any advice and am so thankful for this website!! I attached my the list of foods that I can and cannot eat if any of you can make recipe suggestions off of the green and yellow foods. Yellows can be tried once a week or every few days if I can tolerate them. Otherwise they go on the red list--which are no-no foods. Thank you so much!! List of Food.docx
  6. Celiac.com 10/20/2017 - Are doctors even getting close to diagnosing the actual number of cases of celiac disease? Or are they missing the vast majority? Researchers have said for some time that there are far more people with celiac disease than are being diagnosed, and that the vast majority of cases go undiagnosed. So, just how far are we from the actual number? Well, if a new study by Canadian nutrition researchers is any indication, doctors are very far from diagnosing most cases. The team studied the blood work of nearly 3,000 people, and their conclusions are stunning. They say that ninety percent of celiac cases go undiagnosed. How could this be? One reason is that even classic celiac disease symptom, such as abdominal pain, bloating, gas, diarrhea, anemia and weight loss can mimic other conditions. Less classic symptoms such as fatigue, low vitamin C, D and calcium levels can be misleading. Ahmed El-Sohemy, a professor of nutritional science at the University of Toronto, wanted to see whether celiac disease results in subpar nutrition because of poorer absorption of vitamins and minerals. But to find out, he needed Canadian data on the frequency of undiagnosed celiac disease. To that end, El-Sohemy and his colleagues checked blood samples from more than 2,800 individuals in Toronto. One group had an average age of 23, and the other 45. Among their findings is likely ~1%, with 87% of cases being undiagnosed. These findings suggest the need for better screening in high genetic risk groups. Source: BMJOPEN.com
  7. Celiac.com 10/17/2017 - Are primary care physicians under-testing for celiac disease in patients with iron deficiency anemia? A new survey of primary care doctors indicates that they are. It's fairly common for people with celiac disease to develop iron deficiency anemia (IDA), but researchers don't know much about the frequency with which primary care physicians test for celiac disease in patients with IDA. A team of researchers recently set out to describe how primary care doctors approach testing for celiac disease in asymptomatic patients with IDA. The research team included Marisa Spencer, Adrienne Lenhart, Jason Baker, Joseph Dickens, Arlene Weissman, Andrew J. Read, Seema Saini, and Sameer D. Saini. They are variously affiliated with the Department of Internal Medicine, University of Michigan, Ann Arbor, Michigan, United States of America; the Department of Internal Medicine, Henry Ford Health System, in Detroit, Michigan, United States of America; the Department of Statistics, University of Michigan, Ann Arbor, Michigan, United States of America; the Research Center at the American College of Physicians, in Philadelphia, Pennsylvania, United States of America; Department of Internal Medicine, University of Michigan, Ann Arbor, Michigan, United States of America, Ambulatory Care, Veterans Affairs Medical Center, Ann Arbor, Michigan, United States of America. For their study, the team began by electronically distributing a survey to primary care doctors who are members of the American College of Physicians. The survey asked whether doctors would test for celiac disease, either by serologic testing, referral for esophagogastroduodenoscopy [EGD], or referral to GI) in hypothetical patients with new IDA, including: (1) a young Caucasian man, (2) a premenopausal Caucasian woman, (3) an elderly Caucasian man, and (4) a young African American man. The team chose the scenarios to assess differences in testing for celiac disease based on age, gender, and race. They used multivariable logistic regression to identify independent predictors of testing. Testing for celiac disease varied significantly according to patient characteristics, with young Caucasian men being the most frequently tested (61% of respondents reporting they would perform serologic testing in this subgroup (p Interestingly 80% of doctors surveyed said they would definitely or probably start a patient with positive serologies for celiac disease on a gluten-free diet prior to confirmatory upper endoscopy, which is contrary to guideline recommendations. This survey indicates that primary care doctors are under-testing for celiac disease in patients with IDA, regardless of age, gender, race, or post-menopausal status. The majority of primary care doctors surveyed do not strictly adhere to established guidelines regarding a confirmatory duodenal biopsy in a patient with positive serology for celiac disease. Clearly, even with all of the advances in celiac disease awareness and with more refined protocols, primary care doctors have some work to do when it comes to testing IDA patients for celiac disease, and even more work to do in following proper referral guidelines before putting patients on a gluten-free diet. Source: PLOSONE
  8. Celiac.com 09/21/2017 - Current guidelines by the British Society of Gastroenterology recommend that doctors take at least four duodenal biopsy specimens at the time of upper gastrointestinal (UGI) endoscopy when looking for celiac disease. The practice has been shown to increase celiac diagnoses, and to reduced missed diagnoses. The Society recently sought to assess compliance with their own guidelines within their institution. They then sought to apply measures to improve their compliance rate, and to assess the resulting impact on our diagnostic rate for celiac disease. The research team included Nilofer Husnoo; Wafaa Ahmed; and Muhammad Hanif Shiwani. They are variously affiliated with the Urology Department, Sheffield Teaching Hospitals NHS Trust, Sheffield, UK, the Gastroenterology Department, Maidstone and Tunbridge Wells NHS Trust, Tunbridge Wells, UK, and the General Surgery Department, Barnsley General Hospital NHS Foundation Trust, Barnsley, UK. The team performed a retrospective audit of electronic records for patients with no prior celiac diagnosis, who underwent UGI endoscopy with duodenal biopsies between August 2014 and May 2015. They then used the information to raise awareness among endoscopy users at the Society, and conducted a follow-up audit between February and May 2016. They found and registered a total of 924 eligible patients for the first part of the study, and 278 for the second part. The proportion of patients who had ≥4 biopsy specimens submitted increased from 21.9% to 60.8% (p<0.001). The study by the BSG suggests that taking less than four duodenal biopsy specimens can result in missed celiac diagnoses. However, a few simple steps can help doctors avoid such missed diagnoses. Since atypical symptoms are more common in patients these days, and since the lifetime risk of malignancy, especially intestinal lymphoma and other gastrointestinal cancers, is higher in celiac patients, it's important that doctors conduct a thorough investigation when they suspect celiac disease to avoid missing the diagnosis. For the BSG, that means taking 4 or more biopsy samples. Source: BMJ Open Gastro. 2017;4(1):e000140
  9. Celiac.com 06/14/2017 - Some data have suggested a connection between celiac disease and eosinophilic oesophagitis (EoE)/oesophageal eosinophilia (EE). Any potential relationship has implications for treatment. Should the two conditions be treated together, or separately? To better understand any possible connection, and the implications for treatment, a team of researchers recently set out to characterize children with celiac disease+EE in-depth and assess the contribution of each condition to the clinical presentation and treatment response. The research team included Anne Ari, Sara Morgenstern, Gabriel Chodick, Manar Matar, Ari Silbermintz, Amit Assa, Yael Mozer-Glassberg, Firas Rinawi, Vered Nachmias-Friedler, Raanan Shamir, and Noam Zevit. They are variously affiliated with the Institute of Gastroenterology, Nutrition and Liver Diseases, Schneider Children’s Medical Center of Israel, Petach Tikvah, Israel, the Pediatrics Center at Schneider Children’s Medical Center of Israel, Petach Tikvah, Israel, the department of Pathology at Rabin Medical Center in Petach Tikvah, Israel, and the Sackler Faculty of Medicine at Tel Aviv University in Tel Aviv, Israel. The research team conducted a retrospective review of medical records of children with both celiac disease+EE, or isolated EoE diagnosed between 2000 and 2014. They then compared these records with those of patients with isolated celiac disease or epigastric pain. To calculate the frequency of EE, they used endoscopy results of patients with suspected celiac disease or epigastric pain between 2011 and 2014. They used a telephone questionnaire to gather missing data. At a single large, tertiary pediatric center, the team assessed 17 patients with celiac disease+EE, 46 with EoE, 302 with isolated celiac disease, and 247 with epigastric pain. The patients with celiac disease+EE shared characteristics of both individual conditions. While age at diagnosis, family history of autoimmunity/celiac disease and anaemia were similar to most celiac patients, other characteristics such as male gender, personal/family history of atopy, peripheral eosinophilia and oesophageal white papules more closely resembled those of patients with EoE. Most patients with celiac disease+EE tended to present with celiac-associated symptoms, and 63% went on to develop typical EoE symptoms. In celiac disease+EE patients, only 21% saw their EE resolve after a gluten-free diet; another 21% saw their EE normalize after proton pump inhibitor treatment. The rest required EoE-specific treatment. Patients with celiac disease found to have EE share characteristics similar to both isolated celiac disease and EoE. This study indicates that celiac patients with concurrent EE are actually suffering from two separate conditions, rather than celiac-associated eosinophilia. Therefore, in such patients, doctors should consider treating each condition separately. Source: Archives of Disease in Childhood Published Online First: 12 April 2017. doi: 10.1136/archdischild-2016-311944
  10. Celiac.com 06/05/2017 - Doctors diagnose celiac disease by confirming various clinical, genetic, serologic, and duodenal morphology features. Based on retrospective data, recent pediatric guidelines propose eliminating biopsy for patients with IgA-TTG levels more than 10-times the upper limit of normal (ULN), along with a few other criteria. One retrospective study showed that researchers using levels of IgA-TTG and total IgA, or IgA-TTG and IgG against deamidated gliadin (IgG-DGL) could identify patients both with and without celiac disease. A team of researchers recently set out to validate the positive and negative predictive values (PPV and NPV) of these diagnostic procedures. The research team included Johannes Wolf, David Petroff, Thomas Richter, Marcus KH. Auth, Holm H. Uhlig, Martin W. Laass, Peter Lauenstein, Andreas Krahl, Norman Händel, Jan de Laffolie, Almuthe C. Hauer, Thomas Kehler, Gunter Flemming, Frank Schmidt, Astor Rodriques, Dirk Hasenclever, and Thomas Mothes. Their team conducted a prospective study of 898 children undergoing duodenal biopsy analysis to confirm or rule out celiac disease at 13 centers in Europe. They then compared results from antibody tests with results from biopsies, follow-up data, and diagnoses made by the pediatric gastroenterologists. In all cases, diagnosis was made for celiac disease, no celiac disease, or no final diagnosis. Blinded researchers measured levels of IgA-TTG, IgG-DGL, and endomysium antibodies, while tissue sections were analyzed by local and blinded reference pathologists. The team validated two procedures for diagnosis: total-IgA and IgA-TTG, as well as IgG-DGL with IgA-TTG. Patients whose antibody concentrations for all tests were below 1-fold the ULN were assigned to the no celiac disease category. Those whose antibody concentrations for at least one test were above 10-fold the ULN were assigned to the celiac disease category. All other cases were considered to require biopsy analysis. The team calculated the ULN values using the cut-off levels suggested by the test kit manufacturers. They conducted HLA-typing for 449 participants. To extrapolate the PPV and NPV to populations with lower rates of celiac disease, they used models that accounted for how specificity values change with prevalence. In all, the team found 592 patients with celiac disease, 345 who did not have celiac disease, and 24 with no final diagnosis. The TTG-IgA procedure identified celiac disease patients with a PPV of 0.988 and an NPV of 0.934. The TTG-DGL procedure identified celiac disease patients with a PPV of 0.988 and an NPV of 0.958. Their extrapolation model estimated that PPV and NPV would remain above 0.95 even at a disease prevalence as low as 4%. Meanwhile, tests for endomysium antibodies and HLA type did not increase the PPV of samples with levels of IgA-TTG 10-fold or more above the ULN. Interestingly, the pathologists disagreed in their analyses of duodenal morphology about 4.2% of the time, a rate comparable to the error rate for serologic tests. This study validates the use of the TTG-IgA procedure and the TTG-DGL procedure in lieu of biopsy to diagnose pediatric patients with or without celiac disease. Source: Gastroenterology. DOI: http://dx.doi.org/10.1053/j.gastro.2017.04.023 The researchers are variously affiliated with the Institute of Laboratory Medicine, Clinical Chemistry and Molecular Diagnostics, Medical Faculty of the University and University Hospital, Leipzig, Germany, the Institute for Medical Informatics, Statistics & Epidemiology (IMISE), University of Leipzig, Germany, the Department of Paediatrics, University of Oxford, Oxford, United Kingdom, the Translational Gastroenterology Unit, Nuffield Department of Medicine, University of Oxford, John Radcliffe Hospital, Oxford, United Kingdom, the, University Children's Hospital Halle, Germany, the Medical School, Hannover, Germany, Helios Hospital, Department of Paediatrics, Plauen, Germany, the Children's Hospital Prinzessin Margaret, Darmstadt, Germany, the University Children's Hospital Graz, Austria, the Children's Hospital, Justus Liebig University Giessen, Germany, the University Children's Hospital Leipzig, Germany, the Children's Hospital of the Clinical Centre Sankt Georg Leipzig, Germany, the Clinical Trial Centre, University of Leipzig, Germany, the DKD Helios Children's Hospital, German Clinic for Diagnostics, Wiesbaden, Germany, the University Children's Hospital, Technical University Dresden, Germany, and the Alder Hey Children's National Health Service Foundation Trust, Liverpool, United Kingdom.
  11. Celiac.com 04/25/2017 - A recent issue of JAMA, the US Preventive Services Task Force (USPSTF) critically examines screening for celiac disease in asymptomatic adults, adolescents, and children. Celiac disease exhibits a broad spectrum of symptoms, from subtle or no symptoms to severe malabsorption. Celiac diagnoses have increased significantly over the past few decades, in part because of greater awareness, but possibly because of an actual increase in disease rates. Researchers estimate current rates of celiac disease at 0.71% among US adults, and 0.76% among US children. However, most celiac disease in the population remains undetected, despite wide availability of accurate serologic tests. Screening may be a good way to detect the disease, especially in people who have known risk factors, but have not yet developed symptoms. Noting a profound lack of supporting evidence in the medical literature, the USPSTF states bluntly that "the current evidence is insufficient to assess the balance of benefits and harms of screening for celiac disease in asymptomatic persons." The group recommends more research in this area. USPSTF admits its review of this topic might be criticized as premature, but emphasizes the need for data to provide direction with regards to best practices. The group used rigorous methodology to assess the effectiveness of celiac disease screening in an asymptomatic population, and found the resulting evidence to be thin in inconclusive. Their conclusion and recommendation will likely disappoint numerous clinicians, and more than a few patients. By design, the task force focuses solely on asymptomatic persons, or persons with unrecognized symptoms. They note that screening the general population could potentially detect not only asymptomatic patients, but also patients who lack typical symptoms such as weight loss, diarrhea, or malabsorption. In summary, current evidence on the effectiveness of screening for celiac disease in asymptomatic populations is scarce or absent and certainly insufficient to recommend for or against screening, as indicated in the USPSTF Recommendation Statement. Remember, the USPSTF is not anti-screening, they are pro-screening evidence. Since most celiac disease is undetected, and may present with variable symptoms, the group states that it is "reasonable that clinicians should have a low threshold for testing for celiac disease, especially in high-risk populations such as those with an affected family member or type 1 diabetes mellitus." Clinicians should routinely seek information on the patient’s family history of celiac disease. As celiac testing becomes easier and cheaper, and as gluten-free food becomes more available, it becomes more important for researchers provide the data to determine the best practices for screening and treating celiac disease. They stress the need for more comprehensive studies to assess best celiac screening practices in both high-risk groups, and in the general population, which includes most people with undetected celiac disease. The also note the possibility that the rise in gluten-free dieting by people without an official celiac diagnosis might be an indication of the uncertainty of current screening and diagnostic approaches. Source: Jamanetwork.com
  12. I have been strictly gluten free for 90 days now. I went through a detox for two weeks after being gluten-free then started to do better but then 4 or 3 weeks ago I just got very very sick again. All my symptoms came back, but worse plus new symptoms. I have had diarrhea for 3 weeks every day now. I am in so much pain all I can do is sit in bed and go to school. Doctors won't see me because they don't know what is wrong. I am out of money for other docs. I don't know what to do or if celiac is really is my issue. So much fatigue and pain I had to quit my job and sit in bed all day. I am just getting worse and I don't know where to go for help.
  13. I was diagnosed with celiac 2 years ago and since have been gluten-free. When I started my ttg was 88. I just recently visited the doc because I still seem to suffer from almost daily stomach pain. My ttg came back at 4. The doc suggested I try Metamucil and next week give lactaid a try as I still eat dairy. The metamucil I took one day and I had such bad stomach pain and loose bowel movements I felt too miserable to try it again. I haven't tried the lactaid yet but in the past I have and didn't see much difference. Heres the other thing: I do eat out a lot. I try to stick with safe places but every now and then I play the odds. So I usually manage to get sick once a month (lately it's been more) so I went to the doc and had my ttg level tested to see if my body is still getting gluten and this is why I still feel horrible. But my levels came back at 4, so now I'm just wondering... what the heck? I'm feeling super discouraged and doomed to a life of unexplained stomach pain. The annoying part is all my dr did is give me the results. Like "oh you're continuing to improve." Ok, but I'm in paid so what's going on? No answers, ever. It seems like I get suggestions, but they never do anything and I'm so fed up with my body. I'm tired of waking up frequently wondering what I could have ate that is bothering me. I had no idea two years later I'd still be struggling. Lately the stomach pain has increased and it's daily now again. I've been taking pepto for it and it helps a bit, but I don't want to live life digging in my purse for pepto everyday. any advice or suggestions from anyone who has been through this are appreciated. I get that celiac may not be the only problem but I don't know where to go anymore as I've been searching for 2 years.
  14. I have been strictly gluten free for 90 days now. I went through a detox for two weeks after being gluten-free then started to do better but then 4 or 3 weeks ago I just got very very sick again. All my symptoms came back, but worse plus new symptoms. I have had diarrhea for 3 weeks every day now. I am in so much pain all I can do is sit in bed and go to school. Doctors won't see me because they don't know what is wrong. I am out of money for other docs. I don't know what to do or if celiac is really is my issue. So much fatigue and pain I had to quit my job and sit in bed all day. I am just getting worse and I don't know where to go for help.
  15. Celiac.com 01/09/2015 - A recent article by Jody Berger provides a cautionary tale for anyone suffering from non-classic symptoms of gluten-sensitivity or celiac disease. Berger, it turns out, has non-celiac gluten-sensitivity. Sounds simple enough, right? But in Berger’s case, it took her one year and visits to a dozen doctors to get an accurate diagnosis. Berger’s main symptom was tingling in her fingertips, a feeling of slight pins and needles, as if they were waking from a deep sleep. The sensation wasn’t painful, she said, but it was persistent, and concerned her enough that she sought medical help to figure out the cause. When her first doctor diagnosed her with multiple sclerosis after a very brief visit, Berger sought a second, then a third, then a fourth opinion. In the course of her many visits, doctors told her she had nutritional deficiencies, heavy metal toxicity, Lyme disease, and depression. After a dozen visits, she finally found an osteopath who was “well-versed in systems thinking,” and another physician who had trained in ayurvedic medicine, a holistic system of healing. The tingling, which the first doctor believed to be a sign of MS, is actually a fairly common, though not classic, symptom of gluten sensitivity. This story highlights the amount of work patients can face when they present with atypical symptoms of gluten-sensitivity. Many times, well-intended doctors can simply miss the dietary connection and get the diagnosis wrong. Do you have a similar story of well-intended, but misguided doctors wrongly diagnosing gluten-sensitivity or celiac disease? Read more about Berger’s year-long Odyssey here.
  16. Celiac.com 12/15/2016 - Celiac disease and irritable bowel syndrome (IBS) can have similar symptoms, and confusion between the two can often cause delays in diagnosis. International guidelines recommend screening IBS patients for celiac disease using serological testing. However, studies published recently have cast doubt on the utility of this. A team of researchers recently set out to assess the use of serological testing to screen IBS patients for celiac disease, and to update a previous meta-analysis of this issue. The research team included Andrew J Irvine, William D Chey and Alexander C Ford. They searched MEDLINE, EMBASE, and EMBASE Classic through May 2016, looking for studies that had recruited adults with IBS according to symptom-based criteria, physician's opinion, or questionnaire data. Tests for celiac disease included IgA-class antigliadin antibodies (AGA), endomysial antibodies (EMA), tissue transglutaminase antibodies (tTG), or duodenal biopsies following positive serology. They combined the proportion of individuals meeting criteria for IBS, and testing positive for celiac disease, to give a pooled prevalence for all studies, and they then compared between cases with IBS and, where reported, healthy controls without IBS, using an odds ratio (OR) with a 95% confidence interval (CI). They found a total of thirty-six eligible studies, and 15,256 participants, nearly sixty-one percent of whom met criteria for IBS. Pooled ORs for positive IgA AGAs, EMA and/or tTG, and biopsy-proven celiac disease in IBS subjects vs. controls were 3.21 (95% CI 1.55–6.65), 2.75 (95% CI 1.35–5.61), and 4.48 (95% CI 2.33–8.60), respectively. The authors wrote that there was "no increase in ORs for any test for celiac disease among cases with IBS in North American studies, and results were inconsistent in population-based studies." Rates of biopsy-proven celiac disease were substantially higher across all subtypes of IBS. Their review had a few limitations, including heterogeneity in some analyses, along with limited North American study data. Overall, people with symptoms suggestive of IBS had higher rates of positive celiac serology and biopsy-proven celiac disease than did healthy control subjects. However, the case for celiac disease screening for individuals with suspected IBS in North America is still unclear. Essentially, we need broader and more comprehensive study of this issue in North America. Source: The American Journal of Gastroenterology, 18 October 2016. doi:10.1038/ajg.2016.466
  17. Hello, My GP has advised a two week gluten challenge. I've never fully removed gluten from my diet but for the past year I've eaten smaller quantities. I'm on day 7 of the challenge and I've had the worst headache and bloating that I've had in ages! I feel sick and the thought of eating more wheat makes me shudder. My previous bloods have shown inflammation and high igA levels on and off. What exactly do they look for in the igA levels? Could high igA alone suggest I'm coeliac? Would one more week of eating gluten really be enough time? How long does it take to then see a gastro for a biopsy on the NHS? I'm wondering as I'm running out of time to be tested before I go travelling for 6 months and my GP isn't coeliac aware as such
  18. Celiac.com 09/22/2016 - There really hasn't been much study done on diagnostic delays and factors associated with celiac disease, as well as on its potential impact on the course of disease. To get a better idea of the issue, a research team recently conducted a large systematic patient survey study among unselected celiac disease patients in Switzerland. The research team included SR Vavricka SR, N Vadasz, M Stotz, R Lehmann, D Studerus, T Greuter, P Frei, J Zeitz, M Scharl, B Misselwitz, D Pohl, M Fried, R Tutuian, A Fasano, AM Schoepfer, G Rogler, and L Biedermann. They are variously affiliated with the Division of Gastroenterology and Hepatology at Triemli Hospital Zurich in Zurich, Switzerland, IG Zöliakie, Basel, Switzerland, the Division of Gastroenterology and Hepatology at University Hospital Zurich, Zurich, Switzerland, the Division of Gastroenterology and Hepatology, Gastroenterology Bethanien, Zurich, Switzerland, the Division of Gastroenterology and Hepatology, Spital Tiefenau, Bern, Switzerland, the Pediatric Gastroenterology and Nutrition, MassGeneral Hospital for Children, Boston, USA,and with the Division of Gastroenterology and Hepatology, University Hospital Lausanne - CHUV, Lausanne, Switzerland. They broke their study down into patient-associated delays, and doctor-associated delays. They found an average total diagnostic delay of 87/24 months (IQR 5-96), with a range from 0 up to 780 months, which was fairly equally divided between doctor delay and patient delay. Both mean/median total (93.1/24 vs. 60.2/12, p<0.001) and doctors' (41.8/3 vs. 23.9/2, p<0.001) diagnostic delay were significantly higher when comparing female vs. male patients, and interestingly patients' delay was similar even after an irritable bowel syndrome diagnosis. Patients with a diagnostic delay shorter than 2 years showed a substantially lower dependence on steroids and/or immunosuppressants, better substitution for any nutritional deficiency, and were more likely to be symptom-free between 6 and 12 months after diagnosis. Regular, substantial delays in diagnosing celiac disease, are linked to worse clinical outcomes, and this data shows that such delays are significantly longer in female patients. This increased diagnostic delay in women is the fault of doctors, not patients, in part because the delay statistics cannot be explained by a diagnosis of IBS prior to celiac disease diagnosis. Source: Dig Liver Dis. 2016 Jun 23. pii: S1590-8658(16)30475-3. doi: 10.1016/j.dld.2016.06.016.
  19. Scott Adams

    Brazil - Doctors

    Dr. José Galvão Rua Marechal Câmara 350/701 Centro/Rio de Janeiro Tel: 240-4645 Jose Cesar Junqueira MD - Pediatric Gastroenterologist Servico de Pediatria Prof. Azor Jose de Lima Universidade do Rio de Janeiro UNI-RIO Hospital Universit rio Gaffre‚ e Guinle Rua Mariz e Barros 775 Tijuca, Rio de Janeiro e-mail: cjunqueira@unirio.br Office: Largo do Machado 11/201 Catete Rio de Janerio Brazil e-mail: cjunqueira@superig.com.br
  20. Hi Everyone, I've never really posted on an internet message board about my health before, so please forgive me for any TMI - I'm just at the end of my rope and thought I might turn to a community of others with similar problems to mine for help. I've been to more doctors than I count, and the majority are absolutely not helpful. I was diagnosed with Celiac Disease 3 years ago, and I'm gluten free, (though I've had the occasional "glutening" at restaurants, etc. from time to time) however, as of late I've been suffering from debilitating, sharp and stabbing abdominal pain. It's a sharp, stabbing pain on both sides and kind of a burning sensation in the middle around my belly button. At first the pain was worse on the right side, but now it seems to be worse on the left. It even goes into the tops of my thighs on both sides, and today it's moved into my back. It feels like this painful heavy pressure across my mid-upper back and then it also feels crampy/sharp around where my kidneys are. I also have this horrible taste in my mouth 24/7 and am excessively salivating like I'm about to vomit at all times, but I never do. I'm super nauseated every day and have a decreased appetite - I was barely able to eat at all this past weekend. I was also having terrible, frequent diarrhea, but the last doc gave me IBS medication which seems to be turning the diarrhea into constipation. I don't have a gallbladder anymore, though the pressure/pain in my back reminds me almost exactly of what the gall bladder attack felt like before I had it removed. I've been to the ER twice and about 5 doctors, and they didn't find anything in the CT scan, blood tests, ultra sounds, stool tests, etc. and basically just keep telling me they can't find anything wrong. That doesn't make sense to me because this has been going on for almost 2 months, and right before I came down with this - whatever this is - I was pretty much fine. In fact, for 2 weeks in Feb. I was traveling around for work, I was rock climbing in Phoenix and hiking, and doing outdoor activities feeling great, and then by the end of Feb. after I'm back home for about a week all of a sudden I'm debilitated and can't get out of bed. If anyone has any suggestions or has ever experienced anything like this, I'd be super grateful to hear your stories and suggestions. Thanks! Laura
  21. Hello everyone, after 2 years of symptoms I've finally decided to speak to my doctor. What a weight off my shoulders! He has booked me in for a blood test and I'll be given some sachets to mix in with water that may help me to go 'regular'. One of the nurses will do the blood test and I wanted to know, what should I ask whilst I am there!? I never go to the doctors, I'm quite healthy (apart from all the stomach problems I've been ignoring). Has anyone had a blood test and can tell me what to expect? Thank you, Shez
  22. 2001- suddenly and without warning developed hay fever 2002 - went to the doctors complaining of constant diarrhoea 2003- diagnosed with carpal tunnel syndrom after getting numb hands and arms and persistent pins and needles along with shooting pains which felt like hot pokers were being inserted in my body. 2006- starting to get easily fatigued and tired, often fall asleep when coming home, sometimes while lying on the floor playing with my daughter 2010-went to doctors with consistent pain in lower right side of rib cage, so bad at times that I couldn't sleep on my right side. Scan revealed no alcoholic fatty liver disease and raised alt 2011- starting to get major headaches and neck ache at the base of my skull 2012-memory starting to get bad 2013-memory still deteriorating and starting to get bouts of confusion, gave up clay pigeon shooting as I had a confusion attack while shooting and felt that for people's safety I needed to stop. Starting to get ringing in ears. 2014- confusion attacks and memory getting so bad that I felt I was developing dementia at 44! Started recording in my phone details of symptoms and problems. Ringing in left ear constant but occasionally progresses to right ear as well. Occasionally getting dizzy spells with the confusion. 2015-heard about lymes disease on the radio and the symptoms seemed to click (also knew I had been bitten by a tick in the past) decided to get checked out-my doctor actually laughed at me and said you can't have lymes disease! Blood test taken and not lymes but symptoms carried on....went and seen another doctor (this time a trainee) she decided to check my folate and B12 levels. Bingo! Low folate of 4.1 minimum should be 4.7. Put on folic acid and went on healthy eating binge with lots of fresh meat and green leafy vegetables. Amazing improvement....felt better and folate level went up to 20 in 4 weeks, also gave the doctor a copy of my multi vitamins I was taking for 7-8 months prior to blood test-containing the recommend daily dose of B12 and folic acid (so how could my folate be so low?) told to stop folic acid, eat normally and come back in 4 weeks, folate level dropped to 7 in space of 4 weeks, feeling crappy again. Told to take folic acid for a year but keep eating leafy greens (I now eat more spinach than Popeye!) refused referral to memory specialist and gastroenterologist. Dizzy spells getting worse. Gland in right side of neck under ear always swollen when I'm feeling really bad. 2 more doctors visits refused memory specialist/neurologist and a gastroenterologist again and again. Told I have IBS and that's it. however- memory still pants, and carpal tunnel and numbness headaches etc still happening, liver pain intermittent, starting to get spasms in my arms and legs sometimes like a bug is crawling under my skin. Kept going to doctors as feeling down and lacking any excitement for life in general, told I am depressed and need anti depressants. These gave me the worst headaches of my life and stopped them after a week without any improvement in my mood I might add. Doctors again in December of 2015- this time doctor tests me for Coeliac disease, eeerrrr ok ?! Had the blood test and went gluten free until I got the results. WOW what a difference!! No aches or pains anywhere for like the first time in 14-15 years, headaches cleared after 2 weeks, no carpal tunnel, diarrhoea stopped too. Sleeping better, and no confusion although my memory didn't improve. blood test results- one of the two was inconclusive 2nd said non-coeliac ??????????? Puzzled but as I was feeling better I carried on with the gluten free diet and I had some Peronni grand reserva lagers on New Year's Eve, bad idea! In bed within 2 hours, bloated, headaches feeling like I have flu. Next day-major dizzy spells and god awful ringing in both ears. Took 3 days to feel better. Still on gluten free diet as I was feeling so much better. mid January 2016- accidentally had gluten in the form of barley in a 10gm sachet of brown sauce on a breakfast of tomatoes, bacon, eggs and mushrooms. Two hours later headache, diarrhoea, feeling sick as hell, home to bed. Next day couldn't even stand up dizzy spells were so bad as was the ringing in my ears. Decided to see a gastroenterologist privately. Spent 3 days in bed with what I would describe as severe flu but no cough or runny nose. tested for coeliac disease again, but doctor seemed to ask me more pertinent questions, concerned about my liver and 13 years of diarrhoea. Books me in for an endoscopy and colonoscopy straight away (on the nhs as he is private and nhs) runs some bloods, iga comes back as 3.7-normal, elevated liver enzymes, elevated ige. Writes letter to my gp saying I might need an mri depending on results of biopsies. Suggests to my gp in his letter that I might be seronegative. Go to my gp, told him I am in for a biopsies and he says make sure you are eating gluten, still wants me to go on anti depressants and says I'm unlikely to be coeliac due to my iga results (in a period of 5 weeks when I accidentally ate gluten twice two weeks apart). 17-03-16 still waiting for biopsies, but remembered something after reading the posts on here.... I often get insanely itchy blisters on my ears, full of lager coloured fluid(usually I pop them to make them scab and disappear quicker) I also remember getting similar ones but not so fluid filled on a couple of my fingers, so itchy that I would take a nail clipper and pop them to get some relief. Last few weeks of being back on gluten I have been getting the odd very itchy red spot on my forearms.. So decided to go to the doctors again with this new information as it looks like dermatitis herpetiformis .....result? No! Told I am severely depressed and need anti depressants, and promptly gives me a sick note signing me of work for two weeks with depression and wheat intolerance?!?!?!? I'm self employed and own my own business with people working for me!!! So what the hell was the point in the sick note? i honestly think I'm going crazy, certainly my gp thinks I am! but would like to hear feedback on whether people think I'm mad or whether I'm coeliac or gluten intolerant. And whether my symptoms sound consistent with other people's. thanks justin
  23. Celiac.com 03/09/2016 - Can doctors reliably diagnose celiac disease in kids without duodenal biopsy? A team of researchers recently set out to see if they could use predictive values of transglutaminase (tTG) antibodies to diagnose celiac disease in kids, without performing duodenal biopsy. The research team included MA Aldaghi, SM Dehghani, and M Haghighat, of the Department of Pediatrics at Shiraz University of Medical Sciences in Shiraz, Iran. For their study, the team selected patients with likely celiac disease, who had been referred to a gastrointestinal clinic. The team first conducted physical examinations of the patients and performed tissue transglutaminase-immunoglobulin A (tTG-IgA) tests. For patients with serological titers higher than 18 IU/mL, the team performed upper endoscopy. The team assessed a total of 121 children, 69 female and 52 male, averaging 8.4 years of age. They found a significant association between blood tests and biopsy results; in other words, subjects with high antibody levels had more positive pathologic results for celiac disease, compared to others (P < 0.001). They achieved maximum sensitivity and maximum specificity of about 65% with a serological titer of 81.95 IU/ml. The calculated accuracy was lower in comparison with other studies. The team found lower antibody levels in patients with failure to gain weight and higher antibody levels in diabetic patients. In this study, a single blood test (tTg-IgA test) was not sufficient for researchers to reliably diagnose celiac disease without duodenal biopsy. Source: Iran J Pediatr. 2016 Feb;26(1):e3615. doi: 10.5812/ijp.3615. Epub 2016 Jan 30.
  24. Just wanted to share my experience and solicit advice from anyone who has experienced the same frustrations, as I am sure many of you have. I am pretty sure I have Celiacs as I have endured 5 months of horrendous symptoms and have lost 4 stone in a very short space of time. I have been seeing my GP since last August about stomach problems amongst a host of other symptoms, which I now believe are/were all food-related. The doctor has treated me for anxiety and depression and prescribed anti-depressants for my symptoms and even sent me to an anxiety specialist because I had constant nausea, diarrhea, vomiting, fatigue, insomnia, migraine, indigestion, acid reflux, uncontrollable crying, stomach pain and other lesser symptoms. I have also been given PPIs, Ranitidine, anti-emetics, diazapam, and sleeping pills. I have been saying for months that I don't think my symptoms were all anxiety driven but to no avail until I pointed out to the doctor that I had lost 4 stone in 4 months (without trying, obviously). I was finally given blood tests a few weeks ago and Helicobacter was picked up and I was treated for this too -- the eradication therapy made me feel awful and I saw no improvements after. I learnt about the FODMAP diet from a colleague and started it just over 3 weeks ago. Two days in my vomiting, diarrhea and sickness went; 3 weeks in and most of my symptoms except the migraines and insomnia (and tingling hands) have almost completely dissipated. But,,,,I am still left without a diagnosis and with a lot of sceptical opinions of my improved condition: apparently this is all psychosomatic, as were the origins of the symptoms in the first place!! I don't have a 'diagnosis' so I can't prove to anyone that all my problems are food related and I am still being treated as somebody with mental health issues rather than gastric problems. I am very frustrated and feel undermined. The waiting list for a GI consultant is at least 4 months and I refuse to keep eating gluten until I see a specialist as is recommended. There seems to be very limited understanding of gastro problems and using diet to control them. I feel that nobody took me seriously when I was very ill and nobody is taking me seriously now that I have made myself better. Anybody else experienced similar? :-(
  25. California Marvin Ament, M.D. - Pediatrician UCLA Medical Center 200 UCLA Medical Plaza 10833 La Conte Avenue Los Angeles, CA 90024 Tel: (310) 206-6134 Fax: (310) 206-0203 Jeffrey M. Aron, M.D., Gastroenterologist 2330 Post Street, Suite 460 San Francisco, CA 94115 Tel: (415) 563-3534 Micheal Bender, M.D. - Gastroenterologist 1828 El Camino Real Burlingame, CA Tel: (415) 692-1373 Amy Burkhart, MD, RD 1100 Lincoln Ave. Suite 200 Napa, CA 94558 Tel: (707) 927-5622 Internet: www.TheCeliacMD.com Dr. Anders Dahlstrom, MD, PhD Pediatric Gastroenterology 2505 Samaritan Drive, Suite 504 San Jose, CA 95124 Tel: (408) 358-3573 Fax: (408) 356-2888 Jesse Dohemann, M.D. California Pacific Medical Center San Francisco, CA Tel: (415) 923-3673 Richard W. Fisher,M.D. - Gastroenterologist Gould Medical Foundation 600 Coffee Rd. Modesto, CA Tel: (209) 524-1211 Gary Gray, MD Professor of Medicine, Emeritus (Gastroenterology) 269 Campus Dr., CCSR 3115; MC: 5187 Stanford University Med. Ctr. Stanford, CA 94305 Tel: (650) 725-6467 Paul Harmatz, M.D. Children's Hospital Oakland, CA Dolores Kent CNC, CPT (Not an M.D.) Clinical Nutrition Designs For Health Specializing In Celiac Desase Morgan Hill, CA 95037 Tel: (408) 710-5277 E-mail: dolores.kent@gmail.com John Kerner, M.D. - Pediatrician Stnaford Medical center Stanford, CA Tel: (650) 723-5070 Fax: (650) 723-2137 John La Puma MD FACP 123 West Padre Street, Suite B Santa Barbara CA 93101 Tel: (805) 284-2238 Dr Charles Menz Gastroenterologist 168 Brent St Suite 404 Ventura, California 93003 Tel: (805) 641-6525 Dr Carrie Mousseau HealthNOW Medical Center 1309 S. Mary Ave, Suite 100 Sunnyvale, CA 94087 Tel (408) 733-0400 Dr. Olusola A. Oyemade Pediatrics and Ped. Nephrology 77 Milliken, Ste. 360 Rancho Cucamonga, CA 91730 Tel: (909) 944-7099 Michelle Pietzak, M.D. 4650 Sunset Blvd. MS #78-Division of Gastroenterology Los Angeles, CA 90027 Tel: (323) 669-2181 http://chla.org/gastroenterology.cfm Samuel Marcus, M.D. 2485 Hospital Drive, Suite 240 Mountain View, CA 94040 Tel: (650) 988 7488 Frank Sinatra, M.D. - Pediatrician Children's Hospital and USC Medical Center Los Angeles, CA Tel: (213) 226-3801 Dan Thomas, M.D. - Pediatrician Children's Hospital LA Tel: (213) 669-2181 Dr. Joel M. Wittles 36243 Inland Valley Drive #40 Wildomar, CA 92595 909-600-0288 Colorado Lawrence (Jack) Adams Colorado Springs Neurological Associates, P.C. 175 S Union Blvd # 310 Colorado Springs, CO 80910 Tel: (719) 473-3272 Pete H. Baker, M.D.,FACP Swedish Medical Plaza 499 E. Hampden Ave., Suite 420 Englewood, CO 80110 Tel: (303)-788-8888 Fax: (303)-788-6452 Scot M. Lewey, D.O., FACP, FAAP Certified American Board Internal Medicine, Gastroenterology, Pediatrics Gastroenterology Associates of Colorado Springs 1699 Medical Center Point Colorado Springs, CO 80907 Tel: (719) 632-7101 or (719) 632-4468 Dr. Ted. Stathos Rocky Mountain Pediatric Gastroneterologists 1601 East Ninteenth Ave. Suite 3700 Denver, CO 80218 Tel: (303) 869-2121 District of Columbia Parvathi Mohan, M.D. - Gastroneterologist Children's Hopital 1111 Michigan Ave. N.W. Washington D.C. 20010 Florida Dr. Juan Carrere 4790 Barkley Circle Fort Myers, FL 33907 Georgia Dr. Agnes Han 960 Johnson Ferry Rd., Suite 515 Atlanta, GA 30342 Tel: (404) 252-8803 Cynthia Rudert, M.D. 5555 Peachtree Dunwoody Rd., Suite 312 Atlanta, GA 30342 Tel: (404) 943-9820 Idaho Angela House, DO FP/Nutritional Medicine 450 W. State St., Ste 250 Eagle, ID 83616 Tel: (208) 947-0925 Illinois Dr. Alan F. Bain Chicago Health and Wellness Alliance 55 E. Washington Street #3305 Chicago, IL 60602 Tel: (312) 236-7010 www.docintheloop.com Stefano Guandalini, MD University of Chicago Comer Children's Hospital 5841 S. Maryland Ave MC 4065 Chicago, IL 60637 Tel: (773) 702-3051 Barbara S. Kirschner, M.D. University of Chicago Comer Children's Hospital 5841 S. Maryland Ave MC 4065 Chicago, IL 60637 Tel: (773)702-6152 Indiana Arthur R. Baluyut, M.D., PhD Northside Gastroenterology 8424 Naab Rd., 3-J Indianapolis, IN 46260 Tel: (317) 872-7396 Mark Bruns, M.D. Internist IU Medical Group 1095 Broadripple Ave. Indianapolis, IN Tel: (317) 251-6121 Dr. Joseph Fitzgerald Dr. Sonny Chong Dr. Joseph Croffie Dr. Sandeep Gupta Indiana University School of Medicine, Division of Gastroenterogy James Whitcomb Riley Hospital for Children Dept. of Pediatrics 702 Barnhill Drive, Room 2728 Indianapolis, IN 46202-5120 Tel: (317) 274-3774 Iowa David E. Elliott, MD, PhD Director, Celiac Disease Clinic University of Iowa Health Care 200 Hawkins Road Iowa City, Iowa 52242 Tel: (319)-356-4901 John Kelly, M.D. Des Moines, IA Leon Qiao, M.D., Gastroenterologist 931 8th Ave S.E. Cedar Rapids, IA 52401 Tel: (319) 366-8695 Kentucky M.K. Younoszai, M.D Pediatric Gastroenterologist Medical Towers North Suite 513 Louisville, KY 40202 Tel: (502) 629 5796 Louisiana Firooz Jalili, MD Pedatric Gastroenterologist 1211 Coolidge Blvd., Ste. 203 Lafayette, LA 70503 Tel: (337) 233-2535 Maine Dr. John Bancroft (3 responses) Pediatric Gastroenterologist Maine Pediatrics Specialty Group 887 Congress Street, Suite 420 Portland, ME 04104 Tel: (207) 772-2827 Dr. Benjamin B. Potter Portland Gastroenterology Center 1200 Congress Street, Suite 300 Portland, ME 04102 Tel: (207) 773-7964 Dr. Igor Prokopiw 1250 Forest Ave. Portland, ME 04103 Tel: (207) 878-5100 Dr. Michael A. Roy Portland Gastroenterology Center 1200 Congress Street, Suite 300 Portland, ME 04102 Tel: (207) 773-7964 Dr. Gilbert M Wilcox 131 Chadwick Street, Suite 2 Portland, ME 04102 Tel: (207) 774-3461 Maryland George Fantry, M.D. - Gastroenterologist University of Maryland in Baltimore Medical System 22 S. Greene St. Baltimore, M.D. 21201 Tel: (410) 328-5196 Alessio Fassano, M.D. - Gastroenterologist/Pediatrician University of Maryland in Baltimore Medical System 22 S. Greene St. Baltimore, M.D. 21201 Tel: (410) 328-0812 Karoly Horvath, M.D., Ph.D. - Gastroenterologist/Pediatrician Associate Professor of Pediatrics University of Maryland in Baltimore Medical System 22 S. Greene St. Baltimore, M.D. 21201 Tel: (410) 328-0812 Fax: (410) 328-1072 E-mail: khorvath@umabnet.ab.uM.D..edu David L. Hutcheon, M.D. 10755 Falls Rd. Timonium, M.D. 21093 Tel: (410) 583-2630 Dr. Mark D. Noar, M.D., M.P.H, F.R.C.T.M.&H Therapeutic Endoscopy & Gastroenterology 7402 York Road, Suite 100 Towson, Maryland 21204 Tel: (410) 494-1846 Dr. Alan N. Schulman Digestive Disease Consultants 15001 Shady Grove Road Rockville, MD 20850 Tel: (301) 340-3252 Fax: (301) 340-1423 Massachusetts Catherine Petruff Cheney, M.D. - Gastroenterologist Beth Israel Deaconess Medical Center Divison of Gastroenterology and Hepatology 330 Brookline Avenue Boston, MA 02215 Phone: (617) 667-1846 Myron Falchuck, M.D. - Gastroenterologist GI Associates Suite 8E 110 Francis Street Boston, MA 02215 Tel: (617) 734-5552 Richard J. Grand, M.D. - Pediatrician New England Medical Center Ciaran Kelly, M.D. - Gastroenterologist Beth Isreal Hospital Boston, Massachusetts Tel: (617) 667-1272 Gary J. Russell, M.D. - Pediatrician Massachusetts General Hospital Jerry S. Trier, M.D. Brigham & Women's Hosp 75 Francis Street Boston, MA 02215 Tel: (617) 732-5824 Michigan Thomas J. Alexander, M.D., F.A.C.P., F.A.C.G Gastrointestinal Specialists, P.C. 264 W. Maple Road, Suite 200 Troy, MI 48084. Tel: (248) 273-9930 Ann Silverman, MD Chief, Gastroenterology, Henry Ford Hospital West Bloomfield (Detroit) Minnesota Joseph Murray, M.D. - Gastroenterologist Mayo Clinic 200 First St. S.W. Rochester, MN 55905 Tel: (507) 284-2511 E-mail: murray.joseph@mayo.edu Robert Wyllie, MD. - Pediatrician Mayo Clinic 200 First St. S.W. Rochester, MN 55905 Tel: (216) 444-2237 Missouri Dr. Leonard Weinstock 10287 Clayton Rd. St. Louis, MO Tel: (314) 997-0554 Chandra Prakash, M.D., M.R.C.P. Assistant Professor of Medicine Washington University in St. Louis School of Medicine Campus Box 8124 660 South Euclid Avenue St. Louis, MO. 63110-1093 Tel: (314)747-2066 Charlene Prather, M.D. St. Louis University Medical School Medical Group Building 3660 Vista Avenue. St. Louis, MO 63110 Tel: (314) 577-6150 Nebraska Ed Schafer, M.D. Department Head at UNMC University of Nebraska Ddepartment of Gastroenterology Tel: (402) 552-2600 David Watts, M.D., Dermatologist 2808 S. 80th Ave. Omaha, NE Tel: (402) 390-0333 Nevada Dr. Carl Dezenberg Pediatric Gastroenterology & Nutrition Associates 3196 S. Maryland Pkwy, Suite #309 Las Vegas, NV Tel: (702) 791-0477 Dr. Dennis Yamamoto - Gastro. Digestive Health and Assoc. 655 Sierra Rose Dr Reno, NV 89511 Tel: (775) 829-7600 New Hampshire David Golden, M.D. - GI Hitchock Clinic Nashua, NH 03060 Tel: (603) 883-0326 New Jersey Dr. Amy DeFelice Celiac Disease Center at Columbia/Presbyterian Tel: (212) 305-8802 Debra Goldstein, MD The Middlesex Medical Group 225 May Street, Suite E Edison, New Jersey 08837 Tel: (732) 661-2020 Dr. Peter Green Columbia Presbyterian Hospital Phone: 212-305-5590 Fax: 212-305-3525 Pamela Hoffley MD (Pediatric Gastroenterologist) Dartmouth, NH 279 3rd Ave. Medical Center this month. Long Branch, NJ 07740 Tel: (732) 222-4474 Lawrence Pickover, M.D. - Gastroenterologist East Brunswick and New Brunswick, NJ Tel: E. Brunswick (908) 390-9200 Tel: N. Brunswick (908) 846-2777 Jack Rubin, M.D. - Gastroenterologist East Brunswick and New Brunswick, NJ Tel: E. Brunswick (908) 390-9200 Tel: N. Brunswick (908) 846-2777 Zalman R. Schrader, M.D. - Gastroenterologist 101 Old Short Hills Road West Orange, NJ 07052 Dr. Lawrence Stein 1) Morristown (973) 455-0404; 2) Denville (973) 625-5985 New Mexico James E. Baum, D.O. Orthopedic, Functional & Anti-Aging Medicine Prolotherapy, Sclerotherapy & Neural Therapy AST Chelation Therapy Gluten Free Diet Specialist 1850 Old Pecos Trail, Ste. L Santa Fe, NM 87505 Tel: (505) 989-8647 New York Dr. Keith Benkov Mt. Sinai Hospital (212) 241-5415 Stuart Berezin, M.D. - Pediactric Gastroenterologist Westchester County Medical Center Valhalla, NY Tel: (914) 594-4610 Thomas Bolte, M.D. (board certified, Internal Medicine) 141 East 55th Street, Suite 8-H New York, NY 10022 Tel: (212) 588-9314 E-mail: TJBolte@juno.com Dr. Amy DeFelice Celiac Disease Center at Columbia/Presbyterian Tel: (212) 305-8802 Peter Green, M.D. Columbia Presbyterian Medical Center 161 Ft. Washington Ave. New York, NY 10032 Tel: (212) 305-5590 Phillip Kaslow - Pediactric Gastroenterologist Babies' Hospital Columbia, NY Tel: (212) 305-5903 Vijay Kumar, Ph.D. IMMCO Diagnostics 963 Kenmore Ave. Buffalo, NY 14223 USA Tel: (716) 876-5672 Jack A. Pasquale, M.D. Physician Nutrition Specialist Board-Certified in Internal Medicine 73-03 198th Street Fresh Meadows, NY 11366-1818 Tel: (718) 465-0041 Fax (718) 465-4224 Dr. Nanci Pittman Mt. Sinai Hospital Tel: (212) 241-5415 Dr. Lesley Smith, M.D. - Pediatrician GI Celiac Disease Center at Columbia/Presbyterian Tel: (212) 342-2914 North Carolina John Baille, M.D. - Gastroenterologist Division of Gastroenterology Duke Medical Center Durham, NC 27710 Ivor Dennis Hill, M.D. Clinical Pediatric Gastroenterology Chief of the Division of Pediatric Gastroenterology and Nutrition Bowman Gray School of Medicine Winston-Salem, NC Tel: (336) 716 4431 Martin Ulshen, M.D. - Pediactric Gastroenterologist North Carolina School of Medicine CB # 7220 UNC Chapel Hill, NC 27599 Tel: (919)-966-1343 Ohio Ahmad Ascha,M.D. - Gastroenterologist 9500 Mentor Ave #380 Mentor, OH 44060 Tel: (440) 352-9400 E-mail: mail1@ascha.net Amy Jones, M.S., R.D., L.D. Logan County Celiac Support Group 205 Palmer Ave. Bellefontaine, OH 43311 Tel: (937) 651-6428 Internet: http://www.logancountyceliac.org Dr. David Corrallo Beloit, OH Tel: (330) 938-3333 Kirk Elliott, M.D. - Gastroenterologist Canton, OH Tel: (216) 492-4441 Dr. Li - pediatric gastroenterologist Children's Hospital Columbus, Ohio Edward Schirack, M.D. - Gastroenterologist Canton, OH Tel: (216) 492-4441 Dr. Arjun Venkat, M.D. - Gastroenterologist Akron Digestive Disease Consultants, Inc. 570 White Pond Dr., Ste. 100 Akron, OH 44320 Tel: 330-869-0124 Oklahoma Dr. Robert C. Brown Northwest Internal Medicine Division of Medical Group, PC 3433 N.W. 56 Street, Suite 800 Oklahoma City, OK 73112 Tel: (405) 946-9831 Dr. Debra Riggs Family Practice Mercy Health Center Bethany, Oklahoma Tel: (405) 789-4150 Oregon Sarah Brendler, M.D. Lane Gastroenterology Associates 960 N. 16th, Suite 203 Springfield, OR Tel: (541) 726-4686 Pennsylvania William Battle, M.D. Jeanes Physicians Office Building, Suite 209 7600 Central Avenue Philadelphia, PA 19111 Tel: (215) 728-6688 Anthony Colatrella, M.D. David Limauro, M.D. David Glorioso, M.D. Pittsburgh Gastroenterology Associates Pittsburgh, PA 15219 Tel: (412) 232-8104 Keith Laskin, M.D. Main Line Gastroenterology Paoli Memorial Medical Building 3 Suite 333 255 West Lancaster Ave Paoli, PA 19301 Tel: (610) 644-6755 Thomas Pineo, DO Greenville Medical Center 90 Shenango Street Greenville, PA 16125 724-588-4240 Marc A. Zitin, M.D. Main Line Gastroenterology Associates, P.C. 252 Lankenau Med. Bldg. East Lancaster Ave & City Line Wynnewood, PA 19096 Tel: (610) 896-7360, or (610) 896-8335 Dr. Andrew Schwartz Fern Hill Medical Campus, Building B, Suite 300 915 Old Fern Hill Road West Chester, PA 19380 Tel: (610) 431-3122 E-mail: info@westchestergi.com Rhode Island Pamela J. Connors, MD Gastroenterology Specialists, Inc. 45 Wells Street, Suite 103 Westerly, RI 02891 Tel: (401) 596-6330 James J. Murdocco, M.D. 360 Kingstown Road Narragansett, RI 02882 Tel: (401) 789-0226 Tennessee Maurace Barnes, M.D. 5651 Frist Blvd. Suite 214 Hermitage, TN. 37076 Tel: (615) 885-7788 E-mail: summit@usit.net Dr. Lind, M.D. - Gastroenterologist Vanderbilt University Medical Center Tennessee Tel: (615) 322-5000 Texas Alberto O. Barroso, M.D. 6560 Fannin, Suite 1660 Houston, TX 77030 Tel: (713) 797-9595 Dr. Kenneth Fine Finer Health Institute/Entero Labs 10851 Ferguson Rd., Suite B Dallas, TX 75228 Tel: (972) 686-6869 E-mail: kdfine@finerhealth.com Craig Lubin - Gastroenterologist 1910 W. 35th Austin, TX 78703 Tel: (512) 454-4588 John F. Pohl, M.D. Pediatric Gastroenterologist Scott & White Hospital Temple, Texas Tel: (254) 724-2491 Tel: (877) 724-KIDS William Santangelo, M.D. Baylor University Medical Center Suite 809 3600 Gaston Avenue Dallas, TX 75246 Tel: (214) 818-0948 John Secor, M.D. Presbyterian Professional Building 8221 Walnut Hill Lane Dallas, TX Tel: (214) 368-6707 Mesquite, TX Tel: (214) 289-0636 John R. Stroehlein, M.D. Professor of Medicine Univ. of TX Health Science Center & Medical School 6431 Fannin Houston, TX 77030 Tel: (713) 500-6677 Ray A. Verm, M.D. 6560 Fannin, Suite 1625 Houston, TX 77030 Tel: (713) 791-1800 Utah Linda S. Book, M.D. Primary Childrens Hospital Tel:(801) 588-3370 Janet Harnsberger, M.D. - Pediatric Gastroenterologist Cottonwood Medical Tower 250 E 5770 S #330 Salt Lake City, UT 84107 Dr. Michael J. Sossenheimer Utah Gastroenterology 6360 S 3000 E #310 Salt Lake City, UT 84121 Tel: (801) 944-3144 E-mail: msossenheimer@utahgastro.com Virginia Michael Hart, MS, M.D. Director, Pediatric Gastroenterology & Nutrition 102 Highland Avenue, S.E. Suite 305 Roanoke, VA 24013 Tel: (540) 985-9832 Fax: (540) 224-4421 email: mhart@carilion.com website: www.michaelhart.yourmd.com Christopher N. Sheap, M.D. 1741-B Erickson Avenue Harrisonburg, VA 22801 Tel: (540) 442-6619 Washington Patricia Elliott ND 1155 N State St #610 Bellingham, WA 98226 Tel: (360) 647-0228 Dr. Jean McFadden Layton, ND Natural Health Bellingham 1329 Lincoln St Suite 3 Bellingham, WA 98229 Tel: (360) 734-1659 Kasra Pournadeali, ND, Director Northwest Center for Optimal Health Clinical & Academic Faculty, Bastyr University President, Washington Association of Naturopathic Physicians 316 State Avenue, Suite A; Marysville, WA 98270 Tel: (360) 651-9355 Stephen O. Wangen, ND IBS Treatment Center Nordstrom Medical Tower 1229 Madison St., Suite 1220 Seattle, WA 98104 Wisconsin Drew M Elgin, MD Board Certified in Gastroenterology Madison Medical Affiliates 13133 N. Port Washington Road Seton Professional Building, Suite G16 Mequon, WI 53097 Tel: (262) 243-5000