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Had digestive issues, severe reflux, dysphagia, and bloating on and off for two years. Went to GI, got endoscopy and blood test which confirmed celiac. Been gluten free for about 3 weeks now; feel great although my body is still adjusting. Additionally I was diagnosed with Eosinophilic Esophagitis; basically asthma in my esophagus. A biopsy confirmed this. Went to a food allergist, no terrible food allergies (bananas, raw egg whites, ironically I have an allergy to gluten, wheat, rye, and barley that seems separate from the celiac). Right now I'm on a PPI, vitamin D, and Flovent which is an inhaler that allegedly treats EoE in some trials. Hard to tell what my prognosis is depending on how related the two are, but I guess I won't know until I go off the medication for the a while and I have a follow up endoscopy. In the meantime I'm just curious to see if anyone else has the same diagnosis or information pertaining to it.
No one besides me has been checked or diagnosed with Celiac's Disease. My mother has hypothyroid (poorly managed-not sure if it's Hashi or not) and EoE (eosinophilic esophagitis) also poorly managed. She has had to have her esophagus dilated 3x now. It is ridiculous that the only therapy that they have offered is steroids and acid reflux medication. I *finally* convinced her to get tested for Celiac Disease (I have told everyone in my immediate family to be screened). She has an appointment with her gastroenterologist next Tuesday. I told her to request a Celiac Panel to check her antibodies. Hopefully we can get to the root of this issue. She has had other signalments of celiac disease as well including: headaches, hair loss, skin rashes, extreme fatigue, nerve issues, weight gain/bloat, constipation. If it is not gluten that is her trigger, I sincerely hope she starts a dietary elimination trial starting with dairy products. Is there anything else I need to tell her or have her request of her doctor next week? Also - unless her doctor specifically tells her to stop eating gluten she won't.. and she won't listen to me. She is stubborn stubborn stubborn!!!