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Found 6 results

  1. Celiac.com 10/30/2018 - Products with “gluten-free” were unknown just 20 years ago. Now, driven by new labeling standards and demand that far exceeds those on medical diets, the market for gluten-free foods is expected to hit $2.34 billion in sales by 2019. That’s more than double the 2014 level. How has the influx of new gluten-free products in the last few years changed the experience of people with celiac disease? A team of researchers recently set out to investigate how the recent proliferation of the gluten‐free industry has affected individuals living with celiac disease, with a primary focus on their social lives and relationships. The research team included J. A. King, G. G. Kaplan, and J. Godley. They are variously affiliated with the Department of Sociology, Faculty of Arts, University of Calgary, Calgary, Alberta, Canada, and the O’Brien Institute for Public Health, University of Calgary, Calgary, Alberta, Canada. The team employed interpretive phenomenology for study design and analysis. Team members held semi‐structured interviews with 17 adults with clinically diagnosed celiac disease in Calgary, Alberta. They recorded the interviews and transcribed them for analysis. These 17 Canadians living with celiac disease reported that they perceive the growth of the gluten‐free industry as a "double‐edged sword." Although they are grateful for more readily available, more palatable gluten‐free options, they are increasingly faced with misunderstandings about the severity of celiac disease as a perceived result of many non-celiac disease individuals subscribing to the gluten‐free diet. Participants also felt they may be perceived or even perceived themselves differently, such as "high maintenance," etc. To help mitigate these social ramifications of following the gluten‐free diet, participants utilized various strategies. According to the study’s authors, simply telling celiac patients to adopt a gluten‐free diet ignores the regular challenges faced by those patients. The authors of the report are calling for doctors to consider the indirect burdens for celiac patients who must adopt a gluten-free diet when making their recommendations. But how? The report says nothing about what exactly doctors are supposed consider, or what they should tell patients about the challenges of a gluten-free diet. People with celiac disease probably do need more information up front as they begin to follow a gluten-free diet, but clearly far more input and study are needed. This study tells us that seventeen people in Alberta, Canada say that being gluten-free by medical necessity is both easier and more challenging than it was in the past. That it was both more manageable, but also more stressful, because gluten-free fad dieters are confusing everything. What are we to make of this? Talking informally with 17 celiac patients and writing up the results may not rise to the level of a solid study, and their input doesn’t really tell us much about how to improve their situation. Also, blaming the popularity of the gluten-free diet as a cause of confusion or stress in people with celiac disease could be an overreaction. Remember, ten or twenty years ago when most people had nearly zero awareness of celiac disease or the gluten-free diet? That included doctors who were trying to diagnose it. To have these inconvenient misunderstandings, people must first have some idea that celiac disease exists, and that a gluten-free diet is part of it. Is it possible that, as annoying as such misunderstandings may be, they represent progress, however incremental? Perhaps the annoyances are real, perhaps they are perceived. Perhaps they are a reflection of slowly rising awareness levels. But the study doesn’t tell us any of these important details. Again, there’s little question that people with celiac disease need more information up front as they begin to follow a gluten-free diet, but clearly more input and study is needed so that we can come up with an accurate picture of the challenges and provide the best ways to meet them. What’s your experience of the rapidly changing gluten-free landscape? Read more at: JOURNAL OF HUMAN NUTRITION & DIETETICS. First published: 02 October 2018 https://doi.org/10.1111/jhn.12597
  2. Hello! I am new here, but I have a rather lengthy story and was looking to receive some feedback as to whether or not I am in the right place. Basically, two years ago my weight began to plummet despite consistent (albeit low) calorie intake and exercise routine that I had been stable at for several years. I am a 25 year old female. Diet was the same, exercise was the same, but I dropped from my already slightly low 125lbs. (at 5'9") maintenance weight to 90lbs. in five months! By greatly increasing calories, I have managed to bring it up to 107, but for about a year now I cannot seem to get any higher than that. I get blood work done every three months because (despite high calorie diet and daily multivitamin and fish oil) I have elevated liver enzymes (ALT and AST), low RBC and WBC, low thyroid hormones T3 and T4, low blood pressure, low heart rate, and hypocholesterolemia (my HDL has fallen from 72 to 48, and LDL from 55 to 45). I have been tossed about to dozens of specialists and undergone quite a few tests, but nothing pans out. Last October, I was referred to a dietician who suggested gluten intolerance, but nothing progressed from that at the time. Today, I went to see the P.A. at my doctor's office and asked for a celiac panel if only to rule it out. I was unexpectedly met with a flat-out refusal and ten minute tirade that "anyone can graduate from the google school of medicine" and "it would be a waste of resources to order the test." I made another appointment with a different practitioner at the same office for next week hoping that he might heed my request, but I need to know if this is worth pursuing. I am just looking to get some honest feedback as to whether anyone has experienced these symptoms and if they are indicative of celiac disease as my research and the dietician's suggestion led me to believe. Thank you in advance!
  3. beachbum

    It's Just One Cookie!

    My first blog takes me back 5 years ago when my youngest daughter started her freshman year of high school. She had been diagnosed Celiac for 5 years at this point, by now I was sure my daughter had come to terms with her restrictive diet. She was happy-go-lucky Madeline, ever smiling, always positive, living every day with joy. Little did I suspect that the social acceptance of being a young gluten-free teen was secretly troubling her and it was about to burst forth in a profusion of tears and sudden flight from her classroom. All because of just one cookie! Nobody wants to read the minutiae of a teenager's day, so I will sum up the event. Choir class of 100 students, dozens of cookies left over from an evening event, the class is all offered cookies. A hundred girls each enjoy one delicious cookie while one girl sits among them with nothing. Madeline politely approached the choir teacher and asked if she could get something from the choir store since she couldn't have a cookie, at which the teacher replied, "Madeline it's just one cookie!" [insert gushing tears and dramatic stage right here] Two class periods later, the oldest sister, Claire, enters the choir room. Claire is a gifted singer, little miss detail and unofficial teacher helper…she is also a Celiac. The choir director is concerned about Madeline's meltdown and speaks to Claire asking if her little sister is always so emotional over things as insignificant as "Just One Cookie". Claire's response is spot on. "Sir, you don't understand, its not just one cookie…its one cookie yesterday, one cookie today, one cookie tomorrow, and the day after that and after that and after that…it will never be just one cookie for her!" Four years later at Madeline's graduation party, one of her fellow graduates (also a Celiac) came up and hugged me and said. "Mrs. Wilson I have been looking forward to Madeline's party all week because I knew you would have Gluten-Free cake. This is the only piece of graduation cake I will get to have." Wow! She, too, was longing to fully participate, to have the same experience as everyone else. All I could do was hug her, congratulate her on her graduation, and ask if she would like me to wrap up an extra piece for a rainy day. Over the years I had gone to great lengths to ensure my girls were fully included in sleepovers, cookouts, and pizza parties because sharing food and drink is the most common form of social ritual, an intrinsic part of feeling included. I found that when it comes to a gluten-free lifestyle, its never been about "Just One Cookie".
  4. Celiac.com 07/24/2014 - People that have celiac disease know one of the main concerns is avoiding gluten when they have meals. Their second biggest concern is the possible co-mingling of ingredients that can contaminate otherwise gluten-free food! So how do you eat at restaurants when you have celiac and still have peace of mind? Here is how: Before you are to go out to a restaurant call ahead and ask for the manager, find out if they do offer gluten-free meals that are carefully prepared for people with food allergy (If you are unable to call ahead go online and look the restaurant up to see if they offer a gluten-free menu or gluten-free meal selections, if need be email them). Also ask if the restaurant prepares gluten-free meals in a separate area, and if the restaurant uses different cooking utensils for gluten-free meal preparation. When you arrive at the restaurant that you have confirmed has gluten-free meals, let your server know you have a "Gluten Allergy" (ok, you can use different terms, and this isn't correct, but it conveys necessity instead of trend) and must eat gluten-free. Ask for a gluten-free menu, if they did not offer one to you. If you feel comfortable ask to speak with the manager or chef at your table, so they know that you have a medical need for a gluten-free diet. Let your favorite restaurants know that you want gluten-free meal selections and a gluten-free menu if they do not offer that yet. Do not be afraid to ask! Also, online there are cards you can print out and take to restaurants that you can give to server, manager or chefs to let them know that you are in need of a gluten-free diet. Some restaurants are now getting trained for gluten-free food preparation through National Foundation for Celiac Awareness (NFCA) and Great Kitchens, so that all the staff is fully prepared and educated on how to handle safe preparation of meals for celiac and gluten intolerant individuals. Talk about peace of mind; if a restaurant has had the gluten-free food training, know you are safe to eat gluten-free meals there!
  5. Hi everyone, I have to share something that I have experienced over the past two months. It has been two of the most amazing experiences of my life, and they changed everything. Please please please! Do not be discouraged and stop reading due to the fact that I am writing about altering substances. If you don't know anything about them, then please hold off your judgement and ego till you have finished reading. Or else you might miss out on something valuable. *PS - I do not want any of you to approach what I did without a lot of prior experience and a strong mental health (something I did not have at the time). It should be done with supervision with professionals. Before I begin it is important to know that it was not long ago my weight was 55kg which is little for a 5.9" as a male. I was a walking skeleton. A famine child. It sort of was my fault. I had been putting HUUUUGE amounts of gluten into my system close to a decade. I know this doesn't seem long, but when you have been gluten free from the age of 2 till 17 and then begin, it hurts. It was the end of 2012 and I had just come back home to Norway from Vancouver after a year of hardcore studying. I was ill the whole year, but managed to get through with medical marijuana. Scored 80% just to prove to you guys that weed is not the sinner you may think it is. It usually is the person using it. Any how, it then happend. I crashed and got so ill that I could not get out of bed for a week straight. I could barely lift my body. I had gluten ataxia, anemia, my bones had deteriorated because my body couldn’t get any nutrient. I also had chronic anxiety and depression plus a ton more of side effects, and had been dealing with it for over two years already. I was in so much pain I thought this was it. I was going to die. Fast forward and we are now in 2014. It has been two years and I feel a bit better, but I had done nothing but eat, stay at home and work out. That was as far as my energy would allow me. I was still chronically depressed and had deep issues with my thoughts. I kept blaming myself. I knew I could have done differently. I knew it was going to hurt me, because I was told I had celiac disease when I was a small child. The problem was that it came so gradually. I didn't feel the effect till years after. So I got to a point where I was smoking weed every day to cope with the pains and to actually manage to eat. A few years back I had read about something called Ayahuasca. This is one of the most powerful substances on the planet, and it is a medicine, NOT a drug (please, again I ask of you. Trust me on this and hold off your judgement). It comes from the jungle in Peru and Ecuador. This plant, combined with a root creates a drinkable tea like substance which alters your body, your mind and perception. You are totally aware, but it allows you to analyse yourself from a microscope and you have no other possibility than to actually submit and go through it all. To really sit and feel, think, and challenge all your deeper demons. Ayahuasca was the hardest thing I have ever done. It was with a shaman and 22 other people. It forced me to relive all my past horrors. It made me understand. I cannot have good without bad. It put everything into perspective. It showed me so many horrible things I thought I was dying. I felt my ego shattered across the universe and all my atoms just flew to every edge. After this it taught me the most beautiful of things. It taught me so many beautiful lessons I was speechless. And by the end of that night. I felt a bliss I had never felt in my entire life. I felt the strongest connection to the world, the universe, my family, my friends, my pets. Everything made sense. (I have a full report from the whole ceremony if you want to experience the night in a detailed manner). So I left the ceremony after the first night, even though they had three ceremonies in total. This was a mistake. I had opened gates I didn’t know how to close. It all went from feeling the most amazing I had in my whole life, to the worst I had felt in my life over the course of two days. I just couldn’t deal with it. So I fell back into my old habit. Mary jane. It was my coping mechanism for so long. It felt safe. A month passed and the weather had gotten beautiful (this was roughly two weeks ago). I had two tabs of LSD laying in a storage space and a friend of mines curiosity had peaked regarding psychedelics. We decided to take one each, and go to the forest with another friend who was there to take care of us. It turned out to become one of the most spectacular events, visually. No solid shapes existed any more. Every person, every animal, and everything else turned into energy. As far as eye could see energy was dancing. This gave me closure. It changed something inside me. It took what I didn’t complete with the amazonian brew, and shut the gate. It has now been three weeks and I have made a pact to myself to never ever drink again. I am done with smoking weed. I am done with hurting my body and those around me. I am a changed man. My goal now is to spread as much joy and peace as humanly possible. To become wealthy so I can start helping other people who need it. I don’t want to focus on myself anymore (which used to be all I focused on). Ayahuasca will be used again, because it is a medicine and you do not get addicted to it. It is not a joy ride, but an enlightening journey through yourself and something way way beyond what we can explain. Is it real? Who knows, but from what I felt… how could it not be. How can you feel something like that and believe it is all fake. It just can’t be. So with this I hope you guys can see that there has been an alteration inside of me. I no longer regret my past mistakes. They have been dealt with. I feel reborn. I feel amazing every second every day of my waking life. Regardless of how I actually feel. Because I know that life is beautiful and there is a balance. You will receive equal amounts of bad and good in your life. As long as you keep focusing on the positive and work hard to not fall into your old habits. I wish I could share what I felt with all of you, but I know that these substances are not to be played with and you should NOT do them without experience, professional help or the mental strength to deal with it. Because it can ruin your life, but it can also change it for the better, if use with care. My last finishing words are that I have been using these substances with care for the past 9 years, and it was not until recently that I saw the healing potential. They can do amazing things. The world is opening up to it and more and more people are writing about them. Maybe one day there will be centres where you can go and do this. Because they make you rest and feel reborn. They can also break addiction or help cope with cancer or other illnesses that are terminal. Ps. No, I'm not a hippy just a man who wants to experience everything that life has to offer, as long as it yields positive results. I do not jump into things like this lightheartedly. Always with a deeper intention. I love you all. Be well and stay strong. Together we will make the world a beautiful place James
  6. Br J Dermatol 1994 Oct;131(4):541-5 Garioch JJ, Lewis HM, Sargent SA, Leonard JN, Fry L. Department of Dermatology, St Marys Hospital, London, U.K. Gluten-free diets have been used in the treatment of patients with dermatitis herpetiformis in our department since 1967. Of the 212 patients with dermatitis herpetiformis attending between 1967 and 1992, 133 managed to take the diet, and 78 of these achieved complete control of their rash by diet alone. Of the remaining 55 patients taking a gluten-free diet, all but three were taking partial diets; over half of these patients managed to substantially reduce the dose of medication required. Of the 77 patients taking a normal diet, eight entered spontaneous remission, giving a remission rate of 10%; a further two patients who had been taking gluten-free diets were found to have remitted when they resumed normal diets. Loss of IgA from the skin was observed in 10 of 41 (24%) patients taking strict gluten-free diets. These patients had been taking their diets for an average of 13 years (range 5-24 years), and their rash had been controlled by diet alone for an average of 10 years (range 3-16 years). The advantages of a gluten-free diet in the management of patients with dermatitis herpetiformis are: (i) the need for medication is reduced or abolished; (ii) there is resolution of the enteropathy, and (iii) patients experience a feeling of well-being after commencing the diet. Thus, we propose that a gluten-free diet is the most appropriate treatment for patients with dermatitis herpetiformis.
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