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12 year old diagnosed celiac daughter has "fallen off" the weight curve. She eats but very small quantities. (Please don't suggest high calorie shakes..foods etc ... already doing all of that). So far we've had negative results on gastric emptying, endoscopy, colonoscopy, etc. Going to do Small Bacterial Overgrowth test, impedance test, redo gastric emptying (doc feels previous hospital did it incorrectly). Gastro is very worried about her growth. She has not gained any weight this year. Extremely slow weight gain previous years. Celiac is controlled. Tried EVERYTHING with diet. Really wants to do an naso gastric feeding tube to give highly caloric/nutritious liquid feeding directly to her stomach. Has anyone had experience with this? Good? Bad? Please respond only if you or someone you know has actually done this. Thank you!

I'm almost 35 and basically only go to the doctor if I have a bacterial infection. I feel like when I bring up something about my body that I feel is out of the ordinary - I'm dismissed, so I don't usually push. That's getting old and no longer working for me as all my symptoms are getting worse and beginning to seem connected. Interested in any insight from those who have been there. About a decade ago I broke out in an itchy rash along my hairline, on my elbows, on my hips and my belly button. I went to a dermatologist who was fresh out of school and he biopsied an area for Celiac Disease and it came back negative. I recall him cutting out the actual bump and recently reading that is not the proper way to test?.. that you test skin next to the rash. Since that time I have had rashes breaking out on my hips regularly that result in a discoloration in pigment when the rash is at a clear point in the cycle. My elbows have gotten worse in the past couple years. I haven't experienced it along my hairline or my belly button since that first time. The rash itches and I pretty much scratch them open before I can see any fluid. (a few years prior I had a more minor breakout just on my hips and a doctor suspected shingles, my mom told me that a doctor suspected shingles when I was an infant as well at one point)... now I'm thinking that was wrong. Unexplained infertility & recurrent miscarriage & failure to thrive in kids: Right before the rash appeared, I went on Weight Watchers and since carbs are so many points, I avoided them. I did this for a year until I got pregnant and my nausea and indigestion were so bad that the only thing I thought comforted me were carbs. We saw a strong heartbeat at 9 weeks. We went back at 12 weeks and I there was no heartbeat. I had a missed miscarriage. I would not get pregnant again for 2 more years, despite trying. I saw a fertility doctor who wanted to check my tubes but I ended up getting pregnant with our son (now 5). My doctor knew I had a history of my progesterone fluctuating with the missed miscarriage and put me on vaginal suppositories of progesterone the first 12 weeks. My son was born 5 days overdue, induced and 6 lbs. 12 oz... he has been 5th percentile since he started solids. When my son turned one I had been eating healthy again and exercising and got pregnant but it was an ectopic pregnancy which ruptured/emergency surgery. I recovered and got pregnant again. My doctor didn't feel I needed progesterone but my levels dropped again and I had another D&C from the heart stopping. I was going to insist progesterone in the future. Several months later I got pregnant again with our daughter (now 2)... She is 10th percentile and declining some. She has had terrible gas from birth and rarely a solid stool. She has developed pretty bad eczema in the last year. I was so busy feeling emotional and obsessed with having children and all that does to your body allowed me to make excuses for my symptoms. Now, I'm coming out of a fog thinking a lot of this is connected. My bloodwork & family history: I just got hormone testing done thru my OBGYN and I'm low on thyroid and testosterone and vitamin D, she mentioned being low on iodine too - I'm not sure what all they tested for or didn't test for. I just selected a new PCP that I will be making an appointment with to do the celiac panel. My dad and his mom and aunt had a history of undiagnosed food allergies. They had terrible rashes and other issues and were afraid of the doctor. My dad loves food so much that he said he'd rather die early than give up things like pie. He had an allergy panel ran on his back and it came back positive for practically everything. You can touch his skin and there will be a rash moments later. He is constantly broken out and scratching his trunk of his body. I'm starting to get proactive about this more because of my children. If they're not just petite but malnourished from an undiagnosed disease, then that's on me! My other symptoms have been migraines, bloating, extreme gas (burping and farting), night sweats, overactive bladder, unquenchable thirst at times, extreme fatigue, achy and weak body and tight hips. I seem to be fluctuating lately between constipation and diarrhea - I used to be more regular. I'm just nervous that doctors are dismissive of people walking in thinking they have something. I'm really bad at being assertive. Of course, I don't want this diagnoses - it would make life harder but if it leads to a path of feeling better and my kids thriving, then I want to know ASAP. I should have been better about taking pictures but this is what I currently have on my phone of my elbows.

Hi, I'm new on here and wonder if anyone can help with what to ask gastroenterologist at my daughter's next appointment. My daughter is 6 year old, she has always been slim (around 2nd to 9th percentile) but has now dropped to around.0.4 percentile for age. She has been complaining of abdominal pains, nausea and bloating on and off for almost 2 years. She was originally tested by blood test (negative) 2 years ago and referred to ent for large tonsils and probable sleep apnoea. She had sleep studies and they decided symptoms were not bad enough to remove tonsils. She was having a lot of tonsillitis but not for past 2 years. She is eating more in the past 18 months than she has for many years and we are encouraging her to eat as much as possible, full fat milk, supper, lots of snacks, peanut butter, ice cream etc. She still fails to gain wait and has daily stomach pains, she is now complaining of dizziness for 6 weeks and no doctor can give us a cause. She was anemic 2 years ago but resolved with iron. She saw a gastroenterologist 2 months ago who did further bloods which came back negative. I should say at this point my father, uncle and cousin have coeliac. The gastroenterologist has sent her back to ent for possible removal of tonsils. We do have a review appointment with gastroenterologist in 2 weeks. The paediatrician who monitors her weight wants to push for an endoscopy, should I push for this ( obviously don't want to put her through this unless I have to), should I try her on gluten free diet, what questions should I be asking the consultant? Anyone have this experience with a child? Many thanks to anyone who can help