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I'm new to this site but have been using a lot lately trying to solve the mystery of my illness. I've been sick for over 4 years. I've had stomach problems my whole life but 4 years ago I woke up one morning sicker than I've ever been in my life and all these years since I have not fully better. I was tested for everything the doctor could think of, I went for tests twice a week for two months. But I don't remember them ever testing me for Celiac Disease or gluten intolerance, or even mentioning it's existence. The doctor told me that the stomach problems were being caused by anxiety and he referred me to a psychiatrist. I was put on Lamictal, Remeron, and Ativan and they helped with the anxiety, but not with the stomach problems. Going back to the doctor they ran more tests which all came back negative, and they said I may have Irritable Bowel Syndrome. The symptoms I have are much more severe than any IBS sufferer I can think of. I gave up on doctors and decided to try a gluten free diet to see what would happen. It definitely changed the way I'd been feeling, but I can't tell if it's better or worse. For 4 months after going gluten free I got worse. Much worse. So I did some research on gluten free food and realized half the stuff I'd been eating wasn't gluten free. I also have lactose intolerance, so that makes things more difficult food-wise. I also realized that I needed a separate toaster and microwave and cookware, etc. to prevent cross-contamination. So I've been truly gluten free for only a month or two. But then a few weeks ago I ate some candy I assumed was gluten free but was not. I lost 20 pounds in 4 days and I was so sick I couldn't do anything but sit and watch TV. So sick I couldn't sleep for two nights straight. I've been better from that gluten poisoning for a couple weeks but every so often I get a wave of symptoms that lasts a couple of hours then goes away. The other thing I noticed when I went gluten-free is that I don't get sick immediately after eating anymore (most of the time anyway). I can eat a meal and not feel horrible afterward. The downside is that since I've gone gluten free I've woken up in the morning and started dry heaving a few times. That never happened before I went gluten-free. I also can't seem to get rid of a constant feeling of hunger that sometimes gets to the point of making me feel ill. I don't know if all these symptoms are normal, but it can't all be caused by anxiety either. No doctor can find anything wrong with me in the past 4 years. The gluten-free diet is my last hope of getting better. I'd love to hear suggestions, comments, shared experiences. Wondering if anyone with Celiac has experienced these problems. Any advice is much appreciated! Thanks!
Hi, My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc. His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience? Thanks so much.