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Found 1 result

  1. Just had my 2nd visit with a new GI doctor I started seeing earlier this year. I was diagnosed with Celiac by another GI in June of 2015. Wasn't happy with him because he said he "might" diagnose only one celiac per year. Told me to just do gluten free and sent me on my way. Diagnosis was with EGD biopsies as well as celiac panel. If I remember correctly (only because it has been a year ago) my biopsies showed Marsh 3B for villi damage. This new GI told me yesterday that she was going to re-do the EGD, which I agreed with, but then she added "so this way we can really determine if it is Celiac or if you are just gluten sensitive and might just even get you to add some gluten back to your diet." My response? No way will I be putting gluten back into my diet in any way, shape or form. I explained to her I know what it does to me. I have determined that the only service she can be to me is to do my EGD's and give me my results. This is ridiculous. You go to a doctor and you have prior results showing the damage. But they still want to try and get you to "gradually put gluten back into your diet". How moronic can you be? You are supposed to be helping me feel better, not worse. I have already had to eliminate milk, by choice because of constant aching and swelling in my joints. Which I did explain this to the new GI. All she seemed to be concerned with was diarrhea, but I told her I do not have the diarrhea. Only time I get that way is when I have had milk and then I have bad gas pains, bloating, etc. then can't eat for several days because every thing (regardless of what it is) sets my system into a tizzy. I can see why people get so frustrated. I don't understand why doctors just won't listen to you. And it just hit me that she didn't even order new labs to check my tTG-IgA. Go figure. Guess she will do that after the EGD. My specific question to her nurse and to her when I first saw her was do you treat Celiac's and the answer was yes. Starting to think this won't be the doctor I stick with. We shall see after the EGD is done. Feeling even more frustrated now than when I was first diagnosed. Does anyone else have any recommendations? I know I have heard stories where people have gone through several doctors. But it just seems like a waste of time when all they need to do is check for certain things. What good is it to go to the doctor if they don't know what to do with the test results. Can anyone else share their story for when they were first diagnosed until they found the right doctor?
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