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Showing results for tags 'gas'.
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Hello! I was diagnosed with Celiac about 8 months ago and have been very strict gluten-free and DF since and still having bloating/distention that gets worse throughout the day until I look 6 months pregnant and very smelly gas and diarrhea/constipation. I have tried the following: - SIBO test - negative - Constipation med that made for even worse diarrhea - low Fodmap diet - no change/made things worse - pancreatic insufficiency test that said I had it - was on 2 different enzymes - neither did anything - now the pancreatic doctor doesn’t think I have it - 2nd endoscopy - small intestine looks healed up now - colonoscopy - looked good - CT scan - nothing notable except lots of stool built up in colon —- side note: I also have osteoporosis at 27 years old - on bone building medications. I was also very low in many vitamins like b12 and low in calcium and iron - take supplements/b12 shots for this. Any thoughts on what else I could try or what else might be going on? Thank you in advance!!
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Hi all, Looking to see if anyone who has been diagnosed has had similar experiences to me, as I want to know if a doctor will take me seriously if I ask for a test for celiac! About a year ago, when laying on my back in bed I noticed I would get lumps in my low right abdomen (around where I now know the ileocecal valve is) that felt like very localised bloating. If I put any kind of pressure on it, it would go, but it felt like half a golf ball. My partner has only been quick enough to feel it once, and agreed with me that it was there and I wasn’t imagining it(!), before it disappeared again. Over the last year I’ve gotten more bloated more often, and I’m often very uncomfortable in a lot of my clothes. I’ve had abdomen examinations, but the ‘lump’ of course never chooses that time to show up, and I’ve had nothing come up when I had ultrasounds of my pelvis and ovaries (phew). I’ve been given IBS tablets and peppermint capsules, and prescribed some antacids for the reflux I get - but I often still look/feel huge. I’m in my early 20’s and probably around a size 8-10, so when I look bloated I look about 4-5 months along. The IBS tablets help with some of the pains I get when feeling blocked up, and help get things moving - but my stool is often very soft, and quite mucusy. I know this is a lot of TMI, but I figure this is the place to be open about it, in the hopes someone can offer me some insight or reassurance. I’m often exhausted, bloated, switching somewhere between C and D, and dealing with recurrent thrush (probably unrelated but you never know!) … Thanks in advance, Lumpy Lady
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Celiac.com 07/02/2021 - Do you suffer from symptoms of abdominal pain, stomach aches, excess bloating, gas, diarrhea, fatigue, bone or joint pain, skin rashes, headaches, difficulty concentrating or irritability? Gluten, the major protein in wheat, barley and rye causes these symptoms in many people but most, including their physicians, are unaware that gluten is the cause and that a gluten-free diet may relieve these symptoms. Though there are diagnostic blood tests available for identifying gluten sensitivity, these test have limitations. Many physicians are unaware these blood tests are available, including genetic tests for the risk. Most physicians are also unaware of the broad manifestations of gluten sensitivity and fail to order tests that could diagnose the cause. Sadly, the condition often goes unrecognized and untreated when it is very common and reversible by simply following a gluten-free diet. No medications or surgery are required. Worldwide nearly 1 in 100 people have the most severe form of gluten sensitivity or intolerance known as Celiac disease though it is estimated that more than 90% are undiagnosed. Startlingly, many more than this, possibly 10-30% of people of northern European ancestry, have lesser forms of gluten sensitivity that causes symptoms that improve on a gluten free diet. The low carbohydrate diets have become popular because many have lost weight but they also frequently experienced dramatic improvements in general feeling of well being, increased energy, relief from fibromyalgia, joint aches, improved skin, fewer headaches, and improved digestive symptoms. However, many fail to gain full benefit because they don’t know they are gluten sensitive and have not completely eliminated gluten from their diet since gluten is present in so many foods that we eat. Gluten is insulinogenic, meaning it stimulates insulin release, and thereby promotes weight gain. Abnormal blood sugar regulation also often occurs. Some people will gain weight despite malabsorbing essential nutrients. It is now known that more than 10% of insulin dependent diabetics have celiac disease. What is not yet known is whether the celiac came first or the diabetes, but that they commonly occur together. Celiac disease is also commonly associated with other autoimmune conditions such as lupus, rheumatoid arthritis and thyroid problems. Celiac disease is a reversible cause of infertility, low birth weight infants, pre-term labor, and recurrent miscarriages. Untreated it is associated with a significantly increased risk of numerous cancers including all GI cancers and lymphoma. It is a common cause of unexplained anemia especially from iron deficiency and causes premature osteoporosis. Dietary elimination of gluten allows the intestine to heal so that absorption is normalized and symptoms are relieved. After five years of a gluten-free diet the cancer risk returns to normal as long as the individual remains gluten-free for life. Classic celiac disease is diagnosed by abnormal blood tests and an abnormal intestinal appearance on biopsy. Blood tests for celiac disease include antibody tests for gliadin (AGA), the toxic fraction of gluten; endomysial antibodies (EMA); and tissue transglutaminase antibody (tTG). High antibody levels to EMA and tTG are generally accepted as diagnostic for celiac disease though some individuals with celiac disease and most with lesser degrees of gluten sensitivity may have normal levels. AGA levels have, in the past, been considered very sensitive but not specific for celiac disease. Newer assays for AGA antibodies for gluten that has undergone a chemical change called deamidation that appears to be more specific for celiac disease (Gliadin II, Inova) may be as or more accurate than EMA and tTG antibody tests. However, lesser forms of gluten intolerance may be missed when any of these blood tests are normal or borderline and/or small intestine biopsy is normal or indeterminate. Stool antibody testing for antigliadin and tTG has been performed in research labs and published in a few studies. The commercial lab, Enterolab, now offers these tests though the former research gastroenterologist Dr. Ken Fine, who patented the test, has yet to publish the results of his findings in a peer reviewed journal. His unpublished data and the clinical experience of some of us who have used his test have indicated the tests are, to date, 100% sensitive for celiac disease. They are highly sensitive for gluten sensitivity of lesser degrees before blood tests or biopsies become abnormal but when symptoms exist. These symptoms reverse on a gluten-free diet instituted by those with abnormal stool antibody levels. Small intestine tissue obtained by biopsy during upper gastrointestinal endoscopy has been considered the “gold standard” for the diagnosis of celiac disease since the 1950s. However, recent studies have demonstrated that some people with gluten sensitivity, especially relatives of celiacs with few or no symptoms, may have changes from gluten injury in the intestine that can only be seen on a small intestine biopsy with special stains not routinely used, or on electron microscopy done in the research setting. Immunohistochemistry stains can detect increased numbers of specialized white blood cells called lymphocytes in the intestinal lining tips or villi as the earliest sign of gluten induced injury or irritation. Electron microscopy also reveals very early ultrastructural changes in some individuals when all other tests are normal. According to published research, when people are offered the option of gluten-free diet based on these abnormalities they have usually responded favorably, whereas those who continued to eat gluten often later developed classic celiac disease. What these studies suggest is that a “normal small intestine biopsy” may exclude celiac disease as defined by strict criteria but it does not exclude gluten sensitivity, a fact appreciated by many individuals who ultimately started a gluten-free diet based on their symptoms, family history, suggestive blood test or stool antibody test(s). Those few physicians who appreciate the concept of the spectrum of gluten intolerance or sensitivity are outnumbered by the medical majority that continues to insist on strict criteria for the diagnosis of celiac disease before recommending a gluten-free diet. Physicians either unfamiliar with the research on celiac or who are holding onto the strict criteria for celiac as the only indication for recommending a gluten free diet unfortunately often leave many gluten sensitive individuals confused or frustrated. Some seek answers on the Internet or from alternative practitioners. Many have their diagnosis missed, challenged, or dismissed. Others are misinformed or receive incomplete information. As a result many may fail to benefit from the health benefits of a gluten-free diet because they are advised that it is not required because they have normal blood tests and/or normal biopsies. Another source of confusion lies in the knowledge that certain genetic patterns are present in over 90% of individuals with celiac disease. Testing for such specific blood type patterns on white blood cells known as HLA DQ2 and DQ8 is increasingly employed to determine if a person carries the gene pattern predisposing to celiac disease. Some use the absence of these two patterns as a way of excluding the possibility of celiac disease and the need for testing or gluten-free diet. However, there are rare reports of classic Celiacs who are DQ2 and DQ8 negative. Moreover, recent studies indicate other DQ patterns may be associated with gluten sensitivity though very unlikely to predispose to classic celiac disease. Testing for all the DQ patterns has been advocated by Dr. Fine based on his experience with stool antibody testing that has revealed that the other DQ types are associated with elevated levels, symptoms, and positive response to gluten-free diet. According to his unpublished data, all the DQ types except DQ4 are associated with a risk of intolerance to gluten. Testing for the DQ types allows a person to determine if they carry one of the two high risk gene types for celiac disease or the other “minor” DQ type associated with gluten sensitivity but low risk for celiac disease. Enterolab also offers the stool testing for gliadin antibodies and tissue transglutaminase antibodies as well as several other stool tests for food intolerance or colitis. Though not widely accepted, these tests have gained favor with the lay public as an option for determining sensitivity to gluten or other food proteins, either despite negative blood tests and/or biopsies, or in place of the more invasive tests. Most recommend the accepted blood tests and small bowel biopsy for confirmation of celiac. The favorable reports in the lay community have been overwhelmingly positive though they can’t be subjected to peer review by the medical community prior to the publication of Dr. Fine’s data. Physicians open to the broader problem of gluten sensitivity are reporting these tests helpful in many patients suspected of gluten intolerance with negative blood tests and/or biopsies, though some are not certain how to interpret the tests. The national celiac organizations have difficulty commenting on their application without published research though a recent article in the British Medical Journal did show stool tests highly specific for celiac. Dr. Fine’s has publicly commented that his unpublished data demonstrates those with abnormal stool tests indicating gluten sensitivity overwhelmingly respond favorably to a gluten free diet with improvement of symptoms and general quality of life. There is no agreed-upon definition for gluten sensitivity or intolerance, especially for those who do not meet the strict criteria for celiac disease yet may have abnormal tests and/or symptoms that respond to gluten-free diet. Those individuals become confused when they realize that because they aren’t diagnosed with celiac disease, they don’t know where to turn for more information. Consensus in the medical community on definitions and more research in this area are greatly needed.
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- abdominal pain
- bloating
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Long read......Hi, I’m seeking some guidance here because I’m suspicious that I have at least a gluten intolerance because of constipation, bloating, tiredness, and hives. Here’s some background: I’m 18 years old. When I was 16, I started suffering from chronic hives that seemed to have no cause. We changed soaps, detergents, medicines, avoided allergens, etc, but I only got worse. I had extensive blood work which turned out normal in every area and eventually was sent to a counselor and put on Prozac (unrelated) for anxiety. After awhile, I just assumed the hives were caused by stress. I’ve had hives nearly every day since. 3-4 months ago, I had horrible sore throats that resembled strep. I developed horrible exhaustion to the point where I nearly fell asleep in class and took naps every day, which I never could do, and went to bed at 9:30-10. The strep tests came back negative twice, and eventually I was tested for mono which also came back negative. Soon after, I developed random bouts of canker sores all over my tongue, lips, and cheeks. Once one went away, another would develop. Now, I get them all over my tonsils as well, and I have pimple-like bumps in the back of my throat. I went gluten free for a week and the hives went away completely. I saw my doctor after this and explained the sores, hives, and exhaustion, and she shrugged all of it off, saying I needed to “eat better” because it would fix all of it. She would not test me for any conditions (celiac, hypothyroidism, Hashimoto’s, deficiencies, etc) and said I shouldn’t go into college self diagnosing myself with something I don’t have. I’ve reintroduced gluten and for two weeks I was fine, but lately I’ve been sleeping up to 12 hours at night and then taking 4-5 hour naps during the day. All I do anymore is sleep and I feel like it’s actuallyruining my life, on top of the horrible mouth sores!! How can I be tested? Do you have any ideas what the problem might be?
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- anxiety
- cankersores
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I have had bouts of burning, itching hands accompanied with little blisters for few years. Doc says it "contact dermatitis" and prescribed creams but they never work. They usually will go away after a few days on their own so I stopped even mentioning it to the doc. I also get little pimply blisters in my scalp, usually shortly after I notice the hands flaring up, they are also itchy as well. Also accompanied by a mild itch all over, arms, legs, and backside as well. The symptoms come on fast and are usually cleared up in a day or so. I have never been able to tie them to any particular even or food/drink, nor have I ever really thought about trying until lately. Regarding the hands - when this flares up they will itch and burn so bad I tend to scratch and rub them raw sometimes. It gets unbearable at points. I always have a bit of gas and feel a little bloated, sometimes worse that others (wife will attest to that lol). Was diagnosed with diverticulosis a few years back and have had a bout with diverticulitis (inflamed and needed meds to get it under control). Keep it under control since with fiber supplements daily. I'm always tired, can't lose weight even with dieting and the gastric band I had installed a couple of years ago. Trouble concentrating and holding attention to tasks at hand for years. Never would have thought about putting any of these together in a "pot of symptoms" until my wife read an article on gluten intolerance and celiac's. I am going to make an appointment to see my doc and try to get him to run some test for gluten intolerance but am not really sure what to say to him. I have been reading some posts on here and you all seem like a great group of helpful and informative people.. So any suggestions? Looking forward to some ideas! Tony
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- burning
- diverticulosis
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ok today is officially one week i've been gluten free and i haven't made any noticeable differences in feeling better. my first question is: how long should i wait to expect changes to occur? am i not giving it enough time? prior to going gluten free one of my issues was constipstion, as well as other health issues usually involving an upset stomach, nausea or an uneasy feeling in my stomach. but since going gluten free i have had a bowel movement different from usual. and today it was more loose and diarrhea like and it is very rarely like that. oh and about half way through the week i got a random rash pop up on one ankle???? advice or suggestions??
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