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Found 8 results

  1. Hi, I'm a 23 years old male and I've been suffering from severe reactions to gluten for about 5 years. My symptoms immediately after eating gluten (proportional to the amount ingested) are: Heart palpitations. Strong anxiety. High blood pressure. Belly bloating and strong indigestion. Strong water retention (depending on the amount ingested, anywhere from 4-6kg), seen on the scale in a day approx. Lots of energy, probably due to the high blood pressure or anxiety. Insomnia. Inability to rest. Whenever I eat gluten, I feel very energized and euphoric (and somehow very motivated to work and do stuff, and focused), but these comes with anxiety, heart palpitations, restlesness, bloating, etc. The problem is, I have done a gluten free diet for 3-4 months and my digestive issues, anxiety, etc were immediately and totally relieved, however, I got back to eating gluten because I was feeling very depressed, unable to enjoy any activity, very low mood, very strong brain fog, extreme fatigue, low sex drive, I had really low blood pressure and I was VERY hungry. I was never satisfied by any amount of food and I was gaining lots of weight, plus I felt very depressed all along. Whenever I eat some gluten (e.g. 1-2 slices of bread), I get instantly energized but the anxiety is strong and I retain many kilograms of water (alongside the big swelling of my lower abdomen), which makes me look quite fatter without actually eating more. What do you suggest I can do? It seems like a gluten free diet is not viable, and, after sticking to it for almost 4 months, I had to give it up as I was severely depressed, always hungry and tired, and could not keep going on with my daily life anymore. I feel like there's nothing I can do to feel completely good, since either eating gluten or going gluten free has its own set of side-effects. (Eating gluten keeps me mentally sane and going gluten free does not) Last, it seems that gluten-containing products, mostly bread and cookies, are the only thing that can reduce my hunger and make me feel full and energized. Note: I have done blood tests for celiac disease and got negative, but it was after I was 2 months into the gluten free diet so the doctor told me it might be a false negative. Any thoughts and help you can offer is greatly appreciated, I am very desperate about this. Thank you.
  2. Celiac.com 01/23/2017 - It makes some kind of sense that kids with celiac disease who follow a gluten-free diet will recover, their guts will normalize, and their levels of IgA tissue transglutaminase antibodies would drop to reflect this change; whereas high antibodies likely mean no recovery, right? But is that true? Is there really a correlation on any level? To test this idea, a team of researchers recently set out to document the rate of mucosal recovery in kids with celiac disease on a gluten-free diet. They also wanted to figure out whether IgA tissue transglutaminase (tTG) correlates with mucosal damage at the time of a repeat endoscopy with duodenal biopsy. The research team included Maureen M. Leonard, Dascha C. Weir, Maya DeGroote, Paul D. Mitchell, Prashant Singh, Jocelyn A. Silvester, Alan M. Leichtner, and Alessio Fasano. Their team conducted a retrospective chart review of one-hundred and three pediatric patients, under 21 years of age, with a diagnosis of celiac disease defined as Marsh 3 histology, and who underwent a repeat endoscopy with duodenal biopsy at least twelve months after initiating a gluten free diet. Their result showed that 19% of these pediatric patients treated with a gluten-free diet still had persistent enteropathy. At the time of the repeat biopsy, tTG was elevated in 43% of cases with persistent enteropathy, and in 32% of cases in which there was mucosal recovery. So, high tTG levels could be seen in both recovered patients, and non-recovered patients. The overall positive predictive value of the autoantibody tissue transglutaminase was 25%, and the negative predictive value was 83%, in patients on a gluten free diet for a average of 2.4 years. Nearly one in five children with celiac disease in this study population had persistent enteropathy, even with a gluten free diet. Also, IgA tTG was not an accurate marker of mucosal recovery. Neither the presence of symptoms, nor positive serology predicted a patient's histology at the time of repeat biopsy. These findings could help improve current monitoring and management criteria of celiac disease in children. Source: Journal of Pediatric Gastroenterology & Nutrition. doi: 10.1097/MPG.0000000000001460
  3. I was diagnosed with celiac on October 4th 2016. That day I switched my diet to gluten free everything. For a week or two after the diagnosis I felt alright. Anxiety was my worst symptom until recently. I haven't had a solid stool in about 8 to 10 days. I changed my cookware, sanitized my kitchen throughly, did just about everything I could prior to this cronic diahrrea. I did eat out once the day the symptom started. But it was at a place that claimed everything was gluten-free. (This could be one issue). Since eating out, for the past 10 days my diet has been boiled chicken and white rice with a little bit of the broth from the chicken and Greek yogurt. Every now and then a small piece of an apple. I did this for about 5 days straight and noticed that I had some hard stools and then it became challenging to go to the bathroom. On day 6 I added a small amount of carrots and spinach to the boiled chicken thinking that might help me go. It did, the next morning my stool was diarrhea again. So now I'm back to white rice and boiled chicken with a little bit of the broth from that. I added Gluten free oats yesterday morning and this morning along with a small slice of an apple. My questions are one, is diarrhea just something you are going to experience when you are first diagnosed with celiac and changing your diet? Second, is there any way to reduce this? I've been drinking lots of water to stay hydrated and my muscle twitching and cramps have gone up due to all this I believe. Finally, am I doing the right thing with this simple diet? I'd like to start some vitamin D3 and magnesium since I've heard that helps in the healing/recovery process. But I know magnesium may not be a good idea while having bouts of diarrhea. My first visit with my GI doctor is November the 9th. Is there any other foods I could eat right now? Thank you for the support!
  4. Hi, I've posted on here before and everyone's input was definitely helpful so I thought I'd do it again. I'm 22 and I was diagnosed with celiac via an endoscopy biopsy a year ago. After a couple of months of going gluten free, I was feeling really great and, dare I say, pretty close to being back to "normal." So from about January to July I was feeling well, other than once or twice when I was accidentally glutened. However, around July this past summer, I started having stomach problems again, including cramps, diarrhea, bloating and heartburn (which I never had heartburn until I got celiac). These symptoms are milder than when I had undiagnosed celiac, occurring 1 to 3 times a week, rather than almost every day like before. But still, they are pretty similar symptoms. I take immodium and bentyl pretty regularly, maybe overuse of the meds is messing me up. I got another round of labs done about 2 months ago, and everything came back normal. Thinking it might be another food allergy, I visited an allergist and they did skin tests and did not find anything. I am not having any histamine reactions, either, but I never really have from the get go. Of course, the allergist said that he could not really do much testing, otherwise, as blood work would not detect anything food related. He pretty much advised to take foods out of my diet to see how I'm feeling and try to narrow it down. As careful as I am, I know there is a risk of cross contamination. However, I didn't think I was THAT sensitive, as back in the winter I accidentally drank a sip of regular beer thinking it was my own, and felt fine the net day. So I figured that a teeny tiny amount did not really affect me. I am slightly frustrated in that I was feeling really well and out of nowhere I started slipping back again. I have read articles that say that a celiac's stomach is never fully healed, but they always seem gimmicky and promote a really specific diet. I am skeptical when reading things like, "gluten free diets alone don't work." But, I can't deny that I am still having issues. I am definitely willing to alter my diet in terms of eating more clean, but realistically I don't think I could ever go 100% clean. I eat pretty well already but, like everyone, I enjoy junk food once in a while and love dining out once a month or so. At this point, the next step is for me to go back to the gastro, but I wanted to see if I was maybe missing something or not thinking about something else that may be causing this. Basically I am wondering if anyone else has experienced something similar to this and if it was due to diet, or maybe another related gastrointestinal disorder. I am also not sure about which foods to test out removing from my diet. I went dairy free for a while and I was still having the same issues. Has anyone had their sensitivity increase after being gluten free for a few months? Is there a factor I could be neglecting to take into consideration? Any input would be greatly appreciated! Thanks.
  5. Hi I'm new and am not even sure whether or not my daughter has a gluten intolerance, but all signs point that way...so here I am. My 13 month old has been having digestive issues (constipation) for about 6 months, pretty much right after she started table foods. The only thing that gets things moving is miralax. Her pediatrician (Dr. K) referred us to a gastroenterologist (Dr. A), who sent us for blood work (fun!). The results show (I haven't personally seen them, we've spoke over the phone) that the allergy panel is relatively normal, with very, very mild allergies to gluten and milk. However, she is IgA deficient, so I know that can show false negatives. Dr.A wants to do an upper endoscopy to test for celiac, because he thinks that there is a good chance of her having it. We are not comfortable with this for our 13 month old. I suggested that we try a 100% gluten free diet and see if it makes a difference. I'm already eating a 70/30 gluten free diet as it is, for my own digestive concerns. I'm well aware of the commitment that it takes for a gluten-free diet and am willing to do that to help my baby. He told me not to go gluten-free if we are not doing the endoscopy. Also, if/when we decide to do the endoscopy we will have to reintroduce gluten to get accurate results, so we should just do it now. I understand his reasoning, but I don't agree with it. Has anyone dealt with something similar? What was the ultimate outcome? Did a diet change alone prove that your child has a gluten intolerance?
  6. I was diagnosed with celiac disease six weeks ago following an endoscopy/biopsy to confirm a positive blood test. Prior to being diagnosed I had never had any GI symptoms whatsoever. My wife used to tease me about how we could set a clock by the time of my daily bowel movements. I had a healthy appetite and was rarely among those who caught stomach bugs when they went around. I was only tested for celiac disease after dozens of other tests failed to turn up any explanation for my persistent anemia, low B12, peripheral neuropathy, concentration problems, and severe migratory joint pain. Even the doctor who ordered the blood test said she was just grasping at straws. Though surprised by the blood test results, I was desperate for some relief and thoroughly educated myself about the gluten free diet so by the time the biopsy was done, I was prepared to give up gluten, which I did that same day. My wife also gave up gluten, we cleared all gluten-containing foods, soaps, chapstick, etc out of our house, cleaned out the fridge, and bought new cutting boards and wooden spoons. Since then, I have not eaten a single thing without being able to confirm that it was completely gluten free. I have also kept a log of everything I have eaten. I was prepared for it to take a while for the diet to have a positive effect. I was not prepared to have numerous and severe new symptoms appear once I gave up gluten. For the past month, I have been nauseous, had no appetite, alternated between extremely severe diarrhea (to the point of being incontinent at the worst of it) and constipation, and had frequent (2-4 x week) bouts of severe abdominal pain that last 6-12 hours before easing up. The abdominal pain is the worst part and--at its worst--is comparable to the level of pain I felt when I broke my arm a few years ago, I've lost 15 lbs in the last 4 weeks. If I had experienced GI symptoms all along, I would understand why they aren't better yet. But why would eliminating gluten cause such severe new symptoms? Is this something others with celiac disease have experienced? Is it possible that the blood test and biopsy were false positives and the damage to my intestines was caused by something else (that gluten was helping to keep in check, maybe?) Any comments or thoughts would be appreciated.
  7. From the UK Daily Mail, after the ridiculous story in the Daily Beast earlier this week, "When Going Gluten Free is Dangerous" http://www.thedailyb...angerous.html�� comes yet another one of these slams on the necessity of a gluten free diet for those with gluten intolerance, even if one has not been formally diagnosed with celiac disease, claiming that it is the equivalent of an eating disorder. The Daily Mail conveniently quotes a Daily Beast story with the same theme. link: "Are gluten free dieters just hiding an eating disorder ? How self diagnosis of serious food allergy can help take diet to extremes" 1/28/2013 by Sadie Whitelocks http://www.dailymail...t-extremes.html This Dr Mark Borigini was also quoted in the earlier Daily Beast as a writer for Psychology Today. I looked up "Dr Mark Borigini" to see what his field of practice is, and he is - get this - indeed trained in rheumatology. He is listed online in medical doctor directories as that being his practice field. Not only that, but he has published online articles which quote him as an expert on addiction, has worked for the Veterans Administration in southern CA, and currently works for the NIH - National Institute of Health via the National Institute of Arthritis. I'm sure that there could be a reason a Federal government employee of the American VA (that's the Dept of Defense wing which also runs the veteran's medical care) and NIH, who specializes in rheumatology is getting quoted as an expert in celiac and gluten intolerance diet necessity, and spreading misinformation, in the British tabloid media the same week that Daily Beast ran their hit piece, but it would be speculation to ask why, wouldn't it, other than the publisher of Daily Beast is also Tina Brown ? The Daily Mail quotes the Daily Beast about a woman who went gluten free without being tested by a doctor: (bolding mine.) Obviously, one is supposed to then conclude, according to the Daily Mail and Daily Beast, that it could be up to 80% of Americans are fad dieting when they eat gluten free. And here we come to the heart of the matter: The FDA has yet to release the new regulations. And certainly everyone wants to get the last word in on that, whether or not it's a good word or a sort of "neeyah, we don't really need this anyway, since the majority of gluten free eaters could be merely neurotic people trying to lose weight."
  8. Hello everyone- I have recently been diagnosed with Celiac, and am experiencing some confusion with the instructions my doctor gave me regarding my diet. I have yet to get my biopsy, as I am low income and have to wait for the county to approve me for this procedure, but my blood test came back positive, and I have been fairly ill for the last five years. After diagnosis, I asked my doctor to go over the gluten free lifestyle and the best ways to avoid cross contamination, as well as keeping a gluten free kitchen (my partner still eats gluten). According to my doctor, she said there is no need for me to worry about cross contamination, or eating wherever I like. She said that it is stupid to have "celiac take over my whole life," and that as long as I am not intentionally ingesting gluten that I should heal, since my nutrients "aren't that bad." This is contrary to everything that I have read, or heard about celiac disease up to this point, and I am not apt to believe that I was given the best advice. If someone could clear up the confusion for me that would be great. I am being really diligent about not eating gluten because I am tired of being sick. And if cross contamination is going to continue to cause me to have bouts of horrible digestive issues like I've been having, I am not understanding the advice my doc gave me. Thank you so much!
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