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Found 4 results

  1. Iron: 17 mcg/dL (Low) November 11, 2016 Ferritin: 1.8 ng/mL (Low) November 11, 2016 RBC: 4.05x10^6/uL (Low) November 11, 2016 Hemoglobin: 8.5 gm/dL (Low) November 11, 2016 Vitamin D: 25.7 ng/mL (Low) February 22, 2017 ANA Profile : February 27, 2017 FANA: Positive FANA Titer: 1:640 FANA Pattern: Homogenous Gliadin IgA: 2 units June 29, 2017 Gliadin IgG: 3 units June 29,2017 TTG Ab IgA: <1 units/mL June 29, 2017 TTG Ab IgG: <1 units/mL June 29, 2017 Immunoglobulin A: 59.1 mg/Dl (Low) July 10, 2017 Immunoglobulin M: 44.2 mg/Dl (Low) July 10,2017 Immunoglobulin G: 1010.0 mg/Dl (Normal?) July 10, 2017 Immunoglobulin E: 5 KU/L July 10,2017 My RBC and Hemoglobin have come up and are normal. My iron levels will get high (too high) when I take 65 mg elemental iron twice a day for several weeks but my ferritin has never gotten over 42 ng/mL. When I stop taking my iron supplement my iron and ferritin plummet in just a matter of weeks. My hair is falling out, I get rapid heartbeat when I get too low on iron and if I get my iron too high. My whole body hurts especially my finger joints, back , knees and really all of my joints. Going to the bathroom at least 2 times day and sometimes up to 5 times a day. Extreme fatigue, Brain fog, extremely emotional and irritable. I just went gluten free July 1, 2017 and am starting to feel better. Joints feel better, I can sleep better, my mood is better. Celiac or maybe just gluten sensitive? Any thoughts? What do my labs say about me?
  2. I started having a lot of digestive issues and was tested for many things. I tested negative for celiac disease and positive lactose intolerance, fructose malabsorption, and SIBO. I was put on a low fodmap diet which excluded gluten. When I began to feel better, I tried adding gluten back in and had digestive symptoms return as well as a red bumps on my face with burning and itching and a strange tightness in my throat. A few weeks ago, I went on a vegan diet in an attempt to heal my gut and stopped eating gluten again as well, of course. Recently, I tried eating meat and discovered it gave me the same reaction; digestive discomfort, rash on my face, and terrible tightness in my throat. Has anyone else had issues with this? If I'm negative for celiac, could I have a wheat allergy? Could I have developed an allergy to animal protein because of damage to my gut? Also? I had been eating gluten free for quite some time when my doctor decided to do the blood test for celiac. She told me I only needed to eat gluten for a couple of days before being tested. I've looked around on here and see that many say you have to be back on gluten for 8-12 weeks!
  3. Let me explain some background information first. I have been diagnosed as "very gluten sensitive," because a blood test for celiac disease came back as negative (I had gone gluten free about a month before the blood test without knowing that I shouldn't have done that... oops.) The symptoms I have had for my entire life (or at least since I can remember) included gastrointestinal symptoms (diarrhea, abdominal pain, bloating, etc.), constant joint pain, etc. which deteriorated to pretty severe muscle weakness as well, which is what prompted me to get tested in the first place. I was at a point where I was considering a wheelchair.. couldn't walk more than a few steps at a time.. Anyways. So one of the (scariest) symptoms that I get whenever I eat gluten is all my muscles in my arms, hands, legs, and abdomen, basically are "paralyzed" in a way for 2-4 hours... I put "paralyzed" in quotes because I can still move my body, just with really great difficulty. I can't stand or hold anything, however, when this happens. I was glutened a few days ago and this happened and I tried to stand up to drink water and within seconds collapsed. Pretty scary. I woke up the next morning (after somehow crawling to bed) with little to no control of my abdomen muscles, and am just now starting to get a small percentage of muscle control and strength back. I also notice that my right eye twitches when this happens (and by the way has not stopped twitching sense being glutened a few days ago...) and this same eye has been feeling "fuzzy" as if there is cotton behind it and blurry vision. After doing research it sounds like gluten ataxia rather than celiac or gluten sensitivity. My question is, would it be worth it to try to get an official diagnosis, or just keep not eating gluten? I hope this post made sense. I am still kind of fuzzy headed.
  4. For those who are gluten sensitive and not confirmed celiacs I have a question for you. Do you strictly buy foods that are certified gluten free? Or can I get away with things that I know that should be gluten free but does not say it on the package? For example, baking soda, cornstarch and baking powder are some of my concerns. Do I need specifically gluten free cornstarch? I know to buy gluten free certified rolled oats because of the possible cross contamination. Speaking of cross contamination, do you take extra measures at home to avoid cross contamination? Such as dedicated toaster, dishes, sponges, etc? Separate butter containers? I'm only gluten sensitive and I don't know how sensitive I really am and if I need to take those extreme measures. Sorry, I'm just worried I could be sabotaging myself but finances plays a part in this and I don't know if I can afford everything to avoid every molecule of gluten.