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I am new to the forum and I was wondering of anyone can help me. I have been diagnosed with celiac disease 6 months ago. In the past 2 months I have been experienced many random NEW symptoms. They are mostly classic celiac disease symptoms, but it is strange that I am experiencing them for the first time after going gluten free. I have had nausea and abdominal pain after eating, little blisters all over my hands, etc. Most of these I was able to control by restricting my fodmap intake. However, since a month now, I have been losing a LOT of hair. It is at least down to half I used to have and I have no idea what is causing it. The only other symptom that appeared more or less at the same time and has not gone away concerns my skin. The skin on my chest became rough and now it even has little pimples. I initially thought it might be related to summer sun or me going off the birth control pill, but now I wonder if there is a common reason behind the hairloss and skin issues. When diagnosed I had rock bottom iron, b12 and folic acid, low vit D and normal vit A. I had iron IV and still having b12 injections. Iron and folic are back to normal, b12 almost normalized. I take vit D, folic acid, vit C and cod liver oil supplements, occasionally primrose oil as well. I stopped birth control pill shortly after diagnosis and do not wish to go back on. I am really worried about the hairloss, any ideas?
Hi everyone, I've been a lurker here for a while and now posting for the first time. First, a little background…I'm 37, female, originally from India and live in Riyadh KSA. Back in 2001, I was a regular 20 something young woman with no significant health issues. Then, after a round of hepatitis B immunizations, I developed excessive hair loss. A couple of doctors I went to dismissed it as dandruff or temporary shedding. Thyroid function was checked and was ok. Upon researching the situation my self, I found a published paper showing hepatitis b vaccine to be linked with hairloss as a side effect and began to believe that that was what had happened to me. The shedding went on over the years and in 2003 I started losing eyebrow and eyelashes as well. In Dec 2004 I had my first child and during the pregnancy realized that I'd lost a lot of body hair as well and my nails had become pitted. A doctor diagnosed me as having diffuse alopecia universalis. She suggested steroids and minoxidil as treatments but I declined to go that course. All of this has continued to this day and I've lost about 50-60 percent of hair all over my body with little to no regrowth. About four months ago I found out that alopecia and celiac might be connected. Actually, I'd known of the association previously but didn’t think that it applied to me since I'd eaten wheat all my life and never had problems. But then I read a few positive stories on another message forum and decided to go gluten free for 6 weeks at least and see if anything happened. The results really surprised me. First, I should say that I didn’t really go as strictly gluten free as a true celiac would, I didn’t knowingly eat anything with wheat, but I cook with regular flour for my family all the time in a common area so some of it would most definitely have ended up in my food. Never the less I did see some effects that I think are significant. One month into the diet, I saw that the pitting on the nails of my right hand was lesser and the middle finger nail actually had a patch that was clear! This was the first time in 8 yrs that it was like that. Also when I looked really close in the mirror I saw a few baby eyelash hairs on the lower lids. A couple of weeks later I could see a few tiny new hairs on my head! This really excited me and I decided to continue with the diet. It's been three months now, and I don’t know where to go from here. Unfortunately the clearing I'd seen in the nails has not progressed any further, I thought that with time the pits would disappear completely. And the funny thing is that the effect is only on the right hand and not on the left. Also, I don’t think there's any difference in the rate of shedding, I'm still losing hair but now there is some regrowth. So given my results, could I have celiac? I have absolutely no GI issues and no other health complaint. Sometimes I think that my energy level is lower than that of other ppl and I tire easily but then I do have three young children. Also, if its of any significance, ive been thin all my life. Some people consider me underweight….at 5'3" I'm 45 kg. I eat ok i think and cook most of my meals in butter or ghee ..recently had vitamin d checked that came out really low (10ng), hemoglobin was fine though (about 13) I know that for the blood tests I'd have to be eating wheat again. How long does it take for antibodies to develop? Oh I forgot to say, for the past 4 years I'd been having migraines, one every 3-5 weeks, sometimes more and they'd be so severe, the only thing I could do was lie in bed in a completely dark room. in the last three months, however I've had only one and that too only about 10% of the usual intensity. Thanks for reading and for any input anyone can provide. I've learnt a lot from the community here.