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Found 43 results

  1. Hello, What does my results mean? Am I allergic to gluten? tTg-IgG 8.62 tTg-IgA 3.02 Anti Gliadin IgA 93.24 And what’s the normal range for each? Thank you!
  2. Last week I got my ceilac penal results Although in my biopsy doctor confirm me as ceilac patient I am on gluten free diet since 3 month. Still some problems are there.. endomysial anti body IGA negative.. tissue transglutmanise Ab ,iga 5 u/ml. Immune globulin A is 213 . Thanks and any good vitamins.
  3. Hello Curious what your thoughts are. We are currently awaiting to get into children's hospital with my daughter. Her blood work showed low iga, not deficient but below normal so her Ttg iga wasn't positive. My hubby and I believe she gets it from him so he is also being tested, however he ate gluten free for a couple of months, not super long before he went back on gluten. He had two different blood tests both not positive however his Ttg-iga did increase. Do you think it would have increased if it's not possible it's celiac. His results: March 5 ttg iga 8 Ref range <16 units/ml normal April 16 ttg iga 13 ref range <16 units/ml normal I know these aren't the full panel. I just have a hard time believing his numbers wouldn't be rising if there wasn't something going on and I'm wondering if you've heard of this happening. Thanks
  4. Hello I'm wondering if anyone knows if we should retest in the future. My husband has suffered most of his life with symptoms that after many tests were deemed in his head. He went off gluten and finally found some relief. He went on the gluten challenge. He did a couple different blood tests here are his numbers: Taken at 2 and a half weeks after starting gluten challenge: Total IGA 1.27 (0.7-4.00 considered within normal range) IGA 8 (16 and over considered not within range) Taken at 2 months: Total IGA 1.36 (0.7-4.00 considered within normal range) IGA 13 (16 and over considered not within range) Is it normal for the numbers to rise? Also should we retest in the future? We are also waiting in results for my daughter. Thanks
  5. I don't understand, my igA was 246 in November, I got my celiac diagnosis December 13, 2017 at the age of 35. I just had my blood redrawn and now it's up to 257. I am so careful about not getting glutened. I have been feeling pretty good, I'm gluten-free, dairy free, and I cut out nightshades 2 weeks ago (rash on my left shin has since cleared up thanks to that discovery). Has anyone else dealt with this?
  6. I was diagnosed with Celiac disease in September when liver phosphate levels were high in annual blood work. Right after that IgA and endoscopy was performed which confirmed villi damage and high inflammation. Since Sep 2017, I have been on SGF diet. The reason I went for check up in first place was low iron, Vitamin A deficiency and abrupt weight gain. In last 2 years I have gained 20 lbs which is strangely high for active life style. Since last 6 months,being on gluten free and lactose free diet but my weight is increasing and swelling on face, feet is constantly there. Some days I wake up and weight 5 lbs less and other days I am swollen and weigh much more than my normal weight. It’s surprising to doctor about why weight and inflammation can’t be controlled even though I have been working with nutritionist and following strict diet. She put me on low FODMAP diet to address intestine inflammation. It seems like now even after introducing slowly, I can’t take any lentils or other grains which used to be main source of proteins for me. Any thing else than rice gives me stomach ache though it’s bought from gluten-free source. Being vegetarian whole my life and now gluten, lactose free, I am wondering if how can I control on weight and swelling issue. I have no thyroid issues but I am failing to control my weight even after eating control diet which is mainly Hemp protein, pumpkin seeds, other nuts, rice, potato, green vegetables, bell peppers squash. Anything else will make me highly bloated , painful stomach. Family thinks that I am paranoid and have psychological issues now. Any suggestions on reason for weight gain and uncontrollable swelling and how to take care of those. Appreciate help and thanks in advance!!
  7. Hi guys, this is a question specifically for those living in the UK who are under the NHS. If any of you have read my previous posts on iga deficiency you'll know i've been finding it difficult trying to get blood tests to check if i have a deficiency or not. I was just wondering if anyone in the UK, but also if anyone has had issues regarding this issue internationally your experiences are welcome too. I ask people within the UK, because I am being told by different doctors that IGA deficiency isn't available on NHS, but that it could be, and then i have also been told that depending on the results of my celiac panel they would test further for iga deficency.. But surely if you have a false negative celiac panel (which i have many times) then you should check for an iga deficiency or at least could be worth checking for that? But its so hard to get any doctor to listen properly. If its available on NHS, i'd like to try my hardest to get it done on the NHS as I am currently out of work because of how chronic my digestive issues are now. Maybe i've got my wires crossed on iga deficiency in which case if anyone has any links, or would like to correct me with some facts, that would be greatly appreciated. I ask because I have booked another appointment to see the fourth doctor within a month, and would like some idea on how to approach it and to know if i can request an iga deficiency blood test ( i believe its Igg blood test?) Any help appreciated, the sooner the better! thanks guys
  8. Celiac.com 11/11/2017 - (NOTE: This article is from 2012 and is being made available as Celiac.com rolls our past issues of Journal of Gluten Sensitivity) It's just like being a little kid with a super sore throat and your mom taking you to the doctor to get a test for strep throat. The doctor swabs your throat with two sticks to find out what nasty bacteria is camping out. In just moments you've got a diagnosis of strep throat and can start antibiotics to miraculously make the pain go away. You go home with a prescription, get in bed and eat mom's homemade chicken rice soup until you feel better in a couple of days. How cool would it be if getting diagnosed with celiac disease was this easy? The wonderful news is that we're getting closer to having a test that will diagnose celiac disease with just a simple prick of a finger and a 10-minute wait. The CeliacSure Test Kit measures (anti-tTG) IGA antibodies from a fingertip blood sample. It works by taking a small drop of blood, mixing it with a buffer and applying the mixture onto a test cartridge. Within moments two red lines appear if the test is positive, while only one line appears if the result is negative. And, you can take the test at home without ever getting out of your pajamas! "The test kit is a point-of-care, at-home test that's very similar to reading results of a pregnancy test," said Dr. Daniel Leffler of the Celiac Disease Center at Beth Israel Deaconess Medical Center in Boston. Dr. Leffler, a gastroenterologist by training with a background in nutrition, has a long-standing interest in celiac disease. Several years ago he teamed up with Dr. Ciaran Kelly and Dietitian Melinda Dennis to found the Celiac Disease Center at Beth Israel Deaconess Medical Center where they focus not only on providing top notch patient care, but also on high level disease research. The latest project: studying the efficacy of the CeliacSure test for celiac disease diagnosis. Dr. Leffler said his team got involved with the finger prick test study because they feel it's important to take down barriers to patients getting diagnosed with celiac disease. "We do a lot with educating other medical providers about offering in-clinic testing, but I think it's really important to put a tool in the hands of the people." "We've teamed up with the [marketers] of the test kit at GlutenPro/Biocard CeliacSure Test to see how effective this test is in the USA. We're providing 2 kits per family to use on first-degree relatives of people with celiac disease. To qualify, participants in the study must not be on a gluten-free diet. We send them the test kit to take as well as a survey about their ability to use and understand the test. The goal is that this small study comes out favorable [sic] so we can move on to large scale studies that will compare the finger prick test to the gold standard laboratory serology testing." Dr. Leffler says he's really excited about the potential of this point-of-care test because it will "allow us to reach a population that might not otherwise come in to get tested, mainly first degree relatives of patients already diagnosed with celiac disease." It's important to note that right now the CeliacSure test is only for research purposes, not actual diagnosis. It is available in Canada and other countries, but it's still under evaluation here in the United States. And, while the strep throat analogy is a great way to think about how this test will work, it's extremely important to understand that if you get a positive result with the CeliacSure test, do not start a gluten-free diet until you have followed up with a doctor to confirm the diagnosis. As with all medical studies there's some fine print you need to know about. Participants in the study must meet all of the following criteria: 1. Over the age of 18 2. A first or second degree relative with celiac disease 3. Not previously diagnosed with celiac disease 4. Not on a gluten-free diet or low-gluten diet within the past 3 months 5. Able and willing to self administer the test, complete a short survey form and return both in the envelope provided 6. Willingness to have follow up medical evaluation in the event of a positive test 7. A resident of the United States Listen to a full interview with Dr. Leffler about the CeliacSure study on the Hold the Gluten Podcast (http://traffic.libsyn.com/holdthegluten/050_HoldTheGluten-05Apr2012.mp3) with Vanessa Maltin Weisbrod and Maureen Stanley now! And, if you would like to participate in the study, please contact Dr. Toufic Kabbani at celiac@bidmc.harvard.edu or by phone at 617-667-0528.
  9. Hi, I went to my GP with stomach pains, bloating, fatigue, numbness in hands/feet. They suggested a celiac screening, and my results are as follows: Immunoglobulin A (range 70-400 mg/dL) result: 237 (in range) Endomysial IgA Abs, IFA NEGATIVE result: NEGATIVE titer (in range) Transglutaminase Ab,IgA (range <15.0 U/mL) result: <0.5 (in range) Gliadin Deamidated Ab,IgG (range <15.0 U/mL) result: 0.5 (in range) Gliadin Deamidated Ab,IgA (range <15.0 U/mL) result: 18.6 High My GP suggested i see a Celiac specializing GI. I keep getting mixed messages online when I research what these results mean, and I couldn't get an appointment for a few weeks. Any suggestions/advice would be greatly appreciated! thank you!
  10. I recently took a blood test and went over the results with my GI doctor who will be performing and endoscopy and colonoscopy on me soon. I can't remember exactly what she said, but I believe she was talking about my IGA-TTG levels. She said the normal range was under 10 but mine was 639. I think she was talking about IGA-TTG but I'm not sure. For people who have done this test what were your high levels? Thanks! Female, 16
  11. Celiac.com 10/13/2017 - Tissue transglutaminase (tTG) immunoglobulin A (IgA) testing is a sensitive adjunct to the diagnosis of coeliac disease. The threshold for positivity was developed for diagnosis, with negative results reported as below the reference value (<4 U/mL). A team of researchers recently set out to investigate if an undetectable tissue transglutaminase IgA antibodies (tTG IgA<1.2 U/mL) is more predictive of healing compared to patients with negative but detectable serology (1.2-3.9 U/mL). The research team included H. Fang, K. S. King, J. J. Larson, M. R. Snyder, T. T. Wu, M. J. Gandhi, and J. A. Murray. They are variously affiliated with the Department of Medicine, the Division of Gastroenterology and Hepatology, the Division of Anatomic Pathology, the Division of Clinical Biochemistry and Immunology, the Division of Biomedical Statistics and Informatics, and the Division of Transfusion Medicine at the Mayo Clinic, Rochester, MN, USA. The research team conducted a retrospective study of 402 treated coeliac disease patients seen at the Mayo Clinic with negative tTG IgA values drawn within 1 month of duodenal biopsy between January 2009 and December 2015. The team used Corazza-Villanacci scores to assess mucosal healing, and logistic regression to assess the relationship of clinical variables with a normal biopsy. They also noted the presence of gastrointestinal symptoms. Their results showed that patients with undetectable test levels more frequently had normal duodenal histology, as compared with patients with detectable tTG IgA levels. Asymptomatic patients more often showed normal duodenal histology as compared to symptomatic patients. Patients with undetectable blood levels, and who followed a gluten-free diet for ≥2 years were more likely to have no villous atrophy, as compared to patients with detectable blood levels. Follow-up biopsies revealed that people recovering from celiac disease with negative tTG IgA serology showed that undetectable test levels are associated with normal histology. Source: AP&T
  12. Iron: 17 mcg/dL (Low) November 11, 2016 Ferritin: 1.8 ng/mL (Low) November 11, 2016 RBC: 4.05x10^6/uL (Low) November 11, 2016 Hemoglobin: 8.5 gm/dL (Low) November 11, 2016 Vitamin D: 25.7 ng/mL (Low) February 22, 2017 ANA Profile : February 27, 2017 FANA: Positive FANA Titer: 1:640 FANA Pattern: Homogenous Gliadin IgA: 2 units June 29, 2017 Gliadin IgG: 3 units June 29,2017 TTG Ab IgA: <1 units/mL June 29, 2017 TTG Ab IgG: <1 units/mL June 29, 2017 Immunoglobulin A: 59.1 mg/Dl (Low) July 10, 2017 Immunoglobulin M: 44.2 mg/Dl (Low) July 10,2017 Immunoglobulin G: 1010.0 mg/Dl (Normal?) July 10, 2017 Immunoglobulin E: 5 KU/L July 10,2017 My RBC and Hemoglobin have come up and are normal. My iron levels will get high (too high) when I take 65 mg elemental iron twice a day for several weeks but my ferritin has never gotten over 42 ng/mL. When I stop taking my iron supplement my iron and ferritin plummet in just a matter of weeks. My hair is falling out, I get rapid heartbeat when I get too low on iron and if I get my iron too high. My whole body hurts especially my finger joints, back , knees and really all of my joints. Going to the bathroom at least 2 times day and sometimes up to 5 times a day. Extreme fatigue, Brain fog, extremely emotional and irritable. I just went gluten free July 1, 2017 and am starting to feel better. Joints feel better, I can sleep better, my mood is better. Celiac or maybe just gluten sensitive? Any thoughts? What do my labs say about me?
  13. Hi Celiac community, I got a stress fracture and then went to a bone doctor, who tested me for Celiac. I was surprised (but not really, I had terrible symptoms to wheat as an infant but that is another story) when my blood test results came back. Anti tTransglutaminase, IgA was >250 (normal 0-13), and Anti Deaminated Gliadin, IgG was 68 (normal 0-13). At the same time, my TSH was a bit low so I was advised to drop my thyroid dose, which I have done. A week later, I left for an internship overseas, and have to wait 3 months to get scoped. Due to my stress fracture, my doctor advised me to eat gluten-free anyway, which I have been doing (with a few mishaps, argh, and I am still eating oats). I feel like I am sitting in limbo--do I have Celiac's or not? I realize this is not somewhere I can get a definitive diagnosis, but what is the probability that these tests were false positives due to my thyroid medication being too high? I will get scoped next month or do a genetic test, or both.
  14. Hi all I am new to the group and extremely confused! A little background about me - I have not had a solid stool in 6 years. Yup 6 flipping years My original family doctor said it was IBS - tested for parasites etc (all negative) and told me to move on. I got a new GP and at this point it had been 4 years of solely diarrhea so he referred me to a specialist . I literally go 8-11 times a day - it's insane IMO. Anyways I received my blood results that were 2.75g/l for IGA and TTG 0.05% (for which I have no idea what this is/means) other than that it is negative? no idea how close to negative or not. I had an endo scope and a colonoscopy as well. My GI called me and said "I rarely have pathologist call me about files but I have a meeting with 2 to discuss your findings' and said my results came back essentially positive for celiac, crohn's and some colitis' and that my throat is so narrow as it is so lined with white blood cells there is a growing concern of choking. She said they are so confused as essentially I am missing an element of each disease ie crohn's while my biopsies are positive there are no ulcers visible to her - so I have an MRI in 2 weeks Celiac my blood is negative so she doesn't think it is that,,,,anyways I went and saw an allergist yesterday and he was 99% that it is celiac - he diagnosed the rash on my hands as dermatitis herpetiformis, my nail beds and being indicative to malnutrition (bumpy/brittle) and said the little silica like fat globs I describe in my stool all point to celiac any insight or able to decipher the blood test results? Sorry if this is confusing or poorly written Im soooooooooo tired! Thank you for responding/reading
  15. Two years ago I suffered from a bout of diarrhea and abdominal pain for 7 days. During this time period I ate HEAVY amounts of gluten. Sometimes two sandwiches w/ wheat bread 2 times a day, pasta for dinner, and honey wheat smacks at night. I went to doctor and eventually GI. The tests they ran came in as follows: Total IGA - Normal EMA IGA - Negative tTG IGA - Negative Gliadin DP IgA - Negative Gliadin DP IgG - POSITIVE; Score of 43 U/mL Gene Test: LOW RISK DQ2.2 Heterozygous By the time I saw the GI my symptoms had subsided. He told me not to worry and that Celiac is highly unlikely. Said biopsy wasn't necessary given my genetic markers and lack of symptoms. I wasn't convinced so I monitored my body closely. As 2015 went on symptoms would reoccur but were mild. I'd have abdominal pain and lose stools for one day. Eventually these attacks disappeared even though I continued eating gluten. In 2016 I had my next physical. No flags and no signs of malabsorbtion. Numbers were literally perfect. If I have Celiac, symptoms are EXTREMELY MILD. At least two times a month I get a minor headache. I had a few canker sores last summer. Sometimes I have minor bloating. Had a loose stool last month. But overall, I am very healthy. I run 2-3 miles a day, have a very physically intensive job, and feel great. So obviously I'm getting some mixed signals here. These symptoms appear in healthy people as well! Also there is no consistency in symptoms! I can still eat a big mac and feel fine! I am in the process of getting 2nd opinion. On one hand I fear that I'm in the early stages of Celiac. But at the same time I don't want to follow a highly restrictive diet unless its necessary. On the other hand, I've read studies how high gluten intake can lead to something called leaky gut (even in healthy people). So it is possible I inflamed my gut temporarily and then healed after a few months. Either way I need an answer. Even though I feel good now I don't want to wake up with cancer in ten years! What is your assessment of my situation? Also, do some of you also have VERY MILD symptoms? What did your labs look like and did you have any signs of malabsorbtion? Finally, do any of you have this low risk 2.2 Heterozygous gene? Like I said I'm getting another opinion shortly. But I'd like some peace of mind either way.
  16. I'm not sure if this is a personal topic to talk about or not but I was just wondering what other peoples IgA level was after they got there blood work results in? Mine seemed very high but I wanted to know what other people's number was? Mine was 128.
  17. Hello, My GP has advised a two week gluten challenge. I've never fully removed gluten from my diet but for the past year I've eaten smaller quantities. I'm on day 7 of the challenge and I've had the worst headache and bloating that I've had in ages! I feel sick and the thought of eating more wheat makes me shudder. My previous bloods have shown inflammation and high igA levels on and off. What exactly do they look for in the igA levels? Could high igA alone suggest I'm coeliac? Would one more week of eating gluten really be enough time? How long does it take to then see a gastro for a biopsy on the NHS? I'm wondering as I'm running out of time to be tested before I go travelling for 6 months and my GP isn't coeliac aware as such
  18. Hi, my doctor said I can take the endoscopy with duodenal to rule out celiac disease since my TTG IgG was positive. But since my IgA was such a low yield she recommends I get other blood works done before considering taking the endoscopy. Here's a list of my results of the test she wanted me take IgA: 0.21 normal range is <= 0.90 (negative)I IgG: 1.28 normal range is <= 1.28 (positive) Thyroid Stimulating Hormone (TSH) 4.47 ulU/mL range 0-4 (slightly above normal) Free Thyroxine (T4) 1.1 ng/dl (Dr. says normal) C-Reactive Protein), Serum <0.1 mg/dl (Dr. says normal) Erythrocyte Sedimentation Rate (ESR) 15 mm/hr range 0-20 mm/hr (normal) Complete Blood Count (Dr. says everything was normal here) White Blood Cell Differential ( Dr. says everything was normal here) Screen for Fecal (Stool) Fat (Everything was normal) It looks like based on my results that everything is normal but my IgG antibody was high, and I have slight hypothyroidism which my dr. said they will monitor. I'm thinking maybe I won't take the endoscopy and just assume I have a non-celiac gluten sensitivity since there's not enough evidence that I have celiac. My symptoms right now are diarrhea, distension, itchy skin/burning rash on face, bloating, abdominal pains, tinnitus, sinus issues, anxiety, and restless legs at night. I find my symptoms improve when off gluten and wanted to know if I have celiac so I don't make myself even more sick in the future. I want to know if I should be even more strict about avoiding gluten than I am now and not cross containment. Thanks for reading my post!
  19. Hi Everyone, I just recently got a transglutaminase A (tTG) blood test done recently because I wanted to rule out having celiac disease since I’ve been having IBS like symptoms. My results were conflicting and I don’t know If I should be concerned I might have celiac disease. I’m also looking to get pregnant soon and wanted to make sure I don’t put myself or my baby in harm if I do have celiac disease. My symptoms, have been slightly burning itchy skin on my chin, abominal pain, bloating, recurrent diarrhea, hormonal imbalance, and general IBS symptoms. My results: IgA: 0.21 normal range is <= 0.90 (negative) IgG: 1.28 normal range is <= 1.28 (positive) My dr. says she thinks that I probably don’t have celiac disease based on my symptoms, but the results are inconclusive so she is not sure. She said she will direct it to the gastroenterologist to give me a diagonsis and will get back to me. I was wondering if others had conflicting results and should I brush it off if the Dr. tells me I don’t have celiac disease? Should I get a second opinion? Not sure what other questions I should ask or if I'm missing something. Thank you, Teresa
  20. Hi everyone, I'm a 27-year old woman living in the Netherlands. I first started seeing my GP in 2009, when my stomach/belly problems got really out of hand and I got extremely tired en depressed (and lots of other strange symtoms). To make a long story short: I had a colonoscopy that showed a mild chronic proctitis (probably not Colitis Ulcerosa or Crohns) I was diagnosed with a huge B12 deficiency (52); Folic acid deficiency (4) Ferritin deficiency (3) Vitamin D deficiency Celiac bloodtest was negative, so the doctors were very clear I didn't had it. I knew the test wasn't 100% sure, but they -I've also got a second opinion- refused to look any further. I've been thinking about Celiac before I went to the GP en these test results only got me more suspicious. I've never had a gastroscopy and I still don't know the cause of my B12 deficiency (I also had no Pernicious Aneamia antibodies). I gave up and figured I had to feel better with B12 shots en other vitamin suppletion. My stomach problems got way milder, but I never felt any better. Actually, I only got feeling worse. I was extremely tired all the time, got more depressed, couldn't study anymore not only because of a tired and weak body, but I coundn't concentrate anymore and basically got really STUPID. I had to quit my studies and there I was, doing absolutely nothing. I can't study, I can't work. I did go back to school after a 2,5 year break, but I ended up home again within a month. I had to eat a lot to stay up on my feet, but I didn't feel better. It made me go to the bathroom more en I still was very tired. Now, 7 years later I still feel horrible, possibly even worse than before. I still get weekly B12 shots and daily vitamin D, folic acid and magnesium. I'm so tired and I have to get more than 12 hours of sleep a day (more if I can). My body is weak, sometimes I feel like I can't stand up anymore. I can't let Celiac go. Apparently there is still something that makes me sick and food is the only thing left. Also, the proctitis and deficiencies are very common with Cealic. The extreme fatique, depression, brain fog... I find it hard to believe that it's all just a coincidence, so I went to (my new) GP asking for another Cealic test (maybe after 7 years I developed antibodies?). The results were negative, with IgA tTG: <1. So very very negative. My total IgA was 0.7 (references according to my lab <0.7 - 4.0) They didn't do any further testing (IgG) I definitely have a LOW IgA and a partial IgA deficiency (when your IgA levels are below 1.2). I've been searching all over the internet and according to some studies you already have a severe/"complete" IgA deficiency when you are below 0.8 or even 0.9. It's confusing, as I am below those two. My question is: is a total IgA of 0.7 mean that I can't make antibodies and my Celiac test will always be negative, while my actual chance of having Celiac is higher? Does anyone have had the same thing? It's all so confusing and I just can't take it anymore. It's hard to believe all of the aboves are just coincidental. Hope someone can help me out, cause I really can't take this anymore and the doctors don't know anything about this and keep saying everything is fine. I still am fighting to have some final answers and I won't give up this time. I made this topic only to get some answers to the question above. I also would love to hear similar stories. Thank you for reading my (not so short after all) story!
  21. I just got my test results back for Celiac. While I was not diagnosed with it, I want to get someone's opinion on my test result levels because while I'm in the "normal range," my numbers are so low. Is it something I should be concerned about? Also, I have been trying to avoid too many carbs, therefore haven't had a lot of bread or rice for the past couple of weeks, would that have affected my test results? Immunoglobulin A - 220 mg/dL (standard range 71-397 mg/dL) Transglutaminase iga - <0.5 U/mL (standard range <15 U/mL) Transglut ab igg - <0.8 U/mL (standard range <15 U/mL) Gliadin pep ab iga - 0.9 (standard range <15 U/mL) Gliadin pep ab igg - <0.4 U/mL (standard range <15 U/mL))
  22. Hi All- new here and new to all of this. Quick info: I have hashimoto's disease and was hoping that trying gluten free might help with some ongoing symptoms that have not been relieved by levothyroxine and liothyronine (synthroid and cytomel). Well- one my main symptoms has been weight gain and an inability to lose weight and in the past couple of months since reducing gluten I've lost 30 pounds without really any other change to my diet/exercise. In the past month I've done my best to remove it completely (using apps etc. to scan my food) but since I am new at it there have of course been some misses on things that it is in and times that I've fudged it thinking it wouldn't matter. Additionally, I've always struggled with GI issues on and off. There have been times where I've seen the GI doctor for frequent diarrhea and mid-stomach pain without anything being resolved in terms of diagnosis, and then periods where I haven't had as much issue with these things. Since going gluten free I was feeling things were more regular, but having some out of town visitors and eating out more led to less meticulousness on my part. I was still getting gluten free items but not checking all the time if say fries were not coated in something, etc. and noticing more stomach upset and sometimes a cough/sneezing/nose congestion- which has also been an issue for me (I don't know if this is typically something that goes with Celiac or something else entirely, but something I've noticed when I eat often nonetheless). Anyway, I saw my regular doctor and mentioned this all to her and she did the bloodwork for Celiac, which came back negative. I've read that if one has been on a gluten free diet for 2+ weeks it can lead to inaccurate test results. I am wondering if anyone has had this experience and is something I should continue to pursue? Or if considering the information I've laid it is probably the case that Celiac is not to blame for whatever is going on and maybe I just have some kind of intolerance related to my hashimoto's as I'd originally suspected. Either way I surely have seen a benefit from eliminating gluten and my body has an issue with it, I would just prefer to know if it may still be Celiac that is causing GI and other gluten related problems for me! I've kind of gotten to that point with things that I'm worn down from pressing doctors about my thyroid and getting nowhere, don't want to do it with this one too if it's not going to be worth it. Thanks in advance!
  23. My IgA is low, so the Celiac Reflex was triggered to do the Celiac Disease Dual Antigen Screen. This test was negative (result 4; ref range 0-19). The problem is, I have low IgG as well. My understanding is that if serum IgA is low, the celiac tests involving IgA antibodies can give a false negative. My question is, does this same logic apply to low IgG? I appreciate any input. I know you all will be more helpful than the doctor who ordered the test... this was his message after the tests were resulted: "Celiac disease testing was negative. A low IgA level is no concern. IgA level is high in celiac disease."
  24. I have had anemia for years. Recently I had brain fog, headaches, nausea, and fatigue. My Iga came back >100.0 H positive. Igg 7.1H weak positive. Dr. Said this is because I naturally prefer rice so it was a weak positive. My question is this. Do I have celiac? I am changing everything about my life based on the above numbers which I don't totally understand. Dr. Told me to go to the grocery store and "see you in a month for your annual physical".
  25. 2001- suddenly and without warning developed hay fever 2002 - went to the doctors complaining of constant diarrhoea 2003- diagnosed with carpal tunnel syndrom after getting numb hands and arms and persistent pins and needles along with shooting pains which felt like hot pokers were being inserted in my body. 2006- starting to get easily fatigued and tired, often fall asleep when coming home, sometimes while lying on the floor playing with my daughter 2010-went to doctors with consistent pain in lower right side of rib cage, so bad at times that I couldn't sleep on my right side. Scan revealed no alcoholic fatty liver disease and raised alt 2011- starting to get major headaches and neck ache at the base of my skull 2012-memory starting to get bad 2013-memory still deteriorating and starting to get bouts of confusion, gave up clay pigeon shooting as I had a confusion attack while shooting and felt that for people's safety I needed to stop. Starting to get ringing in ears. 2014- confusion attacks and memory getting so bad that I felt I was developing dementia at 44! Started recording in my phone details of symptoms and problems. Ringing in left ear constant but occasionally progresses to right ear as well. Occasionally getting dizzy spells with the confusion. 2015-heard about lymes disease on the radio and the symptoms seemed to click (also knew I had been bitten by a tick in the past) decided to get checked out-my doctor actually laughed at me and said you can't have lymes disease! Blood test taken and not lymes but symptoms carried on....went and seen another doctor (this time a trainee) she decided to check my folate and B12 levels. Bingo! Low folate of 4.1 minimum should be 4.7. Put on folic acid and went on healthy eating binge with lots of fresh meat and green leafy vegetables. Amazing improvement....felt better and folate level went up to 20 in 4 weeks, also gave the doctor a copy of my multi vitamins I was taking for 7-8 months prior to blood test-containing the recommend daily dose of B12 and folic acid (so how could my folate be so low?) told to stop folic acid, eat normally and come back in 4 weeks, folate level dropped to 7 in space of 4 weeks, feeling crappy again. Told to take folic acid for a year but keep eating leafy greens (I now eat more spinach than Popeye!) refused referral to memory specialist and gastroenterologist. Dizzy spells getting worse. Gland in right side of neck under ear always swollen when I'm feeling really bad. 2 more doctors visits refused memory specialist/neurologist and a gastroenterologist again and again. Told I have IBS and that's it. however- memory still pants, and carpal tunnel and numbness headaches etc still happening, liver pain intermittent, starting to get spasms in my arms and legs sometimes like a bug is crawling under my skin. Kept going to doctors as feeling down and lacking any excitement for life in general, told I am depressed and need anti depressants. These gave me the worst headaches of my life and stopped them after a week without any improvement in my mood I might add. Doctors again in December of 2015- this time doctor tests me for Coeliac disease, eeerrrr ok ?! Had the blood test and went gluten free until I got the results. WOW what a difference!! No aches or pains anywhere for like the first time in 14-15 years, headaches cleared after 2 weeks, no carpal tunnel, diarrhoea stopped too. Sleeping better, and no confusion although my memory didn't improve. blood test results- one of the two was inconclusive 2nd said non-coeliac ??????????? Puzzled but as I was feeling better I carried on with the gluten free diet and I had some Peronni grand reserva lagers on New Year's Eve, bad idea! In bed within 2 hours, bloated, headaches feeling like I have flu. Next day-major dizzy spells and god awful ringing in both ears. Took 3 days to feel better. Still on gluten free diet as I was feeling so much better. mid January 2016- accidentally had gluten in the form of barley in a 10gm sachet of brown sauce on a breakfast of tomatoes, bacon, eggs and mushrooms. Two hours later headache, diarrhoea, feeling sick as hell, home to bed. Next day couldn't even stand up dizzy spells were so bad as was the ringing in my ears. Decided to see a gastroenterologist privately. Spent 3 days in bed with what I would describe as severe flu but no cough or runny nose. tested for coeliac disease again, but doctor seemed to ask me more pertinent questions, concerned about my liver and 13 years of diarrhoea. Books me in for an endoscopy and colonoscopy straight away (on the nhs as he is private and nhs) runs some bloods, iga comes back as 3.7-normal, elevated liver enzymes, elevated ige. Writes letter to my gp saying I might need an mri depending on results of biopsies. Suggests to my gp in his letter that I might be seronegative. Go to my gp, told him I am in for a biopsies and he says make sure you are eating gluten, still wants me to go on anti depressants and says I'm unlikely to be coeliac due to my iga results (in a period of 5 weeks when I accidentally ate gluten twice two weeks apart). 17-03-16 still waiting for biopsies, but remembered something after reading the posts on here.... I often get insanely itchy blisters on my ears, full of lager coloured fluid(usually I pop them to make them scab and disappear quicker) I also remember getting similar ones but not so fluid filled on a couple of my fingers, so itchy that I would take a nail clipper and pop them to get some relief. Last few weeks of being back on gluten I have been getting the odd very itchy red spot on my forearms.. So decided to go to the doctors again with this new information as it looks like dermatitis herpetiformis .....result? No! Told I am severely depressed and need anti depressants, and promptly gives me a sick note signing me of work for two weeks with depression and wheat intolerance?!?!?!? I'm self employed and own my own business with people working for me!!! So what the hell was the point in the sick note? i honestly think I'm going crazy, certainly my gp thinks I am! but would like to hear feedback on whether people think I'm mad or whether I'm coeliac or gluten intolerant. And whether my symptoms sound consistent with other people's. thanks justin
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