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Katrala posted a topic in Related Disorders & Celiac ResearchI'm looking for some help to understand some recent bloodwork. I slowly became anemic over the past year and only discovered it when I was at a critical level (Hbg of 7, Ferritin of 3, etc.) I received 3 iron IV infusions during the month of May (total of 1500 mg(?) of Feraheme.) I had my blood checked a week after the last infusion (June 1st) and again this week (July 6th.) Most of my numbers seem good, but my Ferritin levels have dropped a lot, but are still within normal range. Has anyone else had a drop in Ferritin after infusions? Is this normal or something I should be concerned about? Here are my levels (June 1st, July 6th): Ferritin (320.1, 108.1) Iron (88, 92) Hemoglobin (12.4, 13.4) Hematocrit (41.7, 43) Other variables: I am an endurance athlete (cyclist) and, on average, spend 7 hours+ on the bike each week (I ask a lot of my body) I am currently training to climb Mt. Rainier (14,000+ feet) and I can only do that if my hemoglobin stays in the normal range (I climb in less than 2 weeks, so I think I'm good there.) I have had a hysterectomy, so the anemia is not related to any type of menstrual issues, etc. I had a celiac panel done before I began the first infusion and it came back normal - my levels were not elevated at all. Could celiac still be the root cause (malabsorption) of the anemia? Thank you in advance for any information, advice, etc.
Hi everybody, I'm very curious about people's experiences with iron infusions. My understanding is that iron deficiency anemia and/or low ferritin levels is very common in Celiacs, in fact it may be only telltale sign for some to actually get tested for Celiacs. I myself have a lowish ferritin level of 18 ng/mL but normal Hemoglobin, Hematocrit, MCV, and MCH values. From what I've seen, >50 ng/mL is preferable, even higher in some cases to prevent the typical iron deficiency symptoms like fatigue, shortness of breath, etc. I've been doing research online regarding people's experiences with the iron infusions. Often times much is said concerning how the iron infusion works, people's experiences in the clinics while getting the infusion. But a lot is left out about how people are feeling later on i.e. 3, 6, and 12 months down the road. What are the typical results one can expect? I understand often times it takes a while to see improvements but did anyone notice any substantial increase in energy, depression/anxiety, physical fitness, etc? Or on the flipside, did anyone resolve their iron deficiency but did not see any improvements? Thanks in advance. This is something I'm really interested in hearing. Good and bad experiences. I guess for my own sake I'm wondering if iron infusions are worth it down the road. My doc had me on ferrous sulphate tablets 260mg daily for a month, but I really didn't see any improvements and all it did was make me very constipated and bloated.