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Celiac.com 06/24/2024 - Celiac disease is a common chronic autoimmune disorder that affects approximately 1 in 70 people worldwide. This condition results in damage to the small intestine when gluten is ingested. Traditionally, European countries use a case-finding approach, where general practitioners look for celiac symptoms, including family history and a history of autoimmune diseases to diagnose celiac disease. Despite this, many cases remain undiagnosed, prompting discussions about the potential benefits of population-wide screening. Italy's Screening Initiative In September, the Italian Parliament approved a national screening program for celiac disease in children aged 1-17 years. This decision followed a trial led by Professor Carlo Catassi of Marche Polytechnic University, which screened children aged 5-11 years in six Italian cities. The study found a prevalence of 1.65%, meaning nearly 1 in every 60 children had celiac disease, a rate higher than expected. Importantly, only 40% of these children were diagnosed before the trial, indicating that 60% of cases remain undiagnosed without mass screening. The Debate on Screening for Celiac Disease The idea of screening for celiac disease has been debated for nearly 30 years. In 1996, Catassi carried out the first large-scale celiac screening study in Italy, finding that for each diagnosed case, there were about seven undiagnosed cases. David Sanders, a professor of gastroenterology, noted similar situations in the UK during the 1990s. Increased awareness among doctors has improved diagnostic rates, but at least two-thirds of celiac cases remain undiagnosed, posing risks for complications like infertility, anemia, and osteoporosis. Some argue that individuals with minimal symptoms may not need to be aware of their condition, but Catassi believes early diagnosis is crucial to prevent serious health issues over time. Arguments for and Against Population-Wide Screening One major argument opposing population-wide screening is the potential for false positives. However, a 2021 study by Catassi showed that anti-tissue transglutaminase immunoglobulin A tests are highly reliable, with a sensitivity in children of 93% and specificity of 98% at diagnosing celiac disease. In this study, there were no false positives, although 2%-3% of people with celiac disease could have false negatives due to IgA deficiency. Genetic markers can help identify individuals at risk who may initially test negative. Another concern is that healthy individuals diagnosed through screening might undergo unnecessary dietary restrictions. However, evidence suggests that untreated celiac disease can lead to long-term health issues, and population-based screening in Norway showed that most undiagnosed individuals improved their quality of life on a gluten-free diet. Building the Evidence In 2017, the US Preventive Services Task Force looked at the evidence and found it insufficient to assess the benefits and harms of screening for celiac disease. Wanda Nicholson, the current chair of the task force, emphasized the need for more studies comparing outcomes of screened versus unscreened individuals and the impact of gluten-free diets among those who test positive. The Italian screening program will hopefully provide valuable insights into such questions. Catassi has argued that the overall benefits of early diagnosis will outweigh any drawbacks of screening, though he acknowledged the need to evaluate the program's results over time. Despite concerns about participation and cost-effectiveness, Sanders welcomed Italy's initiative as it could inform future policies globally. Conclusion Italy's decision to implement nationwide screening for celiac disease in children is a significant step towards understanding and managing this autoimmune disorder. The findings from this program could highlight the true prevalence of celiac disease and the benefits of early diagnosis. For those with celiac disease, especially undiagnosed cases, this screening could prevent serious health complications and improve quality of life. While further research is needed to validate the effectiveness and practicality of such screenings, Italy's program could pave the way for similar initiatives worldwide, offering hope to many affected by this chronic condition. Read more: medscape.com
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Celiac.com 04/26/2023 - Celiac disease is a common chronic disorder, but there's a lack of information on its current prevalence and detection rate. To get a better picture of the actual situation on the ground, a research team conducted a mass screening of school-ages children in Italy to assess the prevalence and detection rate of celiac disease among school-age children in Italy using a multi-center mass screening approach. The team included Elena Lionetti, Dorina Pjetraj a, Simona Gatti a, Giulia Catassi, Antonella Bellantoni c, Massimo Boffardi, Mara Cananzi, Mauro Cinquetti j, Ruggiero Francavilla, Basilio Malamisura, Monica Montuori, Gianvincenzo Zuccotti, Fernanda Cristofori, Paola Gaio, Tiziana Passaro, Francesca Penagini, Alessandra Testa, Chiara Maria Trovato, and Carlo Catassi. Nearly 6,000 children were eligible for the study, 4.438 participated and nearly 2,000 showed predisposing haplotypes for celiac disease. The team used HLA-DQ2 and -DQ8 determination on a drop of blood and total serum IgA and IgA anti-transglutaminase to determine the diagnosis of celiac disease, as per the European guidelines. The overall prevalence of celiac disease was 1.65%, with only 40% of children diagnosed prior to the school screening. Interestingly, symptoms of celiac disease were as common in celiac children as in control subjects. The study revealed that the rate of celiac disease in school-age Italian children was one of the highest in the world, and without a mass screening strategy, 60% of celiac patients remain currently undiagnosed in Italy. This highlights the importance of mass screening strategies and early detection of celiac disease to reduce the burden of the disease and its associated complications. The study also showed that determination of HLA predisposing genotypes is an easy and fast first-level screening test for celiac disease, which can be used to identify children who require further diagnostic testing. Read more in Science Direct The researchers are variously affiliated with the Division of Pediatrics and Center for Celiac Research, DISCO Department, Marche Polytechnic University, Ancona, Italy; the Pediatric Gastroenterology and Liver Unit, Department of Maternal and Child Health, Sapienza-University of Rome, Rome, Italy; the Department of Pediatrics, Bianchi-Melacrino Morelli Hospital in Reggio Calabria, Italy; the Pediatric Unit and Center for Celiac Disease - University Hospital of Salerno, Campus of Cava de' Tirreni, Italy; the Unit of Pediatric Gastroenterology, Digestive Endoscopy, Hepatology and Care of the Child with Liver Transplantation, Dpt. of Women's and Children's Health, University Hospital of Padova, Italy; the Pediatric Section, Department of Interdisciplinary Medicine, University of Bari, Italy; the Department of Pediatrics, Vittore Buzzi Children's Hospital at University of Milan, Italy; the Clinical Biochemistry Unit, National Research Council, Reggio Calabria, Italy; the Hepatology Gastroenterology and Nutrition Unit, "Bambino Gesù" Children Hospital in Rome, Italy; and the Department of Pediatrics, "G. Fracastoro" Hospital in Verona, Italy.
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Celiac.com 08/20/2021 - I recently spent two weeks traveling through Austria and Italy. As always, my motto was “Be prepared, but stay flexible.” It was a fabulous trip and I thought you might like to know what I did to make it successful. Plan Ahead: Do an Online Search Before You Leave I knew the cities we planned to visit, so I did an online search for health food stores that stocked gluten-free products. I went to “Google” and then typed in “gluten free products” with the city name. I found many stores and took this list with me, using maps and guide books to determine which stores were closest to our hotel. My research paid off. In Vienna the very next morning we walked to the nearest health food store which was about a mile away from our hotel. I bought enough bread, cookies, cereal, and crackers to last two weeks. We rented a car so I had room for all this food in the trunk, but carting all this food around Europe might not have been practical if I was traveling by train. There were two main brands of gluten-free foods in this Vienna store: Dr. Schaer and 3-Pauly. All of the breads were packaged in aseptic containers, so they didn’t require refrigeration until they were opened. Some of the health food stores in Austria (and Germany) are called Reformhaus and there were some additional products with this name on them. I had brought along heavy duty plastic bags so I could transfer the bread to these bags once I opened the packages. Nights were chilly so I stored the food in the trunk of the car, which was like a refrigerator. While I was in this store, I noticed a hand-written chalkboard message by the bakery. With my limited German, I could translate enough of the words to figure out that one could order fresh-baked loaves of gluten-free bread, ready for next-day pick-up during weekdays. Wow––I was impressed. Later in the trip, I found an excellent Reformhaus health food store in Salzburg, Austria––steps away from Mozart’s birthplace––with a great selection of gluten-free packaged foods. Use Dining Cards in Restaurants I used information from the web site of the Celiac Society of Austria to develop my German (Deutsch) dining card and edited it with the help of my daughter-in-law’s Austrian parents. I used the cards frequently. However, most restaurant workers speak English in the larger cities such as Vienna so we could converse in English about my needs. I already had an Italian Dining Card from my previous trips to Italy, so that proved useful in Italy. This was a terrific source of help and there are also dining cards on the web site as well. The European celiac web sites are not written in English (German in Austria and Italian in Italy) so you will need someone to help you translate them. On the Italian web site, there are gluten-free restaurants listed by city. Stay Flexible and Open to New Adventure One day around lunchtime on our way back to Vienna, we noticed a sign that said “Gasthaus” and followed the road, which went on and on for miles up the mountain, eventually leading to a forest. We both thought “this is either going to be very good or very bad.” As it turned out, we eventually found a lovely Gasthaus at the top of the mountain and we were its only luncheon guests. The owner understood what it meant to avoid gluten and spoke good English. She, like most other persons we met on this trip, was aware of the gluten-free diet. She likened it to an allergy, pronouncing it with a hard, rather than a soft “g” but she understood the importance of avoiding gluten. She served us a wonderful Pumpkin Soup and Pork Roast with Red Cabbage. She proudly gave us a tour of the Austrian Gasthaus, showing us all of the guest rooms and explaining how she came to be a Gasthaus owner. It was fascinating because we had never been behind the scenes in an Austrian Gasthaus. It turned out to be one of the most delightful experiences of our trip. Gluten-Free on the Autobahn Being receptive to pleasant surprises also helped me while driving the Autobahn in Austria’s and the Autostrada in Italy, Europe’s equivalents of the Interstate highways in the U.S. They have gas stations and restaurants along the way that are similar to ours in that they sell coffee, soft drinks, packaged food, and souvenirs. I was amazed to find clearly marked, gluten-free packaged foods at these stops in both Austria and Italy. In fact, I found the best gluten-free bread I’ve ever tasted in one of the Italian truck stops called Auto-Grill or Fini Grill. The bread was manufactured in Milan, Italy by CoPharma and the package bore the name of Giuliani. The package was clearly marked “senza glutine”(without gluten) and also marked “senza latte” (without milk) as well. In Austria, I found clearly marked “gluten-frei” almond cookies that I used to make Tiramisu when I got back home. Memorable Meals One of my favorite questions after a big trip like this is “What was your favorite meal?” Unquestionably, my favorite meal was the roasted goose on our first night in Vienna. We had just arrived in late afternoon and immediately searched for a good restaurant, which wasn’t hard. Vienna is full of excellent restaurants. Most restaurants post their menus outside the front door so we could determine if the dishes seemed appropriate. I had heard about the famous Pumpkin Soup (Austria is known for pumpkin products) and wanted to sample it. Our Viennese waiter spoke excellent English and seemed to understand my dining card so he suggested the Pumpkin Soup, which was absolutely outstanding. And, then he said, “By the way, in addition to our other specials today, we have Roasted Goose with Red Cabbage.” It was simply prepared, but outstanding in flavor. I had to forego the customary huge dumpling that is typically served with this meal because it contains flour, but I was very content with my goose and cabbage. The runner-up meal happened the next night in Vienna. We needed a quick supper since we were headed to a Mozart concert (his 250th birthday in 2006 so there were lots of Mozart events). We found an Austrian restaurant and the only thing that was acceptable for me was the Pumpkin Risotto, which turned out to be absolutely fantastic. Again, the dining card was very useful, but the waiter also spoke English. It was perhaps the best risotto I’ve ever eaten. And, the concert was one of the very best we’ve ever attended. Then, there was the fish in Italy, along the Adriatic Coast. Again, the waiter quickly understood my dining card and recommended the whole fish, which was filleted and roasted to perfection. In fact, I often ordered grilled or roasted fish in many restaurants because it was the safest item on the menu and it was fabulous every time. I didn’t order dessert very often because I seldom found anything that was safe and I never risk eating dessert when I travel unless I’m certain that it is gluten-free. But we found many gluten-free chocolate bars and I had Pamela’s biscotti to dunk in the very strong European espresso, so I never lacked for sweet endings to any meal. Breakfast in Europe Most European hotels include a breakfast buffet of cold meats, cheese, wide selection of cold cereals, breads, pastries, fresh fruit, and yogurt. Everything but the cheese and yogurt was off-limits, so I toasted my special bread (using the white toaster bags I brought along for this purpose) and ate gluten-free cereal I had purchased in Vienna. Sometimes, we could order poached eggs so I did this whenever I could. I hope my experiences help you if you’re planning a trip to Europe. Do your homework, be open to adventure, have fun and be well.
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Celiac.com 07/12/2019 - In Italy, where gluten-rich pasta and pizza are king, the Italian Ministry of Health has presented its annual report on celiac disease to parliament. Celiac disease is a lifelong autoimmune condition in which people suffer an adverse reaction to gluten in wheat, rye or barley. The report contains some interesting details, especially in comparison to years past. The 2017 report showed that women account for 145,759 of the 206,561 total cases of celiac disease, while men account for just 60,802 cases. So, what explains the difference? Why do women account for two out of three cases of celiac disease in Italy, and in many other places? The government suggests that women may be more susceptible than men to the disease due to biological differences between the two sexes. Overall, researchers estimate that about one in 100 people have the condition. Common symptoms include stomach cramps, fatigue, constipation, diarrhea and vomiting, though more and more people was being diagnosed with few or no classical symptoms. Research has shown that the female immune response is more developed and aggressive than the male immune response. The Italian researchers suggest that the vigilance of the female immune system might be related to women's biological role as child-bearers. The idea being that women developed a quicker and more robust response to infectious agents as a means to cope with post-natal infections, according to study authors, Simona de Stefano from the Ministry of Health, and Marco Silano from the National Institute of Health. There is some research data that shows estrogen, the main female hormone, can play an active role against viruses, while testosterone, the main male hormone, can help to suppress inflammatory responses, the authors added. There is also some evidence that variations in X and Y chromosomes may play a role. The combination of two X chromosomes potentially leaves women at greater risk for autoimmune diseases; while Y and X combination leaves men more susceptible to immunodeficiencies. So, for now, according to the Italian Ministry of Health, the answer to the question of why women get celiac disease more often than men seems to be that women's immune systems leave them more genetically susceptible to celiac disease than men. "Women, who have more reactive immune systems than men, are more susceptible to coeliac disease," according to the Italian Ministry of Health. If, on the one hand, an immune system is so reactive and aggressive against infections, according to some scholars [it] can also more easily, and perhaps incorrectly modify itself in response to the infection," write the authors. This could result in excessive activation, which, over time, could lead to the development of autoimmune diseases, such as celiac disease, added de Stefano and Silano. Read more at Foodnavigator.com
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Celiac.com 07/17/2019 - Improved celiac disease diagnosis is likely driving the rise in overall celiac disease cases. That's the takeaway from the latest annual report on celiac disease by the Italian Ministry of Health, which highlights a significant increase in celiac diagnoses in the first half of the decade. For example, from 2012 and 2017, celiac diagnoses rose by about 10,000 new cases every year, reaching a total of 206,561 people or 0.34% of Italian residents. The report's authors insist that the rise is due to better and more diagnoses, rather, an increase in new celiac cases. There is evidence to support their position. In 2017, for example, just 8,135 people were diagnosed with celiac disease approximately half of the total for 2016. The Ministry credits the implementation of a new diagnostic protocol. This reduction in diagnoses is probably due to clearer scientific guidelines and procedures that reduce unnecessary exams, develop timely diagnostic hypotheses and limit errors, write the report's authors. However, despite the implementation of new and more accurate disease testing tools, Italy still has a long way to go to achieve a 100% diagnosis rate. With about 1% of the population genetically predisposed to celiac disease, even with strong improvements in celiac screening and diagnosis, an estimated 400,000 people in Italy remain un-diagnosed. Ideally, if everyone were screened, and all cases diagnosed, the number of total celiac cases should be about 1% of the total population. As more countries move toward active screening and diagnosis of celiac disease, look for overall diagnostic numbers and numbers of total celiac cases to rise. Eventually, these numbers should level off and begin to approach 1% of the total population.
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My daughter who has celiac is currently visiting Rome, Italy, for 2 weeks (July, 2019). Can anyone recommend current restaurants or foods? Most of the posts I've seen about Rome are several years old. Also, any "do's or don'ts" you'd suggest? Thanks!
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Celiac.com 05/11/2018 - Nestled in the foothills of Tuscany just a few miles north of Lucca, the Italian village of Fabbriche di Vallico is home to a famous chestnut mill that still produces chestnut flour. One of a very few in existence, and one of just two left in the region, the town’s mill is the only one to produce exclusively gluten-free flour. In fact, this quiet village about forty miles northwest of Florence has been making gluten-free chestnut flour since 1721. These days the town is known for for its hotels, such as the Renaissance Tuscany II Ciocco Resort & Spa that overlooks the Lucca valley. The hotel offers tours to the traditional Fabbriche di Vallico mill, which produces exclusively gluten-free flour, where guests can learn about the ancient tradition of grinding autumn chestnuts into sweet gluten-free chestnut flour and maybe even meet mill owner Fosco Bertogli, who's revived the nearly 300 year tradition. After the tour, visitors can learn to make pasta from these chestnuts with the property's head chef. Mr Bertogli tells me his "passion" is what got the mill running again in 1999. He sells the delicious, high quality chestnut flour for between ten and 12 euros for a one kilogram bag. Read more about this romantic gluten-free travel experience at DailyMail.co.uk.
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Celiac.com 11/19/2008 - Day Four: After a ride on a local public bus, which hugged the narrow road's teetering edge and rounded hairpin curves with an alarming sense of speed, we felt grateful for the solid earth beneath our feet in Positano. Our first order of business was to check into the Hotel Villa Rosa and find a nearby trattoria to fill our grumbling stomachs! One of the staff, Stefania, recommended Caffè Positano on the Fornillo side of the town and arranged for a courtesy taxi to deposit us at its doorstep. Without a doubt, its chief allure was the alfresco terrace facing the sea. Situated across the road from the main restaurant and kitchen, the terrace held a dozen or so umbrella-topped tables and beckoned foreigners with unforgettable views. Jill: We decided to share an enormous plate of salty prosciutto and cold sweet melon as an appetizer. Jeff ordered pesce spada griglia (grilled swordfish) and I chose petto di pollo aceto (grilled chicken with a balsamic vinaigrette, parmesan and arugula). We nibbled at each other's dishes and savored every bite of that culinary welcoming, so much so that we'd find ourselves back for more during our stay. Days later, upon seeing zuppa di verdura (minestrone soup) on the menu, Jeff asked how it was prepared. Our server confirmed it did not contain any noodles/macaroni or gluten, and Jeff was pleased to have his fill of the strictly vegetable-based soup, which we learned is how minestrone is typically prepared in the region. Experimental cook that he is, Jeff was eager already to replicate the recipe when we returned home to San Francisco. Jeff: The Villa Rosa provided an ample gluten-free breakfast. Each morning my tray included a gluten-free chocolate croissant and gluten-free toast with butter and jam, along with our usual assortment of coffee, tea and yogurt. After we finished a late breakfast, lounging at the beach was one of our favorite things to do. Like many beach areas, lunch fare leaned toward sandwiches, pizzas and the like. The few restaurants tended to be overpriced, but we found a reliable alternative in the salumeria, the Italian version of the delicatessen which means "cured meat shop." It had a variety of cheeses, meats and salads priced by the kilo. In addition to fresh pasta and pasta salads, the place usually had salads that were pasta-free and gluten-free. Also, once I discovered that French fries were readily accessible (yes, in Italy) and the minestrone was, in my experience, always gluten-free, I knew I had a reliable fallback. This reinforced my confidence and led us to make an exception of avoiding sit-down lunches near the beach. We tried La Cambusa, where the waiter called us by our city of origin: Mr. and Mrs. San Francisco. I had my staple fallback meal, and Jill snacked on a tasty ham and cheese omelet that she washed down with a glass of prosecco. Jill: While most of our experiences were positive, we had a few missteps along the way. During our first evening at a beach snack shop, Jeff ordered saltimbocca, a dish generally prepared with rolled veal, prosciutto or ham and cooked in a wine and butter sauce. However, what he ended up with was a sandwich version, pressed between thick slabs of bread, that I stuck in our fridge for my lunch the following day. Another time for dinner, we visited Donna Rosa, a family-run trattoria perched high in the hills of nearby Montepertuso, where the locals know to go to eat well and on the cheap. For an appetizer we chose scallops which, to our consternation, were lightly dusted with a bread-crumb gratin that wasn't described on the menu. These surprises could have been averted, though, if we hadn't let down our guard and relied too heavily on the menu. Ultimately, these experiences nudged us to remember to ask questions upfront and not get too comfortable. Day Nine: When we arrived in the more isolated fishing village of Praiano, a veritable country cousin to cosmopolite Positano, Jeff plopped down in the pastel-hued restaurant of the Hotel Margherita mere minutes after dropping his bags. He was famished and awaited a sumptuous plate of spaghetti posillipo, made with the hotel's gluten-free spaghetti and mushrooms. In fact, Jeff was so enamored with the heaping dish of gluten-free goodness that he borrowed my digital camera to snap a photo and in a flurry of excitement accidentally erased all of our other pictures! Well, at least we've got the memories... The Hotel Margherita proprietor Suela and her husband Andrea were also attentive to Jeff's breakfast needs. In addition to the standard buffet that had a generous gluten-free assortment of eggs, deli meat, cheeses, yogurt, coffee and tea, they purchased extras for Jeff, including a sweet, gluten-free lemon muffin and gluten-free toast. Jeff: On the Vettica side of Praiano, the Trattoria San Gennaro was a brisk fifteen-minute walk from the hotel and sat above the main piazza and church. The view from the terrace was both panoramic and quaint, with the Mediterranean offsetting glittering Positano at night and the piazza coming alive with families sitting about while their children played soccer. The place had been recommended by a kind gentleman named Nicola who works at the Villa Rosa in Positano and lives in Praiano. The restaurant served the best bowl of gluten-free minestrone yet! It was so big I have described it as a “tankard” of soup, loaded with fresh vegetables. Though, you do need to ask the kitchen to hold off on the freshly toasted bread garnish. I’ve rarely been so completely well- fed as when I ordered the fries, minestrone and local fish specialty for dinner on our first night. We lingered well into the night, sipping the local wine and taking in the smell of the sea. Day Twelve: Perched on the cliffs, Ravello is often heralded for its gardens, Villa Rufulo and Villa Cimbrone, and has played host to departing Crusaders, famous authors and numerous other visitors throughout history. The town's stone walls, quaint walkways and tight, cobblestone streets exude the charm of antiquity. Gluten-free dining proved to be equally simple here. We arrived at the Hotel Graal early afternoon and were starving after two long cramped bus rides from Praiano. We headed to the restaurant, where the maître d' guided us to a shaded table on the terrace. Soon we lunched on gluten-free mushroom penne pasta and salad and took in stunning views of the ocean and the nearby seaside village of Minori. Jill: Perusing our guidebook, we found a trattoria tucked away beyond the main piazza called Cumpa' Cosimo and decided to give it a try for dinner. Thankfully we'd made a reservation, as the medieval-inspired place that was dotted with pictures of celebrities and run by Italian nonna (grandmother) Netta Bottone filled up fast. Everything on the menu looked enticing. The roasted rabbit caught Jeff's eye, along with more minestrone soup. He couldn't seem to get enough of the stuff! Craving comfort food, I bypassed the local specialties for a four-cheese pizza and glass of beer. After trying a bit of Jeff's entrée, though, I had a serious case of rabbit envy! We were pushing our last-bite limits when Netta paraded over to our table with a complimentary dessert, something like a cross between cheesecake and tiramisù, which Jeff picked at in order to avoid the crust (Celiac.com does not recommend doing this), and I couldn't resist polishing off. When Jeff mentioned that he was a writer as we paid our tab, Netta darted back to the kitchen and returned with a plate of figs and grapes. From her garden, she said, and insisted we put them in our pockets for later. Day Fourteen: Rome may be the Eternal City, but we had all of a day and a half there to explore, with the half starting after our nine-hour transit by private car, Amtrak train and then a female Formula One taxi driver at Termini Station. Since the next day was Sunday and we had no desire to fight the faithful who would attend mass, we opted for a quick visit to St. Peter's and from there trotted over to the Trastevere district for dinner. The Trastevere, a bohemian counterpart to New York's East Village, is one of my favorite places and it won over Jill, who hadn't quite been captured by the Roman magic. Even in August when the area was thick with tourists, street vendors and buskers, it seemed like a breath of fresh air in a city that can be every bit as overbearing as New York or London. We eyeballed a few menus and sniffed out a crowded place that seemed to move food at a good clip. It was elbow-to-elbow seating at our cramped alleyway table, with throngs of tourists shuffling past, but soon we dined under a blue Roman sky at dusk. We enjoyed a flavorful gluten-free meal of fresh salads, veal marsala, mushroom risotto and handmade local sausages. Despite being stuffed already, we couldn't resist some stracciatella (chocolate chip) and nocciola (hazelnut) gelato near the Piazza Santa Maria, where a polished quartet of young classical musicians serenaded the crowd. In general, we noticed an abundance of gluten-free salads, soups, roasted meats and risottos in Rome and in all four towns we passed through along the Amalfi Coast. We found reliable delis and easy access to fresh fruit. When we asked, places that did not have gluten-free pasta showed a willingness to prepare any that you provided. So, with a quick trip to the local pharmacy for some gluten-free pasta, you could dine with confidence! Contrary to our fears before the trip, eating gluten-free while traveling in Italy proved easy to do. With a bit of planning, a call to the airline to line up a gluten-free meal, an Italian/English explanation of your dietary needs and the standard caution nearly all people with gluten intolerance bring to eating out, anyone can look forward to an enjoyable, gluten-free holiday in Italy. Co-written by Jefferson Adams
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Celiac.com 08/02/2002 - The Bishops National Liturgy Office in Italy recently approved a low-gluten Eucharistic host made by a specific German firm for use by worshippers who have celiac disease. The hosts have been approved by the scientific committee of the Italian Celiac Association and are made using Codex Alimentarius quality wheat starch that contains 0.0374 milligrams of gluten. Additionally, the Vaticans Congregation for the Doctrine of the Faith has also approved the hosts for use in the Eucharist. According to the Catholic Church the bread used in the Eucharist must be made exclusively from wheat, and the German-made hosts are currently the only ones produced that meet all of the Catholic Churchs requirements. This decision creates controversy, however, between worshippers with celiac disease in Europe and the United States, mainly due to the differing opinion with regard to whether those with celiac disease need to be on a 100% gluten-free diet. Since support groups and some segments of the American scientific community advocate a 100% gluten-free diet, the Catholic Church recommends that worshippers with celiac disease in the United States only receive communion if the form of consecrated wine.
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Celiac.com 03/21/2017 - More Italians are being diagnosed with celiac disease than ever before. According to the Report to the Parliament from the Ministry of Health, 182,858 Italians were diagnosed with celiac disease, compared with less than 172,000 in 2014; an increase of about 6%. Celiac diagnosis are much more common in women, with 129,225 cases, compared with men, who saw 53,633 cases. The regions of Campania and Lombardy saw the highest numbers, with 2268, and 1,867 cases, respectively. Lombardy has the most cases, with 17.7% of the total, or 32,408 citizens with celiac disease, with Campania and Lazio ranking second at 9.7% of the total, or 17,777 cases. In Italy, celiac disease sufferers receive specific gluten-free products free of charge. Costs for that program rose accordingly, from €227,753,844 in 2014 to €241,773,048 in 2015. Source: West-info.eu
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Celiac.com 08/07/2008 - We'd begun practicing basic Italian⎯buon giorno! We'd practically memorized the Frommer's travel guide. We'd scoured multitudes of online travel sites and finally made all the arrangements for our once-in-a-lifetime romantic getaway to the sun-kissed shores of the Amalfi Coast. As the date of our departure approached, we grew more excited to spend our first major vacation together, tucked away in cliffside hotels, taking in sweeping views of the Mediterranean from our seaside balconies. We had some lingering doubts, though. Jeff follows a gluten-free diet, and I was concerned about how well he'd be able to eat in Italy, the land of pizza, pasta and bread. I know how difficult it can be to dine out, even in our neighborhood in San Francisco. What could he possibly find that would be gluten-free in Italy? And, with the language barrier, how would we be able to easily communicate his needs? Jeff: I know a little Italian, but solo un po’ (only a little), as the Italians say. So I, too, was a bit worried. At home, I keep tight control over what I buy, prepare most of my own meals and eat out only at select places that I know are safe. I was worried that consuming every meal at a hotel or restaurant for two weeks straight would present challenges. Like so many people with celiac disease, I've lost more than a few days to gluten contamination. That's the last thing I wanted to happen on such a special trip. One of the first things we did was to e-mail the hotels several weeks in advance to see what gluten-free options they might offer. We crafted a short inquiry in English, and just in case the staff only spoke Italian, put it through a free online translation service called Babel Fish. We included both versions in our messages. All four hotels responded within a day or two, most in English. Three confirmed gluten-free options in the hotel and/or its restaurant. One pledged a solution upon arrival, suggesting that Jeff could communicate a preference for breakfast, and the hotel would meet his needs. Jill: I was especially impressed with Casa Astarita, a bed and breakfast along the first leg of our trip in Sorrento. The staff at Casa Astarita noted that we could request food without wheat or barley, recommended a restaurant in the square and pledged to help us during our stay in Sorrento. In addition, the Hotel Margherita in Praiano, a charming seaside town off the beaten path, assured us of gluten-free pasta and biscuits (probably what we would call crackers) in the hotel. Another step we took about two weeks before our flight was to contact the airline about gluten-free meal options. We wondered if Jeff would be able to eat gluten-free on both legs of the trip⎯from San Francisco to Chicago, and more importantly, the nine-hour haul from Chicago to Rome. Either way, we planned to pack plenty of gluten-free snacks to have on hand as a precautionary measure. Jill: The American Airlines customer service representative told me the airline did not offer gluten-free meals on the short flight from Chicago to San Francisco, and we'd need to bring our own food. However, on the longer flight from Chicago to Rome, they could accommodate gluten-free needs. The representative confirmed a special meals code for the gluten-free food request (GFML is the code) that was entered into the reservation. American Airlines also pointed us to its Web site, which lists sample menu options that may vary month to month: Brunch/hot breakfast - Mushroom cheddar omelet with sweet potato hash, yogurt, seasonal fruit Cold breakfast - Yogurt, seasonal fruit, breakfast cookie Lunch/dinner - Sweet chili salmon, green beans, white rice, salad, fresh fruit Snack - Penne pasta with artichokes, fresh fruit The quick and positive responses from the hotels and airline immediately put us at ease. A little online research into gluten-free travel in Italy promised a smooth experience.Jeff: It turns out that the Italians are actually at the forefront of celiac disease awareness and treatment. In fact, all Italians are screened for celiac disease before they are six years old. [1,2] Those with celiac disease receive excellent support, including monthly payments from the government for gluten-free food, as well as more vacation to offset extra time used to shop for and prepare gluten-free food. Italians are also on the vanguard of the gluten-free food movement. The country's robust celiac association, called the Associazione Italiana Celiachia (AIC), the Italian government and several large Italian companies that make and distribute gluten-free foods have joined together to promote awareness and understanding of celiac disease. This makes for knowledgeable restaurant owners, managers, chefs and waiters. [3] Italians are among the most expert crafters of gluten-free pastas and baked goods. Italian companies like Beretta and BioLand make delicious gluten-free rice pasta and a variety of other gluten-free food products, while others produce numerous gluten-free specialty items for import, such as chestnut flour. AIC has a helpful Web site and convenient 24/7 telephone hotline. Both offer celiac information and support in English and Italian, along with tips on gluten-free food and dining in every region of Italy. [4] So, all of the useful information we turned up in our search made us hopeful that our first vacation together just might be a gluten-free gastronomic delight. Tune in next month to find out how things turned out on the ground. Until then, happy gluten-free travels and, as the Italians say, Mangia bene! Eat well! http://healthlink.mcw.edu/article/1009402816.html http://celiac-disease.emedtv.com/celiac-disease/ celiac-disease-screening.html http://www.prlog.org/10063446-at-last-the-gluten-free-guide-to-italy-guide-to-the-gluten-free-land-of-pasta.html http://www.celiachia.it/default.asp Co-written by Jefferson Adams
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Celiac.com 09/11/2008 - After a two-leg flight and multiple trains, Jeff and I finally stepped off the local Circumvesuviana train in sunny Sorrento, our first destination on the fabled Amalfi Coast. It was hot, or as the Italians say, molto caldo. We’d been traveling for nearly 24 hours straight, and as we lugged our bags along the final stretch of cobbled sidewalks toward Casa Astarita, we both felt exhausted, ravenous and more than a bit disoriented. Jill: Any nourishment from our 10-hour flight from Chicago to Rome had long since faded. However, American Airlines had made good on its promise to provide Jeff with decent gluten-free meals. The attendant had confirmed his special meal selection at the beginning of the flight, and at both dinner and breakfast he was among the first to be served (much to the envy of the other hungry passengers!). Jeff: For dinner American served me a gluten-free meal of blackened chicken on a bed of quinoa, with green beans, melon and a gluten-free German chocolate cookie. Now, airline food is never going to win any Michelin stars, but I was grateful that my meal was gluten-free, hot and reasonably palatable. As we checked into Casa Astarita, the helpful receptionist Marella suggested that we try Bar Syrenuse, a nearby ristorante with gluten-free menu options. Marella even gave us a referral card good for a 10 percent discount. After freshening up, we sauntered a couple blocks to the Piazza Tasso, the main square, where we easily found the cheerful and airy establishment. Jill: Bar Syrenuse offered a separate gluten-free menu selection. Many of the items, such as the meats and salads, were regular staples on the menu. Jeff had many options to choose from – including gluten-free pasta. I opted for a club sandwich, stuffed with local ham and cheese, and a caffe alla nocciola (hazelnut coffee). Jeff: The intense heat of the day was just beginning to break, and I wasn’t in a pasta mood at that moment, so I ordered pollo al forno (grilled chicken with balsamic vinegar, parsley and chili flakes) and an insalata verde (green salad). The food was delicious, and sitting on the terrace made for a lovely introduction to Italy. All this for two for under 25 euros. Perfecto! Day Two: Our stay at Casa Astarita included breakfast, and we’d been assured via email of gluten-free options. The staff did not disappoint and even offered to prepare an omelet if Jeff wished. He ultimately chose from the standard offerings of orange/pineapple yogurt, fresh juices, individually brewed coffee, cheese and corn flakes (which for some might best be avoided) before we began our morning walk. Jill: During our meanderings through the town and along the cliffs overlooking the spectacular Bay of Naples, we checked out a few potential lunch spots and perused their menus. We decided on a simple outdoor restaurant, Angelina Lauro, near that train station that offered shaded tables and faced a grassy piazza bearing the same name. Jeff had a vegetable and cheese omelet along with fries, which would frequently become his reliable substitute for bread. I had a scrumptious margherita pizza. It was so big that I was able to save half for lunch the next day. Jeff: After a short nap followed by another evening walk along the Marina Grande, we again headed for Bar Syrenuse – this time, with gluten-free pasta in mind! We decided to share a few dishes and ordered gluten-free penne pasta with tiny tomatoes, grilled seasonal vegetables and an insalata caprese. The pasta was nicely cooked, with a flavorful sauce. Jill commented it tasted so good she’d have never known it was gluten-free. It was then I realized just how good it felt to be in Italy, sitting outside and eating pasta, an almost forgotten favorite, as the sun went down. The manager of Bar Syrenuse is a personable gentleman named Toni. We were able to pull him aside during a pause in his busy dinner rush and ask a few questions about how the restaurant came to offer gluten-free options. Toni explained that there are so many special diets that it is important to offer many choices to attract the fullest clientele, and noted that a wide range of food options is a reflection of good service, which is good for business. Consequently, Bar Syrenuse offers numerous items that cater to a number of specialty diets. Day Three: After a torrid afternoon spent traipsing through the ruins at Pompeii, where we’d consumed just a few snacks – gelato, granita and coconut snack bars – we were ready for a proper meal. The day before, we’d spotted several quaint restaurants tucked away in the alleys near our hotel, and so we headed in that direction. We nestled in at Ristorante Sorrento, a charming establishment with a large awning and phalanx of outdoor tables adorned in crisp white tablecloths. Jeff started with minestrone soup, followed by a main course of fresh local white fish with tomatoes in a white wine sauce and a green salad. I choose lemon risotto with shrimp and an order of pane (bread). Jeff got a little extra protein that night as I quickly passed over the jumbo shrimp to his plate. Their heads, with those little black eyes staring back at me, were more than I could take! During our stroll back to the hotel, we stopped to purchase a few postcards and sip some cappuccino before settling in for a good night’s rest, before moving on to what would be the absolute gem of our trip, picture-perfect Positano. Check back for our next article featuring our gluten-free gastronomical adventures in this serene oasis by the sea!
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Associazione Famiglie Bambini Celiachi Contact: Emilia Romague Via Masia 21 I-40138 Bologna, Italy Tel: 39/51/391980 A.I.C. Associazione Italiana Celiachia Home page: http://www.celiachia.it/ Contact: Anna Maria Vallesi Via Picotti 22 56124 Pisa, Italy Tel/Fax: +39 (50) 580939 E-Mail: aic@cibernet.it Ancona Group: Marche Contact: Ratini Paolo Via A.Rocca, 20 60011 Arcevia (Ancona) Tel. +39-731-9047 Bologna Group: Assoc Famigilie Bambini Celiaci Contact: Silvio Costantini Via Masia 21 I-40138 Bolgna Tel. +39-51-391980 Bolzano Group: Alto Adige Contact: Sinn Franz Via Am Eichamt, 29 39050 Cornaiano (Bolzano) Tel. +39-471-662424 Cagliari Group: Sardegna Contact: Maria Teresa Russo Via Sassari, 69 09121 Cagliari Tel. +39-70-652912 Capoterra Resource of Italy Contact: Luigi Delussu Strada 47, Poggio dei Pini 09012 Capoterra CA Tel: 39 70 725483 E-mail: luigi.delussu@galactica.it, or gioppo@freenet.hut.fi Catanzaro Contact: Quattromani Antonio Via Brigata, 7 88100 Catanzaro Tel. +39-961-782310 Foggia Group: Puglia - Basilicata Contact: Gasperi Anna Maria Pia Via Padre Ardelio della Bella, 13 71100 Foggia Tel. +39-881-686930 Genova Group: Liguria Contact: Spanio Barbara Via Telesio, 4/3 16145 Genova Tel. +39-10-319232 Italian Coeliac Association Piazza Costituzione Italiana, 2 50023 Figline Valdarno Firenze Milano Group: Lombardia Piazza Erculea, 11 20122 Milano Tel./Fax: +39-2-86.78.20 Napoli Group: Campania Via Fiorentine a Chiaia, 9 80122 Napoli Tel. +39-81-7612112 Palermo Group: Sicilia Donizetti, 12 90134 Palermo Tel./Fax. +39-91-320702 Perugia Group: Umbria Contact: Pellicori Spinelli Elsa Via Cortonese, 74/A 06127 Perugia Tel. +39-75-5007369 Pescara Group: Abruzzo Contact: Innamorati Paolo Via Botticelli, 53 65100 Pescara Tel. +39-85-4210355 Prato Group: Toscanav Contact: Ricci Viviana Viale Montegrappa, 314 50047 Prato Tel. +39-574-583169 Reggio Emilia Group: Emilia Romagna Contact: Gualtieri Mauro Via Bonazza, 22 42016 S.Giorgio Di Guastalla (Reggio Emilia) Tel. +39-522-830328 Roma Group: Lazio Contact: Sgroi Maria Rosa Via dei Giovi, 45 00141 Roma Tel. +39-6-87181786 Torino Group: Piemonte - Valle dAosta Contact: Lucia Bramante Via Palestro, 11bis 10036 Settimo Torinese (Torino) Tel. +39-11-8950476 Trento Contact: Vettori Elsa Loc.Man S.Antonio, 25 38050 Villazzano (Trento) Tel. +39-461-922117 Treviso Group: Veneto Contact: Finardi Umberto Via Fabia, 17/9 31010 One Di Fonte (Treviso) Tel. +39-423-948166 Trieste Group: Friuli Venezia Giulia Contact: Spinelli Caterina Via Tolmezzo, 8 34100 Trieste Tel. +39-40-422472
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Author: Auricchio S; De Ritis G; De Vincenzi M; Silano V. Source: J Pediatr Gastroenterol Nutr, 1985 Dec, 4:6, 923-30. This paper is a critical appraisal of current theories on the mechanisms of toxicity of wheat and other cereals in celiac disease and some related enteropathies. The peptidase deficiency, primary immune defect, and gluten-lectin theories on celiac disease are examined and critically discussed on the basis of the relevant data available in 88 references. Special attention has been paid in this review to the nature of the cereal components triggering the appearance of toxic symptoms and signs in celiac disease as well as to underlying action mechanisms. The gluten-lectin theory is the one best able to explain celiac disease. It also explains some secondary intolerance that may occur in temporarily predisposed individuals as a consequence to viral hepatitis and intestinal infections, as well as the occurrence of intestinal lesions in healthy subjects that are administered very high amounts of gluten.
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