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Found 3 results

  1. TL;DR Mom is a celiac. Father, Brother are lactose intolerant. Sister has IBS problems as well. I believe I have gluten allergy, even though every doctor test is negative. But I do have geno-type for celiac. Marijuana has become my only solution to stop the pain and get hours of relief. No other medicine works. but pot lets me go to work, without crapping my pants and getting paid to s$#&. Anyone else in my particular situation or does everyone else feel it differently? Hello, My name is Ryan and I am a twenty-four male, 300lbs, 6ft 4in. Ive been haunted by stomach/head aches for almost my whole life. Gaining depression in middle school, which downward spiraled by the time I was 20-21. Ive been diagnosed with Chronic Lyme Disease which is, I guess, controversial among physicians on whether or not it is actually a real thing. My Dr. gave me that diagnosis at 16, after going to him with Lyme for the 8th time. My mom figured out she was a celiac when I was 20 years old, so I then started on a gluten-free diet and felt good, but didnt realize that it was actually helping me. I went back on gluten to have the testing done, but it came back negative. So I said okay, I'm not allergic to gluten it must be my imagination or something else and went on my way. Had two more doctors tell me I probably wasnt Gluten intolerant. I then started to get serious urinary issues, and started to go to urologists. They couldnt find anything wrong, so I went to a GI and they told me nothing was wrong, after doing all the testing over the years, they said I wasnt allergic to Lactose or Gluten, however my most recent GI said I have a Geno-type for it. MFer*** I know its already here. It doesnt take but an hour and I am in gut wrenching pain and cant get off the toilet for sometimes hrs, with breaks in between (4 times on) and the pain and discomfort lasts for hrs. The doctor has put me on every kind of medicine and nothing works. He said well you dont have anything we test for, so I'm just going to say you have IBS. Which still makes sense, because there is times, I know I havent touched gluten ( I dont think, I'm not a very good label checker) or cheese and I'm still in the BR. I am currently on 50MG Amytriptaline (spelling) for the depression, urinary issue and intestinal inflammation(whether its there or not, the gastro put me on it, and it keeps the other two things at bay, so I cant go off it. However, it doesnt do too much for the stomach problem. The only solution I have found is Marijuana, which I have only recently started (1yr), but man does it make a difference. Now I can have a full time job, but I have to smoke to go to work. Which isnt my most favorite thing to do , but Ive gotten used to it and it helps me tremendously. So its become my catch all illness defeater. However, it only puts my intestines on hold(how long depending on how much pot, but usually a small amount keeps my stomach at bay for about 6-8 hrs. I can suffer the last hr at work, but at least I'm not in the bathroom for my whole shift. Which is great, its an amazing feeling to be at work without something plaguing you. I still dabble in gluten, like 1 slice of pizza, here and there (bc im supposed to be not gluten intolerant) but the devil strikes every time. Im sure Ive missed some stuff, but would like some feedback on the route I should take, get some insight, my wife said I should go to a holistic doctor, which has amazing reviews near us, but its 500 dollars cash to get the evalution and its not covered by insurance. She thinks I'm allergic to soy, which I guess is in both lactose and gluten?? But ive never been tested for that. I want some light to follow. Thanks Is it typical to feel an attack so fast? It happens between 15 minutes to 2 hrs, giving the span, but usually an hour. Does everyone react the same way to gluten? - I dont get diarrhea or constipation, I get a little of both, its loosely packed and hard to pass with excruciating pain. Other times ( I think this is the IBS part), it'll just come out of no where, but its not super painful, but I cannot hold it at all. Could all of my problems be Gluten/Lactose...or just part of it/none of it? Has anyone else gotten a negative test, but still said hell with it, Gluten Free? Are there any good, well organized mega threads for stuff to not touch if you're allergic to gluten, especially lesser known things (to avoid oops moments)
  2. hello, I am reaching out to all of you for help in finding a new GI doctor. After years of going to the same motility doc in Ma, I went to Augusta GA to see Dr. Rao for motility. He is a motility guru. While there, he ran a bunch of tests that I truly don't understand why they were never run by my GI doc here. I have colitis, blunting of my villi in my small intestine (the pathologist did not think it was celiac but Dr. Rao thought it may be the beginning of celiac and suggested a gluten free diet). I also am lactose intolerant and have generalized disaccharide deficiency. So here I am, with obstructed defecation(constipation, intussusception from straining), colitis, lactose and sugar intolerant and possibly have celiac or early celiac. I need a good GI doc who can help me especially with a diet to clear my colitis, and help me with the celiac issue. I am now gluten free but UMASS does not really have great GI docs for celiac and motility. Does anyone know of a doctor in Ma who can help me. I personally think taking miralax for 8 years and needing to have diarrhea to go to the bathroom has caused my colitis, blunting of my villi,etc. but my GI doc does not think so. If anyone knows of a good doc or two in Worcester, that would be great but I am willing to go to Boston and fight the traffic. Is there anyone here who uses Mass General or has the name of a doc there? I see they say they have celiac program and a colitis program and the programs are interdisciplinary but I do not see any doctor's names and I like to check out reviews before just calling the center and not knowing what doc they will give me a an appointment with. Also, is the blood test for celiac reliable? thanks in advance
  3. I started having a lot of digestive issues and was tested for many things. I tested negative for celiac disease and positive lactose intolerance, fructose malabsorption, and SIBO. I was put on a low fodmap diet which excluded gluten. When I began to feel better, I tried adding gluten back in and had digestive symptoms return as well as a red bumps on my face with burning and itching and a strange tightness in my throat. A few weeks ago, I went on a vegan diet in an attempt to heal my gut and stopped eating gluten again as well, of course. Recently, I tried eating meat and discovered it gave me the same reaction; digestive discomfort, rash on my face, and terrible tightness in my throat. Has anyone else had issues with this? If I'm negative for celiac, could I have a wheat allergy? Could I have developed an allergy to animal protein because of damage to my gut? Also? I had been eating gluten free for quite some time when my doctor decided to do the blood test for celiac. She told me I only needed to eat gluten for a couple of days before being tested. I've looked around on here and see that many say you have to be back on gluten for 8-12 weeks!