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UCLA Celiac Center
TexasJen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi all- just an update - I went to the UCLA Celiac center last week to see their dietitian, Nancee Jaffe. Some background - I live in Texas and was diagnosed in 2016. I have seen 2 dietitians here who really didn't know that much about celiac. They have not been particularly helpful in providing evidenced based recommendations for the practicalities of a gluten free diet. Since I was going to be in the area, I decided to make the appointment. (I find this sight helpful but in general, I am frustrated by conflicting advice, information that I find on the internet) I have to say, IT WAS GREAT! She has celiac herself for 10 years. She is down to earth, practical, and talks to the specialists at UCLA regularly to come up with a treatment plan for their patients. The advice she gave was solid advice. She provided evidence for a lot of her advice and she had reasonable well-thought out answers to some of the tough questions (how to eat out safely, how to travel, what to do about oats in food, etc) I would definitely recommend her to anyone who has ongoing questions about a gluten free life-style, refractory celiac, new diagnosis.