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Found 1 result

  1. Hello-- I've been gluten free for almost 3 years ago up till about a week and a half ago. I'm trying to figure out whether to continue eating gluten to be officially tested. I originally went gluten free after 3 years of antibiotics for lyme disease. I had heard that stopping gluten products might stop my symptoms and after going gluten free my symptoms did stop. The problem is, I'm not sure if my symptoms were actually lyme disease or caused by celiac. My main symptoms with lyme (when I was not on antibiotics) were extreme fatigue, lots of brain fog, anxiety and rage, and all over disseminated body pain, electric shock like feelings running down my legs and muscle tics. My doc always said my symptoms were atypical of lyme, but since the antibiotics were helping he kept me on them. Whenever I got off the antibiotics, symptoms would resume (thus the lengthy course of antibiotics). In 2011/2012 my lyme doc stopped taking medical insurance, and I was starting to get worried about all those antibiotics. I discovered that some chronic lyme sufferers went off the gluten and managed to remain symptom free. I went gluten free and my symptoms gradually stopped and so did a lifetime of a bloated belly. In the beginning, I would often accidentally glutenize myself and be hit quickly with almost a full day of utter exhaustion, brain fog, irritation and all over body pain. This made me very serious about never eating gluten. Gradually, I stopped accidentally glutening myself and have felt very healthy. However, as anyone who tries to stay gluten free knows, 3 years of not eating at restaurants and packing my own food everyday grows tedious and sometimes almost oppressive. A year ago, I tried two pieces of pizza to see if I’d been gluten free long enough—I spent the next day in such a brain fog that I almost felt drunk. So, I resumed the gluten free diet. About a week and a half ago, I was at a work function at a fancy schmancy restaurant and hadn’t eaten enough food ahead of time, and I finally broke and had a gorgeous piece of French bread. I didn’t immediately explode as I thought I might. I woke up the next day brain intact, so I ate some more gluten products the next day. My mouth felt awesome. In fact, I felt awesome till about 2 days later. Brain fog has resumed, and I just feel spacy. The all over disseminated body pain has begun again…the exhaustion is creeping back. Does this sound like celiac? Should I continue to the gluten challenge? Different websites state different amounts of time we have to ingest gluten… I see one study that states I’d have to eat it for almost 12 weeks! And then another which says 75% of celiacs will test positive after only two! Thank you for your feedback—my main wonder is if this all over disseminated pain and fogginess sounds like celiac. It only comes when I’ve eaten food containing gluten…
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