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A lot has happened since I last blogged. There are obivous reasons for me being tired; I have two kids under the age of 3, I'm a celiac, I've got hypoglycemia...yadda yadda. There are not so obvious reasons; chest pain at night, ache down the arm, lymphnodes swollen up neck (Cat scan confirmed), noduel on thyroid (cat scan confirmed), scar tissue in left cerebral hemisphere (MRI scan). My only concern is the swollen lymph nodes. The experience with lymph nodes was non hodgkins lymphoma. I seem to be an angry bear when I eat or drink sugary stuff. My neck seems to swell up more too. I get a head ache or migrane or am generally not with it. I had an frightening experience the other night, I don't know how it's related to the majority of the postings, but I woke up 2 hours after sleeping and the bone in my forearm was numb. The skin, the muscle was normal but the done inside was totally numb. The are ached real deep, so I just kept moving it like it were a normal numb foot or hand experience. After about a while it got better so I laid back down. I had been sleeping on my stomach with my head turned to one side. I don't normally sleep like that. So...my diet has changed based on those responses. I'm cutting the sugar way down. The sugar I get is from the Silk brand coconut milk (original flavor). I eat fruit, have organic gluten-free corn flake cereal. I'm just really wowing you now aren't I. lol I sure miss sugar. But it does not make me feel better. Not at all. I'm taking: gluten-free Women's NutriGold multi vitamins Swason's copper supplements with vegetable glaze (glaze keeps me from throwing them up) EnzymeScience Intolerance Complex Country Life's Ginseng Supreme Complex Vitamin K supplement when I need it *I need to have a regular exercise. It needs to be every week so that my system has time to work out junk in my lymphnodes. Drinking water and stressing out around the house or sitting on my rear doesn't flush the system like exercise does. Note: it is overwehlming to talk to doctors about my health history. They ask too many questions, I provide too much information. Makes for a depressing day for both people. There is no instant cure. It takes time, experience, knoweldge and lots of prayer. "Keep showing me Lord, I don't want to fall behind. You are my Great Healer, you'll get me there at the right time. Amen!" With more thought to this entry; I'm going to look up some various things that could be linked to the experiences with sugar and the arm bone falling asleep as well as my exhaustion. There is a possibility that I have leukemia. I'm appearing to have a majority of the symptoms except the blood test for white blood cell counts and the bone marrow test. I've had a bone marrow test back when I finished cancer treatments at the hospital, they warned me I would need to have a bone marrow transplant if I had to do chemo again. No thanks. I'd like to do what I can that is provided here on the earth and trust God for healing if He desires to heal me. There could be greater reason for me to suffer and bear my cross than just "find a cure! panic..." that's just futial. What's the purpose of a story that's helps educate others and build their faith if everyone found healing from mankind in the hospital? Hospitals have not always existed, neither have doctors. God has. So let's utilize His healing power and seriously show up this world's view of "cure".
Hi, I am new here, looks like I am pretty well in early diagnosis of celiac disease with a positive DGP test and my son has been experiencing some strange symptoms and I was looking for anyone whose child maybe going through the same whose child was dx'ed with celiac. It all started when he was about 2, he started getting swollen glands all over the neck. I was worried and took him to his pediatrician who did blood tests and all came back normal. Then about a year later I noticed more popping up so his doc had him referred to an ENT who decided to do a biopsy of the nodes which came back clear for cancer and they were mainly suspicious of lymphoma. They said the nodes were reacting to something, but they didnt know what and that he would most likely grow out of it. About 8 months ago, my son began acting differently also. He would get extremely hyper, and I know kids are hyper, especially little boys, but this was not normal. He was so full of energy that he couldn't stop running around the house and had a very very hard time sleeping. My husband commented about it saying he was very worried he has ADHD. I also noticed that he was sweating in his sleep profusely and he would often complain of ulcers in his mouth hurting while he was trying to eat. I took him to another pediatrician in the same office as his main doc who looked at the ulcers in his mouth and she said it could be autoimmune related and that she had never seen anything like that before. But she said autoimmune disorders are very hard to dx in kids. He gets reoccuring mouth sores quite often. My husband just pointed out the other day that he had bald spots on his hair, and I dismissed that thinking he just inherited my fine, thin hair, but today I noticed a patchy bald spot at the top of his head. Now I am franKly worried. I have been having my own health struggles and barely had one test come back positive as I said earlier in my post that indicates celiac disease. I want to know if any of you parents have had similar issues in your kids who you found out had celiac disease or possibly an allergy to milk, lactose or anything else. ANY input is so welcome and thanks in advance.