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Found 16 results

  1. Celiac diagnosis was 6 years ago. Feel great now. This week, I was getting a routine colonoscopy and received a prescription for a powdered medicine called Prepopik to ahem, clean the intestines out. I have been glutened by powdered mixes before so I realized I should check the ingredients as a precaution. No gluten-free labeling and a vague, tiny disclaimer about "allergies to additives". Googled but came up short. Finally called the manufacturer, Ferring. Turns out cranberry-flavored Prepopik has gluten but orange-flavored is gluten-free! I had cranberry ready to drink in my hand! Close call. I barf for a day if I have gluten so under anesthesia for the colonoscopy, I would have been dry-heaving and at risk for aspirating. Argh. Want to warn everyone about cranberry-flavored Prepopik! Who knew? My now-fired GI's office had never heard of it. (They seem to deal with elderly, very ill people who are too sick to google.) Now I'm wondering if this has caused major complications for someone out there! Never let your guard down about gluten. Even if the guy who diagnosed you with Celiac is prescribing you something. Good luck!
  2. Opened a new, sealed bottle of synthroid and got a gluten reaction from the first pill. I've had celiac for 1.5 years and this is my first gluten reaction to synthroid. I was taking brand name synthroid thinking that it was gluten-free. I'm going to try the generic made by Mylan based on information on the Gluten Free Drug website. Anyone have experience / advice on this?
  3. Hi, I am looking for a functional medicine doctor in the Chicago area? Any recommendations? I have never been to one. I have celiac disease and ulcerative colitis. What should I expect from a functional medicine doctor?
  4. being new to this, I have started avoiding gluten and dairy. I seem to be sensitive to other foods like corn, tomatoes, bananas, and possibly grains and sugars. I still get puffy in the face whenever I eat certain things. other than blood testing, does any meds help with this? Also, is gas X gel tablets ultra strength gluten free?
  5. My doctor just prescribed me the medicine ZOLMITRIPTAN for my migraines. Before i pick it up and try it I am trying to find out if this is gluten free. Has anyone taken this medicine or had any idea if it gluten-free? I checked gluten free drugs.com and it is not on the list. Any input would be appreciated.
  6. Scott Adams

    Celiac Disease Alternative Medicine

    Celiac.com 02/12/2007 - Before they are diagnosed, people with celiac disease often find themselves in an unenviable position. They may go out of their way to eat a wholesome, balanced diet including plenty of fruits and vegetables, a good variety of whole-grain foods, and a modest amount of meat and dairy, yet still find themselves suffering a whole range of bothersome stomach and digestive complaints including indigestion, gas, stomach cramps and diarrhea, alternating with constipation. Thats because people with celiac disease are intolerant of the protein gluten. Gluten is found in wheat, rye, and barley (oats contain a type of gluten that may be safe for most celiacs), and is found in the soft, white inside of the grain, its what makes dough, and flour and water paste, sticky and gooey. When people with celiac disease eat food made from these grains, even in small amounts, their immune systems seem to treat the gluten as foreign invader, and basically create a massive defensive action against what might be, for most people, part of a good healthy diet. The immune reaction that is triggered by gluten causes inflammation of the intestines, which leads to many problems that are associated with malabsorption, and ultimately to the general gastrointestinal malaise associated with undiagnosed celiac disease, or with gluten contamination in otherwise mindful celiac patients on a gluten-free diet. Diagnosis and Treatment of Celiac Disease are Important Unless celiac is treated, it becomes difficult for the digestive system to absorb enough nutrients from food to carry on proper body functions, and resulting vitamin deficiencies can cause a wide range of symptoms, including a condition known as malabsorption. Weight-loss, listlessness, feeling or looking malnourished, are all signs of the nutritional malabsorption associated with untreated celiac disease. Left untreated, celiac disease can become life-threatening. People can waste away. More likely though are higher instances of certain cancers, particularly of the intestines, and other diseases associated with untreated celiac disease. Thats why its advisable for people with any of these symptoms to check with their doctor to ensure a proper diagnosis, and to have follow up wellness checks. Even a negative blood test for celiac disease doesnt mean youre fully out of the woods. For a long time, research put the number of celiac patients at around 0.5% of the worlds population, or around 1 in 200 people. Recent studies however, have shown that to be a low estimate, and incidence is more likely around 1% of the population, or 1 in 133 people. Celiac Disease, however, is looking more and more like a very small part of the much larger Gluten sensitive picture. More ominous still, new evidence shows Non-Celiac Gluten intolerance to be around 30 times more prevalent than celiac disease, and if could affect up to 15% of people worldwide. 1 in 7 people are gluten-sensitive or gluten-intolerant. These people test negative or inconclusive for Celiac Disease, but suffer most of the same symptoms and long-term problems associated with celiac disease when they ingest wheat. This group of people are sometimes referred to as Non-Celiac Gluten Sensitive. Because the symptoms overlap with many other ailments, Gluten intolerance can easily be missed or misdiagnosed; especially in light of negative blood or biopsy tests--and this may lead many to miss out on discovering the simple and drug-free remedy of a Gluten-free diet for a dramatic recovery. If classic screening techniques for celiac disease do not identify the disease in someone who is in the Non-Celiac Gluten Sensitive category, or if the test results are borderline or inconclusive, often the only other approach to discover the problem is via the Elimination Diet. Once the cause is understood, and the necessary adjustments are made to the diet, celiac disease and gluten sensitivity are easily treated. A diet free of gluten usually brings both short and long-term improvement. This isnt always quite as easy as it sounds, as so many processed foods contain hidden forms of wheat that are used as binding or flavoring agents. Once you become aware of damaging foods and avoid them, a gluten-free diet can restore small intestine function within a few weeks to a few months. Once the mucosa of the intestine is no longer inflamed, most absorption issues will usually subside. The inflammation in the intestine will subside as gluten is eliminated. Echinacea and goldenseal may help to speed this process along. These two immune system boosters are often packaged together in capsule form. You may also find Echinacea and goldenseal in combination with slippery elm, marshmallow, geranium, and other herbs. This combination goes by the generic name of Roberts Formula, and is made by a number of manufacturers. Roberts formula treats the digestive tract by creating a beneficial layer of slime that is healing to digestive tissues. Check your local health food store. Echinacea and goldenseal are important healers because they have anti-inflammatory and antibacterial properties. One cautionary note, however: Dont take these herbs continuously. Generally, two weeks on and two weeks off for a period of up to two months. How to Replace Lost Nutrients Caused by Untreated Celiac Disease At the very least, most celiacs will benefit from a daily multivitamin/mineral supplement that includes calcium, 1,000 milligrams, along with 400 milligrams of magnesium (note that too much magnesium can cause diarrhea). Lack of vitamin B6 is partly to blame for symptoms of celiac disease, Pyridoxal-5-Phosphate (P-5-P) is often a good choice, as it requires no conversion to make vitamin B6, and can be easier on the stomach. Vitamins can also speed healing. Because the absorption of fats is particularly poor in celiacs, many celiac patients commonly suffer deficiencies of vitamins A, C, D, E, and benefit from taking these in supplemental form, along with a chelated form of zinc supplement. As with any supplement, read the directions and keep your doctor fully informed about what you are taking and how much. A typical dose, for example, is 1,000 to 2,000 international units (IU) of vitamin A in the form of fish oil (too much can have toxic effects so discuss this with your doctor), 100 to 200 IU of vitamin D also in fish oil, 500 to 1000 milligrams of vitamin C, 100 to 400 IU of vitamin E, and 15 to 30 milligrams of chelated zinc. Check with your doctor before taking more than 20 milligrams of zinc. Beta-carotene, 10,000 I.U. daily, can also be helpful, as can Iron, 60 mg. daily, if a blood test indicates iron deficiency. In addition to a good multivitamin/mineral for support, and other vitamins, digestive enzymes, which digest gluten, may also be helpful. To improve nutrient absorption and assimilation, these should be supplemented. Celiac patients also often suffer a deficiency of vitamin K., which can be supplemented through green foods, especially alfalfa. Green food supplements contain many essential nutrients, including trace minerals. Evening primrose oil is a good source of the omega-6 essential fatty acids that celiac patients often lack. Silica soothes inflammations in the gastrointestinal tract. It is available in both capsules and gel form. Medicinal clay is excellent in promoting healing of the walls of the colon and protecting it from irritation by toxins and dry, abrasive matter. Daily Dosages of Supplements for Celiacs: Green food supplements, 1 tbsp. Evening primrose oil, two 500 mg capsules three times daily Multivitamin supplement, as directed on the label Medicinal clay, dissolve 1 tsp. of clay in ½cup of water at room temperature and drink twice daily. Papain, 500 mg three times daily Pyridoxal-5-Phosphate, 50 mg daily Silica, 3-6 capsules; in the gel form, follow the directions on the label Vitamin B complex, 50 mg twice daily Vitamin B12, 100 mcg Vitamin C, with bioflavonoids, 5,000 mg one to three times daily Herbal Remedies in the Treatment of Celiac Disease Herbal remedies can help soothe intestinal irritation and inflammation and heal damaged mucous membranes. Roberts Formula Take 4 drops of agrimony tincture in water, three times daily. Sufficient silica in the intestines will reduce inflammation, and strengthen and rebuild connective tissue. Take 3 cups of silica-rich horsetail tea or 15 drops of tincture in liquid three times daily. A combination of burdock, slippery elm, sheep sorrel and Turkish rhubarb tea helps different types of inflammations in the gastrointestinal tract. Use dandelion, saffron and yellow dock herbal teas to that purify and nourish the blood. Pickled ginger can be eaten for anti-inflammation properties.
  7. My stepdaughter's mother told us about 2 months ago that my stepdaughter (she is 7) was diagnosed with Celiac disease. We assume this is true, because why would someone lie about that sort of thing, but lately there have been some inconsistencies in her story. My stepdaughter told her dad and me that she is going to start taking some medicine that allows her to eat food containing gluten. We had never heard of a type of medicine like that, but we are new to things about Celiac and gluten-free, so we aren't really sure what to believe. Her mother told us this morning about the same medicine, but it still sounded strange. My stepdaughter has told us that since they found out that she has Celiac her mother has still not put her on a gluten-free diet, even before she supposedly started taking this pill, so naturally we are scared to death. Can someone please enlighten me, and calm my nerves, and let me know if such a pill exists? ~China~
  8. My doctor wants me to change my cholesterol medicine to Lipitor. I am beginning my research now by contacting my pharmacist and the companies who make generic Lipitor (aka Atorvastatin). But I thought I would start here to see if anyone has ever had any issues with gluten and Atorvastin? Thanks for all the input.
  9. Hey guys, I checked to see if this had been discusssed, but did not see any previous topics. Please forgive me if it has. I normally take the brand name Ultram for my small fiber neuropathy since I have had so much trouble in the past finding out which generics were gluten free. My pharmacy has just informed me they will no longer be carrying the brand name Ultram and have the generic tramadol by Amneal. I called Amneal today and was told there is no wheat, barley, rye, or oats in the tramadol and it is in the clear for celiacs. The lady said the only item that may cause some an issue was the corn starch, which comes from corn gluten, so they do not say it is "gluten free", but they will say it is ok for celiac patients. My question is, has anyone had any experience with this manufacturer of tramadol and how did it go? Any information is helpful. I can start searching for other pharmacies that carry the brand name Ultram in my area if necessary, but if the Amneal generic works just as well, then I see no need to do so. Thanks in advance for y'all help! Jamie
  10. The following was written for you by a pharmacy technician who recently escaped from their retail chain job but remembers it all too well: I would like to help you out with a best-practices guide on getting what you need from an understaffed, busy pharmacy. I am also on a ton of medications and have a lot of experience doing all of this for myself, but you guys don't have friends behind the counter that will drop what they are doing to help you. See the last section if you want that. So, you take a prescription to the pharmacy for a medication that is available in generic form. If it is brand name only, hopefully you asked your doctor if there is a generic alternative before you left with a script, but sometimes the name brand is the best for you or only thing available, and you have less options if it is not free of your allergen. Your pharmacy will fill it with whatever manufacturer they keep on hand, which sometimes changes because they are always looking at prices, supply/demand, and other complicated things. If your research/experience deems this brand to be not-okay, there are usually a lot of different generic brands for each med. Some things will affect the availability of a drug and there may only be 1 or 2 companies who make it, but 2 options are better than one when one is no good The easiest way for you to get results are: 1. Call the pharmacy at a less-busy time like mid afternoon, or go in in person and talk to them (Not in the drive through) when they aren't busy. If your medicine is a controlled substance you may want to bring something saying you have an allergy, they may not be keen on talking to you about what brands of hydrocodone they carry for safety reasons. 2. Talk to the pharmacist, let them know you found out about an allergen in this generic brand, and ask for them to get the person who does the ordering to get you a list of equivalent medication that they can order from their supplier. They may need to call you back but this should be very easily accessible for them as electronic ordering is all there is nowadays. (that way you don't bother with something not available in your area, etc.) 3. Get that list and look the meds up, hopefully one is allergen free verifiable 4. Ask the pharmacy to fill the RX with that "NDC" only. An NDC is a unique number for that manufacturer-made drug. Tell them to put a note in your electronic profile and a note on the shelf where they keep the product to prevent this from being overlooked. 5. The pharmacy may screw up and fill with their preferred brand sometimes on refills and such still, because the computers like to auto-substitute with their preferred brand, so physically check the med before you leave and have them fix it if needed. 6. I just have to add... Always be nice to your pharmacy staff, and don't treat the pharmacy and its drive-thru like a fast food place. These people do more than just count pills, they have a legal responsibility to not kill you. If you have special needs, you are more likely to get good service at an independent pharmacy, but sometimes you are like me and your insurance makes you go to a specific chain. *grumpyface* Also, if you are at your pharmacy a lot, bringing the staff treats and being super nice to them will probably get you preferential treatment when you walk up to the counter. Okay, I will admit my friends at -retail chain- told me to add that part. But it is all true!
  11. The American Celiac Disease Alliance is sponsoring a letter writing campaign to support HR 2003 for labeling gluten in medicines in the USA. Clicking the link below will take you to an online form you can use to submit an email message supporting the bill. Please consider doing this is you are a citizen of the USA. Thanks! Keep Patients Safe Disclose Drug Ingredients- The Gluten in Medicine Disclosure Act, H.R. 2003 http://www.capwiz.com/celiac/issues/alert/?alertid=61274486&type=CO Keep Patients Safe Disclose Drug Ingredients- The Gluten in Medicine Disclosure Act, H.R. 2003 I am writing to ask you to co-sponsor The Gluten in Medicine Disclosure, HR 2003. The inactive ingredients in some medicines are sourced from wheat, which can cause harm to the 3 million people with celiac disease and the untold millions with non-celiac gluten sensitivity. Current law does not require the source of inactive ingredients of medication to be identified. Without labeling, patients, pharmacists and prescribers don't know if suspect ingredients contain gluten unless they investigate. Manufacturers may identify the inactive ingredient as "starch," but not say if it is derived from corn, tapioca, or wheat. Websites rarely list the information needed, and phone calls during business hours can result in a days-long wait for an answer. Pharmacists and prescribing healthcare providers of individuals on a medically required gluten-free diet must have immediate access to the source of inactive ingredients. Ready access to this information will ensure patients receive timely care and prevent unnecessary harm. The Gluten in Medicine Disclosure Act, H.R. 2003, will solve this problem. Identifying the source of inactive ingredients in drug products will give the consumer, pharmacist and prescriber the information needed to make an informed choice. Industry can support it as it does not impose a financial burden on the manufacturer. All of the national celiac organizations endorse this bill: American Celiac Disease Alliance, Celiac Disease Foundation, Celiac Sprue Association, Gluten Intolerance Group and the National Foundation for Celiac Awareness. Please co-sponsor this important legislation and urge your colleagues to pass it without delay.
  12. Hello, I've only seen one other post on this and the cough medicines listed aren't available in the UK (or I can't find them!) Is there any cough medicines in the United Kingdom that are gluten (oats, spelt, barley, wheat, rye) free as well as dairy, soy, yeast and aspartame free? I've emailed Covonia no reply yet. And going to call Vicks as no email on their site. We use to use Veno's but their glucose syrup is now derived from wheat not corn! Was told not to have Jakeman's cough drops and Halls said no too. If anyone knows of any cough medicines or lozenges without gluten/wheat though I'd be very grateful. Thanks for your help.
  13. Collagenous Sprue is a distinctive lesion of the intestinal mucosa associated with progressive malabsorption. The intestinal pathology is initially identified with the characteristic flat lesion of untreated Celiac Sprue. Thereafter, bands of eosinophilic hyaline material within the lamina propria become increasingly apparent. As the disease progresses, the mucosa becomes progressively thinner. Therapy, including the gluten-free diet, does not help. Some cases currently designated refractory or unclassified Sprue many prove to be Collagenous Sprue.
  14. Celiac.com 03/19/2002 - The following excerpts were taken from The New England Journal of Medicines January 17, 2002 (Vol. 346, No. 30) article on recovery from celiac disease: In addition to a gluten-free diet, all patients with newly diagnosed celiac sprue who have clinically evident malabsorption should initially receive a multi-vitamin preparation and appropriate supplements to correct any iron or folate deficiency. Patients with steatorrhea, hypocalcemia, or osteopenic bone disease should receive oral calcium and vitamin D supplementation. Approximately 70 percent of patients have symptomatic improvement within two weeks after starting a gluten-free diet. The speed and eventual degree of histologic improvement are unpredictable but invariably lag behind the clinical response and may not be evident on repeated biopsy for two to three months. Although a return to normal histologic findings is common in children, half of adults have only a partial resolution on biopsy. If a patient has no response to the diet, the most common cause is incomplete adherence. Persistent symptoms may be caused by coexisting disorders such as irritable bowel syndrome, lactose intolerance, microscopic colitis, or pancreatic insufficiency. In one study strict adherence to a gluten-free diet reduced the risk of all disease-associated cancers including enteropathy-associated T-cell lymphoma. Thus, it seems prudent to recommend lifelong strict adherence to a gluten-free diet in all patients with celiac sprue. Regarding untreated celiac sprue: Dairy products should be avoided initially because patients with untreated celiac sprue often have secondary lactase deficiency. After three to six months of treatment, diary products can be reintroduced if the patient has no ill effects.
  15. In volume 334, number 13 of the New England Journal of Medicine was published a follow-up article concerning additional research which seems to contradict their October 19, 1995 (Vol. 333, No. 16) article which stated that pure oats are safe for celiacs. David Branski, M.D., Margot Shine, M.D., and Shaare Zedek Medical Center, Jerusalem 91031, Israel report their belief that allowing oats in the diet is premature. They sited the short duration of the study and the increased risk of cancer related through small intake of gluten (Holmes et al). It does appear that the initial study is being continued for an additional five years.
  16. New England Journal of Medicine October 19, 1995 -- Volume 333, Number 16 Celiac.com 10/25/1995 - According to an article published for the week of October 19, 1995 (Vol. 333, No. 16) in the New England Journal of Medicine, it is not a problem for celiacs to eat oats (non-contaminated, of course!). The article is based on a study conducted in Finland by a group of doctors who did very rigorous testing on adult celiacs and concluded that oats can, and should be included on the celiac diet (The lead doctor for the study is also a celiac). The following is a summary of the study: 52 celiacs in remission (on a gluten-free diet for more than a year) were given duodenal-biopsies, and then fed an average of 49.9 grams of oats per day for six months. They were again given biopsies, and none of the subjects were found to have any villi damage. There was also a group of 40 newly diagnosed celiacs who underwent the same procedures, except they were studied for 12 months rather than 6. The initial biopsies with this group showed significant villi damage due to the fact that they were still on a gluten-containing diet until they began the study. This group was fed an average of 46.6 grams of oats per day, and were given biopsies at 26 and 52 weeks. Their biopsies were almost normal at 26 weeks, which means their damaged villi were able to heal while eating oats daily. At the end of the year their biopsies showed no damage to their villi. The study DID NOT test people who had severe cases of celiac disease, and therefore cannot make recommendations with regard to them. Also, three people with dermatitis herpetiformis withdrew from the study because of an increase of itching, but none of them showed any signs of dermatitis. One person withdrew because of abdominal symptoms, but they did not exhibit damaged villi. Their conclusion: Our data suggest that most patients with celiac disease, whether in remission or newly diagnosed, can add moderate amounts of oats to their otherwise gluten-free diets without any harmful subjective side effects or laboratory abnormalities. Furthermore, among the newly diagnosed patients the improvement of mucosal architecture and the disappearance of mononuclear-cell infiltration were similar, regardless of the use of oats. -NEJM There is also an editorial from England which cites positive research which has been done there regarding oats. The NEJM is the Bible of medical research, with extensive peer reviews before publication.