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  1. Celiac.com 11/25/2017 - We have long known that gluten intolerance, both celiac disease and gluten sensitivity, are highly associated with neurological symptoms. Migraines, ataxia (unstable gait), seizures, schizophrenia – the list is long. But a recent research study just published last month sheds some new light on exactly what the mechanism may be. Understanding why these debilitating symptoms occur as a result of a gluten intolerance will, hopefully, go a long way toward increased awareness among the lay public and clinicians alike. It is certainly true that too many millions of Americans suffer the effects of a gluten intolerance unknowingly. They only know that they feel unhealthy but have no idea that gluten is the culprit. The digestive tract is sometimes called the second brain. Some say that is because it is second in importance to the brain. After all, if the food that is consumed doesn't turn into fuel that can effectively feed the 10 trillion cells in the body, those cells will be unable to perform their job and keep the body healthy. In fact, poor digestion is absolutely linked to poor health and increased onset of degenerative disease. This article in Current Pain and Headache Reports looks at another possibility for naming the digestive tract the second brain, and it simply stems from anatomy. The digestive tract actually has a ‘mind of its own'; more correctly, it has a nervous system of its own, called the enteric nervous system. ‘Enteric' simply means having to do with the intestine. This nervous system, according to research, is very similar to the brain housed in the head in that it is bathed in similar chemicals (called neurotransmitters – which, interestingly enough, are mostly produced in the gut!). It sends and receives impulses and records experiences and is influenced by emotions. Some proof of the latter: Have you ever been nervous and had diarrhea? This particular study stated that experiencing ‘adverse events' created a state of hypervigilance (a state of being overly responsive - not a good thing) in the nervous system which was associated with migraines and IBS. Such ‘hypervigilance' was previously only associated with the central nervous system – the one attached to the brain in the head. This group of researchers suggests that the initiation of hypervigilance may very likely lie in the enteric nervous system also. What this means is that if the small intestine is genetically sensitive to gluten and gluten is ingested, it could set off a nervous system response that could create disabling diseases, such as migraines and IBS, but likely others as well. The take-away message is that it is truly critical to diagnose gluten intolerance as soon as possible. Once that hurdle is surmounted it then needs to be followed with a program of nutrition, lifestyle and diet that will ensure healing of the small intestine and a ‘calming' of the hypervigilant nervous system. You may sometimes hear this referred to as healing a leaky gut. Here at HealthNOW we often see this clinically in patients who seem intolerant to many different foods and can't seem to enjoy stable improvement of their symptoms, even after they eliminate gluten from their diet. The reason for this insufficient improvement is that a comprehensive follow-up program is missing – a program that addresses what we call the Secondary Effects of Gluten. This entails evaluating for any other food sensitivities, cross reactive foods, a tendency towards autoimmune disease, the presence of any infectious organisms, healing the leaky gut, balancing the probiotic population, and more. While increasing awareness of the presence of gluten intolerance is absolutely critical, neglecting the secondary effects, as mentioned above, can result in long-term ill health that is truly preventable. Have you experienced such symptoms? Have you removed gluten but are only partially healthier? I'd love to hear from you. To your good health.
  2. I have just been diagnosed with celiacs and believe that I have had it for years but my doctors didn't catch it. Anyways around the time where my symptoms started getting worse which was 3 years ago I started getting migraines when I would eat chocolate. I am wondering if anyone else experienced this and if it got better once you went on a gluten free diet. I can easily try for myself but knowing how sick it made me last time I'm nervous to introduce it back into my diet. Thank you!
  3. all of my life I have suffered from migraines. Even as far back as a toddler. At age 15 I was falling alseep in class due to how tired I was and Bc my headaches were hurting me so bad. I recall every evening coming home, excited to lay in a dark room Bc there was never a day my head wasn't absolutely busting. At age 18 they began lasting 5 days and felt like my brain was on fire. At age 20 I began complaining of feeling like I was running a fever constantly, as well as still suffering from the migraines. At 21 my doctor prescribed a seizure medication that supposedly helps migraines. I was hesitant Bc I don't have seizures... So I waited months to try it, but finally caved out of desperation.It didn't help, it just made me stupid Bc I was unable to think clearly. At age 22 I was missing months of my life, laying in the dark, sweating, tossing and turning all with an ice pack on my head, since the headaches still felt like my brain was on fire. I would tell my doctor about this and I was told it was depression. I would say "I would not be depressed if my life wasn't like this." He still insisted it was my thoughts doing this to me. He later prescribed anti depressants. Nothing changed. I missed that entire year of my life. Totally debilitated by these headaches.. Except now they consisted of the room spinning. A nauseous feeling that felt like the worst food poisoning as well as cold sweats. I remember the night I prayed "God just show me what it is. I'm tired of praying to be healed just show me what it is." as fate would have it, I went gluten free on accident that next month. I remember unloading my groceries and realizing everything I had bought was gluten free and laughing about it. I had no idea what gluten even was ! Lol. So that was definitely an answered prayer ! 3 weeks of being unintentionally gluten-free I recall discussing w my mom that my headaches had pretty much subsided, and telling that I wondered if it had anything to do w the fact that I had quit drinking pop. Shortly after that, I ate something that contained gluten. I couldn't even finish it. I felt odd. My heart was beating fast and I felt that inner fever begin to simmer again. And the old headache I had once lived so long with, came back with a vengeance. I some how fell asleep, Still clueless that this was caused by gluten. the when I woke up, i was greeted with a feeling that felt like the worlds worst stomach virus along with food poisoning. When I say I puked... It feels like an understatement lol. I puked until I puked a bile/infection-like looking substance which smelled like infection too!! (Gross I know but, I have to be truthful) This attack lasted for around 25 hours or more. After wards it was like I had fought a war. then as I was laying there...it was like a light bulb hit me... "Gluten ! I ate gluten! what even is gluten ? " so I googled gluten allergy. And I was amazed !! I went gluten free immediately and sense,the Terrible migraine/puking episodes have disappeared ! Unfortunately I didn't know you had to be tested for celiac while you we're eating gluten, so I've never been able to be tested for it. Therefore I only claim to have the allergy. However I suspect it's celiac Bc so much more happens to me than just fatigue and brain fog. I nearly die. I am not exaggerating. I'm someone with a high pain tolerance. I've broke my back and walked home ! lol. But these attacks literally have me begging for mercy!!! I have been gluten-free for 5 months now. This week I was glutened twice ! so as you can imagine I'm a mess. The first time was from a little bit of gluten containing alcohol (Smirnoff was falsely advertised as gluten-free. Don't ever make that mistake of believing their website!!) you guys, I literally couldn't take care of myself. And This was 15 hours after drinking so it wasn't due to being drunk. Once again, I puked till I had nothing else to puke except for green/yellow infection. I puked almost half a small bucket full of that stuff alone! :/ My mom had to come take care of me and I am 23. I couldn't even go get myself a cold rag due to how dizzy I was. It truly feels like the room is spinning! The second time i was glutened, was two days after that. I assumed that all Soda was gluten free, by mistake .(I rarely drink soda, so I shouldn't have assumed that, but needless to say, I paid for it.) I took maybe 3 sips of mr. Pibb and felt that fire headache spread across my head. I immediately googled and found out its one of the sodas that aren't gluten-free. Just my luck lol. I didn't puke bile that time Bc I'm assuming I didnt consume enough for it to be that bad, thank God. But now my stomach doesn't want to hold food. I feel sooo worn out and every time I eat I nearly fall asleep. I did a liquid diet for a few days to let my gut heal but it's still thrown off. I feel so out of wack and emotional !! I've only been glutened 4 times in 5 months but the last two was this passed week. I've never been contaminated so close together but I'm telling you guys, I don't know what I'm going to do. I so badly want to be diagnosed with celiac so then Atleast I'm taken seriously by my doctor . But as of right now I just sound like a hypochondriac :/ thankfully my family finally believes me. But it still bothers me not to know for sure. I'm sorry if I bored you guys but I guess I just needed to vent lol. I was also wondering, do u all think I have Celiac or am I just gluten sensitive?? can gluten sensitivity be that intense? Thank you for taking the time to read about my story. I wish you all health and many blessings ❤️❤️❤️Kayla
  4. Having multiple food sensitivities can be frustrating (and downright painful), but finally identifying one that has been creating havoc in your life is like winning back some of your life. My biggest battle won was discovering the link between my bi-weekly migraines (not good when you are trying to work as a surgeon) and corn-starch (which, as most here know, is in almost everything, including most gluten-free foods). In my case, it was also in the powered gloves and toothpaste I used, plus the medication I took for the migraines! Corn starch also triggered Sjogren's Syndrome (an immune-mediated situation in which I have no tear production, no nasal mucus and no saliva production - painful!!) Anyone with chronic dry eye, dry mouth or dry nostrils should research this. Sjogrens, for me, is a mixed blessing/curse. Because it starts very, very quickly when I ingest or get exposed to an intolerable ingredient, I have learned that I can't tolerate some pretty weird things that I wouldn't have suspected would cause trouble. Short and sweet, the following triggers my migraines and/or Sjogren's Syndrome: corn starch, wheat/barley gluten, apples*, shrimp, cauliflower*, grapes*, plus exposure to artificial fragrances, cedar or pine chips, cat litter, molds & mildews, dog fennel and dust mites. (*even home-grown organic) Problematic, but dose-dependent: rice, raisins, cats. A godsend for me, to deal with fibromyalgia and neck/torso pain secondary to a very bad horseback-riding accident, is dry-needling done by my physical therapist. That and deep muscle work have given me a huge chunk of my life back. For those of you with similar corn-starch sensitivities, BC Powders (aspirin and caffeine) contain no corn starch, and they work well. My best to all.
  5. Hi everyone, After 22 years of living with my gluten allergy symptoms, I was finally diagnosed at 27 with a gluten allergy/intolerance. Unfortunately I have to wait a year until I can be tested for Celiac disease because I am in the process of immigrating from Canada to the UK to Ireland. Nevertheless, for now I am on a strict gluten-free diet and it has made such a difference in my every day life. For this post, I want to share some of the major symptoms of my gluten allergy as the doctor's have not been able to make a connection until now. Major Symptoms: - Constant, debilitating, stomach aches: my grandad, dad, and brother all get stomach aches, so when I used to complain of them when I was little (started when I was 5) they just wrote it off as a "sensitive" stomach and never took me to the doctors. Over time the stomaches became worse and worse and finally at 18 I went to the doctor. He told me I had an ulcer (never actually checked for anything; just guessed). After months of pills without any results, I went to a new doctor for a second opinion. Without testing (again!) this new doctor guessed I had lactose intolerance. I went off dairy, but I would still get stomach aches after eating. I went back to this doctor who basically said, "I don't know." I gave up and just dealt with it for the next 8 years. - No energy: A constant feeling of being tired. I would wake up in the morning feeling tired. After eating, I would have to take a nap because I just felt so exhausted. - Infrequent BMs: It was not unusual for me to go every 2-3 days. After going gluten-free, I have gone once and sometimes twice per day. - Allodynia (skin pain): Since around the age of 20 I developed a new symptom. I began getting what I called "skin pain" on my legs and arms. It started with small patches that would hurt for no reason for a couple minutes, into massive patches over my legs or arms that would last for days. The pain felt like someone was randomly jabbing needles into my skin. It hurt to touch - even a slight breeze would be excruciating. There was no rash or obvious physical sign. I went to the doctor for this and they said I had "Allodynia" (which means skin pain) and I had to get an MRI. They couldn't find a cause and told me it was just something I was going to have to live with. - Migraines: Since being a teenager, I would get migraines all the time. My mom would just give me a tylenol and make me go to sleep. As I've gotten older though, they have gotten worse and more frequent. Finally when I was getting them once every couple of days, I thought I should go see my doctor. This is the doctor that eventually diagnosed me with a gluten allergy. She ordered an MRI (same doctor who was treating the allodynia) and they found a cyst on the pineal gland - which is apparently quite common and according to the neurologist, has nothing to do with my migraines. I was given migraine medication. - Joint Pain: Arthritis runs in my family with almost all of my aunts and uncles and grandparents (on one side) having it. I was told by the same doctor who ordered the MRI that it was probably the beginning stages of rheumatoid arthritis. I was given an x-ray which showed no problems with my bones yet. She also did blood work which found that I had a non-specific "autoimmune disorder." - Weight Gain: Since around the age of 19 I have put on almost 50 pounds. All the doctors told me that it was my own fault and that I needed to eat less and exercise more. Totally reasonable. I began eating very healthily, having a lot of veggies, fruit, lean meats, nuts and seeds, as well as dairy and things like pasta and bread. I kept track of calories and started going to the gym. While I would see some results at first, I always plateaued and then gained it back. This has been the most frustrating symptom because of the pressures for girls to be "thin"; and with thin = being pretty. I felt like no matter what I did nothing worked. All of these symptoms were dealt with by doctors separately. Whenever I went in to talk about a specific one, I would try to tell them all my issues, but they just wanted to deal with "one at a time" not realizing they were all symptoms of one problem. Finally after 22 years, I was diagnosed with a gluten allergy after going on self-prescribed gluten-free diet, charting my symptoms, reintroducing gluten and tracking symptoms, and then giving all the information to my doctor. It sucks that the doctors didn't think of it, but I'm guessing it was because they are not used to diagnosing gluten allergies in overweight patients - usually the major symptom for doctors is being underweight. After reading numerous articles on gluten intolerance/allergies/celiac, I also put myself on vitamin supplements: vitamin d, vitamin b, and a multivitamin. As well as digestive enzymes with food, and probiotics every night before bed. So what has changed after being gluten-free for the past 13 days? Side effects: - no stomach aches since the second day - no skin pain - one migraine on June 5th (possibly a sinus infection) - very little joint pain - more energy - more frequent BM's Crappy (but probably good) side effects: - spots all over back and arms, and one on hand: I've read this is a result of gluten leaving the body. - slight weight gain of 4 pounds: this one really sucks because I'm eating only whole foods, such as chicken, veggies, tuna, almonds, and fruit; as well as some dairy and coffee. I'm hoping this is a temporary weight gain because my body is healing and starting to get better at absorbing nutrients. But I am using myfitnesspal to track calories, so I don't go overeat. Hopefully my experiences can help those of you who are suffering from a variety of seemingly unconnected problems. And while doctors are great, I've found that a lot of trying to figure out what is wrong with me has been through trial-and-error on my own. Doctors are trained to treat symptoms and sometimes it's hard for them to make the connection between a variety of "vague" symptoms.
  6. Does anyone know why celiac would result in migraines (the science behind it)? I suffer from migraine and just wondered why this would be the case. Apologies if already covered somewhere, I but I am fairly new to all this....
  7. Hi everyone, I was diagnosed as being 'gluten sensitive' (whatever that means) about 5 months ago when a doctor finally realized my 'malabsorption' of magnesium and other vitamins was causing my life long (23 years) migraine disorder. After months of taking a 3x the regular dose of vitamins just to stay alive - a doc finally made the gluten connection. Now I can stop spending all my money on vitamins! Anyways, I started a strict gluten-free diet almost a month ago, and after an initial 2 week period in which I felt INCREDIBLE - I feel like I'm hitting some serious detox symptoms. I missed a period completely (has never happened before, and it's back now - not pregnant), I broke out in RIDICULOUS acne on my face, back and chest (I've always had mild acne.. but it now worse than it has EVER been) and I've been ridiculously hungry and cranky. I ate more in two weeks than I ever had in my LIFE. I feel like the symptoms are starting to let up a bit now - but they hit their real peek about 1.5 months into being gluten free. My period is back, and most of the acne is starting to scab over.. but man I wanted to hide underground things got so bad.. So, this is plea in hopes that my experience isn't totally abnormal - perhaps there is some light at the end of this tunnel?? is this going to get better ? Any advice or experience would be appreciated. THANK YOU ALL SO MUCH. Reading this forum has been a lifesaver for me overall. **also, since going gluten-free and being able to slightly lower the vitamin dose - I am still migraine free! So that is one good thing. (and by migraine disorder, I mean it was so bad I was considered disabled until this year.. A MIRACLE)
  8. Celiac.com 06/27/2012 - If you have celiac disease or inflammatory bowel disease (IBD), and also suffer from migraines, you are not alone. In fact, you are part of a growing group of people who suffer migraine headaches along with their celiac disease or inflammatory bowel condition. A recent study found that people who are sensitive to gluten have higher rates of migraine headaches. The study was presented at the annual meeting of the American Academy of Neurology, held from April 21 to 28 in New Orleans. A research team led by Alexandra Dimitrova, M.D., from the Columbia University Medical Center in New York City, studied the association in U.S. patients. The team conducted a survey of 502 individuals. The survey group included 188 people with celiac disease, 111 with IBD, 25 with GS, and 178 controls. Each member of the survey group completed a self-administered survey which included details on medical history, medications, alcohol/caffeine/drug use, method/duration of celiac disease/IBD diagnosis, duration of gluten-free diet, and headache type and frequency. The team diagnosed migraine using the ID-Migraine screen, and assessed severity with the Headache Impact Test (HIT-6). The results indicated that 30 percent of people with celiac disease, 56 percent of those with gluten sensitivity, 23 percent of those with IBD, and 14 percent of control patients reported chronic headache. After the team compensated for confounding variables, patients with celiac disease, GS, and IBD showed significantly higher rates of migraines compared with control subjects, with odds ratios of 3.79, 9.53, and 2.66, respectively. As measured with HIT-6, patients with migraines who had celiac disease suffered from more severe headaches compared with the other groups. "Our findings suggest that migraine is a common neurologic manifestation in celiac disease, GS, and IBD," the authors write. "Future interventional studies should screen migraine patients for celiac disease, particularly those with treatment-resistant headaches." Do you know anyone who has celiac disease, gluten-sensitivity, or IBD and also suffers from migraine headaches? Let them know by sharing this study information. Let us know by commenting below. Source: http://www.doctorslounge.com/index.php/news/pb/28608
  9. Celiac.com 01/19/2010 - A new study says that migraines and carpal tunnel syndrome may point to celiac disease. Moreover, 35% of people with celiac disease report a history of depression, personality changes, or psychosis. Others commonly suffer from neurological issues that are not improved with a gluten-free diet. Researchers recently screened a cohort of 72 patients with biopsy-proven celiac disease, recruited through advertisements and interviewed using a standard questionnaire. Nearly one in three celiac patients (28%) reported a history of migraine, though numerous patients showed a decrease in frequency and intensity of migraine attacks after adopting of a gluten-free diet. While about 20% of patients suffered from carpal tunnel syndrome, epilepsy was, surprisingly, less common than expected," report the researchers. "Only 4 individuals presented with a history of generalized or focal seizures." In general, doctors believe about 6% to 10% of celiac patients show typical neurological presentations, the study authors note. Prior studies have shown cerebellar ataxia to be the most common celiac disease-associated neurological symptom. This new study found cerebellar ataxia in 6% of patients, and vestibular dysfunction in another 6%. In all, 26% of patients showed afferent ataxia. About a third of patients had problems with stance and gait, with numerous cases of deep sensory loss and reduced ankle reflexes. "Gait disturbances in celiac disease do not only result from cerebellar ataxia but also from proprioceptive or vestibular impairment," report investigators led by Katrin Bürk, MD, from the University of Marburg in Germany. The bad news is that such neurological problems may develop "despite strict adherence to a gluten-free diet," says Burke. "Most studies in this field are focused on patients under primary neurological care," the researchers note. "To exclude such an observation bias, patients with biopsy-proven celiac disease were screened for neurological disease." Motor problems, such as basal ganglia symptoms, pyramidal tract signs, tics, and myoclonus, were not common. A total of 14% of patients reported problems with bladder function. The underlying causes for neurological problems in celiac disease are not yet understood. There has been some evidence to implicate deficiencies in folic acid, vitamin E, and biopterin in the pathogenesis. However, the investigators note that, in most patients, replacement therapy does not resolve clinical symptoms. They note also that hypo-vitaminosis rarely causes obvious abnormalities in celiac patients, and most with neurological symptoms show no evidence of any nutritional deficiencies. "The prevalence of neurological manifestations in celiac disease is striking and must be considered more than accidental," they say. "The patients' gluten-free diet had resolved intestinal symptoms but had not prevented the development of neurological deficits." The investigators suggest that, because of the considerable clinical variability, neurological and psychiatric dysfunction in celiac disease is likely the result of numerous pathogenic mechanisms. Source: Mov Disord. 2009;24:2358-2362.
  10. Celiac.com 10/10/2008 - New evidence suggests that children who suffer from migraines face a greater risk of developing celiac disease. Migraines have been previously tied to classic celiac disease, but have not been well studied in cases of asymptomatic celiac disease. Spurred by the fact that most people with celiac disease either have no symptoms at all, or present symptoms other than the traditional intestinal complaints, a team of Turkish researchers led by Dr. Fusan Alehan set out to study the connection between migraines and asymptomatic celiac disease. The team studied 73 migraine patients from 6 to 17 years old, along with 147 controls. Four of these migraine patients (5.5%) along with one of the control patients (0.6%) tested positive for serum tissue transglutaminase IgA (tTGA) antibodies, which is indicative of celiac disease. Two of the tTGA-positive participants declined biopsy, while three of the four migraine patients consented to a duodenal biopsy and were shown to have normal histology. As a result of these findings, the research team categorized them as having possible celiac disease. The researchers found that higher rates of tTG antibodies among migraine patients suggests that migraines and celiac disease might be linked in children, and that this likelihood merits further study. Cephalagia 2008; 28:945-949.
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