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Showing results for tags 'month'.
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Celiac.com 04/29/2010 - May is designated as National Celiac Awareness Month. As such, I thought it would be a great opportunity to explore the history of celiac disease. Most people think of celiac disease as a modern day ailment, which predominantly affects those of European descent and in Westernized societies. However in my research, I found that the best place to start when referencing the history of celiac disease, is actually the beginning of humans. In the beginning of humans, known as the Neolithic Period, humans were hunters and gatherers and primarily survived on fruits, nuts, and meat when available. During the Neolithic Period, humans evolved and began cultivating plants which quickly led to the agricultural revolution. With the agricultural revolution came a myriad of food antigens, such as dairy, eggs and processed grains. It was during this time that celiac disease was born. Some 8,000 years after making its debut, celiac was identified and named by a Greek physician known as Aretaeus of Cappadocia. In the first century A.D., Aretaeus documented information about, “The Coeliac Affection.” He named celiac disease, “koiliakos” derived from the Greek word for “abdomen”. In his descriptions of celiac Aretaeus stated, “If the stomach be irretentive of food and if it pass through undigested and crude, and nothing ascends into the body, we call such persons coeliacs”. While a name had been given to the disease, people with celiac still had no idea how to heal from the condition, and were still vastly unaware of the cause for their ailments. It wasn't until the early 19th Century that Dr. Mathew Baillie published his observations on celiac disease which he sited as, 'chronic diarrheal disorder causing malnutrition and characterized by a gas-distended abdomen'. In his observations, Dr. Baillie documented that some of his patients appeared to benefit from eating only rice. However important Dr. Baillie's findings were, they still went largely unnoticed by the medical community until 75 years later when an English doctor known as Dr. Samuel Gee, came into the scene. In 1888 Dr. Gee was working for the Great Ormond Street Hospital for Children in the United Kingdom when he demonstrated a set of clinical trials performed on children and adults with celiac disease. Dr. Gee was quoted as saying, “To regulate the food is the main part of treatment. The allowance of farinaceous foods must be small, but if the patient can be cured at all, it must be by means of diet.” As an example he sited a very sick child that was fed the best Dutch mussels every day during mussel season. The child thrived during mussel season, but as soon as the season was over, the child regressed and died before the next mussel season. In the 1920's, Sidney Hass presented the “Banana diet”. Sydney successfully treated 8 out of 10 children suffering with celiac disease using the banana diet. He claimed to have cured the 8 children that were on the banana diet, but the other 2 children not on the banana diet, died. The banana diet included the elimination of all bread, crackers, potatoes and cereals and for several decades, the banana diet was the only cure for celiac disease. Another important marker in the history of celiac disease were the findings by Dutch pediatrician, Dr. Willem Karel Dicke. In 1953 Dr. Dicke wrote his doctoral thesis for the University of Utrecht based on his observations that the ingestion of wheat proteins specifically, and not carbohydrates in general, were the cause of celiac disease. He was able to exemplify his findings based on bread shortages in the Netherlands during World War II. During the bread shortages, he found that the health of children with celiac improved tremendously. However, when the allied planes began dropping bread to the Netherlands, the same children quickly deteriorated. In the 1960's, it became evident that the best method for testing for celiac disease was to perform a biopsy. However, doctors were urged not to diagnose people as having celiac disease until it was proven that gluten was the cause for the damage. To determine if a patient had celiac disease, a biopsy would be performed to evaluate the damage done to the intestines. The patient would then be put on a gluten-free diet. Another biopsy would then be preformed to determine improvement in the intestines. After improvement the patient would be put back on a gluten diet, and another (3rd) biopsy would be preformed to determine reoccurring damages to the intestine, and thus the presence of celiac disease. This method was used for over 20 years as the best method for testing for celiac disease. Then in the 1980's studies by Dr. Stefano Guandalini, showed that the presence of celiac could be found in 95% of celiac cases by performing a single biopsy. In 1990 these findings helped create the new guidelines for celiac testing which were approved by ESPGHAN (European Society for Pediatric Gastroenterology). Also during this time, professionals starting recognizing celiac as an autoimmune disease and also began recognizing the correlation between gluten sensitivity and other autoimmune diseases. Here we are now in the year 2010; thirty years after the medical profession has successfully established the causes, tests and treatments for celiac disease, and thousands of years since celiac first made it's debut. Yet, as far as early diagnosis is concerned, we are still living in the dark ages. In this day and age, knowing what we know about celiac disease, childhood screening for celiac should already be mandatory. It's almost as if, when doctors were told in the 1960's to hold off on celiac diagnosis until they knew undoubtably that gluten was the cause for damage to intestines, they were never told, 'okay, now it's safe to diagnose for celiac'. Unfortunately, many (if not most) doctors still don't know how to appropriately diagnose patients for celiac disease, and therefor they continue to 'hold off' making celiac diagnoses, or misdiagnose regularly. Enforcing mandatory celiac screening in school age children has potential to eliminate the unnecessary suffering of millions of children and adults worldwide. My dearest hope is that we all get to see mandatory celiac testing in this lifetime. If you would like more information on “Celiac Awareness Month,” please check out the links below. The following links are trusted sites that also provide suggestions on how you can get involved and contribute to celiac awareness in your community. Celiac Disease Foundation Celiac Sprue Association Celiac Disease Timeline: Agricultural Revolution - celiac disease is born 1st Century A.D.- Aretaeus named celiac, “ koiliakos” 1st Century A. D.- Aretaeus documented“The Coeliac Affection.” 19th Century- Dr. Mathew Baillie published his observations on celiac 1888- Dr. Gee established the correlation between celiac and diet 1920's - Sydney Hass successfully treated celiac patients with “the banana diet” 1953 - Dr. Willem Karel Dicke confirmed wheat protein to be the cause for celiac disease 1960's - Biopsy established as the most accurate test for celiac 1980's - Dr. Stefano Guandalini established a single biopsy test for celiac 1990 - ESPGHAN established new guidelines for celiac biopsy testing Sources: Impact America's Silent Epidemic
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Celiac.com 05/21/2011 - May is National Celiac Disease Awareness month, as designated by the National Foundation for Celiac Awareness (NFCA), a 501©(3) non-profit organization dedicated to raising awareness and funding for celiac disease. That means a month of official and unofficial events to promote awareness of celiac disease. A few of the official events scheduled for National Celiac Disease Awareness month include: 1) Gluten-Free Food Labeling Summit The first annual Gluten-Free Food Labeling Summit will gather legislators, celiac disease researchers, gluten-free community leaders and food corporations as they call upon the Food and Drug Administration (FDA) to enforce a standard for safe and effective labeling of gluten-free food. When: Wednesday, May 4, 2011 Time: VIP Reception for sponsors, 5-8:30 p.m. Where: Embassy Suites Convention Center 900 10th Street Northwest Washington, DC 20001 2) #GFchat on Twitter (featuring Ask the Dietitian experts): May 10, 17, 24, 31 - Chats will take place on Tuesday evenings at 8 p.m. ET/5 p.m. PT. Those interested in participating should follow and use the hashtag #GFchat to keep the conversation in one central steam. 3) LIVE with Jill's List: Should You Be Gluten-Free? May 11 - Join LIVE with Jill's List to listen to and CHAT LIVE with celiac and gluten-free experts: * Mark Hyman, MD - NY Times Best Selling Author and family physician * Alice Bast - Founder and President of the National Foundation for Celiac Awareness * Jill Brack - Founder of GLOW Gluten Free Cookies 4) Celiac 60+: Meeting the Needs of the Mature Celiac This free online webinar will feature Veronica Alicea, M.B.A., R.D., a well-known dietetic consultant in the celiac and gluten-free fields, leading an hour-long discussion on the rising number of celiac diagnoses in the mature adult population. Wednesday, May 18th at 1 pm ET/10 am PT. 5) Catwalk for Celiac All proceeds will be donated to the National Foundation for Celiac Awareness. When: Thursday, May 19, 2011 Time: 6-10:30 p.m. Where: Fiesta Banquet Hall 255 Route 17 S Wood-Ridge, NJ 07075 Cost: $35 for students, $42 for adults 6) Celiac Awareness Night at the Mets Join the National Foundation for Celiac Awareness and R.O.C.K. Long Island for Celiac Awareness Night at the Mets. The New York Mets will be taking on the Philadelphia Phillies, and catch all the action from special sections in the Left Field Landing - tickets $35 or $20 each. Gluten-free concessions will be available. When: Friday, May 27, 2011 Time: 7:10 p.m. Where: Citi Field Flushing, NY Corporate promotions for Celiac Disease Awareness Month include: 7) Rudi's Unbelievably Good Gluten-Free Recipe Contest Submit your original gluten-free recipe using Rudi's Gluten-Free Bakery products (including their new buns and pizza crust) for the chance to win a trip to Colorado and star in an Alternative Appetites video with Dan Kohler! Some Important Contest Dates: April 18 – May 20: Recipe submissions accepted on the recipe contest tab on the Rudi’s Gluten-Free Bakery Facebook page April 18 – June 6: Online voting open to the public June 13: Top 3 finalists announced June 24: Top 3 finalists compete in Final Recipe Cook-Off at Restaurant 4580 in Boulder, Colorado. Check your local gluten-free or celiac disease support group for details on events in your area. Or get together with friends and family and create your own fun for Celiac Awareness Month!
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Celiac.com 05/17/2010 - Scott Adams and Ron Hoggan went on live radio last Saturday on the Love By Intuition Show with host Deborah Beauvais (Dreamvisions 7 Radio Network) in support of Celiac Disease Awareness Month. The show is broadcast live from Boston, MA on 1510 AM Revolution Boston, a progressive 50,000-watt station reaching 5 states locally, and on Energy Talk Radio in San Francisco, and it reaches over 1,000,000 listeners. The show will be re-broadcast several times and will hopefully reach many more listeners. The podcast is attached and can be downloaded or listened to from our server. Dreamvisions 7 Radio Network is holistic healing radio network with an eclectic group of radio hosts all with the common goal to help humankind by offering different modalities or programs combined with tools to bring awareness, joy and love to their listeners. Their vision is to continue to syndicate the Network of shows by having additional affiliates both terrestrial and Internet.
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Celiac.com 12/04/2009 - It’s been ten months since my diagnosis of celiac disease. The foggy thinking is clearing. I remember more and more details of the misery of living a life with gluten poisoning. Can you imagine having leg cramps so severe that when they finally subsided your legs were bruised? That was by far the worst pain I have ever experienced. And I would have those cramps four or five times a week. I was prescribed quinine and it didn’t help a bit, however I did not contract malaria. People would say to me, “You just need to eat bananas. You have a potassium deficiency.” They didn’t know I ate bananas everyday to no avail. The dull pains in my gut I had learned to ignore even though they were constant. The leg cramps that would come in the middle of the night I could not ignore. Other symptoms included extreme fatigue, lightheadedness, vision loss, anemia, and heart papaltations. Throw in depression, panic attacks, and a feeling of impending doom. My blood work was always a frightening revelation. It even scared my doctor and he’s not even me! You know it’s bad when the doctor is reading your lab results and both of his eyebrows arch up to the middle of his forehead. I also had vertigo and balance problems. The weight loss was extreme. Gluten had robbed me of nutrients necessary to live a normal life. I was suffering from malnutrition, although I ate constantly. Life wasn’t really working out like I had hoped. Can you blame me when I say I really hate gluten? I hate gluten as much as I hate Adolph Hitler. It is insidious. All of that pain was caused by that little protein called gluten. It almost killed me. I won’t ever consciously eat gluten again no matter what drugs are developed to neutralize it. I feel like the classic jilted lover when it comes to gluten. I wouldn’t take gluten back for any amount of money. I would take the drugs only to insure myself in case of accidental ingestion when eating out at a restaurant or something to that effect. When I am at the grocery store I will not even walk down the bread aisle. I hate the smell of fresh bread. I really believe everyone would be better off if they went gluten free. However, it’s not going to happen. The best thing about celiac disease is that once you eliminate gluten from your diet you start getting better in a hurry. What an exciting journey these past ten months have been! I have gained 58 pounds. I feel so strong that sometimes when I walk down the street I hope someone will take a swing at me! Unless he’s a professional fighter I don’t think he’ll knock me to the pavement on the first swing. Maybe I exaggerate a bit, but what I am trying to say is that I have a feeling of well-being that I never knew possible. I feel so good I want to shout out to the neighborhood, “I FEEL GOOD!” (cue the James Brown song here) “I KNEW THAT I WOULD NOW!” What is exciting is that some of the research is very optimistic. I recommend reading some of Dr. Ron Hoggan’s articles on the cutting edge discoveries that could possibly neutralize the toxic effects of gluten in celiacs. Larazotide Acetate could be the miracle drug celiacs and other autoimmune sufferers are hoping for. I think you will be hearing a lot more about breakthroughs in the near future. I am so grateful for Dr. Hoggan, Scott Adams, Dr. Peter Green, the research team at the University of Maryland, Dr. Alessio Fasano and many others who are lending their brilliance to this puzzling malady. I marvel at the depth of their knowledge and passion for discovery. Unfortunately, I am not so gifted. I can only thank them and reap the benefits of their work. Reading Recommendations: If you aren’t already familiar with The Journal of Gluten Sensitivity you can subscribe through a link here at Celiac.com. You will find much information and you will be encouraged at the current work being done in this field. I highly recommend the following books for the newly diagnosed celiac: -Celiac Disease and Living Gluten-Free – Jules E. Dowler Shepard (a great personal story honestly told by a smart author, and lots of recipes) -Celiac Disease a Hidden Epidemic – Peter Green. M.D. and Rory Jones (lots of science and answers to your questions here) -The Gluten-Free Diet – A Gluten Free Survival Guide – Elisabeth Hasselbeck (another honest personal testimony and lots of graphs, charts, and recipes) All of the above have done much research and have exhaustive indexes. Well worth the investment.
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Celiac.com 08/31/2006 - On July 27, 2006, Representative Nita Lowey (D - NY) introduced H.Con.Res. 457, which, if passed, would recognize the month of May as national “Celiac Awareness Month.” The bill also requests an increase in federal funding for celiac disease research. Rep. Lowey was the driving force in Congress in support of the Food Allergen Labeling and Consumer Protection Act that passed in 1994, which requires food manufacturers to list the top eight allergens on their products’ ingredient labels. Celiac.com supports Rep. Lowey in her efforts to raise celiac disease awareness, and asks you to get involved. Please contact your representatives in congress and ask them to support H.Con.Res. 457—to do so simply visit: http://capwiz.com/celiac/issues/bills/?bill=8945821
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