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Bfofaceliac94 posted a topic in Celiac Disease - Friends and Loved Ones of CeliacsHi i'm new to this, my girlfriend has been diagnosed for 2 years now with celiac disease and with me being a non celiac. I try my hardest to still keep eating gluten but also try to not get her sick.I'd rather have her happy and healthy than eat gluten though. It's hard because i hate seeing her sick and miserable. Any suggestions would be great. Along with the celiac disease my girlfriend is also allergic to yeast (cross reactive or it acts the same as gluten) and is also allergic to dairy,soy,peanuts,eggs.
Hello my name is Anne. I have officially been diagnosed with celiac disease. It all started when I became so tired that I could barely move. I had my thyroid tested and of course it was horrible. My doctor said that everything would get better when I started my medication. Umm... He was wrong. We then decided to take some blood tests and my liver scores were elevated. My weight also had shot up around 6 pounds in a month. The doc decided to watch my liver scores and directed me to come back in a month, hoping they would decrease below the "high 35" mark on the blood test. As I dragged myself around doing my normal routines. I went to another dr who thought I had possibly cystic fibrosis and wanted me to have a colonoscopy. Boy was I mad! I really didn't want to do that! Nope!! It actually took me eventually 5 office visits to my endo dr before he talked me into doing this horrible thing! Anyways back to the liver.... As I kept going the liver tests kept increasing. Doubling in fact and so did the weight. In 6 months my liver went from 98 to a whopping 867 and I gained a total of 45 pounds. I was a mess. The doctor hadn't a clue. He was at a loss. I finally made my appt to have my colonoscopy to find out what was causing such pain in my stomach. As I laid tense and nervous. He assured me all would be well. Umm... I awoke to some news I really didn't ever expect!!! This doctor has been doing colonoscopies for 20 years and never in his life has he ever seen a small intestine in such disrepair. He said it was awful and without a doubt I had celiac disease and probably have had it for years, if not my whole life. As I left and started investigating my new life. I realized that my entire existence had been fighting weight gain. I would blow up and shrink. Blow up and shrink. I became a vegetarian in 2004 and started eating only cereal due to a massive car accident. I lost so much weight and finally felt wonderful again. It happened to be rice Krispy's. Knowing now that they r not gluten free... Due to contamination, I think they were enough to just get my body close to where it needed to be.... I however didn't know this and started gaining the weight again just by changing cereal. When I went back to check my liver scores after eating NOTHING with gluten. I found that my normal 25 year doctor did not believe I had celiac disease. He basically said that I weighed entirely to much to have something like this and usually people diagnosed with this are skinny, nearly starving and they have IBS constantly. Well I didn't. I gained weight. I didn't have IBS. if anything I was the exact opposite and couldn't go at all.... I was exactly everything against the rule book. I was a big girl with a bad liver in his eyes, until my liver test came back completely normal. 100% normal. A score of 27. In one month it had gone right back down. Now it has been three months and I have had many ups and downs over having celiac. I was raised in the south. I cooked southern. I loved to cook and I she a huge skinny family that loves to eat. It's been hard and on many days I find that I just don't eat much or anything at all. I work too long and too hard and I am petrified I will eat something contaminated. I also cannot seem to get my gluten level below a 4 which is where my endo doctor prefers it to be.... I am sitting strong at 8. But hey.... It's better then 98 where it was previous. I guess I just need some support from people and some help knowing what to eat. I love in my car Monday-Friday. I work on the go and I don't know how to change my house into a gluten diet without changing my children and husbands lives too. I also wanted to let people know that u don't have to be skinny as a rail or have emergency trips to the bathroom to have celiac. It could be simply an unexpected weight gain with massive exhaustion like myself. Any thoughts would be sincerely appreciated. I just need some advice and support on what to eat and what products to use. I have been doing this completely alone and it's beginning to get nerve wracking. I miss my old food and sometimes I just want to pretend like it never happened. However it isn't worth the feeling of dragging myself around. Thanks so much Anne