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Showing results for tags 'newly diagnosed'.
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Celiac.com 05/04/2024 - Congratulations on taking the proactive step to undergo a celiac disease blood panel and/or endoscopy! While receiving positive celiac results can initially be overwhelming, it's essential to recognize that you've now embarked on a journey towards better health and well-being. Understanding your diagnosis is the first crucial step in managing celiac disease effectively, and with the right knowledge and support, you can navigate this path with confidence and optimism. Understanding Your Celiac Disease Diagnosis Being diagnosed with celiac disease can be a significant moment, often filled with a range of emotions including surprise, confusion, and sometimes even panic. It's important to understand that celiac disease is a manageable condition, and with the right approach, everything can indeed get better soon. Embracing the Gluten-Free Lifestyle One of the most significant steps you can take after a celiac disease diagnosis is to embrace a gluten-free lifestyle. While it may seem daunting at first, there are now countless resources, support groups, gluten-free products and recipes available to make this transition smoother. Remember, most people with celiac disease report feeling significantly better once they adopt a strict gluten-free diet, and many of the health risks associated with the disease will disappear after going on the diet. Seeking Support and Resources Finally, don't hesitate to seek support and utilize available resources. Joining celiac disease support groups, both online and offline, can provide valuable insights, tips, and emotional support from others who have walked a similar path. Additionally, working closely with healthcare professionals, such as registered dietitians specializing in celiac disease, can help you navigate dietary challenges and ensure optimal management of your condition. Embracing Hope and Optimism Embarking on a gluten-free lifestyle after a celiac disease diagnosis is a pivotal step towards reclaiming your health and well-being. While the journey may have its challenges, staying committed to a strict gluten-free diet can lead to significant improvements in your symptoms over time. It's important to note that the time frame for symptom improvement can vary widely from person to person. Some individuals may experience relief from certain symptoms, such as digestive issues, within a few weeks of starting a gluten-free diet. Others may take several months to notice substantial improvements, especially for symptoms like fatigue, skin rashes, or neurological issues. Consistency and diligence in adhering to a gluten-free diet are key factors in how quickly you may experience symptom relief. Avoiding even small traces of gluten is crucial, as exposure can trigger immune responses and prolong symptom persistence. Many people celiac disease have nutrient deficiencies that require supplementation, so be sure to talk to your doctor about getting screened for any, and make sure any supplements you take are gluten-free. Correcting any nutrient deficiencies can help speed up your recovery. In addition to dietary changes, incorporating healthy lifestyle habits such as regular exercise, stress management, and adequate sleep can also contribute to overall well-being and symptom alleviation. Remember, every individual's journey with celiac disease is unique, and it's essential to work closely with healthcare professionals, such as dietitians and gastroenterologists, to monitor your progress, address any concerns, and make necessary adjustments to optimize your health outcomes. With patience, perseverance, and the right support system, many individuals with celiac disease find that their symptoms improve significantly. While a celiac disease diagnosis may initially feel overwhelming, it's crucial to approach it with hope and optimism. With the right knowledge, support, and lifestyle adjustments, you can manage celiac disease effectively and look forward to a healthier, happier future. Don't panic – everything will indeed get better soon!
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Hello. I am newly diagnosed, 5 weeks post endoscopy, started gluten-free that day. My symptoms were never that severe, just periodic mid-back ache, short term fatigue and D that I couldn't figure out for a couple years. I have a question that I can't seem to find scientific answers to, despite lots of reading. Because my symptoms weren't that severe, I don't expect to be able to sense if I've accidentally taken in a little gluten. However, from what I understand, small amounts could cause a response from my immune system, and even if I don't feel sick, would set me up for increased risk for all the secondary issues (cancer, other auto-immune issues, etc). So, that leaves me needing to avoid small gluten exposures for future health prevention, not for fear of getting notably sick. From my research it appears the daily limit is 10 mg, or 1/250th of a slice of bread. My very scientific husband and I have been using this number to try to figure out how to run our kitchen (family of 4 including two teenagers). To me, this means avoid all crumbs, have my own butter, toaster, cutting board, etc, which I've done. But every post I read recommends to use your own silicone spoons, wooden spatulas, tupperware, etc, even though it's been washed. I cannot imagine the microscopic gluten on a clean wooden spoon would add up to 10mg of exposure per day. I gather there are many people who are much more sensitive than I am. But my question is, given that I'm not that sensitive, from a scientific point of view, is it ok to share clean utensils, tupperware etc and assume I am keeping my exposure to <10mg/day? Thank you for reading!
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Hello! I have my first post-diagnosis GI appointment on Friday. I was diagnosed with celiac disease via blood test, and DH. What tests do I request? What do I ask? I don't know enough to know what to ask. Thank you!
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Celiac.com 08/21/2019 - Celiac disease is an autoimmune disorder triggered by gluten consumption. Celiac disease affects about 1% of the population and is often marked by gastrointestinal symptoms, weight loss, and anemia. A team of researchers recently set out to evaluate the presence of neurologic deficits and determine whether the presence of antibodies to Transglutaminase 6 (TG6) increases the risk of neurologic defects in newly diagnosed celiac disease patients. The research team included Marios Hadjivassiliou; Iain D.Croall; Panagiotis Zis; Ptolemaios G. Sarrigiannis; David S. Sanders; Pascale Aeschlimann; Richard A. Grünewald; Paul A. Armitage; Daniel Connolly; Daniel Aeschlimann; and Nigel Hoggard. They are variously affiliated with the Academic Department of Neurosciences, Sheffield Teaching Hospitals NHS Trust, Sheffield, United Kingdom; the Department of Gastroenterology, Sheffield Teaching Hospitals NHS Trust, Sheffield, United Kingdom; the Department of Neuroradiology, Sheffield Teaching Hospitals National Health Service Trust, Sheffield, United Kingdom; and the Matrix Biology and Tissue Repair Research Unit, College of Biomedical and Life Sciences, School of Dentistry, Cardiff University, Cardiff, United Kingdom. The research team conducted a prospective cohort study of 100 consecutive patients newly diagnosed with celiac disease, based on gastroscopy and duodenal biopsy, at a secondary-care gastroenterology center. The team collected data on neurologic history, and assessed patients by clinical exams, magnetic resonance imaging of the brain, magnetic resonance (MR) spectroscopy of the cerebellum, and measurements of antibodies against TG6 in serum samples. The first 52 patients received repeat MR spectroscopy at 1 year after a gluten-free diet. The main goal was to determine if antibodies against TG6 can be used to identify patients with celiac disease and neurologic dysfunction. The team found gait instability in about 1 in four of the patients, persisting sensory symptoms in 12%, and frequent headaches in 42%. They also found gait ataxia in 29% of patients. Sixty percent of patients had abnormal results from magnetic resonance imaging, while 47% had abnormal results from MR spectroscopy of the cerebellum, and 25% had brain white matter lesions beyond those expected for their age group. Patients with abnormal MR spectroscopy of the cerebellum showed improved results after 1-year on a gluten-free diet. This study showed that neurologic deficits were common in people newly diagnosed celiac disease, and that 40% of those patients had circulating antibodies against TG6. The team found a significant reduction in volume of specific brain regions in patients with TG6 autoantibodies, providing evidence for a link between autoimmunity to TG6 and brain atrophy in patients with celiac disease. The results of this study emphasize the need for early diagnosis, better clinical awareness of the neurologic aspects of celiac disease, and the promotion of a strict gluten-free diet so that patients can avoid permanent neurologic damage. Read more in Clinical Gastroenterology and Hepatology
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Hi all, I just signed up for this forum because I am newly diagnosed. I thought I was "gluten-sensitive" so have been avoiding gluten since September, but am now as careful as I can possibly be. I try to avoid gluten like the plague, obviously. I was in my cousin's wedding recently (who is also gluten-free) and was told that all the food I was eating at both the rehearsal dinner and the wedding itself was safe. I have now been very sick since the rehearsal dinner, more sick than I have been since not eating gluten. I asked my cousin about it, and she has been sort of sick too (she's not celiac, just gluten-sensitive). I found out her dad, my uncle (who made lasagna for the rehearsal dinner), doesn't "believe" in gluten-free/celiac and joked to her about using wheat noodles to see if anyone would even notice. I'm upset about so many things - 1)That anyone would do that, especially my own family, 2)That my cousin didn't tell me about this conversation and give me the choice to not eat anything at the dinner, and 3)That people think celiac is something to not be believed. I was just wanting to reach out to see if anyone else has experienced anything like this. Also, any suggestions for healing myself. I'm severely fatigued with headaches and cracks in the corners of my mouth, severe stomach pains and bloating (especially after eating anything), and horrible depression. Thanks!
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Hi all! I'm new to the community, and would love to hear about what I can expect as I enter a new gluten-free life and begin recovery. I understand that everybody's experiences are very different, but I'm interested in hearing a range of experiences. For those of you that had lived a gluten-filled life until diagnosis, what was your experience when you started a true gluten-free diet for the first time in your life? The bads and the goods? Thanks for sharing your stories with me! I'm excited to (hopefully) start recovering and enjoy a life of energy and happiness and less pain!
- 9 replies
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- adjusting to a gluten-free diet
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Hi everyone My 7 year old daughter was juat diagnosed 2 days ago by a celiac blood test (after over 2 years of constant stomach aches, constipation, unexplained anemia and headaches). Should she have a biopsy done as well? I'm on the fence as it can be a little invasive and the bloodwork already indicated that she has the disease. Her GP doesn't think it's needed. We put her on gluten free right away so she has been gluten free for 2 days now. If we decide to to the biopsy, does she need to go back on gluten or will the short time she's been off not make a difference on the biopsy? Part of me wants her to have the biopsy to see what kind of damage is already done. But I don't want to put her through that if it really isn't needed. Does it make a difference for her medically? Thanks in advance This is all so new and the more I read the more scary it seems.
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I was diagnosed with Celiac October of 2015. I was very unhappy when I received the initial diagnosis and spent a few months angry and frustrated as I adjusted to a gluten-free diet. I managed to change my diet and my attitude as I slowly became thankful that I had a disease that could be treated by just avoiding gluten. Fast forward to this week, I was diagnosed with Diabetes* (they think it's Type 2, but we're still testing to see if it's Type 1 or Type 2 or a hybrid) and I feel like I'm right back where I was when I first received my Celiac diagnosis in 2015, but worse, because now there's a whole universe of foods I have to be careful with (in addition to having to take medication with gross side effects, change my physical activity, and test my blood glucose levels). Many of the gluten-free substitutes I relied upon are now unacceptable (because of their high carb content) and items that used to be completely safe (fruit, vegetables) now have to be monitored and recorded. I'm frustrated and sad and feel like I'm back at square one. My initial internet searches for Celiac Diabetics haven't turned up much in terms of community. When I was first diagnosed with Celiac, these message boards were really helpful. I'm hoping to find other people who have the co-diagnoses and to learn how they coped and what recipes and products they rely on. *I received an initial Diabetes Type 2 diagnosis (based off one in-range A1C, which is not the standard for diagnosis, but the doctor had erred on the side of an early diagnosis to get me into the diabetes management classes) when I was diagnosed Celiac, but my A1Cs went back into normal range once I went on a gluten-free diet, so the diagnosis was rescinded (with the thinking that the insulin resistance was attributed to the cortisol and adrenaline of a gluten-eating Celiac).
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