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Jefferson Adams posted an article in Additional Celiac Disease ConcernsCeliac.com 12/18/2018 - Prescriptions for gluten-free food will no longer be part of the UK’s vaunted national health care program in all places, due in part to the widespread availability of gluten-free foods at regular markets, and the high costs of maintaining the program. Starting Monday, December 3rd, 2018, gluten-free food will no longer be routinely available on prescription from any GP practice in the "Greater Nottingham" region for patients with celiac disease or dermatitis herpetiformis: a skin condition linked to celiac disease. Patients with such prescriptions, including children, will be notified by mail of the pending changes, and will receive information, help and support for managing their gluten-free diets. Coming at a time of "severe financial pressures", the decision ostensibly concerns patients in Nottingham, Rushcliffe, Gedling, Broxtowe and Hucknall, where patients were eligible for a mix of bread and flour each month. In the city, patients could get a range of products like bread, pasta, mix and cereal. Explaining the decision, Dr Hugh Porter, chair of the Nottingham City Clinical Commissioning Group, said "The cost to the NHS of a loaf of gluten-free bread is much higher than those bought in a supermarket.” Dr. Porter also adds that the Commissioning Group is planning a detailed evaluation process “to assess the effects of these changes over the coming year."
Jefferson Adams posted an article in Additional Celiac Disease ConcernsCeliac.com 07/24/2018 - The UK is in the midst of a national evaluation and reshaping of gluten-free prescription practices for people with celiac disease. Meanwhile, local health authorities in Calderdale, UK, are catching heat for a plan to consult with local people on proposed prescription cuts for gluten-free foods, branded medications and over the counter supermarket items. Critics, including leading charity, Coeliac UK, strongly oppose cutting gluten-free prescriptions for patients in Calderdale and elsewhere. They say the plan is a pointless waste of time and money, as results are due in from a nationwide consultation. Chief executive Sarah Sleet described the move by the NHS Calderdale Clinical Commissioning Group (CCG) as a poor use of public money. The Commissioning Group claims that consulting with local people over the plans could save £800,000 a year, while Sleet warns that, if approved, the move will result in “health inequality.” The Commissioning Group is proposing to eliminate funding of certain gluten-free products on prescription, thus saving £120,000. The plan would affect all people who receive gluten-free foods on prescription. Coeliac UK contends that any reduction or elimination of gluten-free prescriptions will negatively impact the ability of celiac patients, to access needed gluten-free foods. The consultation exercise in Calderdale is slated to run through December 4. Meanwhile, Results are forthcoming from a recently concluded national consultation on gluten-free prescription practices in the UK. Stay tuned for more on what these decisions mean for UK residents living with celiac disease. See the CCG's online consultation survey.
Hi guys, this is a question specifically for those living in the UK who are under the NHS. If any of you have read my previous posts on iga deficiency you'll know i've been finding it difficult trying to get blood tests to check if i have a deficiency or not. I was just wondering if anyone in the UK, but also if anyone has had issues regarding this issue internationally your experiences are welcome too. I ask people within the UK, because I am being told by different doctors that IGA deficiency isn't available on NHS, but that it could be, and then i have also been told that depending on the results of my celiac panel they would test further for iga deficency.. But surely if you have a false negative celiac panel (which i have many times) then you should check for an iga deficiency or at least could be worth checking for that? But its so hard to get any doctor to listen properly. If its available on NHS, i'd like to try my hardest to get it done on the NHS as I am currently out of work because of how chronic my digestive issues are now. Maybe i've got my wires crossed on iga deficiency in which case if anyone has any links, or would like to correct me with some facts, that would be greatly appreciated. I ask because I have booked another appointment to see the fourth doctor within a month, and would like some idea on how to approach it and to know if i can request an iga deficiency blood test ( i believe its Igg blood test?) Any help appreciated, the sooner the better! thanks guys