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Aleka Munroe posted a topic in Related Disorders & Celiac ResearchI would like to hear from Celiacs with Chronic Kidney Disease. Recently there has been more research of a correlation between the two. I was recently diagnosed. I have been able to find a little information on a combined renal and gluten free diet. What I have not discovered yet is the comparison of gluten free flours and wheat flour in terms of phosphorus content levels. Here is a synopsis of my sudden diagnosis. I hope it helps someone else, as well as finding someone to support me. About a year ago the night sweats unrelated to menopause started, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.
Hello guys this is my first post forgive the long post but my situation is complicated. I just got out of bed as I had to cause of Night Sweats, I hate them, I did go with my wife and kids to the centre of town (London) to see a chinese TCM doc and so we went to China town to a restaurant, its been cold also and the stress of the kids having tantrums I think sent me overboard. I must say though for 3 nights have had terrible night sweats BUT the previous 3 days I ate wheat and dairy which I usually avoid, I had ricotta cheese and Italian wheat bread, gluten free lasagna but has cheese/ and my wife made chinese food with soy sauce, chinese restaurant food. My symptoms are sneezing, roof of the mouth hurts and when I sneeze its as if Ive just torn a layer of skin or something from the roof of the mouth, night sweats, mucus in the mornings. I suppose the stress I have in my life doesnt help, Im lowering my medication (Paxil) and hope to reduce and stop Prilosec also as I believe it maybe the reason I have a damaged intestine or leaky gut seeing as chronic low stomach acid could allow bad bacteria to migrate from the stomach to the duodenum etc, low stomach acid food arriving in the duodenum doesnt have the acid trigger that you need to send a message to the pancreas to digest the food and so partially digested food feeds the bad bacteria, right? I also did coffee enemas for 9yrs daily an this may have damaged my duodenum/small intestine cause bile is released each time and bile is slightly corrosive? I stopped doing them now but not sure which diet to follow, Ive heard of FODMAPs diet, SCD (Specific Carbohydrate Diet), Mcdoughall high starch low fat/oil diet, Keto, low carb, Mediterranean. Im confused which diet to follow cause I have a few issues, fatty liver, gallbladder polyps, GERD/Hiatal Hernia, depression/Anxiety all diagnosed but the leaky gut, or Gluten intolerance hasn't been diagnosed, maybe I should get an allaergy test, I think I'll test positive even for water at least it seems this way, that my body is becoming intolerant to many foods and the list seems like its growing. I wasn't gluten intolerant from birth, this is what the Chinese doc said to me yesterday, she said I doubt if your Gluten problem started 4 yrs ago, usually people have it from birth, i thought what is she talking about, I', Italian and I ate mamas lasagna, spaghetti, bolognese, minestrone etc as Italians we ate a paste based meal everyday and this was for decades I ate wheat, I ate bread as well and processed foods, surely I would have known sooner and reacted sooner? I started reacting 4 yrs ago and intially was going nuts cause I thought I had dust allergy and thought |I was allergic to my home, to mold, insects, the air, I just didnt make the food connection, until I read about Gluten, then i started to avoid Gluten and started to eat Gluten free bread (took some getting used to), finally after 3 to 4 yrs some relief, now I cannot eat Gluten and even Dairy, sometimes I find sugar/stress and potato skins gives me auto immune problem symptoms like red hot ear (Relapsing polychondritis?) This is just my intro I have written a longer letter to give to a doc, but not sure which doc could help me, I will send it in a few minutes once Ive finished it, the chinese doc I saw says we cannot shrink the polyp and is too expensive with her herbs but will try for a few weeks to see if I feel better, the reason why I like the chinese approach is that they treat you whole-istically cause I have too many things going on for a one size fits all approach, one remedy or diet may harm or worsen another problem that I have. Thankyou guys for reading any help or advice will be much appreciated, thanks. Gerald
designerstubble posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Diseasehello everyone i'm new to all of this celiac thing having only been diagnosed at aged 39 (unofficially) 5 weeks ago. a history of at least 5 years of gi problems, increasing in severity the last 2 years. have low ferritin (4), low haemaglobin (9.2) borderline deficient b12. i have been gluten-free for almost 5 weeks and initially began to feel better quickly and i was SO happy ... the thing is 3 weeks into being gluten-free i had a terrible attack of aches and pains, feeling cold and terrible night sweats for a week. it seemed to resolve itself and i have slowly been building myself back up again... then again 4 nights ago i started feeling cold and sweating profusely through the night, i have also had loose bowels, no aches or pains though, but could sleep half the day. i am at my wits end, i'm so depressed, everything i google with night sweats keeps coming back to lymphoma... and obviously anything you google with celiac mortality rates comes back to small bowel cancer and lymphoma etc.... i'm already depressed and anxious, but now i just dont know what to do... i'm so worried i have something sinister mostly because of these night sweats (they are terrible) i cant sleep after i wake at around 3am drenched. i have been very careful to be gluten-free and don't believe i have cross contaminated. i'm trying so hard to keep things in perspective, as i have a little 5 year old boy to look after. i am so frightened, and very stressed... can't get an appointment with my doctor until 8days from now (as usual)... and i am so sick of docs and hospitals... colonoscopy came back neg, i am waiting for an endoscopy and an MRI of my intestines, been waiting 6 weeks and its torture. pleeeeeeease anyone, night sweats????? appreciate ANY help, thank you