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  1. Hi there, I was just diagnosed (well sort of, the blood test was positive and the nurse said she was nearly certain based on what she saw in the biopsy but are waiting results from the samples) and Im dealing with a lot of the emotional stress with seemingly none of the support. I have received next to no info on how to actually go gluten free from any doctor and that is only part of the problem. Im wondering how long I could have possibly had this? Ive had symptoms that dont actually match celiac disease very well but closely enough? for years but none of them stem from eating foods containing gluten. Every once in a while (maybe 2-4 times a year) I have these attacks where no matter what I eat I get sick, during these attacks I avoided food but when Im finally able to eat again the foods that provide the most relief and ease as bagels and crackers. I cant even get liquids down have the time and soup always sits too heavily. I dont get reactions from gluten at all. The only reason I was tested in the first place was because I had taken some new hormone pill for an unrelated illness that set off a bad reaction at first and I just never got better. I do have to say after reading a few of these forums Im terrified about what awaits me in my 30's and 40's. Ive read so many horror stories about pain and complications I have to say Im in a little bit of a panic. I dont know if I can take anymore daily pain. I have endometriosis and pcos (poly cystic ovarian syndrome) and Im already in pain that some days is just too much to take. On top of that dealing with years of depression and anxiety (that I pray are not caused by celiac because that would mean Ive have celiac since I was 13). I have to wonder how much damage has been done and if theres a way I can avoid suffering that much more. Sorry this was long and a little hard o follow Im sure but I feel Ive received no information or support from my doctors and I dont know where else to turn.
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